1999 Celiac.com Feedback
In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease, and since then it has become an invaluable resource to people worldwide who seek information about celiac disease and the gluten-free diet.
In 1998 I created The Gluten-Free Mall, Your Special Diet Superstore! which was also another Internet first—it was the first gluten-free food site to offer a shopping cart-style interface, and the ability for people to order gluten-free products manufactured by many different companies at a single Web site.
I am also co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.
From: Macniven, Jennifer
Subject: Thank You!!
Thank you so much for taking the time and putting so much effort into the Celiac Support Page. I am finding it very informative and also reassuring.
Since changing diet, I have significantly improved. I have gained around
14lbs in weight, I am no longer so pale, my bowel functions are close
normal and the depression has lifted. I do, however, still suffer from a mental confusion or sluggishness. Given that I was an above average scholar,
gaining a degree in French Language & Commercial French, I find it very frustrating now when I struggle for words. I also notice that my attention
span is not good. Despite this, I still hold down a very successful career and speak at large conferences both here in the UK and also in the US.
I thank you once again for your excellent web page. At one time, during
my struggle to find out what was wrong with me, I thought I was going
mad. I only wish I had been able to access the Web back then and visit
My very best regards,
Date: Mon, 10 May 1999 17:37:33 EDT
thank you for your responses, as a newly diagnosed coeliac i found a lot
of conflicting advice. You have managed to make some things a lot clearer.
thank you, kind regards,
From: Pat Shechter
Date: Wed, 2 Jun 1999 12:41:10 -0400
First, I want to give a huge (and long overdue) THANK YOU
for the Web Site!! It has been so very helpful to me as I learn to live
gluten-free and as my body recovers from the years of damage gluten did
to it prior to my diagnosis. Even before I was diagnosed (in late April
gastroenterologist, strongly suspecting Celiac Disease, suggested that I begin to acquaint myself with the disease and the changes I would likely
need to make by looking at the resources available on the Web. Your site was one of the first I found, and I have returned to it often in the past
13-plus months. So many, many thanks.
From: L and J Morden
Date: Sat, 17 Jul 1999 15:02:14 -0400
Please forgive the familiarity but I feel I know you so well. Your web
page is a very big part of our lives. Our oldest daughter, Emma was diagnosed
as Celiac when she was only 8 mos. old. Thanks to the web page we have
gotten many creative answers to some of lives many
challenges; including birthdays, sleepovers and the like. Thank You to you et al.
Date: Wed, 22 Sep 1999 15:29:24 EDT
Subject: Re: Utah Research Project
I want to thank you for your very informative web site. I have had 3
sisters diagnosed with Sprue since July. (Two of them were biopsy proven
and the other was the overall clinical picture along with positive blood
tests.) In your Miscellaneous Information Page, you had included information
about several research projects that were recruiting families with two
or more biopsy proven cases. With the second biopsy proven case coming
back this week, we finally qualified. Now everyone in the family will
be able to be tested. We have one sister who has been denied testing by
the insurance company, and several other family members who do not have
any insurance at all to help cover the costs.
I spoke with Jeff Black today, and our family is now being included in
the project. Jeff was very interested in the fact that there are 3 out
of 6 siblings diagnosed with this, and c=several other suspected cases. Again,
thanks...without your website, some of us would never get tested
Blessings, Judy Harp
Date: Sat, 9 Oct 1999 16:22:07 EDT
Subject: Harvard Family Health Guide
I edited and contributed to the Celiac information in the newly published Harvard Medical School Family Health Guide. The Editor in Chief, Tony
Komaroff, MD, asked me to recommend the single best Celiac site for their web pages and I recommended your site without reservation, since you have done such a marvelous job coordinating all the celiac information. Your site is highlighted on the FHG web site.
Thanks for all you have done,
Jane Spector Davis
From: Zeca Martins
Subject: from Zeca Martins - Sao Paulo - Brazil
Date: Tue, 26 Oct 1999 12:05:32 -0200
Congratulations for the new look of the Celiac site! I do not remember if I had already told you, but my project to change the Brazilian law about foods (I want all the food packages to show also the inscription It does not contain gluten, as well as the government provides all diagnostic support) has been accepted by the Brazilian Federal Congress and it is under technical analysis. Your internet site gave all the important information I needed to develop the project. So, thank you very much!!!
Date: Sat, 6 Nov 1999 17:32:04 -0800
You are one of the few sensible voices in the celiac community and
I have always found everything you posted anywhere to be rational and
unemotional, which is wonderful. I always get the feeling your efforts
for the celiac community are pure and that you have no political agenda.
That is EXTREMELY rare as Im sure you already know. You are a very special
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