Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate
  • Record is Archived

    This article is now archived and is closed to further replies.

    Scott Adams
    Scott Adams

    How can I convince my doctor to do these tests, and do them at an experienced lab?**

    Reviewed and edited by a celiac disease expert.

    Vijay Kumar, M.D., Research Associate Professor at the University of Buffalo and President and Director of IMMCO Diagnostics: Convincing the doctor initially depends upon the patient. However, the laboratory to which the test is sent should be available to answer questions the doctor may have. Our laboratory always encourages such questions.

    Karoly Horvath, M.D., Ph.D., Associate Professor of Pediatrics; Director, Peds GI & Nutrition Laboratory; University of Maryland at Baltimore: Lot of physicians in the USA did not get appropriate training to recognize the protean manifestations of celiac disease. However, if the classical symptoms are present--chronic diarrhea, weight loss, protuberant abdomen, foul-smelling stools, etc.--it is absolutely indicated to test the patients serum for antigliadin and antiendomysium antibodies.

    Celiac.com Sponsor (A12):
    Professionals participating in this discussion group are educating physicians on an almost daily basis. Generally, it is useful to supply the physician with a review article or a textbook chapter describing the values of serological tests and protean manifestations of celiac disease. If that does not help, you can ask the help of professionals participating in the Cel-Pro list. They have helped several patients by calling physicians and convincing them about the necessity of serological testing.



    User Feedback

    Recommended Comments

    Guest titanic

    Posted

    I am fighting all the systems of this and after reading this I hope my doctor will get me tested for this. I've lost so much weight and this diarrhea is getting bad so I hope my doctor will get me better soon.

    Link to comment
    Share on other sites


    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Scott Adams

    Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives.  He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Scott Adams
    Celiac.com 06/02/2020 - The symptoms of celiac disease can vary depending on how the type of celiac disease a person has. Celiac disease can be broken down into three types: The first type, classical, in which patients present with gastrointestinal symptoms, malabsorption syndrome and/or diarrhea. The second type, non-classical, in which patients experience extra-intestinal and/or gastrointestinal symptoms other than diarrhea. The third type, subclinical, with no visible symptoms. 
    There are Over 200 Signs and Symptoms of Celiac Disease
    Some patients have several of these signs and symptoms of celiac disease, some just a few. Many report non-gastrointestinal symptoms. 
    In one study, up to 80% of patients showed some symptoms. However, one study showed that nearly two-t...


    Jefferson Adams
    Celiac.com 02/01/2020 - Traditionally, gluten is defined as a cohesive, elastic protein that remains when starch is rinsed from wheat flour dough. Gluten is the stuff that makes bread soft and pliable. It's the stuff that makes wheat paste sticky. It's also what causes so much trouble for people with celiac disease. Here are some quick facts about gluten and gliadin.
    Gluten is actually made up of many different proteins. During digestion, the gut breaks down both gliadin and glutenin proteins into smaller units, called peptides, polypeptides or peptide chains. These peptide chains are made up of strings of amino acids--very much like beads on a string. 
    Gluten Triggers Immune Reaction in Celiac Disease
    Only wheat contains true gluten. However, rye and barley contain p...


    Scott Adams
    Celiac.com 05/26/2020 - One of the most popular questions we get is: Which grains are safe for people with celiac disease, and which are not?
    Unsafe Non-Gluten-Free Grains for Celiacs
    Wheat, Rye and Barley and comprise the short list of grains that are unsafe and forbidden for people with celiac disease.
    Unfortunately, there are a number of equally unsafe variants of these grains that go by other names. 
    Durum and semolina are wheat varieties that have been bred for specific uses. Both spelt and kamut are also types of wheat, and are sometimes sold under other names, including spelt, Polish wheat, einkorn and small spelt. 
    Bulgur is wheat that's been specially processed. 
    Triticale, a grain crossbred from wheat and rye, is definitely on the ...


    Scott Adams
    Vijay Kumar, M.D., Research Associate Professor at the University of Buffalo and President and Director of IMMCO Diagnostics: The three serological tests that are used for diagnosing celiac disease are:
    Anti-endomysial antibody (EMA) Anti-reticulin antibody (ARA) Anti-gliadin antibody (AGA) Each of these three tests provide a certain degree of reliability for diagnosing celiac disease. Of these, endomysial antibody is the most specific test. The following table is taken from our studies (Lerner, Kumar, Iancu, Immunological diagnosis of childhood coeliac disease: comparison between antigliadin, antireticulin and antiendomysial antibodies).
      % of Sensitivity % of Specificity Predictive Value % Pos Predictive Value % Neg EMA 97% 98% 97% 98% ARA 65%...


  • Recent Activity

    1. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Waiting for urgent referral.

    2. - knitty kitty replied to Nacina's topic in Related Issues & Disorders
      2

      14 year old with Celiac & EOE still suffering...

    3. - knitty kitty replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      8

      This forum might be the last hope I have in my life. Please I beg you

    4. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      8

      This forum might be the last hope I have in my life. Please I beg you

    5. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      2

      14 year old with Celiac & EOE still suffering...


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,071
    • Most Online (within 30 mins)
      7,748

    Jannette
    Newest Member
    Jannette
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • Katiec123
      10
    • Vicrob
      4
    • lasthope2024
    • brittanyf
    • gameboy68
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...