Migraines, Carpal Tunnel Syndrome, Depression, Personality Change, and Psychosis Common in Celiac Disease

Wow - good information, even if it isn't very comforting. I wonder how they determined that the patients weren't nutritionally deficient - that was my first thought, that maybe the continued symptoms were due to a nutritional deficit.... Maybe there is a problem with uptake - ie. the blood values are normal, but the cells aren't taking in the nutrients appropriately. I guess a follow up study could be nutrient transport across cell membranes.

Thanks for the good summary.

If a doctor believed in the tooth fairy, I doubt reporting that would be such a notable thing:similarly, what doctors "believe" is irrelevant in the entire issue of celiac disease, because they have as a whole wholly rejected the entire condition based on total ignorance and usually no desire to relieve themselves of this malady of hyperignoranceimitosis, so as a result, they lack credibility on the entire topic. Once a study published what patients believe in any manner on celiac disease--whether it be on symptoms or what foods do or some basic elementary level quite apart from the physiologic details thought of as reflective of a higher learning process--THEN I'll accept the phrase of what anyone "believes."

Celiac runs on my whole dad side of the family we found out several yrs ago. Most of my family have intestinal symptoms, a few have the skin rash that goes with it. I had migraines at least 6 days a wk for yrs and was just trying to deal with them.

When my sister encouraged me to change my diet. I soon stopped having them except with an occasional one w my period. the first couple of weeks on the diet I wasn't convinced and had 1 piece of pizza i had a migraine several hrs later that lasted for 3 days and couldn't get out of bed. That was enough to convince me. If I accidentally eat wrong I definitely feel it!My grandmother has also been in a nursing home since her late 20s w schizophrenic symptoms which I've read might be related but we have never had her diet changed to see if they might improve. We think it might have been caused by severe emotional stress for her.

I wonder how long they followed people with neurological effects? I have been on the diet now for going on 9 years. My ataxia has improved greatly, my depression is now gone, I have regained reflexes in my legs and while my thought processes are still a bit effected I have come much farther than I expected. I have to wonder how strict the folks they tested were that were still developing or had unresolved neuro issues. How long since diagnosis? Was this study done in Europe where they routinely put Codex Wheat Starch in foods? Something that most US celiacs know better than to eat. I also had 'carpel tunnel' and had surgery for it. It wasn't carpel tunnel at all but parathesias that were misinterpreted by the doctor. But the doc did get lots of $$$ from the unneeded surgery. Oh and I have not had one single migraine since the day I was diagnosed, unless glutened or CC'd. For what it's worth.

Gluten contamination could be occurring at a molecular level undetectable by current assessments, possibly similar to homeopathy in which an element is diluted to the point at which only the wavelength of that element remains.

I have read numerous testimonies from people who improve neurological symptoms on a gluten free diet. I was recently diagnosed as gluten sensitive--I'm wondering if a gluten free diet is worth the effort. My symptoms are mostly neurological (left temple ache, left arm pain, right leg weakness, fatigue). Numerous tests have ruled out other conditions. I've also been diagnosed with eosinophilic esophagitis. Any thoughts on this?

I wonder how long they followed people with neurological effects? I have been on the diet now for going on 9 years. My ataxia has improved greatly, my depression is now gone, I have regained reflexes in my legs and while my thought processes are still a bit effected I have come much farther than I expected. I have to wonder how strict the folks they tested were that were still developing or had unresolved neuro issues. How long since diagnosis? Was this study done in Europe where they routinely put Codex Wheat Starch in foods? Something that most US celiacs know better than to eat. I also had 'carpel tunnel' and had surgery for it. It wasn't carpel tunnel at all but parathesias that were misinterpreted by the doctor. But the doc did get lots of $$$ from the unneeded surgery. Oh and I have not had one single migraine since the day I was diagnosed, unless glutened or CC'd. For what it's worth.

Your testimony gives me hope. I can't accept that neurological problems don't improve when we adhere to a gluten free diet. I have only been diagnosed for a year, but have noticed improvements with vertigo, and depression. I am determined to get better every day; it's a battle.

I have read numerous testimonies from people who improve neurological symptoms on a gluten free diet. I was recently diagnosed as gluten sensitive--I'm wondering if a gluten free diet is worth the effort. My symptoms are mostly neurological (left temple ache, left arm pain, right leg weakness, fatigue). Numerous tests have ruled out other conditions. I've also been diagnosed with eosinophilic esophagitis. Any thoughts on this?

Definitely go off gluten! As soon as possible. I developed postural orthostatic tachycardia syndrome, had uncontrollable shaking, fainting, brain fog, sudden learning disability, eye and mouth dryness, depression, severe pms, and so much more! Going off gluten improved all conditions and I have completely recovered from most.