In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed and living happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease, and since then it has become an invaluable resource to people worldwide who seek information about celiac disease and the gluten-free diet.
Danna
Korn founded R.O.C.K. in 1991 after her son, Tyler, was diagnosed with
celiac disease. It has grown to international proportions, helping families
all over the world deal with the unique challenges of raising a child
on a gluten-free diet. When children are diagnosed with celiac disease
at an early age, they usually have a severe intolerance to gluten, and
are often extremely sick when ultimately diagnosed. Most parents share
horror stories of visiting several doctors before finally arriving at
a diagnosis, and are frustrated, exasperated, and angry, yet relieved
to finally have a direction in which to turn. Sometimes it helps to talk
about it, and it always helps to have some guidance when initially diving
into the gluten-free diet.
Raising Our Celiac Kids is a support group for parents, families and friends of kids with celiac disease or gluten intolerance. We welcome families of autistic kids involved in a gluten-free/casein-free dietary intervention program. We concentrate on dealing with the unique challenges that we have, including:
What do R.O.C.K. chapters do?
R.O.C.K. chapters have R.O.C.K. parties! How often you meet will be up
to you and your chapter members, but we suggest meeting every two months
to start; you can judge from that point whether you'd like to meet more
or less often. We'd like to eventually have a chat room, where local chapters
can talk to each other or with other chapter members. (In the meantime,
people can chat at http://groups.yahoo.com/group/CeliacKids).
What goes on at a R.O.C.K. party?
R.O.C.K. parties are for the kids and the adults. The kids enjoy gluten-free
food and play, while the parents exchange new-product information, questions
and concerns, and anything that they feel is pertinent. You may invite
speakers (child psychologists, pediatricians, pediatric gastroenterologists,
dietitians), and even provide entertainment (clowns, face painters, toys)
for the kids. Remember your community centers - they often have teenagers
who will entertain the kids - for free!
Remember, you may have just a few families at first, but "build it and they will come" - keep it in mind!
Should I start a R.O.C.K. chapter or do something
on my own?
I don't personally profit from any R.O.C.K. activities, so it doesn't
benefit me either way. My vision for R.O.C.K. is to provide accurate,
supportive information to families of gluten-free kids to make their lives
easier and their kids' lives more enjoyable. The more cohesive we are,
the more credible we are to new members, vendors, and the gluten-free
community as a whole. If you decide to pursue a group on your own, I sincerely
wish you the best of luck and hope you'll ask me for help in setting up
your group if you need it.
If there isn't a R.O.C.K. chapter in your area yet
and you're interested in starting one,
please contact Danna Korn at danna@celiackids.com.
R.O.C.K. Chapters in the United States
Slocomb - Support Group
Contact: Nichole Alexander
E-mail: mamma_hen3@hotmail.com
Tel: (334) 886-7150
Chugiak - Support Group
Raising Our Celiac Kids (R.O.C.K.) - ROCK'n Alaska
Contact: Debbie Saddler
Chugiak, AK 99567
Tel: (907) 688-6879
E-mail: alaskadebbie@gmail.com
Gilbert - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Gilbert Chapter
Contact: Deanna Frazee
Gilbert, AZ
Tel: (480) 641-8821
deannafrazee@hotmail.com
Scottsdale - Support Group
Contact: Jennifer Fabiano
Raising Our Celiac Kids (R.O.C.K.) - Scottsdale Chapter
Scottsdale, AZ
Tel: (480) 905-2622
mailto: jfabiano@cox.net
Tucson - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Tucson Chapter
Contact: Liz Attanasio
Tel: (520) 877-9181
Tucson - ROCK'n Tucson
Contact: Shelli Hanks
Tucson, AZ 85750
Email: TucsonROCK@comcast.net
Tel: (520) 577-0774
Fayetteville, AR
Melanie Faught
Fayetteville, AR 72704
Tel: (479) 582-9232
E-mail: melaniefaught@cox.net
Conejo Valley - Support Group
ROCK'n Conejo Valley
Contact: Melissa Riches
Westlake Village, CA 91361
Tel: (818) 706-0197
E-mail: melissa.riches@sbcglobal.net
Canyon Country (Southern CA
-- north of L.A.) - Support Group
Contact: Helaina Taylor
Raising Our Celiac Kids (R.O.C.K.) - Canyon Country Chapter
Canyon Country, CA
Tel: (661) 251-6884
Danville - Support Group
Contact: Ann Reigelman
Raising Our Celiac Kids (R.O.C.K.) - Danville Chapter
Danville, CA
E-mail: areigelman@yahoo.com
Los Angeles - Support Group
Contact 1: Amy Harley
Tel: (818) 249-2432
E-mail: harleyhome@earthlink.net
Contact 2: Cheryl Cohen
Tel: (818) 784-4516
E-mail: cohencheryl@yahoo.com
Moreno Valley - Support Group
Contact: Kellee Shearer
Raising Our Celiac Kids (R.O.C.K.) - Moreno Valley Chapter
10034 Snipe Circle
Moreno Valley, CA 92557
Tel: (951) 242-8448
E-mail: Treshearer@aol.com
Orange County - Support Group
Contact: Christy Scales or Jennifer Marcoly
Raising Our Celiac Kids (R.O.C.K.) - Orange County Chapter
E-mail: scalinni@earthlink.net
Tel: (562) 799-2060
E-mail: jmarcoly@hotmail.com
Palo Alto - Support Group
Contact: Kelly Velez or Debbie Duncan
Bay Area ROCK
E-mail: kellyvelez@comcast.net
Tel: (650) 303-8409
E-mail: debbie@debbieduncan.com
Tel: (650) 494-6959
San Diego - Support Group
Contact: Susan Jarrold
Raising Our Celiac Kids (R.O.C.K.) - San Diego Chapter
Tel: (619) 579-9590
E-mail: sjarrold@sandi.net
San Francisco - Support Group
Contact: Lisa Palme
Raising Our Celiac Kids (R.O.C.K.) - San Francisco Chapter
E-mail: palmer@smccd.net
San Diego - Support Group
Contact 1: Becky MacGregor
E-mail: cyberbec@cox.net
Contact 2: Erica Welker
Tel: (760) 268-0622
Internet: http://www.celiackids.com
Sebastopol - Support Group
ROCK North Bay Chapter
Contact: Jennifer Iscol
Sebastopol, CA 95472
Tel: (707) 824-5830
E-mail: iscol@aol.com
Visalia (Central) - Support
Group
Contact: Shannon Williams
Tel: (559) 741-1671
Visalia, CA
Greeley - Support Group
Contact: Rachel Butzine
Raising Our Celiac Kids - R.O.C.K. - Greeley Chapter
Greeley, CO 80634
(970) 339-3383
Littleton - Support Group
Contact: Randy & Kim Toltz
Raising Our Celiac Kids - R.O.C.K. - Littleton Chapter
Littleton, CO (Denver)
Tel: (303) 470-0003
E-mail: randy@thetoltzgroup.com
Simsbury - Support Group
Raising Our Celiac Kids - R.O.C.K. - Simsbury Chapter
Contact: Mark & Tracy Saperstein
Tel: (860) 651-4857
E-mail: mtbahs@comcast.net
Trumbull - Support Group
ROCK'n Trumbull, CT (Fairfield County)
Susy Ferreira
30 Laurie Road
Trumbull, CT 06611
Tel: (203) 268-5071
E-mail: sferreira5071@charter.net
Waterford - Support Group
Raising Our Celiac Kids - R.O.C.K. - Waterford Chapter
Contact: Donna Kensel
Waterford, CT
E-mail: CtCeliacKids@aol.com
Apopka - Support Group
Contact: Deborah Pfeifle
Raising Our Celiac Kids (R.O.C.K.) - Apopka Chapter
Apopka, FL 32712
Tel: (407) 880-6104
E-mail: dpfeifle@earthlink.net
Coral Springs/Palm Beach - Support
Group
Contacts: Janna Faulhaber and Stacey Galper
Raising Our Celiac Kids (R.O.C.K.) - Coral Springs/Palm Beach Chapter
Tel: (954) 255-7855
E-mail: Staceynagel@paxson.com
Odessa (Tampa) - Support Group
Contact: Terri Willingham
Raising Our Celiac Kids (R.O.C.K.) - Odessa Chapter
Orlando - ROCK'n Celebration
- Support Group
Contact: Rose Parvaz
Celebration, FL 34747
E-mail: rose.parvaz@celebration.fl.us
Palm Beach gardens - Support
Group
ROCK'n Palm Beach Gardens
Contact: Kimberly Wade
Palm Beach Gardens, FL 33418
E-mail: tkcrw@comcast.net
Tel: (561) 625-9005
Tampa - Support Group
Contact: Melissa Ransdell
Raising Our Celiac Kids (R.O.C.K.) - Tampa Chapter
14521 Nettle Creek Rd.
Tampa, FL 33624
Tel: (813) 265-8105
Atlanta - Support Group
Contact: Jeff Lewis, M.D.
Children's Center for Digestive Health Care
Raising Our Celiac Kids (R.O.C.K.) - Atlanta Chapter
E-mail: jlewis@ccdhc.org
Middleton - Support Group
Contact: Summer Boyle
Treasure Valley Rock Support Group
Middleton, ID 83644
Tel: (208) 585-9491
E-mail: csboyle6@msn.com
Dekalb - Support Group
Contact: Audrey O'Sullivan
Raising Our Celiac Kids (R.O.C.K.) - Stillman Valley Chapter
Dekalb, IL
Tel: (815) 756-2606
E-mail: Audrey08@aol.com
Moline - Support Group
Contact: Lesley Lamphier
ROCK'n Illinois (Moline)
Moline, IL 61265
Tel: (309) 736-1507
E-mail: celiackids@mchsi.com
Springfield - Support Group
Land of Lincoln Celiac Support Group
Contact: Joyce Hall
Raising Our Celiac Kids (R.O.C.K.) - Springfield Chapter
Springfield, IL
Henryville - Support Group
Contact: Kristie Williams
ROCK'n Indiana (Henryville)
Henryville, IN 47126
Tel: (812) 294-1179
E-mail: kristiewilliamsrn@hotmail.com
Mooresville - Support Group
Contact: Cindy Holder
Raising Our Celiac Kids (R.O.C.K.) - Mooresville Chapter
375 E. Countyline Rd.
Mooresville, IN 46158
Tel: (317) 831-9871
E-mail: Holders2@comcast.net
Des Moines - Support Group
Contact: Lindsay Amadeo
Raising Our Celiac Kids (R.O.C.K.) - Des Moines Chapter
Des Moines, IA
E-mail: llamadeo@yahoo.com
Portland - Support Group
Contact: Nicole Richman
Raising Our Celiac Kids (R.O.C.K.) - Portland Chapter
Gorham, Maine 04038
E-mail: richlcsw@maine.rr.com
ROCK'n Maryland
Contact: Steffani Mykins
Tel: (410) 626-1958
E-mail: stfine@comcast.net
Longmeadow - Support Group
ROCK'n MA
Contact: Christie Freda
Longmeadow, MA 01106
E-mail: cfreda126@comcast.net
Tel: (413) 567-5748
Somerset - Support Group
Contact: Stacey Nasrallah
ROCK'n Somerset (MA)
Somerset, MA 02726
Tel: (508) 674-6211
E-mail: info@somersetrock.org
Internet: http://www.somersetrock.org
Macomb Township - ROCK'n MI
Support Group
Contact: Kimberly Fanelli
Macomb Township, MI 48044
Tel: (586) 226-8480
E-mail: kfanelli@mac.com
West Bloomfield - Support Group
Contact: Gail Smoler
Raising Our Celiac Kids (R.O.C.K.) - West Bloomfield Chapter
4358 Strathdale Court
West Bloomfield, MI 48323
Tel: (248) 851-9451
E-mail: GailS63@aol.com
Minneapolis/St. Paul Support
Group
Contact: Lynda Benkofske
Raising Our Celiac Kids (R.O.C.K.) - ROCK-Minneapolis/St. Paul Chapter
15470 County Rd. 35
Elk River, MN 55330
Tel: (763) 263-7679
E-mail: ljbenkof@ties2.net
Columbia - Support Group
Contact: Beth Broom
Raising Our Celiac Kids (R.O.C.K.) - South Mississippi Chapter
50 Wilks Road
Columbia, MS 39429
E-mail: sbroom@dixie-net.com
O'Fallon - Support Group
Contact: Beth Anne Miller
7264 Sweetcider Lane
O'Fallon, MO 63366
Tel: (636) 294-2037
E-mail: Frankbethm@aol.com
Billings - ROCK'n Montana Support
Group
Billings, MT 59102
Contact: Perrin Grubbs
E-mail: perrin@bresnan.net
Tel: (406) 655-7897
Blair - Support Group
Contact: Shelly Andreasen
Raising Our Celiac Kids (R.O.C.K.) - Blair Chapter
E-mail: jdf@microlnk.com
Blair, NE
Tel: (402) 533-1090
Reno - Support Group
Contact: Carrie Owen
Raising Our Celiac Kids (R.O.C.K.) - Reno Chapter
Tel: (775) 857-2708
E-mail: Renorockgroup@yahoo.com
Manchester - Support Group
Contact: Michelle Ouellette
ROCK'n New Hampshire
Manchester, NH 03102
Tel: (603) 627-1831
E-mail: rocknh@verizon.net
Blairstown - Support Group
Contact: Marla Benson
Raising Our Celiac Kids (R.O.C.K.) - Blairstown Chapter
Blairstown, NJ
MBenson890@aol.com
(808) 362-7752
Freehold - Support Group
Contact: Elissa Carlin
Raising Our Celiac Kids (R.O.C.K.) - Freehold Chapter
Marlboro, NJ 07746
Tel: (732) 252-8309
E-mail: ElissaC75@aol.com
Morristown - Support Group
ROCK'n New Jersey
Contact: Andrea Kitzis Smith
Morristown, NJ 07960
Tel: (201) 965-7309
E-mail: akitsm@att.net
Short Hills - Support Group
Contact: Ellie Fried
Raising Our Celiac Kids (R.O.C.K.) - North Jersey Chapter
Tel: (973) 912-0253
Albuquerque - Support Group
Contact: Traci Shrader
Tel: (505) 450-1156
E-mail: tashrader@msn.com
Glens Falls Region - Support
Group
Contact: Lisa Fox
Lake George, NY 12845
Tel: (518) 668-5838
E-mail: fox_lisa@hotmail.com
Nassau County- Support Group
Contact: Angela Silverstein
Raising Our Celiac Kids (R.O.C.K.) - Lynbrook
Tel: (516) 593-2904
E-mail: venusangmm1@optonline.net
Nassau/Suffolk - Support Group
Contact: Jamie Flecker
Raising Our Celiac Kids (R.O.C.K.) - Long Island Chapter
Tel: (631) 846-9384
E-mail: candlesbyjamie@yahoo.com
Contact 2: Jill Schneider
Tel: (516) 551-4564
E-mail: jahms@optonline.net
Rome - Support Group
Mohawk Valley R.O.C.K. (upstate New York)
Contact: Rebecca Madeira
Rome, NY
Tel: (315) 337-7671
Upstate - Support Group
ROCK'n Upstate New York
Contact: Karen Dorazio
Jamesville, NY 13078
Tel: (315) 469-8154
E-mail: Louuaw@aol.com
Western New York - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Western New York Chapter
Buffalo / Niagara Falls NY
Contact: Jeanette Yuhnke
Tel: (716) 625-8390
Internet: http://www.glutenfreeinwny.com/WNYCeliacKids.php
Asheville - Support Group
Contact: Marzieh Davis
Raising Our Celiac Kids (R.O.C.K.) - Asheville Chapter
Asheville, NC 28803
E-mail: marzieh@skyrunner.net
Tel: (828) 298-9865
Fargo - Support Group
Contact: Stacey Juhnke
Tel: (701) 237-4854
E-mail: DSJuhnke@yahoo.com
Akron - Support Group
Contact: Sue Krznaric
Raising Our Celiac Kids (R.O.C.K.) - Akron Chapter
Akron, OH
Tel: (330) 253-1509
E-mail: skrznaric@cs.com
Akron - Support Group
Contact: Therese Semonin
Raising Our Celiac Kids (R.O.C.K.) - Akron Chapter
CSA Chapter 111, S.O.S. Save Our Stomachs
Cincinnati - Support Group
Contact: Beth Koenig
Raising Our Celiac Kids (R.O.C.K.) - Cincinnati Chapter
Cincinnati, OH
E-mail: BethKoenig@cinci.rr.com
Tel: (513) 923-4435
Toledo - ROCK'n Toledo Support
Group
Contact: Amy Kinkaid
Toledo, OH 43615
E-mail: kinkaida@bex.net
Tel: (419) 509-6913
Salem - Support Group
Karen Tuck
Raising Our Celiac Kids (R.O.C.K.) - Salem Chapter
Salem, Oregon 97302
Tel: (503) 633-2098
E-mail: kptuck@msn.com
Springfield - Eugene/Springfield
ROCK Support Group
Contact: Sheri Temple
Springfield, Oregon 97478
Tel: (541) 747-1696
E-mail: gf_kids.rock@yahoo.com
Greenville - Support Group
Contact: Fiona Garner
Raising Our Celiac Kids (R.O.C.K.) - Greenville Chapter
Greenville, PA
Greensburg - Support Group
Contact: Martin Martinosky, Jr.
Raising Our Celiac Kids (R.O.C.K.) - Greensburg Chapter
Greensburg, PA
Tel: (724) 834-3435
E-mail: ROCKchapter@aol.com
Harrisburg - Support Group
Gluten Intolerance Group of Harrisburg
Harrisburg, PA
Tel: (717) 520-9817
Lancaster/York - Support Group
Contact: Janelle Gregory
Tel: (717) 687-8586
E-mail: janellegregory@verizon.net
Malvern - ROCK'n Malvern Support
Group
Contact: Jennifer Manzi
Malvern, PA 19355
Tel: (610) 329-5392
E-mail: Jennifer_manzi@yahoo.com
Internet: http://www.malvernrock.org
Clover - Support Group
Contact: Lauretta McInnis
Raising Our Celiac Kids (R.O.C.K.) - Clover Chapter
Tel: (803) 222-5143
E-mail: laurettamcinnis@gmail.com
Easley - Support Group
Contact: Laura Armstrong
Raising Our Celiac Kids (R.O.C.K.) - Easley Chapter
Easley, SC
Tel: (864) 850-0344
Greenville - Support Group
Contact: Kasandra Mello
Raising Our Celiac Kids (R.O.C.K.) - Greenville Chapter
Tel: (864) 242-4607
E-mail: kasmello@yahoo.com
Lexington - Support Group
Contact: Gail Fox
Raising Our Celiac Kids (R.O.C.K.) - Lexington Chapter
Lexington, SC 29072
Tel: (803) 957-7658
E-mail: gailfox@sc.rr.com
Nashville - Support Group
Contact: Janet Lowery
Raising Our Celiac Kids (R.O.C.K.) - Nashville Chapter
Tel: (615) 758-2674
Woodlawn - Support Group
Contact: Shantal Green
Woodlawn, TN
Tel: (931) 648-2289
Austin - Support Group
Contact: Frances Kelley
ROCK'n Austin - Alamo Celiac GIG
Austin, TX 78739
E-mail: fkelley@austin.rr.com
Tel: (512) 301-2224
Dallas/FortWorth - Support Group
Contact: Kelly LeMonds, Leader
Raising Our Celiac Kids (R.O.C.K.) - Wylie Chapter
1821 Spinnaker Way Drive
Wylie, Texas 75098-7855
Tel: (972) 442-9328
E-mail: leader@dallasrock.org
Internet: http://www.dallasrock.org
Dallas/FortWorth - Support Group
Contact: Diane McConnell
Raising Our Celiac Kids (R.O.C.K.) - Dallas/FortWorth Chapter
Tarrant County, TX
Tel: (817) 849-8646
E-mail: fortworthrock@swbell.net
Houston - Support Group
Contact: Janet Y. Rinehart, Chairman
Houston Celiac Sprue Support Group
Raising Our Celiac Kids (R.O.C.K.) - Houston Chapter
13722 Ashley Run
Houston, TX 77077-1514
Tel: (281) 679-7608
E-mail: txjanet@swbell.net
Internet: http://www.csaceliacs.org/
Houston - Support Group
Contact: Faye Sallee
Raising Our Celiac Kids (R.O.C.K.) - Houston Chapter
14830 Sagamore Hills
Houston, TX 77082
Tel: (281) 496-9166
Houston - ROCK'n Houston Support
Group
Comtact: Monica Ryan
Houston, TX 77025
Tel: (713) 667-1963
E-mail: Mwryan@ipa.net
Lubbock - Support Group
Contact: Beth Trostle
ROCK'n Lubbock
Tel: (806) 794-5917
E-mail: calvintrostle@nts-online.net
San Antonio - Support Group
Contact: Rose and Michael Stevens
Raising Our Celiac Kids (R.O.C.K.) - San Antonio Chapter
San Antonio, TX
Tel: (210) 495-7757
E-mail: info@kidceliac.com
Internet: http://www.kidceliac.com
Victoria - Support Group
Contact: Julie Bauknight
Raising Our Celiac Kids (R.O.C.K.) - Victoria Chapter
Victoria, TX 77901
Tel: (361) 572-9252
Ogden - Support Group
Contact: Eileen Leatherow
Raising Our Celiac Kids (R.O.C.K.) - Ogden Chapter
Ogden, UT
Ashburn - Support Group
Keith Bird
Tel: (703) 348-7607
rock@birdmk1.plus.com
Dumfries - Support Group
Contact: Linda Hickman
Northern VA/Washington DC R.O.C.K. - Dumfries Chapter
Tel: (410) 290-5224
E-mail: ROCK_and_CD_Mom_in_MD@comcast.net
Richmond - Support Group
Contact: Debbie Beam
Raising Our Celiac Kids (R.O.C.K.) - Richmond Chapter
Richmond, VA
Tel: (804) 527-3424
E-mail: MikeDebBeam@aol.com
Virginia Beach - Support Group
Contact: Cynthia Olson
Bellevue - Support Group
Contact: Nick & Sue Pierson
Raising Our Celiac Kids (R.O.C.K.) - Bellevue Chapter
Bellevue, WA 98005
Tel: (425) 401-9163
E-mail: NicholasPierson@Hotmail.com
Bellingham - Support Group
Contact: Jean McFadden Layton
ROCK'n Washington
Bellingham, WA 98229
Tel: (360) 734-1659
E-mail: glutenfreekids@yahoo.com
Poulsbo - Support Group
Contact: Tim & Dawn Simonson
Raising Our Celiac Kids (R.O.C.K.) - Poulsbo Chapter
Poulsbo, WA 98370
Tel: (360) 779-9292
E-mail: timsimonson@csi.com
Spokane - Support Group
Contact: Jennifer Fancher
ROCK'n Spokane, WA
Spokane, WA
Tel: (509) 891-7250
E-mail: jenf@csispokane.com
Vancouver - Support Group
Contact: Theressa Rachetto
Vancouver, WA 98662
Tel: (360) 713-1504
E-mail: theressarachetto@gmail.com
Hurricane - Support Group
Contact: Karen Daniel
Raising Our Celiac Kids (R.O.C.K.) - Hurricane Chapter
340 Green Acres Dr.
Hurricane, WV 25526
Tel: (304) 757-0696
E-mail: krdaniel@suddenlink.net
DePere - Support Group
Contact: Pam Rourke
Tel: (920) 339-7867
E-mail: mrourke@new.rr.com
Jackson - Support Group
Contact: Yvonne Schwalen
Raising Our Celiac Kids (R.O.C.K.) - Jackson Chapter
E-mail: trainman280@netzero.net
Rhinelander - Support Group
Contact: Cheryl Boyd
Raising Our Celiac Kids (R.O.C.K.) - Rhinelander Chapter
Rhinelander, WI
(715) 369-3735
Waunakee - Support Group
Contact: Dawn Whyte
Tel: (608) 849-8228
E-mail: dhwhyte@tds.net