2003 Celiac.com Feedback
In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease, and since then it has become an invaluable resource to people worldwide who seek information about celiac disease and the gluten-free diet.
In 1998 I created The Gluten-Free Mall, Your Special Diet Superstore! which was also another Internet first—it was the first gluten-free food site to offer a shopping cart-style interface, and the ability for people to order gluten-free products manufactured by many different companies at a single Web site.
I am also co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.
Just wanted you to know that Ive just finished reading all three issues
of the Scott Free
newsletter. It is excellent! It is very professional; interesting articles. The
newsletter seems to have started at a good time--I was just diagnosed with Celiac Disease
in October 2002, and have been emersing myself in information about it. Thank you and
keep up the good work!!
Date: Thu, 23 Jan 2003 12:35:28 -0600
Thanks for the great website. I refer to it and recommend it all the
time. Also I love your Scott Free newsletter. I have formed a local support
group and used reference material from celiac.com all the time. You have
helped many people.
Keep up the good work!
Date: Fri, 7 Feb 2003 11:35:52 -0800 (PST)
Subject: Thank you
This is just a simple comment saying thank you for this website. I just
turned 19 and have had stomach problems for 11 years now. Ive been to
doctors before telling me that they thought it was nothing and so forth,
and then I came upon this website and did a little "testing"
as far as what I ate and what the results were. Sure enough I self-diagnosed
myself and went on a Gluten-Free Diet after making another doctors appointment.
It took nearly 2 months to finally get to the Doctor, but by then I had
already determined I knew what was wrong with my body and had told him
my situation and what I believed to be the problem. I had blood work done
and they determined that I had celiac disease. I just want to thank you
because you have no idea how much this boosts my emotions and my
self-esteem, b/c i will finally be able to gain weight, and most importantly be able to live a Healthy life. Thank you so much
Date: Sat, 8 Mar 2003 15:35:00 EST
Subject: Re: 2002 Summer Newsletter
Your website was my salvation when I was recently diagnosed with Celiac Disease. The doctor just told me to go on a gluten free diet and that was all the info I got. I ordered Shelly Longs book and the info I got from your site has given me the info I needed to start this whole new life style. Thank you for your website and the hard work (I know) you do to maintain and update it!
Subject: Scott-Free Newsletter
Date: Mon, 17 Mar 2003 09:10:50 -0500
I dont usually send testimonials, but your newsletter is an excellent
source of up-to-date information about Celiac Disease. I highly recommend
it to anyone with celiac disease.
Subject: Re: newsletter
Date: Tue, 15 Apr 2003 15:48:48 -0600
Thanks Scott, I want to tell you how much I appreciate your site. I am
a mental health therapist and am accustomed to reading the original articles
in journals. In several cases, I read the original article and your review
later. I found your reviews to be on track in conveying the essential
information in a vocabulary that is accessible to the layperson. Your
site is my first stop when I need to do some research on a celiac topic.
The Scott-Free newsletter appears to be maintaining that high standard
already. Thank you for making being the mom of a kid with celiac a little
Date: Thu, 15 May 2003 21:29:09 EDT
Subject: I just want to say thank you!
I am 22 years old and I have been suffering with this disease for a number of years. My stomach would wake me up everyday with severe intestinal cramps and then I would commandeer the bathroom for about an hour (I am sure you know what I mean). Sometimes my intestines would wake me up in the middle of the night and I would be in the bathroom for hours. Just like you I have had a barrage of tests ranging from liver tests to being diagnosed with IBS. I did everything I could to restrict my diet (except eliminating gluten of course) but nothing seemed to help, until I began to eat less and less food because I was literally scared to eat. I gave up on doctors or ever possibly finding a cure. I began to rapidly lose weight, I scared my friends and family who automatically thought I was an anorexic (which is not the case fear of becoming fat and fear of food because it will make you ill are two different things). So anyway my mother found this page emailed it to me and I thought "I can give this diet a shot? Why not?", I am happy to report that I have not had the slightest bit of pain since starting this diet. I wake up in the morning and I could honestly cry because it is such a relief to not feel sick everyday with no apparent cause. I apologize for rambling but I want to thank you from the bottom of my heart because without you I might have died. So thank you again. You are a Godsend.
Date: Wed, 25 Jun 2003 09:33:42 -0400
Subject: Re: Celiac.com
I must tell you that your site celiac.com saved my life. Its a long story, but I was just diagnosed with celiac at the age of 45 after a life time of stomach, bowel, joint and muscle problems. With the help of a nutritionist and your site, I was properly diagnosed and Im feeling better than I have ever felt in my life! Thank you for your continued hard work. We must continue to get the word out to friends, family and especially doctors, who seem to feel that celiac is not a major illness.
Take care and thanks a million.
Date: Sat, 12 Jul 2003 18:12:04 -0400
Subject: Thank you!!!!
I just found your site. It is absolutely incredible. My 18 year old son is celiac and some(most) of the recipes are so fantastic I cant wait to make them. I am just as excited about them as he is. He is going off to university in Sept. and most of the recipes say they keep well. One less worry for me, to know he has food he can eat!
Thank you so very much for all the work you have put into your site. You are a God-send!
Date: Tue, 5 Aug 2003 22:09:40 EDT
I would like to congratulate you on your website, and newsletters.
The information is fantastic and very helpful.. Recently diagnosed with gluten intolerance (yeast and casein), I find your site one of the best for being informative.
thanks, Linda Rendely
Subject: Thank you
Date: Tue, 30 Sep 2003 15:30:33 -0700
The website is fabulous, well-constructed, and very useful. Thank you so much!
Subject: RE: Scott-Free Newsletter - Technical Support
Date: Wed, 10 Dec 2003 08:56:39 -0500
Thanks for the info on the newsletter. Please accept my sincere thank you
for all the effort and work you put into producing the newsletter. I find
it to be a most valuable resource in managing my sons celiacs disease.
Best wishes for a safe and happy holiday season to you and your family.
Date: Sun, 14 Dec 2003 09:15:14 -0700
Subject: Re: Celiac.com
Scott, thanks SO much for your help. I dont know how much of a one-person
effort your newsletter is, but kudos to you and those who might be helping
you. My daughter was not physically well enough to work but was always
looking for ways in which to help others. Her ideas were grand but her
diseases (diabetes and glucogen storage disease) were too devastating
and her life all too short. She would have been 28 on December 18. I applaud
your efforts to pass along such vital information to those who are gluten
Have a blessed holiday season!
Date: Sun, 21 Dec 2003 06:52:52 -0600
Celiac.com Update!Dear Mr. Adams,
I just had to send a note of thanks to you...I appreciate all the information you provide through celiac.com. Very informative and helpful!
Coming to learn about celiac disease/gluten intolerance in my family has answered many questions with health problems throughout the years. Having the information from your web site has been a primary source of information for us as we move from chronic sickness to new vitality. Thanks so much...you are a blessing.
Grace and peace to you.
As always, Celiac.com welcomes your comments (see below).