1996 Celiac.com Feedback
In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease, and since then it has become an invaluable resource to people worldwide who seek information about celiac disease and the gluten-free diet.
In 1998 I created The Gluten-Free Mall, Your Special Diet Superstore! which was also another Internet first—it was the first gluten-free food site to offer a shopping cart-style interface, and the ability for people to order gluten-free products manufactured by many different companies at a single Web site.
I am also co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.
Subject: Celiac Helped
I have been wheat free and pain free for almost two weeks now. The
only exception was when I ate some corn,(I admit, a lot of corn.) which caused some bloating for two days. I now believe that the gluten was causing the problem. I am 51 years old and quit teaching karate because of the symptoms of Celiac Disease. I am now considering going back into Karate. Thanks again. It feels like I got my life back. -Frank
Date: Mon, 22 Jan 1996 12:57:28 -0500
Subject: Great Site!
Thanks for all the great info on gluten. It has made my life easier.
Date: Wed, 24 Jan 96 01:37:02 0500
From: Richard K. Puder
First, before I get to the subject above, I want to thank you from the
bottom of my heart (or even small bowel!) for all the wonderful work you
have done in creating a fabulous web site. The very first search that I did on the Internet was to search for Sprue in Yahoo, and lo and behold, I found your home page. And what a find! It enabled me to gather information in a brief period of time that I couldnt possibly have found if I had visited 20 libraries and spent months. If there is anything I can do to be of assistance, please ask.
Date: Sat, 27 Jan 96 06:26:11
Subject: Thank you
your information is wonderful, and very nicely put together. It finally convinced my husband to go get himself tested. I wont bore you with gory details. Thanks, A. Sheldahl
Date: Sat, 27 Jan 1996 10:33:40 -0500
From: D. Resch
Thank you for providing so much information on celiac disease. The presentation
is so informative and well organized. I have certainly learned a lot and
have referred several people to your web site. Well, thanks again and
if there is anything I can do to help, please e-mail me.
Date: Tue, 30 Jan 1996 01:05:22 -0500
Dear Mr. Adams,
Last week, my 4 year-old daughter underwent both an endoscopy and colonoscopy. With results of her biopsy confirming celiac, I cant tell you how relieved I am to find a home page such as your own on the web.
Date: Tue, 30 Jan 1996 01:07:07 -0500
Dear Mr. Adams,
Thanks for all your work. My 4 year-old was just diagnosed with celiac after
11 months of sweating and fretting. Its great to have found your page on the
web. Julia and her daddy thank you.
Date: Tue, 30 Jan 96 03:46:27 -0800
From: Charles Jarvis Jr.
Subject: Scotts Celiac Disease / Gluten Intolerance Help Page
Thanks for a great celiac homepage. Keep up the wonderful work. Its much appreciated.
Date: Sat, 3 Feb 1996 23:22:54 -0600
Subject: Wonderful work
I hadnt read your info for months and I am so impressed with the wonderful
job youre doing. Shortly before our support group meeting in March, Ill
post the info for you. Thanks again and keep up the good work!
- Lynn Samuel
Date: Tue, 13 Feb 1996 13:22:53 -0500
All of us at IMMCO Diagnostics are very impressed with your web site. We have been perusing the site over the last month. It is very informative and thorough. Your efforts to disseminate this valuable information to celiac sufferers is commendable. Feel free to contact us if you require information, articles, or content for your page. We would be happy to help.
Date: Thu, 15 Feb 1996 08:48:15 -0500
Subject: Celiac disease
I have just joined America-on-line and have accessed your Scotts Celiac
Page. This is a letter of appreciation for all the work you have done
celiacs. I am very impressed with the extent of your Table of Contents and have just printed about half of everything there. Fascinating articles.
Date: Mon, 26 Feb 1996 10:30:44 EST
From: MS. BRENDA DAVIS
Subject: Scotts Celiac Page
Please add me to your list for updates and changes at your celiac site. I have enjoyed your site very much. It was the first place I found when desperately looking for celiac information. I found it sometime last October and I can truly say that it changed my life after not having any information after being diagnosed celiac approximately about a year and a half ago. I appreciate your hard work on this.
Date: Mon, 18 Mar 1996 15:53:49 +0000
From: Carol Young
I love your home page and it has helped me as well as my doctor better
understand how to be wheat and gluten free. What you are doing here is
Date: Sat, 6 Apr 1996 23:08:48 -0500
Subject: just wanted to thank you
Hi, my name is Michael and I wanted to thank you for you great home page. My grandmother is a Celiac patient and she is lost as to what to do. She heard about something called the internet and I told her I would look. I did look and their was no better place than yours. Your home page and the various links will make her day. She is 75, which is strange for Celiac patients but also it is harder for her to learn or even know where to look. Thanks to you she now does. This disease needs to be brought out in the open, it seems like many people have it yet, not many companies etc... cater to them. It is very hard to find these products but you have helped. Thanks again!
Date: Sat, 20 Apr 96 06:03:56 -0700
From: Michael Esker
Subject: Celiac Home Page
What a great site! This is a great example of the real benefit of the
Internet. I was born with celiac, although it was not diagnosed until
I was about 3! I dont remember, but my parents say the first few years
of my life was hell for them and me. I felt I grew out of it
at about 18 so I went off my gluten free diet. Mainly so I could drink
beer. I am 31 now, but due to not feeling as well as I think I could,
and possible long-term consequences, I think I am getting back on the
diet to see what happens. Part of this action stems from my young nephew
who also might have the
disease. At least its being considered and tested for with diet these days! Your home page will be an invaluable resource as I, and my nephew, try
to get back to a better life. Thanks for your effort.
Date: Tue, 23 Apr 1996 22:26:51 -0400
Subject: celiac information
Your page on the Internet is a Godsend to those few of us who need info
& support for celiac disease. My adult daughter has just been diagnosed
& Im searching for her benefit since she doesnt have access to a
computer. Now I just have to figure out how to use the Internet &
I cant think of a better reason to learn! Please add me to your mailing
list for your newsletter which Ill forward to my daughter. Many thanks
- keep up the good work.
- Judy Fitzpatrick
Date: Wed, 05 Jun 96 08:41:29 -0700
From: Bertie Lynch
Scott: First, Id like to thank you for posting your Scotts Celiac page
on the Internet. Wonderful info, and a lifesaver for our family, as my
husband was diagnosed with the disease last year, so once again, thanks.
-Regards, B. Lynch
Date: Tue, 18 Jun 1996 09:31:24 -0400
Subject: Thanks for Information
Thanks very much for sharing your Celiac information with others who
have gluten problems. I have been very frustrated trying to find out what
problem is and now believe I may be gluten-sensitive. Your web page has been of great help to me in finding out if my symptoms are consistent
with gluten sensitivity/intolerance. I am truly grateful that people like you make the effort to help those of us out there who are mystified by these symptoms. Thanks again, and keep up the good work!!!
- Stefanie Crampton
Date: Sun, 30 Jun 1996 01:15:46 -0400
Please add me to your email list. Secondly what a blessing you sight
has been to me and three other people to date. I have battled what everyone
me was IBS for the past three years and it was ruling and controlling my life. In the past three weeks with the information I found through your sight my life is so much better and I feel so much better. My sister and a friend are now experiencing the same effect since I share what I found with
them. Thank you!
Date: Sun, 07 Jul 96 14:26:25 -0700
From: Cherie Jameison
Subject: Mail list
Please add me to your e-mail list. I deeply appreciate your web page,
as well as all gluten-intolerance material on the Net. Like any of us
who have celiac disease, I have my own tragic history until I cut out
gluten from my diet (in my 40s). My childhood was painful, due in large
part to gluten intolerance. What wasted, tragic years. Anyhow, weve all
been through our own, sad backgrounds. Im so grateful that now increasing
information is coming out and is available. Scott, thank you so very much
for the wonderful work you are doing to help others!
With warm regards,
Date: 09 Jul 96 11:05:02 EDT
From: Karen Brody
Subject: Praise for your efforts
Hi. Ive needed to do some research on celiac sprue from the UK for a book Im writing for Sheldon Press called Coping with Coeliac Disease and your information on the internet has been very useful. Thanks from the bottom of my heart. The world needs more special people like you who care about peoples health!
Thanks again for your help,
From: Perron Lino
Date: Sat, 10 Aug 96 21:11:03 -700
Subject: mailing list
Thank you for your page and all the info. I will appreciate to be in your mailing list and learn about anything new about celiac sprue. My daughter is doing a lot better and she is growing ok on a gluten free diet. If for any reason you are traveling trough Italy come see us Be happy to meet you and thank you for he big help. Lino Perron Breuil Cervinia at the foot of the Matterhorn on the Italian side. Good place to climb and ski.
From: Davis, Pamela
Subject: Celiac mailing list
Your web page is very informative. My mother was diagnosed with celiac a few years ago. She has a hard time finding information on the disease and has had to completely change the way she eats and cooks. This web site is a godsend to people like my mother. Please add her to your distribution list for any information that you e-mail out. Thank You.
Date: Tue, 24 Sep 1996 09:20:13 -0700
From: Randina Bliss
Subject: well done
Kudos to you for bringing this extremely well written Web page on Sprue and the pertinent articles that are necessary to better deal with
My brother was diagnosed with this disease this spring, following lengthy
testing for whatever they could think of. He was very anemic,
losing weight and having odorous diarrhea. Now that he is following a gluten free diet the dark circles under his eyes have gone, his
hemoglobin is going up and has even managed to gain a few pounds. We have since learned from our older sister that my brother was
considered malnourished when he was younger, the age of younger is unknown. He was always thin and had a low energy level. It is a shame
the puzzles pieces took so long to be put together. His birthday is this Saturday (turning the big 50) and I wanted to make
him something home baked (if I could find the ingredients). When I did a search via Yahoo, it gave me only this one. I am extremely grateful
that it did as I have found this to be extremely helpful and will pass it on to my brother if he doesnt already have it.
Your web page is the nicest I have seen to date. I really like and appreciate the graphics, the colors and the layout of the entire contents. It gets a four star rating in by book and is already bookmarked for reference. Thank you for gathering this information and sharing it with all of us.
Date: Thu, 26 Sep 96 10:24:20 UT
Subject: Thanks for this web page!
Scott- Your web page has been extremely helpful to me in understanding
this disease & helping my daughter, who is away at college in the
US diagnose her problems. I am living in Germany, and have
been feeling very frustrated and helpless when she reported her symptoms
to me, and we sent her to dr. after Dr. for different tests. This has
helped us solve her mystery, and after a gluten-free diet for several
months, she feels like herself again. Your list of stores enabled me to
call & order gluten-free care packages.. She was having
severe pasta withdrawal & I was able to come to the rescue! Through
your list of organizations I was able to contact Diane Schafer (New Orleans)
who has called her & been most helpful in giving her encouragement
& recommending a local doctor & nutritionist. Again, Thanks!!! Please
add me to your e-mailing list.
Gratefully, Ann Webb
Date: Wed, 30 Oct 96 11:45:23 -0800
From: FDC Librarian Linda Petriuk
Organization: Food Development Centre, Portage la Prairie, Manitoba
Subject: Bless you!
Im a librarian at the Food Development Centre (were a special operating
agency of the Manitoba provincial government in Canada) and a distressed
library patrons query about gluten-free foods has landed me on your website. I am astounded at how wonderful this page is! Really, the amount of work that has gone into your site is obviously great, and the information contained in it, some of which Ive passed on to my library patron, has helped a great deal. Particularly I had been looking for information about gluten-free foods for (fastidious) children with the intolerance, and it has been wonderful to see how much information there is. The library patron is very grateful that there is someone like yourself providing this sort of help to people in great distress with gluten intolerance,
Date: Tue, 05 Nov 96 20:10:00 -0800
From: Connie Christiansen
With enormous gratitude for giving me the answers to long-sought questions. I am feeling so much better since following this program for two months. After years of searching, I have no more pain.
Date: Wed, 20 Nov 1996 02:49:47 -0500
Thank you for putting together your home page. I have just discovered
it, and it has opened up my celiac opportunities immensely. I have had
celiac disease for 11 years, and have been so pleasantly surprised to
find out that there are so many recourses now that were not available
in 1985. Your page is one of my favorite places because of its listing
of vendors, cookbooks, and recipes. Your information has led me to send
for food catalogs,
cookbooks, and newsletters. All of these things are a godsend to someone who thought Id never eat bread, cookies, pastas, and cakes again. Thank you for impacting my life in such a positive fashion.
Date: Sat, 23 Nov 1996 11:40:49 -0800
From: Fullerton, Stephanie
Hi I just wanted to tell you that last spring my 11 year old son had
to do a paper on a disease. He said he did not want to do something everyone
knew about so I suggested Sprue because my mom had it all my life and
I always was interested in it. At work I printed out your information
and he loved reading it (much more than the medical books we got at the
library!). He got an A on his report and the teachers comment was that
it was very interesting! My mother passed away six years ago and I am
so sorry she never got to see sprue on the internet!!
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