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39 Responses:

 
Isy

said this on
20 Oct 2007 11:11:24 PM PST
I am very worried about my 17-year-old daughter. On October 1st she got a very sore throat and could not stay awake. She got vesicles in the back of her throat. In addition, she has the following symptoms: headaches, teeth hurt, stomach ache when she eats, naseau, extreme fatigue, depression, she feels itchy, severe bladder infection started on Oct 18. She has lost weight, her hair is falling out and she has not had to shave her legs for 2 weeks. She is lactose intolerant and constipation has been a problem.

On June 21 2007, my daughter had her tonsils removed because of reoccurring strep throats. We were involved in a traumatic car accident on July 05, 2007. We were not injured.

My brother has a wheat and dairy allergy. I have been suffering from diarrhea and gas. On Oct 18 I put both my daughter and I on a gluten free diet. I am feeling better. My daughter is very mildly better.

Could my daughter have celiac disease?
(Comment Replies Disabled)

 
BOBBIE FULLER

said this on
20 Oct 2007 2:05:03 PM PST
I WAS DIAGNOSED ON JUNE 25 2007 AND I ALSO HAVE A SISTER IN VA. THAT HAS HAD IT FOR 10 YRS. AND THAT HAS HELPED ME TO BE ABLE TO KNOW A LITTLE BIT ABOUT , BUT IT IS STILL A LEARNING EXPERIENCE. I WORK IN A SCHOOL CAFETERIA AND I HAVE CHALLENGES EVERYDAY, I HAVE JOINED THE GLUTEN INTOLERANCE GROUP AND I GET INFORMATION ON THE COMPUTER.
(Comment Replies Disabled)

 
Greg P

said this on
22 Oct 2007 6:50:43 AM PST
I know Redbridge beer is 'gluten-free'... does anyone know about Harbin Lager?

P.F. Chang's says yes.
(Comment Replies Disabled)

 
Kassandra

said this on
22 Oct 2007 2:49:16 PM PST
Hi I'm Kassandra and i just turned 20 yesterday.
I just found out I have Celiac Disease. I have had problems with my stomach and going to the bathroom for a very long time. (Many years) I always thought i was allergic to White flour, so I tried to avoid that. This didn't work as much because I still had problems. My stomach would be in pain and bloat up. I also couldn't go to the bathroom right. I found this out last week and I have been depressed. I need some support and as much information as I can. I'm very new and it's so hard to not eat the way I used to. There are things that have been taken away from me. I just got married on July 21 this year and now I cant even have our wedding cake on our year....but I've been struggling and trying to stay happy and see the good out of this bad.

Kassandra
(Comment Replies Disabled)

 
Courtney

said this on
23 Oct 2007 5:34:01 PM PST
Celiac Disease really is a bummer! I was diagnosed ever since I was 5. I am now 13 and wishing I had never been diagnosed...I find myself wanting to cheat on my diet all the time..in school when we make food I can hardly ever eat or participate in cooking any of it. My assistant principal does not believe that I should have a 504 plan..although I bet others do. It really stinks. But my dad always says I am lucky. I think I am, but I am not. I guess it is better than not having strong enough legs to walk or any other handicapped disability. But I still think I am unlucky. Courtney
(Comment Replies Disabled)

 
Hayat Yazidi

said this on
24 Oct 2007 12:22:28 PM PST
Hi, I've been recently diagnosed with celiac disease, summer 2007, and it was another shock to me as I'm already a diabetic for 21 years, have viligo and trouble with thyroidism. I'm 45, married and have one child. My sister had this disease for 20 years now, but still I 'm very much upset and disturbed especially that I live in a country where this disease is almost unknown, so no Gluten-Free Malls! Your support will be my only hope to go on...
(Comment Replies Disabled)

 
Chinquada

said this on
24 Oct 2007 4:45:19 PM PST
Warning regarding the 'gluten-free' menu in Outback-Steak Restaurants !!!! Dear All, I just had the most horrible experience a celiac could ever have.
I went to Outback-Steakhouse in Jacksonville/NC and ordered a salad from the gluten-free menu.
It came with small pieces of toasted bread (croûtons), of which I unfortunately ate one, before I noticed what it was....
If they cannot follow the easiest and most obvious rules, how can you trust the rest of the gluten-free meal ??? I will never ever go there - I won't.
(Comment Replies Disabled)

 
Scott Watson

said this on
28 Oct 2007 1:11:37 PM PST
I was diagnosed since 1995. Once you get over the feeling of isolation especially when going out to dinner with fellow employees or friends it isn't that bad. A big part of every meal is a conversation around you personally and how do you deal with this. But it has gotten to the point where everyone I know knows what I can and cannot eat. They go out of their way to make sure I always have something to eat. So I don't feel like the odd man out.

It is important to not cheat! That is the worst thing you can do. Because you are doing damage to yourself even if you don't feel it. I am extemely sensitive to even secondary allergies like Soy or Lactose. If I ate straight gluten I would end up in the hospital.

But thank God for RedBridge beer.
(Comment Replies Disabled)

 
Leonia Holloway

said this on
27 Oct 2007 6:50:42 PM PST
Celiac disease is new to me, gluten-free meals are very new to me. This diagnoses is very new to me. Please email me any help you can.
(Comment Replies Disabled)

 
Elizabeth

said this on
28 Oct 2007 4:07:09 PM PST
Well...I am back :-) A year ago I had a scope and biopsy for celiac but they said it was negative. However..I believe I had been gluten free for quite a while. (Actually by the time I entered the hospital via 911 I had been nearly FOOD FREE and down to 94 lbs.). Now I understand that if one has been gluten free for a time the biopsy won't work.
(Comment Replies Disabled)

 
Dorothy

said this on
31 Oct 2007 4:54:10 PM PST
My doctor told me that I might have celiac disease and I need all the help and support I can get. I feel very useless and worthless. I'm really upset over this, but I know God will send me help and support through people who have it and see how they deal with it. So thank God for this web site!
(Comment Replies Disabled)

 
Gary

said this on
02 Nov 2007 8:34:54 AM PST
Hi folks, please keep your chin up. 3 doctors failed to diagnose my celiac disease. I took it upon myself to go on a gluten free diet. I could not believe the results. In three days I felt like a new person. I am 60 years old and have been eating gluten-free for five years. Cook your own food and stay out of restaurants. You will feel better and probably live a lot longer.
(Comment Replies Disabled)

 
Barbara Coots

said this on
05 Nov 2007 6:05:52 PM PST
I have been blessed by this website it has helped me feel not so alone though, it is hard to realize the number of people it effects. I have been gluten free one and a half years. My daughter 32 and granddaughter 8 have been gluten-free since June 2007. The scar tissue makes it hard for me to eat normal meals. It is a challenge. Barbara
(Comment Replies Disabled)

 
Karen

said this on
08 Nov 2007 3:43:13 PM PST
I was diagnosed 3 weeks ago...8 weeks ago both elbows broke out with itchy water blisters. I looked this up on the Internet . I arrived at Celiac Disease. I put myself on a Gluten Free Diet...2 weeks later the blisters were much better . I thought it was a fluke...So I binged on GLUTEN...rolls. bread...pasta ..THE NEXT DAY my elbows broke out fast and furious. I then made an appointment with my Dr. No one there took me serious ... I was saying that I thought I may have Celiac Disease. I am 61.. overweight. My Dr. didn't seem to think it was possible. I didn't fit the picture...skinny and sick looking...but she ordered blood work because of my elbows.... It came back POSITIVE POSITIVE POSITIVE . I now have the reputation of being her only patient to diagnose themselves correctly via the Internet. I didn't want to be a Celiac...a fat celiac...If I have to be a Celiac why can't I be skinny !!! 3 weeks of eating right ...I didn't lose a pound.... I am looking for a Gluten Free Weight loss diet..and bread for less then 6 $ per loaf.....Sincerely, I hope all of you who are sick and too thin become healthy and gain weight. I am looking forward to talking with all my new friends....
Karen
(Comment Replies Disabled)

 
Dionne

said this on
11 Nov 2007 5:30:46 PM PST
I read the vast majority of the blogs. I feel so sad because so many of you seem so down. I am 36 yrs. old, have three beautiful children, a wonderful husband, and a huge support system, both in fleshly family and spiritual family. However, this summer was the worst due to my health. I had been very anemic and had to receive iron infusions. In May, I thought I needed another one (just received one in January), but hemotologist said blood count was fine. I decided to keep track of my severe joint pain and fatigue. I decided to make an appointment for October to see my doctor. I knew that I either had CFS/Fibromyalgia or rheumatoid arthritis. I was in so much pain and couldn't keep up with my children, my house, or my job (I have my own successful house cleaning business...it's my passion). I went to see my doctor and she decided to run some tests and thought it could be celiac. The results came back positive. I love my doctor...she was on it! I immediately ran to the bookstore and obtained 'Living Gluten-Free for Dummies' (love it!! If you don't have it...BUY IT!) and came to this website (love it!! A visit a day keeps you focused!), started a gluten-free diet, and started doing LOTS of research. Why do I feel sad? I feel so bad that so many of you are so down. I was so happy to find out that there was a reason why I was feeling so miserable. I was so thankful after a week when I had ALL of my energy back (and then some), lost all of the intense pain I was feeling, and had back the desire to laugh and skip about. To know that all I have to do is EAT properly and I will be fine! I want to FEEL good. Don't get me wrong...I had a few days of 'OMG, are you KIDDING me?!' But, then I decided to pull up my bootstraps and deal with it. Courtney, you are 13, I cannot even imagine what you are going through, because my daughter is 13. Your age is such a difficult age and I am so sorry that you feel like you want to cheat. But, please remember that you will only harm yourself and the gift of life that you have been given. It's not easy to see the forest through the trees. But, remember, you will end up being so much more healthy than your classmates, who in a number of years will be very unhealthy due to their lack of proper nutrition (trust me on this one) and lack of proper choices. You CAN do it...stand firm with your resolve to be physically and mentally healthy. We all have choices to make in our lives. We can either pull out the 'I'm a victim' card or think about the awesome advantages we possess. It is so easy to feel low. But each of you have so much strength...it's obvious, because you took the time to write a bit about yourselves. I wish you all the very best in your endeavor to remain gluten-free.
(Comment Replies Disabled)

 
Debra Evans

said this on
12 Nov 2007 8:22:58 AM PST
My husband was diagnosed in 2005. He still feels bad. We live in Miami, and we can't find a good doctor who knows much about celiac disease. Debra
(Comment Replies Disabled)

 
Cheryl

said this on
12 Nov 2007 8:47:44 AM PST
I was diagnosed about two years ago with celiac disease. What a blessing to find out. I have been treated most of my life with IBS syndrome. The diarrhea and the gas is awful. I am a single person and its very hard for me to go out and enjoy myself because I never know how I am going to be from one minute to the next. I cannot tolerate too many medications to help this matter. My sister was diagnosed first but she doesn't seem to have it as bad as me.

I have a teenage daughter who probably has it also. Stomach problems run in my family. I have a pretty good outlook because what else can we do. I'm with Karen who says I want to be skinny. I am very thin except for my stomach. I have tried so many diets but now its very hard to find the correct food. I also am looking for a good bread that doesn't cost $6.00 and also a good diet that works. I am also looking for a single group with people who have the same conditions as myself.

(Comment Replies Disabled)

 
said this on
14 Nov 2007 3:36:08 PM PST
My husband (36 yrs old) was diagnosed about 4 months ago and my son (10 yrs old) was diagnosed yesterday. The reason that we were able to find out about this disease was due to a conversation at a friend's birthday party. Because this mutual friend was brave enough to order her food properly and explain this disease to the waitress-I found out about Celiac and was able to see that my family needed to be tested. This is something to be excited about learning about-What other disease can you heal yourself simply by refraining from certain foods? Any other disease diagnoses means you will get sicker-with this, you can get HEALTHY! Today, we made gluten-free pizza, cookies, and banana bread! Any restrictions you have-can be overcome-just go in any health food store and talk to the owner or manager. As for the extra expense-don't eat out as much-have friends over and maybe they will see the benefits and great taste of the gluten-free lifestyle!
Be proud-tell your friends!!
(Comment Replies Disabled)

 
said this on
23 Nov 2007 5:56:57 PM PST
LISTEN UP. I'm 34 yrs. old, been diagnosed with anemia then not, been laughed at for being at the emergency room twice, been a dead beat (extreme lethargy),look very skinny, (lowest 104, now 112) at 5'3', formerly age 30 soccer mom who played forward, but have been thinking I have chronic fatigue syndrome, allergies to everything known to man, aches, short stress levels, excema, gaunt pale face, rough skin, skin over muscle - no fat, profuse sweating (hyperhydrosis), jaw pain, stomach cramping every morning, dizziness and had my first seizure 2 wks. ago. I tried a gluten-free diet by fate just to feel better and suddenly started learning more about celiac disease through Dr. Oz and as all of this was happening, my body started having unbelievable energy, my husband started feeling FLESH on me!, my libido turned way on, everything got better except the dermatitis which I read is supposed to subside eventually. The only bad thing is: I have to go back and eat normally again so that all the tests in a week will be right. I already began this Thanksgiving - Boo Hoo. I'll take a diagnosis that is a cure any day. The moral of this story is: Be happy, it will get worse over time if you don't treat it.
(Comment Replies Disabled)

 
Belinda

said this on
06 Dec 2007 4:01:03 PM PST
Hey all there's hope for all of us :) My hubby went to Chiropractor yes Chiropractor and she put him on herbs they are: Cocarboxylase, B1-Thiamine, Acidophilus, Betaine HCL, Magnesium, and Olive Leaf-time released. He started just Magnesium and Acidophilus and one yogurt once daily and with the 2nd day his bloating was gone, his belly goes down daily and he has lost 29 lbs in 1 month! She old use even tho we went gluten free we didn't make his PH back to normal after all the gluten screwed it up. She also told him by taking the antacid he was just causing everything he ate to ferment in his belly and that's what was causing the bloating and gas and burning stools ! So try these and see what you feel like after . He feels GREAT and no more gas or bloating or fire hot stools he hasn't had the diarrhea for about 3 weeks now since we have done the herbs. So good luck to all and I do know how the 13 year olds feel my son was diagnosed at the very same age and believe me guys it's not worth cheating because it will haunt you later! I just do this whenever others eat what I can't I treat myself to a loaded baked potato with butter sour cream shredded cheese and bacon bits (ALL Gluten free by the way),every where my son goes he takes his own food and his friends come to our house for gluten free brownies, chili, taco's, corn dogs, muffins,and what ever I have fixed -(LOL the tell their mom's my gluten free food is better then theirs) So hang in there Courtney :)
(Comment Replies Disabled)

 
Belinda

said this on
06 Dec 2007 4:10:06 PM PST
Hey Karen,
You could be my friend and I know how you feel, my hubby was the same way--try the remedy I just posted. Hang in there it does get better :) I had those same blisters on one foot and hubby and sons' do too all the same foot lol was told it wasn't DH until my gastro doc confirmed it and now since being gluten free for 1 year ours are all gone. One son had them on his knees as well so it gets better just have hope :)
(Comment Replies Disabled)

 
Cathy

said this on
11 Dec 2007 7:38:32 AM PST
I think I have celiac, will know more after the tests the doctor wants to do--if I am what in the world am I going to eat? I feel so sad.
(Comment Replies Disabled)

 
Jean

said this on
20 Dec 2007 2:16:38 PM PST
Good reference
(Comment Replies Disabled)

 
Dennis

said this on
10 Jan 2008 9:37:54 PM PST
For newly diagnosed and all celiacs - welcome to a quickly growing community! If it's true that 1 in 100 people have celiac then we have a lot of company (many who don't even know it yet). So with the growing number of celiacs there is a growing amount of information and options available. Don't despair - go with the flow. It's easier than you might think.

My story
I learned I had celiac about 6 months ago. I have an Italian ancestry. Pasta and breads have always been a significant staple in my life. Boy was I bummed when I thought these foods would be gone from my life. It didn't take long after doing lots of research, including on this website, to learn I was wrong. There are lots of commercially available products that make the transition from gluten grains and flours to non gluten grains and flours VERY easy and tasty too.

Breads and Pasta
My wife, while not tested or diagnosed for celiac but is sure she has it, also is on a gluten free diet. We both feel so much better and can tell when we are 'sabotaged' with some hidden glutens while eating out. (yes, eating out is OK as long as you are careful.) She bakes her own bread using a Breadman bread maker and after a few tries we now get perfect bread every time and at WAY under $6 a loaf. You can put the ingredients in, add in a delay cycle if you want it to be ready at a certain time, walk away, and come back to a great smelling house and a very satisfying loaf of bread.
Don't even get me started on pasta. There are several brands of rice pasta that are to me, with my Italian background, indistinguishable from wheat flour pastas both in flavor and texture.

Eating Out
Many restaurants (including Outback) have gluten free menus. We often go to Outback or Red Robin and other local establishments who promote gluten free menus. Gluten free is still new to some servers and cooks and it is important to be very specific when ordering that you want the gluten free version then check your meal when it arrives to be sure it is right. However we are finding that our servers are becoming more and more familiar with gluten free so it is starting to be less challenging when ordering. Try Googling 'Gluten Free Restaurants in <your town>' and see what comes up. You'll probably be very pleased.

Believe me when I say that you can eat gluten free more and more easily as more and more people recognize that they have celiac or celiac symptoms and stores and restaurants begin to cater to this growing community of customers. This isn't a curse - it's path to feeling better and a healthier life!

Enjoy - Dennis
(Comment Replies Disabled)

 
BobSmith

said this on
10 Jan 2008 2:30:19 AM PST
I was diagnosed in 2005 and my sister has had celiac for about 20 yrs. She never understood what is really was until now and is very ill with other things due to this.

I am OK with the diet but find it hard to eat out. It gets boring to order the same old things. We went on a cruise and they had very little I could eat due to the rich sauces and all. I wish there were a local support group in my community so we could share experiences and help each other deal with this.
(Comment Replies Disabled)

 
said this on
26 Jan 2008 5:25:51 PM PST
I was diagnosed with celiac disease when I was a year old. I am 36 now at the time the doctors didn't know what was wrong with me. I was so sick at time. In time I thought I would get over it. But once you are diagnosed with it you never grow out of it. I still find it hard to stick to the diet but when I feel very low and I sometimes can't understand why I am so low in energy and when I hear of other celiacs' stories it helps me. I do feel lots better on my diet. I have been in denial thinking I could eat anything I WANTED but it didn't help, listening to other peoples stories helps me the most. I do a lot of my own cooking now and since I was a kid there wasn't much at all out in shops that could be bought, now there is a much wider range of foods out there and I am still learning and I am a very happy person with or without being celiac.
(Comment Replies Disabled)

 
elaine oehman

said this on
15 Jan 2008 7:55:48 PM PST
Several years ago I was extremely sick with diarrhea and stomach problems one test indicated was about 90% gluten sensitive. Because of everything that was wrong with my stomach with no answers I did not think too much about it, but I did cut out wheat bread. I now eat only potato bread and that does not bother me. I am also a vegan vegetarian but do cheese and soy milk. If I would be a little more careful I am sure I would feel better. The doctors never seemed that concern about it.

Thank you all for your input.
Elaine
(Comment Replies Disabled)

 
Theresa

said this on
12 Feb 2008 3:25:21 PM PST
I'm newly diagnosed, and am still learning. Seems that most of you healed fairly quickly! I spent months getting sicker and sicker until I had to go out of work. I was fortunate in that my endoscopy was a last minute 'why don't we add this' test, and the gastro specialist was fairly familiar with Celiac. Anyway, I have been on the diet about 3 months and am still having problems. I've had so many symptoms, it's hard to figure out what is Celiac and what is not. Am still doing the medical merry to round of tests to eliminate 'other'. I find lists of the most common symptoms, but everything I read goes on to just say that there are hundreds of manifestations. Does anyone know of any comprehensive lists for me to fret over?
Good luck to all of you. Keep your chins up and keep plugging. I'm sure that the lifestyle becomes habit and not such a hassle after a while.
(Comment Replies Disabled)

 
Amelia

said this on
12 Feb 2008 4:20:48 PM PST
Hi! My name is Amelia and I am 8 years old. I was diagnosed at 3 1/2 years old and have been Gluten Free ever since. I hate having Celiac Disease. I like to bake Gluten Free foods with my Mom. Whenever someone has something to eat that I cannot eat, it is very frustrating. Even if I have the same thing in Gluten Free I still feel a little weird. I am looking for other kids to talk to like me. Thanks, Amelia.
(Comment Replies Disabled)

 
Trudy

said this on
14 Feb 2008 11:02:22 AM PST
Hi! Good to read all your comments I've been diagnosed for over 2 years now. I still find it hard to cope!!! Take care.
(Comment Replies Disabled)

 
Yvonne Leigh

said this on
23 Feb 2008 10:13:09 AM PST
I am a 63 year old woman with self-diagnosed Celiac Disease which I call a body condition, rather than a disease. No doctor ever attempted to find out why a marshmallow made me deathly ill or why I developed flu symptoms when I drank Mug root beer. I found my symptoms by accident while searching the Merc Manual for something else. An elimination diet set me free from chronic illness early enough to prevent me from developing the end of life symptoms/diseases related to bones and nerves and muscles. I was in touch with Ron Hoggan when I developed Trigeminal Neuralgia after an accidental consumption of gluten and lost touch with him. After the small intestine healed, it was no longer necessary to take the anti-seizure medicine, just as I promised the Neurologist. It has been about 8 years since that episode and I only keep a sample of the medicine on hand in case of another accidental exposure. Experimentally, there is a direct relationship between the gluten and the nerve disorder. I am not at all deprived because there is one tree in my Garden of Eden that I can't eat from because, in the day I eat thereof, I will die. Thanks for reading, Yvonne
(Comment Replies Disabled)

 
said this on
01 Mar 2008 4:25:23 PM PST
Okay for all of you fellow celiacs out there. What does a person do when they are not only diagnosed with celiacs but have other restrictions such as sugar, dairy, eggs, yeast , soy and the list goes on.
(Comment Replies Disabled)

 
cat

said this on
14 Mar 2008 6:16:15 AM PST
To # 31 eat sushi, all kidding aside, see a good nutritionist, who would never advise anyone to eat sushi. I've had celiac since 1996 and when I moved from NY to FL in 2000, I found a doctor there who told me I could introduce gluten back into my system after 7 years, so I did, no problems immediately, it took 3 years and me moving back to NY to find out how wrong that doctor was, ugh! Anyway, I am trying to get a new business off the ground, It's a cupcake small pasty shoppe that offers gluten free products as well as regular stuff. I look around at other people eating pizza and then I see people in wheelchairs breathing through a tube. I don't feel sorry for myself at all, I'm an adult, but I think if you have kids, you and you alone need to educate their school. Look, they took peanut butter out of most schools because of all of the kids with allergies to them--because they were educated. Stand up for your kids, spread the word so that when you say you have celiac people know what the heck you are talking about!!!
(Comment Replies Disabled)

 
lucky

said this on
06 May 2008 10:42:46 AM PST
Being born with celiac in 1950 and diagnosed in 1998 I would like to share my diet, being Italian you can imagine how much I miss pasta, pizza, etc., etc.. The closest product I find that is similar to pasta Glutano Tagliatelle, for pan cakes 'Fast & Fresh' corn bread, and for desert 'Cause You're Special Golden Pound Cake Mix. These products are the closest to the real thing. Hope I help someone.
(Comment Replies Disabled)

 
Gwen

said this on
04 Jun 2008 10:04:10 AM PST
I am pretty convinced I have Celiac. I have had GI issues for as long as I can remember. I think I have been tested for everything out there! Nothing has turned up yet but I am still miserable. My pants don't fit. I have pains in my small intestine, I am in the bathroom every five minutes. My moods are completely erratic and I feel like I have the flu (achey). I am a second year nursing student with a previous degree in biology so I am pretty educated on many of the diseases that I have been tested for and I have a hard time swallowing what the doctor's tell me; 'Its IBS, Its stress, You don't handle your emotions well'. Can I really be a hypochondriac? Can my 'head' really make me feel this bad? I am seeing a gastroenterologist next week. I am nervous because when I bring Celiac up to my doctors, they scoff at me. How do I approach this doctor? It also scares me that so many have said that the tests can come back negative. I don't want to be misdiagnosed again. Thank you for your help
(Comment Replies Disabled)

 
Suzy

said this on
09 Jun 2008 9:31:48 PM PST
Dear Gwen, I felt the same way you do! was I really anxious, unable to handle stress? No, but my body was always betraying me. Go gluten free, not just half way, jump in with both feet! wasted precious time wading in. Not to say it perfect now. I still get sick off and on but at least I can stay awake! No more of that drugged feeling!! Good luck.
(Comment Replies Disabled)

 
Jill

said this on
03 Aug 2008 11:52:39 AM PST
My son was diagnosed with celiac disease at age 6, after suffering for years from sporadic stomach pains and diarrhea. He is also diabetic, so mealtimes were a challenge at first. Now he is 19, and healthy as can be. It was hard for me to watch him go to university in another city, as I worried about his gluten-free diet. I remembered, though, that he could order food on-line if he got low on supplies. I just order him a care parcel to put my mind at ease.
(Comment Replies Disabled)

 
Starr

said this on
03 Aug 2008 3:36:59 PM PST
My test came back negative, and I tried to continue to eat wheat, and I only got sicker. My body did NOT care that my test came back negative. I found that even the slightest amount of wheat on fried chicken or a jo jo would make me sick for days, the more wheat, like a sandwich would give me days of diarrhea, a spastic colon, asthma, acid reflux, and such a sore painful body that felt like someone had stuck me in the washer on heavy duty cycle for a week. I could barely walk after eating it. No matter what the tests say, my body will not tolerate me eating wheat. My co workers are so supportive. I have given in on occasion and always regret it. When I come to work, my co workers know, as I will cough and I might be a little sad or a little cranky. If I ate wheat every day, people would hate me as I would be a 'B' word type of lady, and I would have asthma every single day, and be mentally ill with panic attacks, depression, etc., along with eczema and other skin conditions. I may have never figured it out, if I hadn't gone on Atkins. I felt 30 years younger when I was on Atkins. It wasn't until I had pasta that I became very ill, all over again. I think I've had it all my life, and it just progressed rapidly once my appendix was removed. I am lucky because my co workers try to help me stay off wheat, and they come up with recipes for me to try and food. They really are sweet about it.
It's time restaurants start to think of us. It's not right that we can't go have a sandwich or pizza or French toast that's wheat free. It is possible to make it, and it should be offered to us.

I'm slowly seeing a difference in some restaurants, and Red Robin is one of them, and they deserve high praise for that.
(Comment Replies Disabled)

 
Sam

said this on
21 Aug 2008 8:14:10 PM PST
I was diagnosed 3 weeks ago at age 46. I have not had many of the stomach or intestinal symptoms but 'fybromyalgia' symptoms and brain chemical issues.
(Comment Replies Disabled)


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