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Alcohol and Celiac Disease

Single white female seeks alcohol during social hours that won't irritate, humiliate, or disrespect my small intestine.

I know the big "no no's" - gin, whiskey, beer
or anything fermented from grain, hops, barley. I miss my black and tan's at the local Irish-type pub but still love my cosmos.

Any advice on the affects of vodka, rum, mixed drinks in general?
Or should I just give up the ghost when it comes to happy hour and stick with club soda and lime?

As always, Celiac.com welcomes your comments (see below).


Spread The Word



106 Responses:

 
Al Barringer

said this on
11 Dec 2007 8:10:34 PM PST
Wikipedia has the following advice, which works for me: 'Almost all beers are brewed with barley (and sometimes wheat), and hence are unsafe for the gluten-avoider to drink. Sorghum and buckwheat based beers are available, but remain very much a specialty product. Most specialists now consider all distilled forms of alcohol safe to drink, provided no colourings or other additives have been added, as they might include gluten ingredients. Wine, sherry, port, cider, rum, tequila, bourbon and vermouth are all probably safe. Liqueurs and pre-mixed drinks should be examined carefully for gluten-derived ingredients. Some gluten free beers are available.' Nothing here would forbid vodka or rum - but proceed with caution, of course.

 
Holly Gault

said this on
12 Dec 2007 6:42:21 AM PST
At some point I remember hearing that distilled alcohols were fine for celiacs, but I have found it ain't true. I tried some of my partner's scotch and ended up with fever blisters all around my mouth as well as more of the usual symptoms.
Vodka, unless they say it is all from potatoes, is suspect.
Rum is my friend. Luckily I have always liked rum. Tequila may be okay, too. Liquors could be tricky because their base may be grain - Grand Marnier is a brandy, so that should be OK.

Good luck.

 
Rachel

said this on
25 Aug 2010 11:25:22 AM PST
I have celiacs, but it isn't very severe. I have found that some vodkas are not ok..I have also been told that it will be ok if it is distilled but that is not true at all. I had brunettes last night (nasty, i know, but hey i'm a college kid and need something cheap) and am not feeling well today...I threw up and even though I was pretty drunk, I shouldn't have been throwing up at that point. My stomach hurts and I am having those icky celiac symptoms. I am just going to experiment with alcohol but I guess I will stick to rum instead...Grey Goose is my favorite but its been bothering my stomach. Just be careful because like i said not all vodka is ok!

 
Salina

said this on
20 Oct 2010 11:19:34 PM PST
I'm a celiac with multiple ongoing problems and symptoms, so you could say I'm extremely sensitive! I admit that I still enjoy a drink or two and of course a nice bottle of wine but it hasn't come without difficulty in determining what is ok and what is not! I only drink potato distilled vodkas (more times distilled the better, Glacier is great) and as for wine I've learned its best to stick with the most recent years 2010, 2009 etc. but some tend to make me itchy and I know what to stay away from next time. Just be careful and choose wisely, don't let anyone try to tell you what is ok for you or not because you're the one that has to pay the price...

 
Isabella

said this on
08 Feb 2011 1:08:28 AM PST
There is no such thing as "not very severe" celiacs. You either have it or you don't. And if you have it, even if there are no symptoms, you should abstain from ALL gluten...the long term effects of damaged villi in the small intestine WILL lead to DETRIMENTAL and even LIFE-THREATENING illnesses.

 
Maria

said this on
01 Sep 2011 12:03:00 PM PST
Well said! If you have been diagnosed with celiac disease even 1/32 of a teaspoon or gluten in any form is detrimental!

 
Shay

said this on
25 Oct 2012 9:46:21 AM PST
Thank god someone else feels the same!! I get sooo tired of people saying "oh no it's fine my symptoms aren't as bad as yours so I can eat this pizza". Grrrrrr!!!

 
cecil

said this on
18 May 2015 7:05:45 PM PST
I agree with all of you thank you for saying that I get tired to of people saying the same things.

 
DEBORAH

said this on
03 May 2013 6:18:29 AM PST
You are absolutely correct!

 
lisa

said this on
27 Apr 2013 5:49:49 AM PST
Tito's vodka is gluten-free. It's not very expensive, and most bars carry it. When in doubt, I sneak in my own...

 
Miki

said this on
12 Dec 2007 7:56:12 AM PST
I used to be able to tolerate alcohol, but now within 24 hours after drinking it, I throw up. I never used to do that. Its awful. My body is completely unable to digest it.

 
tiffanytaylor

said this on
12 Dec 2007 12:06:24 PM PST
Hi Randi! You should try wine...I drink mostly red but occasionally white. If I'm out and not sure (or too embarrassed to ask) then I know I'm safe with wine. My true love is a really good frozen margarita, but you have to ask what's in the mix. Lime juice and sugar with any tequila make a great rita!

 
melis

said this on
12 Dec 2007 1:41:33 PM PST
Many vodkas, except for 100% potato vodka may be cut with grain - your small intestine might not like that too much:-( Chopin Vodka seems to be the best one.

 
Maria

said this on
01 Sep 2011 12:04:16 PM PST
Ciroc vodka is made from grapes, so that is safe.

 
L.D.

said this on
21 Dec 2015 11:04:32 AM PST
Be very careful with vodka, you need to read them. I tried absolute vodka thinking its triple distilled should be fine??? I was so sick then my husband looked closer & its made from wheat, now I'm having trouble with most alcohol. Just staying clear now it's not worth the pain. I also agree with everyone, you can't just be "a little celiac"!!!

 
Katie

said this on
12 Dec 2007 1:53:56 PM PST
As a beer lover turned admirer from afar, I know what you are going through. BevMo carries a sorghum beer by Anheuser-Busch called Redbridge. It has a taste different than what you are probably used to but the fact that it comes in that dark brown glass bottle helps fill that void.

 
coleen

said this on
26 Jul 2009 10:54:44 AM PST
I like Redbridge very much reminds me of Bud Light

 
Shelly

said this on
12 Dec 2010 8:33:00 PM PST
St Peter's and Bard's actually taste better than the Redbridge but are more expensive. I have a hard time finding gluten free beers since most of them are made in Europe and Canada and are not distributed in the U.S. BevMo has a fairly decent selection of gluten free beers for those of us who love beers. Also, in the Phoenix area, Sun Devil Liquors carries a good selection and has an awesome selection of wines. Their mead and hard cider selection is extensive as well. The store on County Club in Mesa even has a wine cellar.

 
nikkole

said this on
06 Jan 2011 10:53:19 AM PST
I agree..I hated Redbridge! I thinks it tastes awful.

 
Cristina

said this on
13 Dec 2007 10:56:21 AM PST
I found that hard cider is really good. It's just made from fermented apples, there are many bands but Woodchuck being the best. These are often more available at bars than the select gluten-free brew.

 
AJ

said this on
14 Dec 2007 10:00:08 PM PST
I just tried K Draft Cider the other day and I found it quite good, it has a taste that slightly [at least to me] resembles that of beer, of course it's not the same as beer, but it is definitely worth trying, it has a higher alcohol content though, even my husband liked it.

 
Danny

said this on
17 Dec 2007 12:41:54 PM PST
My partner and I have been diagnosed celiac for over 2 years. Whenever I'm exposed to any amount of gluten in my food I am 'blessed' with the dermatitis herpetiformis (DH) rash, so there is NO mistaking my reaction! However, I drink gin (usually Beefeater or Bomba) and vodka (usually Gray Goose or Skyy) and never have a reaction. The ADA has determined that the distillation process does something to the gluten protein that renders it 'non-toxic' to celiacs, and there are even a few articles here on celiac.com that attest to the 'safety' of drinking alcohol where gluten is concerned. Two caveats: Some people don't seem to tolerate gin or vodka who are celiac so you might have to do the trial and error and also I'd suggest avoiding the flavored alcohol (I have had reactions to citrus flavored vodka). For beer drinkers, Redbridge is a very good gluten-free beer.

 
jodi

said this on
18 Dec 2007 8:43:08 AM PST
Hey, I was having the same problem, I am 23 and very much like to have a drink now and then, I have found that Bacardi (rum) and diet coke, don't affect the gluten free people!

 
Carol Frilegh

said this on
19 Dec 2007 6:29:06 AM PST
I am an undiagnosed celiac following the Specific Carbohydrate Diet which is Gluten Free and allows certain alcohol such as wines with a zero sugar rating. I dilute my wine with water and add a saccharin tablet. I also do OK with a martini or Margarita that is only tequila and lime, no liqueur. I can have gin, scotch, rye, bourbon and vodka but rarely have anything but the wine.
I really am a rare bird as after eight years on The Specific carbohydrate Diet, I am rarely bored with my food or missing what's restrictive. At seventy seven I look much younger, take no medications and work out. Wish I had been in this good state before becoming celiac. The disease actually has a 'flip' side that includes positives.

 
greendog

said this on
19 Dec 2007 6:57:22 AM PST
I'm not a full blow Celiac but am allergic to Wheat Gluten. I am able to drink Miller Lite and Corona Lite and it doesn't bother me. Wines make me itch. Tequila made from cactus is good. The thing to remember is that it's not what they process out of the booze, but what they add back in.

 
Mo

said this on
19 Dec 2007 7:45:11 PM PST
I am a celiac and was a bartender for 9 years. I think that it is important to stick to the 100% potato vodkas, rum and 100% agave tequilas for celiacs. Hard Cider, Sake and wine are all good options. Beware of mixed drinks (triple sec) is not your friend. If you enjoy margaritas ask for Grand Manier instead of triple sec.
I hope this helps. There is nothing worse than a hangover on top of a bad reaction due to an allergy.Good luck!!!

 
said this on
28 Dec 2007 4:07:35 PM PST
My clinic specializes in treating patients with gluten intolerance and celiac. Distilled alcohols do not contain gluten. Beer is not distilled and therefore not okay unless it's one of the newer gluten-free varieties that recently came on the market. The fact that some celiacs don't respond well to certain liquors has more to do with alcohol itself, perhaps their liver function or the presence of infection in their small intestines. But it isn't due to the presence of gluten regardless of whether the alcohol is made from a grain.
Hope this helps.

 
Lisa

said this on
27 Apr 2013 5:57:29 AM PST
How do you test to see if you have infections in the small intestines? My liver functions seem normal, but I have never been advised to test my small intestines for infections?

 
Gemma

said this on
31 Mar 2008 1:40:17 PM PST
I am appalled to find that after I drank 1 pint of cider that I was over the safe drink driving limit after being breathalised by the police. I am now awaiting a court hearing and the loss of my driving license. Is there a different limit for the amount of alcohol a person with ceoliacs can safely consume and drive to that of a normal person?

 
shawn

said this on
29 Apr 2010 2:50:48 PM PST
Hey if you stick with the potato vodkas and if you like a good gin martini you are okay. As long as it is one like Tanquery, and stay away from certain additives especially sugary ones that are not distilled. Of course, beer is not distilled and they have come out with a few gluten free beers for us beer lovers. I personally am a gin martini kind of a gal. ;-) Have a wonderful martini day.

 
Graham

said this on
13 Jun 2011 6:28:32 PM PST
Sorry to advise you, there is no way you can be over the legal limit after one pint of regular strength cider. I am a Police Officer and a breath technician (I administer the evidentiary tests on impaired drivers) so I know. There are two units of alcohol in a pint which, if consumed quickly and a brief amount of time passes for the alcohol to be absorbed, would put you at 0.02 (20mg alcohol in 100mL of blood). Your ability to operate a motor vehicle may still be impaired but you would not be over the limit.

Either the drink was spiked, or you drank way more than you are stating. When I completed the breath technician course I consumed 13 (thirteen) oz of scotch whiskey in 45 minutes (that is six doubles and one single in less than an hour) and I hit 0.12 (120mg in 100mL). For reference the legal limit in Canada and the US is .08 or 80mg alcohol in 100mL of blood.

 
Mae

said this on
12 Nov 2013 7:45:46 AM PST
Sorry Sir, But I too tested over the legal limit with a very small amount to drink. My hearing for my license is today. My husband is a physician, and we beg to differ. I am also TBAC licensed and in the medical field. I am in the process of researching this for my lawyer. Without going into too many specifics, we have an enzyme that helps process/eliminate alcohol in our lungs...

There seems to be a connection with celiac and this enzyme-lack of.. I scored a whopping 1.5 after 2 glasses of white wine over a 3 hour work dinner. We were home, but my shoe (high heel) came off as I was applying the break to park, and I hit the accelerator, running into the wall in the front. We were fine -- but it was late on a Saturday, I passed the field sobriety test and am very sober in my video, but he said he could smell the alcohol on my breath and to our surprise, took me in.

I, too, have issues with most alcohol and some vodkas. I cant drink much, because I actually start to get a headache while drinking (and heartburn). A nice glass of red wine on occasion is pretty much it for me. If there is an occasion, I am usually the DD. I am a HUGE proponent for getting drunk drivers off the road, so I am infuriated to find myself on the other side of this issue. Research is needed --police officers need to focus on the REAL drunk drivers out there. (side note, the arresting officers partner told my neighbors--when he was asked why in the world I was being cuffed, he replied with, "Oh, he's the best at bringing them in."

And on the note for liver function--absolutely agree.

 
Joyce

said this on
23 Apr 2015 10:01:56 AM PST
Hi; I am going through a similar experience. What was your outcome?

 
Katherine

said this on
31 May 2015 12:47:51 PM PST
You don't have celiac, Graham. Educate yourself. Celiacs have damaged guts from the gluten, we have holes in our guts which allows food and alcohol to enter our bloodstreams directly. Many, many celiacs have complained of feeling drunk after a small amount of alcohol. Celiacs and gluten issues are new and still being researched.




 
Izzy

said this on
28 May 2013 8:05:02 PM PST
Hi Emma,

I have recenlty had the same experience, how did your court go have you found and further information?

Thanks

 
Kip

said this on
17 Apr 2008 4:21:14 PM PST
I just found out today that I'm a Celiac and enjoy my Vodka martini's what are the best ones? I'm willing to make the changes in my diet to be healthier but giving up martini's will have to wait.

 
John

said this on
04 May 2008 3:10:59 PM PST
I'm another newcomer to world of Celiacs. I looking for advise for mixed drinks while on vacation. I love Daquiries & Margaritas, but I'm not sure how they are mixed when when I'm out. Do they use mixes, and do they contain Gluten?? I'm hoping a bartender out there good help with information.

 
James

said this on
20 May 2008 11:39:38 AM PST
I was recently diagnosed with celiac disease, I hate not being able to eat out, especially when I have a date.
Why does it have to be so hard, can't drink, can't eat like a normal individual, it's too embarrassing, I feel like going back to gluten.
Help please!

 
lindsay

said this on
12 Jun 2011 5:53:46 PM PST
If, as you say, you are a diagnosed coeliac, don't even think about eating food containing gluten. Think of all the positives. If you avoid all the processed gluten free food you should be eating a really healthy diet. Coeliacs also have a risk factor 100 times greater of contacting stomach cancer. Read up, educate yourself, get into the kitchen and have a ball.

 
Tris

said this on
23 Jun 2011 7:18:47 PM PST
James,
I was diagnosed 17 yrs ago (pretty progressive for the 90's). I was very good at keeping to the diet. There are so many gluten free stores, websites and restaurants. Just stick with the basics. rice, corn, salads, meat, potatoes, and hell for breakfast have bacon, eggs and home fries, just hold the toast. You can do this. You must do this. It will not get easier. I've been cheating lately because I have kids and the house is full of bread, cookies and even beer (for my husband). After all this time I need to get back on track and I will because the repercussions of cheating are not worth it. It will get easier to avoid gluten. Do not give up! And look for gluten free section on menus (Friday's has one). good luck

 
MJ

said this on
04 Jun 2008 7:25:29 AM PST
To James, I feel the same way you do. I've been doing this for about 4 months now and for the first two months I was just so thrilled to be feeling better, I didn't think about the quality of life change involved in not being able to just eat out whenever I want without planning ahead, etc. Also to Miki, I am the same way - I used to be able to drink any kind of alcohol with no problem but now whenever I drink, the next day I have this sweeping depressed feeling - it's so awful and consistent, I'm considering giving up alcohol entirely. Oh, my poor social life!!

 
VJR

said this on
29 Dec 2011 5:50:53 AM PST
I am so pleased I have read this. I have been diagnosed for 8 months now and have done loads of research and try really hard but this is the first I have heard of the 'sweeping depression'. I get this just about every time I drink, really bad when I am ill. It never even crossed my mind it was related to celiac.

 
jill

said this on
16 Mar 2013 2:28:08 AM PST
Me too... I was just diagnosed 2 weeks ago. I am alcohol and wheat free. We all know alcohol can cause depression, but is it worse for celiacs?

 
Kasie

said this on
23 Jun 2008 2:48:03 PM PST
To all: I am a new comer to the gluten-free world. I have always had an active social life and I do like my booze. I am sad and depressed that I can no longer go out and enjoy my 'old life'. I am scared to death to go out to eat. I have been gluten-free for less than a month, and it's an adjustment that's not an easy one. I thought it would be simple, and I continue to stay optimistic, but this weekend it hit me hard when I went to a housewarming party for a friend, and realized that there was nothing I could eat or drink there!!! It kinda sucked and I felt alienated being there. I guess it's something I have to deal with. I had Malibu Rum and Coke Friday night and got an excruciating migrane, so I guess that one's out too! For me it's trial and error with the booze, but I'm about to call it quits all together. I am feeling better, and well, if that means i have to stop drinking, well, I guess I will be the sober one! Yeah it sucks, but what other option do I have...HELP!!!!

 
Kathleen

said this on
18 Jun 2010 11:22:14 AM PST
Just like you I'm new(er) to the gluten-free world. I'm definitely a vodka, rum and wine fan. For me it was trial and error for months to find out what I can and cannot consume. I too still feel alienated but in the long run your mind and body will thank you for choosing the right option(s) for you, be it the sober one or the casual white wine drinker.

 
LindaR

said this on
17 Feb 2012 9:31:00 AM PST
I have one idea - learn to enjoy it! I found a new love in "the Captain" (Captain Morgan, that is). I mix it with diet Coke and drink with the my friends at karaoke (and it makes me sound better too!). If I know I'm going to be going to friends houses for cocktail parties or going out to dinner, I bring things I can eat (like gluten free buns so I can eat burgers at our burger joint). I bring my own crackers to parties so I can have cheese and crackers. The beautiful thing about gluten free, is that if you don't search out gluten, you will not have a weight problem. I've dropped 5 pounds in one month without even trying. If I would give up alcohol, I'd lose even more, but one thing at a time. Embrace the good things about being gluten free - you can't change it so make the best of it. Keeping a positive attitude can really help.

 
Mary

said this on
03 Jul 2008 3:21:11 PM PST
Just found out that I have celiac. I don't know about this disease but I guess I have to learn fast. I love to have my drinks and go out to eat but its become more difficult. That advised shared helps. Thank you.

 
Hillary

said this on
19 Sep 2008 7:26:12 PM PST
I have had a gluten intolerance for over 2 years and have never heard that I could not drink any type of liquor. I had read if it is distilled it's fine. then today I went to the liquor store and began talking to an employee who has a friend with celiac only for her to tell me I can't have vodka (unless its potato)...I'm really confused and cannot give up my drinks (my faves are vodka and whiskey).

 
lauran

said this on
24 Oct 2008 8:04:28 PM PST
It is a very interesting and informative blog which I like most.

 
Cassandra

said this on
19 Jan 2012 10:42:48 AM PST
I have been celiac for a few days now and it's hitting me hard because everything I ate had gluten in it and now suddenly have to drop it all. It's crazy.

 
Jessica

said this on
15 Nov 2008 12:50:50 PM PST
I have been a celiac for 1 1/2 years, and have dermatitis herpetiformis. It really does suck at first but it does get better. There are a lot of foods out there you can eat. Outback Steakhouse has a gluten free menu so you don't have to be embarrassed when you go out on a date. I really enjoy Malibu and coke. If I am out with some friends I do trial and error. Hopefully this helps. It really helps to just to find somebody that will listen to you for a couple of months complain. Because to you this is a life changing disease. Good luck

 
Jeff

said this on
01 Jan 2009 12:27:05 PM PST
I have been a celiac for almost a year now. I have found that eating and drinking out is extremely difficult but am functioning okay. Outback, Carrabas, Bonefish, Lee Roy Selmon's and a few others are great options for eating out that might be in your area. In regards to alcohol, all Vodka is not okay. Ketel One, Grey Goose and many other Vodka are distilled with wheat....so be careful. Most vodkas tell you what they are distilled from. Ciroc is a Vodka distilled from grapes and Chopin from potatoes so those are safe. Just wanted to give some of you a heads up. Good luck on your journey.

 
phil

said this on
07 Jan 2009 6:05:10 PM PST
I was diagnosed as celiac as a kid. I went gluten free for 1year and it greatly improved my health. I am now 33 years old and I try not eat bread, pizza, etc. but drink a lot of beer, etc. Recently I gave up alcohol because once I start I can't stop and blackout. My folks say I'm an alcoholic but I don't need to drink every day and wonder could gluten be a factor??

 
Anthony

said this on
30 Aug 2010 6:20:06 PM PST
Hi phil I too was diagnosed as a child but drank beer and it never effected me! no symptoms getting drunk apart, but as I've grown my body has reacted more! your level of intolerance changes as you get older I guess and now I can only drink wine. It remands to be proven if drinking wheat alcohol makes a person more drunk! If you find out let me know please?

 
Kathleen

said this on
21 Apr 2012 10:15:19 PM PST
Hi Phil, blackouts are not normal! Please check out A.A. only you can decide if you are an alcoholic. I never got a DUI, always worked, never arrested, responsible, etc. However, I am alcoholic. Try some controlled drinking. If you are truly alcoholic, eventually you won't be able to stop. A.A. works.

 
Heather

said this on
10 Mar 2009 5:58:56 AM PST
Phil, I think that the gluten in the alcohol does make a difference. I know that when I drink certain things it affects me different ways. If I were you I'd learn to like red wine - you get no nasty effects as you would with the beer. I have been eating wheat lately (hoping that I'll be okay) and I am finding that it has a bit of a delayed reaction, so that when it's passing through my intestines, I get very depressed. Does anyone else notice this?

 
Electra

said this on
01 Apr 2009 2:42:06 PM PST
I am an undiagnosed celiac with years of symptoms similar to the disease. I started drinking beer when age permitted and got diagnosed with depression. At age 33 a stressful work environment caused stress which led to drinking beer and I had symptoms the same as before like severe depression, fatigue, rash and pains. I haven't drunk since I was a young adult, but I still noticed that an occasional beer left me with unreasonable hangover that lasted for days. I went on cruise with colleagues and friends and had free drinks, of course I drank beer and got really sick. I thought I got motion sickness, but the effects lasted for one month or so. When I drank margaritas and Grand Marnier I felt fine. I am looking for what test to get for celiac disease.

 
Zombie302

said this on
13 May 2009 4:12:11 PM PST
I have had celiac for about 3 months now, and I am getting the blood test next week to confirm. I have eliminated gluten from my diet, and it was initially difficult, but after a few weeks it seems easier. Just remember when you shop to shop around the edges of the supermarket. This is where you will find most of the stuff you can eat regularly. Mostly perishable, but definitely possible to get a balanced diet without gluten. Also watch out for spices some spices have wheat crumbs in them, and wow does that get you. Good luck to all.

 
lorna denning

said this on
20 Jun 2011 12:57:34 PM PST
Zombie - good name for you - please educate yourself and be aware that the blood test does NOT work unless you are still eating gluten! So go back onto your gluten diet for about 4 - 6 weeks and if you survive, then do the test. Then and only then will you perhaps get the correct results. The only authentic test is a biopsy of the small intestine.

 
WRFC

said this on
28 Feb 2012 3:31:22 PM PST
Hi,
As a fellow celiac I can state categorically that the "blood" test is not close to the final word re: diagnosis. You must have a biopsy of the small intestine, have the sample dyed per protocol and a pathologist given a heads up (eg. r/o celiac sprue). The technicians in pathology labs seen hundreds of samples and mainly look for cell changes and cancer. I was diagnosed this way 10 years ago and have had the blood test come out negative. This despite numerous biopsies and symptoms to the contrary. Get a good GI DR., have the endoscopy and biopsy done and find the truth!

 
Julie1969

said this on
16 May 2009 6:59:02 PM PST
I have had health problems for many years, but the past year has been worse. I have chronically low magnesium levels to the point where I have to go to the hospital everyday and get IV magnesium replacements. My body isn't retaining at all. My doctor thinks I have celiac disease so I started the gluten free diet 2 1/2 months ago but there hasn't been any change in my magnesium levels. My doctor thinks it will take 6 months for my intestines to heal so I can start absorbing nutrients. I was tested for sprue which came back negative but I had genetic testing done that says I have the celiac gene pairs----DQ alpha 1 and DQ beta 1. I am getting 9 grams of magnesium by IV everyday and my blood levels are still low. Has anyone out there heard of such a thing or have the same problem with absorbing magnesium that I do? Help!

 
Linda

said this on
19 Feb 2010 7:48:40 AM PST
I would try and find a good naturopath that knows a lot about celiac disease. I am going to see one that is celiac himself and find out what nutrients I need to keep my body healthy and strong. You may need to take supplements that heal the infection in the intestines before you will absorb nutrients. I take some that I have researched and it has healed mine and my liver which were malfunctioning from the gluten.

 
bridget

said this on
24 May 2009 3:39:58 PM PST
Reply to all: I have been on a gluten-free diet for 3 months now and it is so hard. I just turned 21 so it is even more frustrating for me. Just some background - I am extremely underweight, malnourished, and had severe vitamin deficiencies including lactose intolerant. I had an endoscopy that came back clear and I switched doctors and got a blood test done that said I had the gene for celiac. Since I had the symptoms she put me on the gluten-free diet. I am actually going back soon for a new test where you swallow a pill camera that can take pictures where the endoscopy couldn't reach.

 
Dana

said this on
04 Jul 2009 7:26:17 AM PST
Thanks for all the info on alcohol and celiac. It was very informative.
I love beer and wine but the beer leaves me so sick the day after I can't drink it to any excess anymore but just a little wine is going to have to be my choice now. I am 51 and had celiac since I was 2. Thank you again!

 
Melissa

said this on
14 Aug 2009 8:00:56 AM PST
I have not been diagnosed, but I have done a lot of reading on the web and all signs point to celiac. I have been trying to be gluten free for the most part with some slip-ups (beer, pizza..I mean how can I give them up so easily) and I have been feeling better. My only question is...should I spend the time and money (I have no health insurance) to get diagnosed? Or would being strict about the diet for say 30 days, be telling enough?

 
Caroline

said this on
21 Apr 2011 10:14:59 AM PST
My six year old daughter has been diagnosed with celiac, so I have been doing extensive research on the disease. After reading many posts on this blog I feel compelled to urge you all to out the University of Chicago website on Celiac Disease.

The information clearly states that ANY gluten in your diet will trigger the autoimmune response that inflames and damages your small intestine - whether or not you have symptoms. My daughter's gastroenterologist and this website both state that repeated triggering of the autoimmune response could cause it to "turn on" permanently - NOT GOOD.

I am encouraged by the significant response by the food industry to provide more gluten free options (now there is gluten-free Bisquick, for goodness sake) - which, of course is in response to the increasing diagnoses of Celiac, consequently predicting a $1.7 billion industry in 2010.

Everyone, hang in there and please do what is right for your body and your future. That this disease can lead to infertility, Chrone' disease and even, rarely, cancer should be more of an incentive to toe the line on gluten-free - aside from living symptom-free. Our whole family has gone gluten-free in support of my daughter and although it is a huge sacrifice, it will be worth it.

Good luck to you all!!!

 
WheatFreeJT

said this on
28 Aug 2009 7:34:31 AM PST
Knowing your body and being able to find a cure is the biggest blessing I could have received. Yes I do get frustrated that I can't eat everything, however I am in more control of my feelings, emotions, and health. No longer am I worried that I will get sick and my evening with be ruined. No longer am I afraid that I will go on vacation and be forced to stay in my room. I do not have full celiac disease but have an intolerance to wheat. When ingested I feel very tired, have digestive issues, and yes get VERY depressed and moody. I knew life didn't have to be like this, so I am overjoyed that with the support of family and friends I not only see that light at the end of the tunnel, but I feel the warmth of the light on my face, and I have so much more peace.

For those who are wondering if you should get diagnosed, I think you already have your answer. You are your greatest advocate and doctor. I would suggest practicing an elimination diet and keeping a food journal. Many (like myself) may receive a false negative from the doctor. You know your body the best so trust your instinct and gut (literally and figuratively).

I hope I was able to help.

 
DKP

said this on
17 Feb 2010 10:41:33 AM PST
My wife has celiac and enjoys tequila. A little to much at times. She typically fairs pretty well but 1 out of 10 times she will get very angry and violent. Even after just a few margaritas. Has anyone heard of any studies done on a connection between celiac and Alcoholism/Female Pattern Violent Alcoholism? If so, PLEASE reply.

 
t-man

said this on
02 Apr 2010 12:33:34 PM PST
DKP - I was diagnosed as a coeliac a couple of years ago. I've had a long history of going out with friends and drinking - and around 1 in 10/20 nights out Ive gone completely bananas and have absolutely no memory of what I did. I always knew there was something wrong because the nights I'd go mad I could feel my body buzzing (like I'd taken drugs) and I'd start acting and doing really stupid things. It was a far different buzz to when I was drunk on other nights. I can only assume this was the allergic reaction to gluten mixing with the alcohol. I can't say why it happened on some nights and not on others. Anyway, the good news is since I was diagnosed I've completely changed my diet and just stick to Corona when I'm out. In the last two or three years I've had absolutely no problem. Slowly but surely my friends are creeping back to me. All I'll say is coeliacs are obviously more sensitive to foods and your wife should find a drink that suits her. Mine is Corona, I just need to be strict with it. I hope that helps.

 
Sara

said this on
25 Oct 2011 6:01:03 PM PST
I can relate to DKP's wife & to t-man - unfortunately I have had similar experiences over the years & only recently been diagnosed with celiac (annoyingly, seeing as I had all the symptoms & have been seeing specialists for years).
Sometimes I can drink say 3 glasses of wine and be fine, other times I can become very forceful and seem to have no off switch. In other words I want to keep drinking. During those times I loose all memory. My husband has been verbally abused by me many times (& a couple of times I've slapped him) over the years & I literally have had no memory at all of these times. Most of the time I can have a few glasses of wine and be perfectly fine, but on some occasions my body chemistry is altered by my gluten levels & I react very badly to alcohol. I'm hoping that like t-man, now that I am on a celiac diet this will no longer be an issue.

 
Elena

said this on
31 May 2010 9:57:05 AM PST
Some of you mentioned having problems with certain alcohols. Let me point out that corn is a difficult thing for some celiacs to process because it along with dairy and soy are all processed by the coveted DDP enzyme that celiacs are deficient in. I stay away from all of these substances as lately I've been having allergic reactions to every one of them. Now to my point, a lot of vodkas are made from corn and those reacting should consider an allergy as a possible cause. Personally, I've found that rum is the best.

 
Dewana

said this on
05 Jun 2010 10:07:24 AM PST
Being full blown celiac & allergic to gluten, when it comes to alcohol it's the damage done from the disease on my organs that gives me hell just to consume alcohol, period. Each of our bodies are in different states of degeneration.

 
Matthew

said this on
07 Jun 2010 9:48:08 PM PST
Thanks all for the great info! It's like a math puzzle determining which drinks are acceptable, but it seems like there are a lot of choices.

 
Samantha

said this on
23 Jun 2010 3:16:40 AM PST
Wine, cava/champagne, sake (Korean is smoother than Japanese), rum (you can make a great mojito with soda, fresh lime, fresh mint and a little fructose/xylitol/sugar with the rum or the sake) and occasional unflavored vodka with soda / occasional gin and tonic (careful to read the tonic ingredients carefully - avoid glucose if in Europe, as made from wheat, they say almost always gluten-free but it definitely effects me) are OK for me - it's the mixers that are the major issue, best to stick to soda. I imagine cider would be OK too, but don't like it or tequila. Mostly I stick with wine/cava as that's always easy.

Guys who are new to this - don't worry it get's easier, try focussing on all the great things you can eat and experimenting with new recipes, rather than dwelling on things you can't. It's definitely, definitely worth it for how great you'll ultimately feel. The key is to try and stick to things that are as pure and unprocessed as possible - think Jamie Oliver mission! Don't forget exercise, you really need it to get your system working properly and fully healthy again.

 
Crystal

said this on
28 Jul 2010 7:58:45 PM PST
Great Blog! I'm getting tested.

 
Sarah

said this on
01 Dec 2010 1:43:17 AM PST
I'm an Aussie and was diagnosed with Coeliac (celiac) disease in April this year. I had definitely noticed my tolerance to alcohol had been decreasing and was getting drunk off very little alcohol and when drinking beer or vodka would have terrible stomach pains and hangovers that lasted several days. I find drinking cider, most white wines, jagermeister, rum and tequila to be fine. Australia has a few different brands of gluten free beer, Billabong being the only one that I've tried which isn't bad but a 6 pack costs almost as much as a carton (24 pack) of normal beer.

Have found this forum to be very informative.

 
DeeDee

said this on
01 Sep 2010 12:24:43 PM PST
I have been gluten free for three months now. I am an avid red wine lover and have been reacting almost every time I drink a quality bottle of wine. I read that the less expensive wines are aged in stainless steel barrels and some of the older vintage and old winery's use the old barrels which are sealed with a mixture of flour and water substance. I have found UV vodka and Prairie organic vodka to be my absolute fave and confirmed with the company they are safe for Celiacs!! I guess I am sticking with Vodka Cranberry as my drink of choice until I research more on the wineries!

 
Cindy

said this on
28 Mar 2011 6:03:49 AM PST
I have been a diagnosed celiac for nearly five years. I have never been able to tolerate alcohol very well; although, ironically, beer never seemed to bother me. More than two glasses of wine has always made me violently ill, and I recently determined I also have an allergy to sulfites (found in most wines). I've found I just can't drink much, so when at a party or out I stick to gluten-free beer, cider or a vodka or tequila drink. I can handle a couple. Maybe limiting is not such a bad thing in the long run.. As for food, it is very hard in the beginning, and you feel like a social outcast. My only child was diagnosed with type I diabetes just eight months before I was diagnosed with celiac. In some ways, we feel the same. My advice to him when dealing with social situations also can be used by celiacs: It isn't about the food, it's about the friends. Don't make your event just about the food. Most of the time, I eat before I go, or bring something I know I can have. Then, just concentrate on having fun with your friends.

As for those dealing with depression, I do not get the usual intestinal symptoms, but I notice if I've accidentally ingested gluten, I am very sad and irritable the next day. Since my diagnosis, eight family members have also tested positive. The symptoms vary wildly among us, but definitely include depression and mood swings, along with angry outbursts. I was very anemic and had unexplained infertility (my son was adopted). Everyone is finding it just isn't worth it. Compliance is key! Good luck to those who are newly diagnosed. Your health will improve greatly, and this will motivate you to adhere to the lifestyle.

 
keryn

said this on
22 Jun 2011 10:56:51 PM PST
Can someone please answer, is pre-mixed bourbon ok? I am currently getting tested for celiac and just wondering if I would have to change my favorite drink if my tests turn out positive.

 
Ed F

said this on
16 Aug 2011 12:40:39 PM PST
I was diagnosed with celiac three months ago. I still have trouble drinking alcohol because my stomach feels weak and I feel like I have no stomach lining. Has anyone else experienced problems digesting alcohol once they were diagnosed?

 
Lexi

said this on
31 Aug 2011 6:29:55 AM PST
I am just starting college and have been diagnosed celiac for a year and a half. From the looks of it even professionals are unsure of whether distilled alcohols are safe for us to drink or not. I think it is important to reiterate that even small amounts of gluten can be devastating to our bodies and I believe it is best to error on the side of caution and avoid questionable drinks.

 
john

said this on
19 Oct 2011 3:00:04 PM PST
Celiac disease sucks. Distilled vodkas a are fine to ingest (Smirnoff flavors are allowed, I do not know of other flavored vodkas) rums are great, especially Bacardi, most of this brand is gluten free however there are a few exceptions. Original Bacardi and flavored ones are safe. I know that besides those there are some still safe but dangerous for those with celiac or an intolerance to gluten in general. Bards beer sucks don't buy it, waste of money even if you are a beer lover trust me not worth it.

 
Frank

said this on
19 Mar 2012 12:32:20 PM PST
Try Greenes gluten-free beers from Belgium. Those are much better than any of the other beers I have tried.

 
Divini

said this on
01 Jan 2012 5:17:10 PM PST
Well, my Christmas and New Year's has been filled with debilitating pain, a visit to the emergency room where a CAT scan showed I'm fine, just a bit of intestinal blockage, etc.....only problem is I'm still suffering horribly and come to realize this IS THE PROBLEM - I've been complaining more so especially over this last year how I cannot drink even 1 beer and not be severely hungover for days from it (which is just ridiculous!). I attributed it to getting older (43), but now know with my other debilitating abdominal pain that is rearing its ugly head along with all other symptoms especially over these holidays, this has got to be the issue! I'm a health nut, workout, eat right, so couldn't figure out why in the world I was having digestive issues now. All the symptoms point to celiac. I've just now been down for about 5 hours now today (the pain has lightened up at this point, but still there) with another episode after eating a whole grain English muffin with peanut butter. I chanced it as I'm just 'starving' and afraid to eat anything after the episodes I've had over these holidays! I'm getting tested Tuesday and as I've been chowing down on many gluten laden things, I should show a positive! I won't have an issue staying away from it for sure as this abdominal pain along with the other symptoms I've been experiencing over the last few months 'intensified' sure makes for a crappy existence!

 
WRFC

said this on
28 Feb 2012 3:43:27 PM PST
Divini,
The blood test is a poor indicator for diagnosis. It cannot neccesarily be fooled by ingesting gluten or abstaining from it. A small bowel biopsy, died and read by a competent pathological tech or preferably a pathologist and a blood serum marker workup is the final word on diagnosis.

 
Shirley Cabildo

said this on
15 Jan 2012 6:57:42 AM PST
Love the info; had been searching for this info for a while. My sincere THANKS!!

 
anna

said this on
21 Jan 2012 3:35:51 AM PST
I have been sick for years! I've experienced indigestion, bloating, diarrhea, headaches, rashes, heartburn, fatigue, mood swings, anxiety, etc. I was tested for celiac sprue several years ago while having an endoscopy. The biopsy wasn't a scheduled test so I am not sure I was even ingesting gluten at the time. I tested negative. When I changed my doctor a few years later, he recommended that I try going gluten free for two weeks despite my previous negative test. I am just starting to commit to a gluten free diet now....several months later!

I gave up alcohol for several months because it would make me terribly sick and leave me with a horrible hangover. I feel much better without it but just tried the GF beer "Red Bridge" last night. It is a fine substitute and my hubby even agreed to drink it. I stay away from wine because of the sulfites and I don't drink any hard liquor. Overall, I find giving up alcohol is so much more beneficial than having a cocktail.

I am also beginning the process of switching over to gluten free bath products and cosmetics!

 
Frank

said this on
19 Mar 2012 12:28:01 PM PST
I was recently diagnosed with celiac sprue and while I have had to shift over to gluten-free beers, the distilled spirits and wines have had no deleterious effects on my body. Greenes gluten-free beers from Belgium are probably the best of all the gluten-free beers I have tried. Otherwise, I enjoy all distilled spirits. I will admit, I look for the highest number of distillations for the spirits I buy.

 
Dee

said this on
25 Mar 2012 5:55:08 PM PST
To all: I'm an undiagnosed celiac and have been GF for a year now. Sometimes you feel like food is the enemy. It's a matter of learning to think differently about food. Among an extreme range of digestive issues my skin also breaks out and I get moody, irritable and depressed when consuming gluten products. I have found that most beers hurt. There are some brands of white wines that don't bother me (Hardy's Stamp of Australia, Spirit Bear) but I've found that most vodkas bother me (Chopin, Grey Goose are the only ones that have been ok so far) Rum seems ok, but I've only had Appletons, gin is horrible, and I find clear tequila is ok. When I drink regular stuff I get really drunk really fast and have a 2 week hangover and rash. When I drink GF stuff I can actually have a couple drinks without the disproportionate hangover.
Some of the coping mechanisms I've used in dealing with celiac is that I know I'm not likely going to be able to consume anything anywhere I go. I eat before I leave, and provide my own beverages. I was an apprentice chef before I figured out my allergy, and I've had to literally change the way I think about food, and I was already a health nut, about how I make everything from scratch and have hunted out the places that sell GF flour or mixes; biscuit and pancake (as those are easier at the moment) After a couple months the cravings go away and it gets easier to cope. Knowing what a normal BM (yup I said it) is like is a novelty to me, and its worth it, not only that my skin is healthier and I'm happier and more stable than Ive ever felt in my life (PMS has gotten less too!) Just keep to it, its hard but it makes life so much better in the end. Hope this helps!

 
Patsy

said this on
04 May 2012 6:17:19 AM PST
Drink Magners Irish Cidre. Pint glass full of ice. It'll eventually get you pissed and will not bother you at all.

Loads of my family are celiac. We have no problems with Magners.

Also, come on..... If we Irish don't know about Celiac, then nobody does!

 
Summer

said this on
09 May 2012 12:51:50 PM PST
I'm a self diagnosed celiac just within the last 6 months. I went to the doctor for the blood test which came out negative (I was already GF for 4 months at that point) I've been stellar about foods, no issues there. But I find that when I go out or have drinks at friends houses, I have diarrhea the next morning. I'm just wondering if there is a list out there of okay drinks. I drink a lot of wine and tequila (margaritas) but there has to be somethings that are not okay. When I drink apple or pear ciders, I'm completely okay. Now that I've got food under control, the booze is next. Any help is appreciated!

 
cal sullivan

said this on
15 May 2012 1:54:31 PM PST
Ok, all great comments on gluten-free alcohol. But I would like to say a little something on the matter. Having celiac disease means that even if the alcohol is considered gluten-free, you still may have a reaction to it sometimes because of the very fact that your intestines are in the healing process and any alcohol can have an adverse effect, gluten-free or not!

 
Philippa

said this on
21 May 2012 3:46:58 PM PST
I was an undiagnosed celiac for over 20 years. I was tested for 101 different ailments: depression, change of life, etc. It seems to have been going on forever. The nerve endings in my feet & arms have been live and very painful. I have been gluten-free for just one month and I am already feeling so much better. The nerve endings are still live but that will hopefully improve the longer I stay away from gluten. It is all a big change but it is so good to know what is wrong with me, and that I am not going crazy. I am helping myself back to health with a strict gluten-free diet. Morgan's rum & coke seem to work for me, but I do miss that cold beer (not the hangover though: that was just torture). I am so glad I can gain strength from others' advice and experiences. Onward & upwards.

 
Rachael

said this on
22 May 2012 10:46:46 PM PST
I am so glad to have this to go by and so glad I'm not alone. The past 4 months have been awful until I self-diagnosed myself. I started gluten-free last week and the results have been amazing. I feel great! My husband thinks it's all a big pain, but not me. I haven't eaten out yet since 2 Wednesday's ago when I had my last celiac episode and have had no alcohol either. I am still a little scared, but I'd rather repair myself first. Thank you for all of your comments and positiveness! I can't believe this hit me at 31 years old!

 
Janna W.

said this on
11 Jun 2012 2:20:51 PM PST
Sake is rice-based, and true Japanese sake production is very regulated. Sake can be consumed heated, but the better grade of sake is served cold and mixed with other fruits/spirits. Karlsson's gold potato vodka from Sweden has its own distillation facility dedicated solely to potato distillation and nothing else (and no color additives).

 
Mel

said this on
02 Oct 2012 11:37:28 AM PST
I was diagnosed with celiac disease back in 2005. Since then, I've lead a very strict gluten-free lifestyle. I even try my best to stay away from grains and yeast. I don't drink often but if I do I usually get wines or drinks that contain rum. I went to a wedding this weekend. The drinks must have been watered down. I had a few drinks, felt no buzz, but had to leave the party early b/c my stomach was so upset. The wedding was on Saturday. It's now Tuesday and my stomach is still very upset. Everything is running through me (gross, I know!) I'm wondering what I did wrong. Is this a stomach virus or something to do with my celiac issue? Should I eliminate all alcohol entirely? Anyone have similar issues?

 
Liza

said this on
19 Dec 2012 3:39:38 AM PST
Kasie, it may be the Coke, not the Malibu!! I drank a whole bottle of Sainsbury's own Coke after a night out on the drink, and that made me ill for a week.

 
ashley

said this on
16 Mar 2013 8:09:39 PM PST
I was diagnosed a couple days ago wih this condition. I was eating pasta and bread right up until I was diagnosed. Every time I consumed alcohol (even 1 drink) I would vomit violently for hours. The sickness wouldn't hit me until a few hours later. I havent had a drink for a month and I am afraid to try again. I am going to wait 6 months for my stomach to heal. Up until 2 1/2 months ago, I would drink 1-3 times a week and it never bothered me. Talk about a new life!

 
nick

said this on
25 Oct 2013 1:48:02 PM PST
I've found that alcohol magnified symptoms so much. I took a shot of whiskey (by accident) a week ago and still am pretty sick.

I've found that you can't actually trust all rum (or is that just me?) rum like Captain Morgans is spiced, and I believe led me to react pretty severely. anyone else had similar problems with rum?

 
Majella

said this on
17 Dec 2013 12:31:25 PM PST
I was diagnosed in 1992, in UK, and feel very fortunate that I have been diagnosed, as there are so many people suffering with digestive problems and nothing diagnosed except irritable bowel which is what doctors come up with if they cannot be bothered to listen to and treat the patient properly. They think we are a bunch of hypochondriacs, but everyone may not have the same experience. I drink wine only, mostly, and Greens beer is good. When I was first diagnosed, I thought Whiskey was OK and a friend of mine came to stay with me from Ireland and brought a bottle of whiskey with her, and needless to say, we had a little party. I felt so bad for the next 4 or 5 days, I felt that I was going 'mad' and that it would take little to push me over the edge. I have never touched whiskey since that. I overdo it on white wine at weekends, and get a very blocked nose, dry mouth etc. and tell myself I won't do it again, but we all need a treat at the weekend, when working all week, don't we? It also leaves me very depressed but I still like the buzz that I get from the nice feeling of being half pissed. Also, I love chocolate and crave for it when I have a few drinks. I still get rashes, itchy patches on my legs and front of my neck, but take antihistamines and use hydrocortisone to keep it under control. I had to take Dapsone a few years ago because of itching all over, which the Dermatologist told me was caused by ingesting gluten, as no other reason was found. The diet is difficult and I do my best most of the time, but hidden gluten is a big problem. However, we coeliacs should focus on what we can eat and not what we can't eat and we are fortunate to be diagnosed as many people are suffering badly. My friend died from lymphoma last year. Shewas older than me when diagnosed, and probably had a lot of damage done to her small intestine over the years. She was only in her sixties. It is a serious disease if not diagnosed and if diet is not followed strictly, which I have found over the years. I also have allergic conjunctivitis, which is treated with Vexol eye drops. Coeliacs can get a lot of different problems if the diet is not followed, which don't seem to be related to the disease, but I feel that most of my problems have stemmed from being coeliac. Wish I could give up the wine, but feel that a treat at the weekend is vital. Also the chocolate but we gotta have a life.

 
Sam

said this on
01 Jan 2015 1:42:58 AM PST
I think that I may have celiac disease...often I feel like there are shards of glass in my stomach and have trouble with evacuating my bowels or taking a crap. Every time I do there is a white goo on top of everything....should I see a doctor about this?

 
Ben

said this on
24 Aug 2016 10:06:16 PM PST
I feel fortunate that I´ve been diagnosed in 2013 but I have a huge battle with depression. I often have suicidal thoughts but I don´t know how to stop it...my girlfriend is diabetic and has Cushings syndrome so I don´t know how to be her rock. I love her more than anything in this world or the next....can someone please help me?

 
admin
( Author)
said this on
25 Aug 2016 1:26:54 PM PST
If you have suicidal thoughts please contact your doctor or a trained medical professional like a psychologist or psychiatrist. Our forum might also be helpful to you, but in your case please also see a doctor:
http://www.celiac.com/gluten-free/

 
Lili

said this on
15 Sep 2016 7:12:51 PM PST
I've been on a gluten free diet for about a month as I found out I have celiac. Last night I had a couple of drinks with a friend, it was vodka and it hit me so much harder then I've ever felt even after two drinks I stopped drinking but spent all night and this morning throwing up. Do you think it is because of the vodka?

 
Diana

said this on
05 Oct 2016 1:59:52 AM PST
Has anyone ever been charged with drunk driving? I had two glasses of wine and was over the limit and totally shocked. I was diagnosed 18 years ago, and I'm lucky I have it mildly, and I don't go gluten free, I know that's awful, but my life was so rubbish on that diet.

 
admin
( Author)
said this on
05 Oct 2016 4:00:10 PM PST
If you mean that you have celiac disease, there is no such thing as a "mild case" of it.




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