5 Things People With Celiac Disease Need You to Understand

I would like to add the DH aspect of celiac--it is rarely mentioned and it is also real and dangerous. I've seen comments to the contrary..." tissues and TP will not hurt you unless unless you eat it"...WRONG!!!

I am so glad to learn more. By choice I am gluten free due to the wheat today being GMO .

I'm 41 and just diagnosed with celiac disease. My intestinal and overall health has declined over the past 6 months. Blood tests have revealed the allergy and I'm to undergo an upper endoscopy shortly. I thought gluten free was a fad until I realized that the disease has seriously has affected my quality of life.

remember it is not an allergy!!!! I finally know why soaps, lotions, makeup and all things that go on skin made my body react not like an allergy but very angrily. the laundry soap and dish soaps even have to be free of wheat barley and rye byproduct.

I am so glad to learn more. By choice I am gluten free due to the wheat today being GMO .

What is GMO?

I would add that having "no symptoms" is not an indicator of "no damage". We tend to think that if one doesn't react in a measurable way, you are ok. However, in the case of Celiac disease 60% of patients are "latent" in that their immune system is reacting but the patient doesn't have recognizable symptoms. Hence, the feeling that this isn't a serious condition . . .

Celiac disease is not an allergy. I do not carry an epi-pen. I do not break out in hives or start sneezing. I do not get ill immediately if I accidentally ingest a minute amount of gluten (from cross-contamination). Celiac disease is more insidious than all that.

I would like to add the DH aspect of celiac--it is rarely mentioned and it is also real and dangerous. I've seen comments to the contrary..." tissues and TP will not hurt you unless unless you eat it"...WRONG!!!

Perhaps you could tell us what the acronyms DH and TP are? I have no idea what you are trying to say.

Another outstanding piece of writing, Thanks Jefferson... I shared it on FB... my husband and I make sick "jokes" about me"getting over" being celiac .... but it is true, people do not understand it at all, and having people not gluten intolerant on a gluten-free diet, makes it hard. Thank you so much!

I'm 41 and just diagnosed with celiac disease. My intestinal and overall health has declined over the past 6 months. Blood tests have revealed the allergy and I'm to undergo an upper endoscopy shortly. I thought gluten free was a fad until I realized that the disease has seriously has affected my quality of life.

To Robert:

Celiac disease is not an allergy, altho there is a condition called "Wheat Allergy". That is definitely classified as an allergy. Celiac disease is an autoimmune disease. My advice to you is to join a support group in your area for guidance and support as you learn to live with this disease.

Many gluten-free products can still contain gluten make sure it's certified and eat whole real foods to heal. Also if someone has a intolerance to gluten same rules apply!

I'm 41 and just diagnosed with celiac disease. My intestinal and overall health has declined over the past 6 months. Blood tests have revealed the allergy and I'm to undergo an upper endoscopy shortly. I thought gluten free was a fad until I realized that the disease has seriously has affected my quality of life.

Robert, I have been where you are and it's hard, but it will get better as you come to better understand the diet and it's limitations. Your health should improve, but that will take some time. Do you need the endoscope if celiac is confirmed? Now a days the scope is no longer the gold standard if symptoms, blood work, etc are at certain levels.