In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease, and since then it has become an invaluable resource to people worldwide who seek information about celiac disease and the gluten-free diet.
In 1998 I created The Gluten-Free Mall, Your Special Diet Superstore! which was also another Internet first—it was the first gluten-free food site to offer a shopping cart-style interface, and the ability for people to order gluten-free products manufactured by many different companies at a single Web site.
I am also co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.
Celiac.com 11/29/2005 – According to Dr. Thomas H. Brannagan and colleagues at Weill Medical College of Cornell University, New York, some cases of small-fiber neuropathies are caused by untreated celiac disease and may be treatable with a gluten-free diet. The researchers report on eight patients who had neuropathy with asymmetric numbness or paresthesias in various parts of their body that began at different ages--ranging from childhood to 59 years. Out of the 8 patients in the study 5 were diagnosed with celiac disease after their neuropathy began. All patients were treated with a gluten-free diet and their neuropathy symptoms were re-evaluated--four reported improvement, one had no improvement, and 2 reported worsening of symptoms.
The researchers conclude: “Patients with celiac disease may have a neuropathy involving small fibers, demonstrated by results of skin biopsy. The pattern of symptoms, with frequent facial involvement and a non–length-dependent pattern on skin biopsy findings, suggests a sensory ganglionopathy or an immune-mediated neuropathy. Improvement of symptoms in some patients after initiating a gluten-free diet warrants further study.”