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Shampoos?

I forgot to add this in, has anyone else had a problem with shampoos and conditioners? I was using Treseme, and my hair started falling out really badly, read the ingredients and number 2 on the list was wheat something, I have quit using Treseme completely and my hair
is growing back... I was told as long as you don't ingest it that it wasn't supposed to harm, so does anyone know why that would happen? I mean the results are clearly that i cant use it, since my hair was falling out, im talking clumps here, and now it is back to normal.... Any thoughts?

As always, Celiac.com welcomes your comments (see below).


Spread The Word



90 Responses:

 
Grace

said this on
24 Dec 2007 9:19:05 AM PST
Yes, shampoos, skin creams, etc are an issue for me as well. We have to remember that our skin is our largest 'organ' and it absorbs gluten as well. So we have to be extra careful to read ingredients on soaps, skin cream, makeup, hair care products you name it. Anything we put on our skin. Especially as when we shower it opens the pores and can absorb anything more readily!

 
Lauren

said this on
25 Aug 2009 11:09:19 AM PST
There is a Gluten Free Shampoo and a Gluten Free Shower gel that have no parabens and no sls and no dyes and no fragrance, they are made by Nature's Topicals.

 
said this on
06 Mar 2010 6:16:05 PM PST
I need to buy gluten free shampoo and shower gel, no dyes. Please help me.

 
Tammy

said this on
25 Mar 2012 2:21:55 PM PST
Thank you!

 
jan

said this on
27 Aug 2012 12:37:16 AM PST
Hi, could you tell me which shampoos and conditioners you use? I have a gluten and wheat allergy.

 
barbara

said this on
24 Dec 2007 12:57:47 PM PST
Hi. I was recently diagnosed as celiac. I was having a problem with itchy skin and rashes, so I switched to an oatmeal cream that was supposed to soothe itchy skin. it got worse. then I found out that in rare cases topical items containing wheat and oats can cause problems in rare cases. now I check the labels on this stuff, too. my hair has also been falling out, thought it was just old age, then like you, I read the label and saw wheat protein listed, so I switched. My hair has stopped falling out and my scalp is in much better condition too. Hope you are doing well. Take care.

 
Beth

said this on
24 Dec 2007 11:24:29 PM PST
I am wondering if you have a wheat allergy AND celiac?? I know it can happen. My kids that are allergic to milk can't physically touch it - that makes me think you may have both issues.

 
Jodi

said this on
28 Dec 2007 6:10:56 AM PST
Hey everyone, thank you for the feedback, I guess I will start looking more carefully at what I am using on my skin. Just makes life a little more interesting!

 
gramma bea

said this on
27 Jan 2008 10:28:15 AM PST
After reading this, I was really scared. I ran in the bathroom and grabbed my favorite bottle of Tressemme shampoo and began reading. No where, on the shampoo bottle or the conditioner, did I read anything that pertained to wheat. There was a lot of ingredients that I couldn't even pronounce, but no wheat that I could detect. Whew, I was relieved, as that is one of my favorite products. Unless I am too ignorant to recognize a hidden wheat ingredient, I will continue to use it. So far, no hair fall out.

 
Kari

said this on
25 Mar 2010 3:18:36 PM PST
Some things do not say wheat specifically. Like mono sodium glutamate can also be called hydrolyzed soy protein. I would check with someone about the ingredients before passing it off that it does not have wheat.

 
Karen

said this on
01 Feb 2008 1:23:16 PM PST
Wheat products found in many personal care products such as shampoos, conditioners, soaps, moisturizers, etc., probably can be irritating to some people. Other ingredients to watch out for are dyes. Most commercial personal care products contain artificial coloring/dyes and many people have terrible reactions to them (many people don't even realize it's the dyes that are doing it). Many artificial colorings contain gluten, and often times contain petrochemicals (coal-tar derived). In addition to having a sensitivity to gluten, many of us with Celiac are also sensitive to many chemicals. I had the same problem with losing a lot of my hair, and the hair that didn't fall out simply got burned out - extremely dry, fly-away, ends were terribly split. After about a year of using chemical-free shampoos and conditioners, my hair is back to being really pretty again. Initially, I thought my hair was changing due to age - was I ever wrong! Hope this helps.

 
Donna

said this on
07 Oct 2010 2:02:19 PM PST
Hi Karen, what kind of shampoo and conditioner do you use now? Thanks

 
Noemi

said this on
21 Jul 2013 8:22:53 AM PST
Do you mind telling what hair products you are using? I bought Savonnaiere but it is drying up my hair.

 
Theresa

said this on
12 Feb 2008 2:57:27 PM PST
I am also having a problem with my hair being very dry. I find lots of it on my pillow, and in the shower. I had assumed it had to do with malabsorption. Guess I better take a closer look at what I'm using. As far as I know, the experts say that you can't absorb gluten in skin and hair.

 
Patricia27

said this on
26 Apr 2010 3:49:16 PM PST
Have you been tested for Hashimoto's? A thyroid condition? That's what I have & I am on nature-throid. Made a huge difference to my hair. I was losing so much hair it was scary.

 
Kari

said this on
01 Aug 2010 2:34:38 PM PST
Read the article that Grace wrote, I do not know what experts you have talked to that says your skin and hair cannot absorb anything because that is what skin does. Why do people use patches? Because it absorbs the medicine from the patches. Our skin is our largest organ and Does absorb a lot of things, gluten would be one of those things.

 
becky foudree

said this on
21 Feb 2008 11:58:01 AM PST
I have been on gluten free diet since 18 months. I am now 49 years old. Yes, I also had problems with any shampoo, conditioner, or body wash with wheat contents. It caused me to have rash, itchiness and hair loss. I suggest being careful using products. My doctor recommended to read everything**

 
Courtney

said this on
25 Feb 2008 8:20:06 AM PST
I have trouble with treseme as well. I love it but my hair falls out as well. I have used Neutregena Triple Moisture and I do much better. I also like John Frieda. I have to watch all my lotions and baby lotion is about the only lotion that I can use. I have become such a label reader and take my own shampoo even to the salon.

The gluten on my skin and hair tends to give me very large almost boil like things on my arms. If anyone has any more suggestions for shampoos, I am very open to them.... Best of luck...

 
susan

said this on
16 Nov 2009 2:05:00 PM PST
Natures Tropicals was just recommended by my Derm as being gluten free...I just spoke to them and currently they have a shampoo and shower gel. She told me that they are unscented and work very well. Don't currently have a conditioner...she says they were hoping for a better demand but I think maybe they need better marketing! Will update on how well shampoo works. It's not that expensive.
My Derm diagnosed me with dermatitis herpetaformis which sounds exactly like the boils you have. It is a reaction to gluten,. They are actually a "blistering disease" and break open at the smallest scratch!! Very painful and annoying. Dr's kept telling me it was Acne!!! I think I may have a gluten allergy as well as intolerance. Dapsone Gel applied to them helps them go away fast and so does not eating or touching gluten (wash your hands if you do touch anything gluten) I have put my hand in a loaf of bread to make husband a sandwich and gotten hives!!!You can take dapsone pills but derm said they lower your immunity and was last thing I wanted to do. I also double checked my medications and supplements and found some with gluten in them (pregelatinized starch)! after finding many hidden glutens I find my hair is not falling out very much anymore but think I really need an absolute 100% gluten free shampoo and conditioner.
I use Purpose cleansing bar which is supposed to be gluten free., also dapsone gel on face and any "blisters" that I find. It is marketed by Allergen under the name "Aczone". Strangely "Dapsone" used to be used for leprosy! Really helps tame the blisters, highly recommend it!
Also if you had blisters in the past and didn't know what they were and now have darkened bumps that look like they are under the skin, you can apply dapsone and it will clear those up too. I got a look at the back of my legs in a full length mirror a few months ago and saw the damage (blue/purplish spots)which prompted me to go to the derm and got the whole celiac diagnosis in the first place!!!

 
Gina

said this on
24 Mar 2011 3:11:32 PM PST
Have a dermatologist examine your sores. I am a celiac and have Dermatitis Herpetiformis. Google that and see if your blisters look like the ones pictures.

 
pattice

said this on
12 Jul 2012 5:26:39 AM PST
I too have celiac disease. I didn't know what was going on with my skin. I got blisters all over my forehead and nose. I was using a hair moisturizer that on the bottle said no mention of wheat/wheat germ. This was a new product, so It wasn't hard to narrow down that it was this product. It is said in the government regulation that if wheat is in the product it must say so. Well it wasn't on this product. I found out online that it was manufactured using the same machine as other wheat products. Call the company while in the store before you buy the product. There is most always a 800 number on the bottle. I use suave. I called and they said they definitely list wheat/wheat protein if it's in their product. These companies are aware of wheat problems. I stop going to healthstores for for hyperallogenic products and paying over $9.00 for shampoo in tiny bottles when suave 32 oz. no wheat/gluten is less than $4. Plus there are all kinds of face products that are hypoallogenic in these super stores.

 
Marie

said this on
28 Apr 2013 10:39:53 AM PST
I was just recently diagnosed with celiac disease, so I was wondering what ingredients do I have to look out for in shampoos, conditioners, body wash, hand soaps, and even moisturizer lip balms. Can anyone tell me? Help!

 
Bonnie

said this on
19 Jan 2014 8:27:25 PM PST
All Dove products are gluten free. I use their soap, shampoo, conditioners, hair sprays and body wash. I love their products.

 
Jenny

said this on
06 Mar 2008 12:35:06 PM PST
I use a shampoo from gluten free Savonnerie and it works well for me. It was formulated to be gluten free so I don't have to worry.

 
Tanya

said this on
18 Jul 2011 2:10:38 PM PST
I use gluten-free Savonnerie shampoo, conditioner and soaps and they all work very well for me also. My hair was falling out, I had itchy skin and blisters on my scalp. ALL went away and my hair looks fantastic!

 
Annette

said this on
25 Feb 2013 7:44:46 AM PST
Be cautious of the Savonnerie. Its a great product, but it has a formaldehyde releaser in it and if you have sensitive skin it can be troublesome.

 
gloria

said this on
19 Mar 2008 8:52:52 AM PST
Thank you for the feedback. I was wondering if I need to change shampoo or not because every time I shampoo my hair falls out really bad and it is stressing me out. If I have to use baby shampoo I will. Thanks all.

 
Tracy

said this on
31 May 2008 10:56:44 PM PST
I had the same problem with wheat germ oil in shampoo and conditioner. It's tough to find products without it but it's best. My hair also dried up, tangled and clumped and then fell out. I also developed an itchy flaky skin rash that resembled dandruff but it wasn't. When I got off the wheat products, my condition cleared up in 1 week.

 
said this on
24 Aug 2008 5:47:36 PM PST
I have a problem with perms. My hair breaks off at the scalp and feels like a I was shaved a few days later. I had a lot of different hairdressers none seem to know.

 
Danielle

said this on
04 Oct 2008 9:33:47 PM PST
I was diagnosed with Celiac when I was 5 and I am 20 now. For years I used a variety of shampoos because my head kept breaking out and after talking to other Celiacs I have found a combination of shampoos that work. The first shampoo is called Nizoral A-D, it is an anti-dandruff shampoo, but according to the doctor it prevents the break outs. The only fall back is that it costs almost $15 a bottle. You are only supposed to use it a 2-3 times a week though so they also recommended using Johnson's baby shampoo on the other days because it is easier on the hair.

 
Laura

said this on
09 Jan 2009 8:22:21 PM PST
Boy, do these posts open up my eyes! I have been having a lot of trouble with my hair falling out, thought it was age also, most skin cleanser leave me feeling scalded, my scalp flakes and is itchy and it seems like my hair products are burning my head! I am going to have to try gluten free products just to see.

 
Dawn

said this on
01 Apr 2009 5:33:02 PM PST
My hair has also fallen out using Tressemme shampoos and conditioners. I also thought it was due from malabsorption before I found out wheat was in my shampoo. I think they need to come up with a line of gluten free shampoos instead of having to order a special kind online. I try to contact the companies and ask them what products contain gluten and what do not. Most products do contain wheat which sucks for us.

 
Sherry

said this on
15 May 2009 12:01:06 PM PST
My ears, neck, face and head has been itching, and I realized it was from the Tresemme shampoo I was using. No fallout, but I can't use it. Just started going gluten free due to hives after exercise related to wheat and gluten. I wonder if anyone has some good shampoos we can use?

 
Rhonda

said this on
03 Jan 2010 2:48:27 PM PST
Hi Sherry-
Try Burt's Bees Products. They are easy to find and are gluten free. I printed a list a while ago. Just type in burtsbees.com the products are a little more money but guess what-it beats racking your brains on all that guess work!

 
Crystal

said this on
25 May 2010 10:46:09 AM PST
Check the ingredients of the Burt's Bees products! Some of their products do contain wheat!!!

 
Karen Folkerts

said this on
21 Mar 2014 5:35:20 AM PST
Yes! Be careful with Burt's Bees. I spoke to them directly and was told by their customer rep that the products I used was gluten free. Then I asked her to look up the source for the tocopherol and she told me it was wheat. I commented that they are then not gluten free and her defensive reply was "yes, they are." Companies are allowed to claim gluten free if the ingredient is so refined that they are assumed to be gluten free. I don't know about your immune system, but mine doesn't assume anything - and lets me know right away that I was a trusting idiot.

 
Angelee

said this on
10 Jun 2009 6:24:58 AM PST
Recently I too have been dealing with hair loss and itchy scalp. I am an African American woman who typically wears twists as a hair style. In March, I was diagnosed with a condition called scarring alopecia. That was devastating enough. Then my hair continued to thin and I began using a couple of products that I thought would help me. I didn't realize that one had wheat protein as an ingredient; another had wheat germ. Since being diagnosed as a Celiac in 2003, I've been super conscientious of what I ingest, but I've not been as knowledgeable about what I've been putting on my skin and hair . I am so appreciative for these posts. These posts have been so encouraging! My hair stylist and I will be making some significant changes in my hair products!

 
Erica

said this on
26 Nov 2010 2:10:14 PM PST
Angie, I have been recently diagnosed too. Can you tell me what products you use??
- Erica

 
Nancy

said this on
01 Aug 2009 8:39:52 PM PST
Oh my, I was just looking up info about Celiac & losing hair. More than half of my hair is now gone and I keep clogging up the drain. I have been using Tresemme for years. I've been looking at wigs lately but I am so active, I'm afraid it will fall of or something. I was just diagnosed with Celiac Nov. 08. I thought about hair care items being a problem but wasn't sure. Which one exactly is the wheat ingredient? I am so confused.

 
Sickofit

said this on
26 Aug 2009 7:36:43 AM PST
Just a heads up I know Surface Hair Care is Gluten Free.

 
Sarah Bosse

said this on
26 Oct 2009 7:19:56 PM PST
So I'm glad to know that I should be watching out for gluten and wheat by-products in my shower supplies, but what are they called? Do they have "hidden" names that would make these sources of gluten/wheat hard to identify?

Does anyone have a list of these "banned ingredients"?

Thanks!

 
Fara

said this on
29 Dec 2009 5:55:38 PM PST
OMG - this post is amazing! I thought it was just sulfates that have been giving my scalp problems. Now I know to check the ingredients for wheat bi-products as well. Thanks so much for having this conversation!!!

 
MolicaLynden

said this on
27 Dec 2009 1:10:58 PM PST
I've been doing some digging around the net and these are the "names" I have found thanks to various websites:

Avena Sativa (Oat) Kernel Flour, Bran Extract, Bran, or Protein
Barley Extract or Lipids
Cyclodextrin
Dextrin
Dextrin Palmitate
Disodium Wheat Germamido PEG-2-Sulfosuccinat
Fermented Grain Extract
Hordeum Vulgare (Barley) Extract
Hydrolyzed Malt Extract, Oat Flour, Vegetable Protein, Wheat Flour, or Gluten
(AMP-Isostearoyl/PG-Propyl Silanetriol/Steardimonium Hydroxypropyl/PVP Crosspolymer) Hydrolyzed Wheat Protein
Hydrolyzed Wheat Starch
Malt Extract
Maltodextrin (I don't know how many countless times I've seen that one!)
Phytospingosine Extract
Samino Peptide Complex
Secale Cereale (Rye) Seed Flour
Triticum Vulgare (Wheat) Germ Extract, Germ Oil, Gluten, Starch, Gluten Extract/Water, Flour Lipids
Wheat Amino Acids
Wheat Germ Glycerides
Wheat. Germ Extract
Wheatgermamidoprpyl Ethyldimonium Ethosulfate
Yeat Extract

And... be very wary of Tocopherol/Tocopheryl Acetate (Vitamin E)
It can be derived from a number of sources, including wheat. It all depends on the manufacturer, and from what I can tell, can only be determined by directly contacting the manufacturer (and sometimes they do not even know!).

Of course, I would always suggest double-checking everything. And when in doubt, contact the manufacturer, or avoid the product!!

Good luck!!

 
said this on
20 Apr 2011 7:06:22 PM PST
Thank you, thank you! This list is JUST what I was looking for!

 
Norma Wilkes

said this on
16 Aug 2013 7:12:54 AM PST
Thank you so much for enlightening us all! I noticed my scalp felt slightly itchy and at times had this burning feeling plus have some hair loss when I use products with "wheat" listed. I just found out I'm gluten sensitivity. I'm here as a newbie, but I feel much better since going gluten-free!

 
Michael

said this on
09 Jan 2010 5:40:56 PM PST
I wasn't aware that using a gluten containing shampoo on your head could cause these problems. Since the small intestine provides the allergic reaction to gluten, wouldn't you have to actually eat the gluten in order to have gluten sensitivity problems? Or can other systems (the skin in this case) in your body develop an allergic reaction to it, as well, once the intestine is overwhelmed with dealing with a gluten problem?

In the cases above where hair returned upon quitting the gluten shampoo, it does indicate that it was external application of gluten that caused the hair loss. But for some of the other cases, who are in the process of experimenting, I would caution not to overlook a thyroid problem, as hair loss is quite common with it. Alopecia may be another avenue to explore.

 
Norma

said this on
27 Nov 2013 12:58:12 PM PST
Michael, I have been struggling with hair loss for several years and my experience is that doctors will readily say "alopecia" but it really means nothing! Basically, it means you have bald spots on your head! (Which I already knew before I saw the doctor!) Since they have no idea what causes it and no cure for it, and a variety of barely helpful treatments, calling it "alopecia" is not particularly enlightening.

 
Bianca

said this on
20 Jan 2010 11:08:59 AM PST
Just a note that most of the Aveeno products are gluten free. Hope this helps. And for makeup a lot of MAC makeup is gluten free.

 
Kris

said this on
20 Feb 2010 6:47:16 PM PST
Aveeno is NOT gluten free! It's made of oats. It may not contain any wheat, but oats contain gluten! I would think that was common knowledge for celiacs, but I guess not. Be careful, please.

 
Shannon

said this on
17 Apr 2010 12:30:45 PM PST
Note: Oats do not contain gluten. However, almost all oats are cross-contaminated in the fields or in the processing plants. The only oats which are safe are those grown in exclusive fields and processed in clean facilities. If an oat-containing product cannot guarantee its oat sourcing, then it will cause a wheat reaction from cross-contamination.

 
Sarah

said this on
23 Apr 2010 6:37:06 PM PST
I was just recently told by a naturopath that we shouldn't be eating or using ANYTHING with oats or corn! It's not good for our digestive systems!

 
Yvonne

said this on
15 Feb 2011 9:24:57 AM PST
Shannon, ALL grains are glutenous. Teff and quinoa are common alternatives that are not glutenous because they are not grains. Wheat has the most gluten but oats have some too. If you are trying to heal the gut, ALL grains including rice should be avoided. To go one step further in the healing, all starches should be removed until the gut is healed. This includes corn and peas...it's overwhelming at times I know.

There is a fantastic interview with Peter Osborne that explains it very well in audio. Look him up on gluten free society.

 
Karen

said this on
05 Mar 2011 1:10:33 PM PST
There is gluten in oats, granted it is different than wheat gluten. It is recommended to avoid oats and other types of gluten for sixish months while you are healing, especially since oats gluten is similar but not the same as wheat gluten, and there is a substantial amount of celiacs who cannot have oats, but not all.

 
Jodi

said this on
20 Apr 2010 1:19:51 PM PST
Well since its not creating a reaction I would say use it, but at the same time, I'm no Doctor. I would mainly be worried about ingesting it, which means, no licking envelopes, watching out for toothpaste, and of course the major issue of food. Talk to your neurologist about it and see if he would like you to give up the body wash/lotions/shampoos/make up...the list goes on.

 
Tricia

said this on
20 Apr 2010 7:16:05 AM PST
I have been using Aveeno Lavender Body wash for years, and I read "wheat" in the ingredients today. I don't have rashes or anything like that. I also don't have celiac but my neurologist wants me to try gluten free to see if it relieves me of some funky symptoms. This is all so new and overwhelming to me. UGH.

 
Becky

said this on
03 Jan 2011 6:20:56 PM PST
Try the grocery shopping guide Gluten-Free from Cecelia's Marketplace. It's a pretty cheap guide and it has in there everything from food, shampoo and conditioner, toothpaste, etc. Basically my lifeline for my 5 year old daughter who has celiac.

 
Maxi

said this on
23 Apr 2010 7:56:07 AM PST
I have been using a very expensive line all this time, and could not figure out why my hair was getting thinner and thinner, until I read the label, and it contained hydrolyzed wheat protein. Also was having break outs on my face and in my scalp. What a nightmare, but at least I have found a list on the celiac website of ingredients to avoid.

 
Kathy

said this on
08 May 2010 1:19:31 PM PST
I was diagnosed with Celiac Disease six years ago. I never had the associated skin rash dermatitis herpetiformis. I am very strict with what I eat including not eating out. Over a year ago I noticed that I got pimples on my head after coloring my hair and then two weeks later my chest and back would break out with an annoying rash. I tried different hair coloring brands and it was always the same - pimples right away and breaking out 2 weeks later. The rash was so miserable that I quit using hair coloring. But then I noticed that hair gels were giving me pimples too (no rash) but I gave them up also. Then I noticed that some shampoos were giving me pimples on my head so I compared ingredients and I thought the common ingredient is propylene glycol. I went to a dermatologist who patch tested me for 29 chemicals (But not propylene glycol) and I was not allergic to any of them. He told me I might have eczema- No way- How come I only get the rash two weeks after coloring my hair? He also told me that it was weird that I put the product on my head and got the rash on my body. It brought back bad memories of trying to get diagnosed for celiac before they knew what I had. Anyway, after reading these comments I noted that my hair coloring did have wheat, but the gel and shampoo don't as far as I could tell unless it is in propylene glycol which would be a huge answer to what is causing these pimples. Plus I think I lose more hair than normal too. Any advice or comments would be appreciated. Thanks!

 
Natalie

said this on
01 Dec 2014 2:07:25 PM PST
I have both celiac disease and the skin form, dermatitis herpetiformis. After getting control of the lesions on my body by taking Dapsone and on my face with Aczone. I began breaking out again on my face and my scalp is a mess. After doing a lot of research, I learned that Affinage professional hair coloring products are gluten free and very mild. Also most of their hair care products are gluten free as well. Another good professional brand of hair care products, Surface, is gluten free. They have a line called "Awaken" that treats dry and flaking scalp as well as psoriasis and thinning hair. Hope this helps!

 
Lola

said this on
02 Aug 2010 1:48:16 PM PST
I´m a celiac and I have also skin allergies since I was 4 years old. I cannot eat a single piece of bread without getting a very itchy skin rash. I recently started the celiac free diet, but since I don´t live in the USA is very hard to find gluten-free products. I had to ban all kinds of bread, cookies, sauces from my diet, so I mostly eat fruit and home cooked meals. It would be nice if my country had a celiac association or something, but food companies around here are not interested in producing gluten-free products and there´s no government regulation on food ingredients. There´s even a growing tendency to add wheat, soy, oatmeal even to milk, yogurt or cooking oil with the excuse of "adding fiber to your diet" so I think in the future we will have a great deal of celiacs around. (I live in Colombia)

 
Jodi

said this on
03 Aug 2010 10:51:09 AM PST
LOLA~ I am very sorry to hear that...I wonder if there is a way for you to order products online? and have them shipped? Hopefully they will figure it out in Colombia, and start regulating the foods more thoroughly.

 
Christy

said this on
08 Aug 2010 5:11:58 PM PST
I also am suffering from extreme hair loss over the past 4 years and I'm in my 20's. I am floored upon stumbling into this post because I also use Tresseme and perhaps it is causing this problem! But, I'm wondering, if I can't use the shampoo because the gluten effects me then does this also mean I should be on a gluten-free diet? I know there is a difference between intolerant and allergic but you would think if you were allergic and could not touch something then you also should not ingest it. Not sure how that works.

 
Kimmy

said this on
19 Aug 2010 12:45:53 PM PST
I found that Moroccan Oil Shampoo and Conditioners are gluten-free as well as sulfate and paraben free too!

 
Grannymary

said this on
04 Oct 2013 1:07:19 PM PST
I just called the company. They said they don't add any gluten containing ingredients to their product but it is produced in a facility that also produces products containing wheat. A bummer, yes, because I love their products but am getting some contamination somewhere because my gliadin levels continue to be elevated. Also found out that even though supplements (most of mine have been from Costco) could also be produced on contaminated lines. Switching to only certified gluten free liquid vitamins. Ugh...expensive...but necessary!

 
Sandra

said this on
22 Aug 2010 7:48:40 AM PST
Is there any gluten free shampoo, soaps, deodorants, or personal body products at Walmart, Kmart, Walgreens (stores like that)?

 
Jess

said this on
19 Sep 2010 7:12:08 AM PST
ShiKai daily shampoo and conditioner are gluten free and work well for me. My skin on my scalp breaks out with certain shampoos, and only after I went gluten free did I realize it was the wheat in them. Tried Kiss My Face, but there is wheat in them, and the scalp got worse again. Going back to ShiKai products!

 
Margaret

said this on
13 Oct 2010 1:15:15 PM PST
I have a problem with acne like spots on my scalp. The conditioner which I am currently using contains oats - could this be the problem? I have recently been diagnosed as having an intolerance towards gluten and yeast.

 
Vicki

said this on
30 Oct 2010 4:47:06 PM PST
Neutrogena, Surface, Head Organics, Rene Ferterer
Most Garnier Fructis
Most Goldwell
Many Davines
As a stylist, I read labels constantly. As the wife of a celiac, I have become obsessed with finding new products for him and some of my clients. If you can't find them in the store, search the internet. Sephora will even give you some samples of the expensive stuff to try before you buy.

 
Roberta

said this on
20 Dec 2014 2:52:06 PM PST
Neutrogena shampoo is loaded with gluten. see ingredients:

water, ammonium lauryl sulfate, dimethicone, sodium cumenesulfonate, cocamide MEA, cetyl alcohol, triticum vulgare (wheat) gluten, avena sativa (oat) peptide, triticum vulgare (wheat) germ oil, mauritia flexuosa fruit oil, cocamidopropyl betaine, glycerin, guar hydroxypropyltrimonium chloride, polyquaternium-10, glycol distearate, tetrasodium EDTA, acrylates copolymer, mica, titanium dioxide, phenoxyethanol, caprylyl glycol, methylisothiazolinone, citric acid, sodium hydroxide, fragrance

 
Amanda

said this on
07 Feb 2011 10:24:50 AM PST
I was diagnosed with celiac disease 2 years ago, so far I have had almost every symptom related to celiacs, including intestinal inflammation, hair loss, scalp blisters, loss of energy, skin rashes, throat blisters, migraines, etc... A purely gluten free organic diet has been the only thing reliable to help. DermaOrganics has a line of hair products that are 100 % gluten free and fantastic on your hair. As a hairdresser, and the daughter of a hairdresser I've been looking for better products. Redken also has a new line of products out called Nature's Rescue that are sulfate and paraben free and use a soy protein instead of wheat so far I haven't had a problem with them... both of these are only available through a professional salon.... Also I've found that the brand Alba found in many local grocery stores which are herb and fruit based don't seem to have any gluten and they have a full line of hair and body products. Neutrogena has also been very good on my skin. I also use Paul Mitchell Dual Purpose Lightner which is based in soy protiens and don't have many problems with that. Another great line is Alterna they will email you a list of which of their products are gluten free, and what type of gluten ingredient are in the rest in case you are only sensitive to certain types.

 
Liz

said this on
27 Feb 2011 9:25:27 AM PST
Hi All
New to this site, I was diagnosed with coeliac disease Nov 2009, just realized the shampoos etc.. I may be using, may contain wheat derivatives Aargh! I was just getting to grips with my diet, do I really have to check all shampoos etc too ??? this was not covered in my talks with GP or dietitians, noticed by chance the salon products I have been using contain wheat ! Are alternatives readily available in stores/supermarkets ?? are they hard to get hold off ?

 
Lisaandtrixie

said this on
13 May 2011 7:02:31 AM PST
You don't need obvious symptoms to have uncontrolled celiac anti gliadin antibodies. In fact you don't need any symptoms at all. It took me 17 years to be diagnosed with celiac due to lack of apparent symptoms (well, I thought the constipation was due to my calcium intake). I suggest all celiacs use strict gluten free skin care, hair care and personal products...sometimes you don't know what is hurting you!!!

 
Jennifer

said this on
29 May 2011 6:37:53 AM PST
I unfortunately went gluten free before getting tested. I have been gluten free for 2 years now. While the bloating and cramping have gone away, I still have lots of problems with gas. I finally resorted to a gastro Dr. I described my gluten free journey and what happened when I had gluten by accident. She said I am definitely gluten intolerant but of course we can not tell if I have celiacs. So she gave me a plan to follow for the gas problem. It has been a month and it has done nothing although I do know that dairy makes it worse. I started thinking that maybe I am not being as careful with the gluten free. I have also had an itching problem and now thinking about it, it has been the last year and a half. My armpits itch, under by breasts, sometimes my scalp and skin. no rash just itchy. Sometimes bad sometimes not at all. I recently had blood work and skin prick tests for allergies and all negative. I checked my shampoo today and while it is from an all natural company,( I actually sell the product) it has a few wheat ingredients. I also think the soap and shower gel does also. So I think that will be my next step. I was always told that 40 % of what you put on your skin is adsorbed into your blood stream. Someone made a good point. In the shower the hot water opens the pores. Also at Easter time I helped by Dad make these Easter pies with pizza dough. Not only did I touch the dough but I was breathing it in. My stomach the next couple days was awful. I was worse then a 400 pound guy after eating 20 white castle hamburgers.
Hopefully this is the answer, if not the gastro dr wants to do more tests. I know there is a lost of debate as to whether you have to watch gluten free health care products but everyone is different and I think you find out by trial and error. I have a freind who's blood work and biopsies have all come back neg for celiacs yet now that he is following a gluten free diet he lost 25 pounds and all his digestive issues went away and if he eats the tiniest amount he reacts faster then his mother who has celiacs. Yet the Dr will no diagnose him as celiacs just gluten intolerant.

 
Bernadette

said this on
03 Jul 2011 4:08:57 PM PST
Kirkland (Costco brand) shampoo and conditioner are both GF.

 
Amy

said this on
04 Jul 2011 11:32:16 PM PST
Bumble & Bumble's Sea Weed line is gluten free. Its amazing! I also have to be very careful of shampoos and such. Its $22/bottle and you can now buy it at Target & Sephora.

 
Tonya

said this on
29 Aug 2011 10:40:54 AM PST
Wow. I was diagnosed celiac almost 4 years ago. I have had problems as far back as I can remember. Was told it was stress and irritable bowel. My blood work was off the charts and the small intestine biopsy was conclusive.

A friend of mine knew someone with celiac (a doc friend). He called me up and gave me the information to read. I read it and dispelled it because.... well I didn't want to have it. Put the information away and went on with life.

A couple of months later I got another severe rash on my face (one of the signs of celiac). For the past 7 years I have gotten severe rash on my face during July or August every year. One or two of them a year. I look like Frankenstein's wife. Once an occurrence it done I forget about them and speed thru my life as normal. Anyway, I remembered the brochure and went to my doctor to be tested. My doctor asked why I thought I had it. Doctors don't think about celiac. He researched it and now has a better understanding of it.

The bad part of this is I don't go outside and work in the yard as much now. My face gets purple sometimes. I live in the Dakota's where wheat is prominent. I too was told you only need worry about ingestion. After reading all of your thoughts, I will now check everything. This was another blow to my fast paced lifestyle and my budget as a single mother. On the bright side, I would love see my soft smooth skin again.

 
Jill

said this on
16 Oct 2011 5:43:01 PM PST
I was using Tresseme conditioner and over the course of 3 weeks or so, I had an increasingly itchy scalp , neck and back (I have really long hair). It got so bad to the point I was up all night itching. It felt like I had lice, but there was nothing, no bugs, no hives, no rash, nothing but my own empty scratch marks from my nails.

It tuned out the conditioner contained Wheat Protein.

What a nightmare? I'm still trying to get that stuff out of my long thick hair, but I must have scratched my scalp open many times allowing the conditioner to get in, so I have a feeling the healing process is going to take longer than I hoped. I went out and bought a Shikai Shampoo and a Dove conditioner (both safe of gluten) and I'm hoping my scalp stops itching soon. BE AWARE!

 
parker bin

said this on
17 Jan 2012 4:43:56 AM PST
Same happened with me. I used an cosmetic product and applied it on my face. Before applying it I tested on my hand and it does not harm me. After some time time I got rashes on my skin and I am no longer using it.

 
Tammy

said this on
24 Mar 2012 2:48:34 PM PST
Over the years I've noticed that shampoos containing wheat or wheat germ cause my hair to fall out in excess, and it doesn't fall out if I use a shampoo that doesn't contain wheat. Even if I use a shampoo that contains my hair will continue to fall out until it has ran its falling out cycle. One of my daughters recently bought me AG Xtramoist, fast food, and tech one. The ingredient I suspect is wheat is in Xtramoist shampoo, and it is Humulus Lupulus (Hops), and Triticum Vulgare (Wheat). I want to know if I am correct and what other names are wheat products in shampoos? I am currently using VO5 and would like to have some professional hair product choices. Thank You for your help!!!!
Thanks Again!

 
joyanne

said this on
21 Apr 2012 7:26:47 AM PST
I haven't been diagnosed with celiac disease but I believe I have it. I was tested for food allergies and when it came back my most severe allergies was wheat and yeast. I've been on and of the gluten free diet and also have to avoid milk and egg and other foods. The test I did gave me a plan to follow on what foods I should eat, but it didn't say anything about makeup, skin creams, soaps and hair products. Eventually I started to realize that the acne that I'd had for years that I was trying to cover up with makeup was getting worst because the makeup I was using although organic wasn't gluten free. I'm a black women and was able to grow my hair beautiful and long, but after awhile my scalp always had a build up and was dry. It is always dry and more tangle than I think it should be. So now I know that I have to avoid gluten/wheat products in my hair products after watching a episode on Dr. oz a while back.

 
Teri

said this on
27 May 2012 12:59:06 PM PST
I don't know if my bad dandruff/dry scalp inluding large welts was due to my celiac disease, but Selsun Blue works great for me. I just checked and there is no wheat or anything listed that might indicate wheat in the ingredients. I am now wondering if this shampoo is necessary or if there might be another gluten-free alternative that might be cheaper than $10/bottle, not likely but I will be looking into it.

 
said this on
13 Jul 2012 8:12:52 PM PST
Thanks for all the celiac info! It really helped me. I'm celiac too with dermatitis herpetiformis.

 
rebecca

said this on
25 Sep 2012 7:34:57 PM PST
I'm a celiac and had bad reactions to 3 different St. Ives products (face wash, face cream). My face broke out and I got a rash, which is very unusual for me. I'd be careful buying anything from that company in the future, since I recently learned that a lot of their products have wheat in them. As soon as I stopped using their products, the reactions stopped happening.

 
Hari Ohm

said this on
29 Nov 2012 3:39:10 PM PST
I actually use Shielo's hydrate line of shampoos (which are sulfate-free) to wash my hair. It doesn't have any of those harmful ingredients. I used to have the worst hair, and now I ALWAYS get complements when using the Shielo shampoo. Worth the price...

 
Robin

said this on
17 Aug 2015 9:37:05 PM PST
Definitely has wheat ingredients!!

 
Pamela

said this on
11 Mar 2013 9:29:30 AM PST
I just wanted to let everyone know that a friend told me Costco now carries gluten-free shampoo. I use Renpure Argan Oil shampoo/conditioner. It states right on front "No sodium chloride, salt, dyes, sulfates, parabens, gluten"!!! You can get it at Rite Aid or Amazon and probably other places too.

 
Marie

said this on
28 Apr 2013 11:56:56 AM PST
Does anyone know whether or not Wal Mart sells gluten-free shampoos, conditioners, hand and face soap, and toothpaste?

 
Amanda F.

said this on
21 Jun 2013 3:40:27 PM PST
Love love love Surface Hair Products!! They are salon-quality, gluten-free (as well as phthalate-, paraben-, and sulfate-free. They are also vegan/cruelty-free!) Our babysitter is a hair-stylist and she brought me their "Awaken" shampoo and conditioner to help with extreme hair loss due to my years-long undiagnosed celiac disease. Within weeks, my breakage and frizzies have stopped and my hair looks thicker and healthier than it has in years!! I'm so happy! Highly recommended!

 
Caroline

said this on
20 Sep 2013 2:16:38 PM PST
Hey can anybody help me? I've been so ill with very, very high sensitivity to gluten!! Since my sensitivity was diagnosed I have removed all gluten completely from my diet. My digestion has got much better after 1.5 years but now my hair is falling out and the texture has completely changed my hair is so distressed and is completely breaking on the ends the hair strands itself have a rough texture and nothing like I've ever felt before I'm using all sorts of distressed Redken products but nothing is working I'm certain this is due to my gluten intolerance.

 
Carolyn

said this on
24 Sep 2015 12:05:04 PM PST
I have celica disease to my hair was falling out after I wash my hair The mousse I used had wheat in it. I was very surprise. They tell you about food but they don't tell you are shampoo. I wend to bath and body shop and brought there shampoo and body wash now my hair is not falling out as it did before. So go to the store and tell them your problem and they can help you thank you




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