Our First Gluten-Free Picnic
- By Robin Lucas
- Published 04/19/2010
I am a wife , mom, and nurse. I wear many hats. I have six children from ages 22-4. I struggled with infertility for almost eleven years after my second child. I had to have my left ovary and tube removed due to endometrisos at age thirty. I went through infertility programs, and the doctor told me I had less than 5% chance of every having another baby. Well, eleven years later I had the third, then the 4th, 5th and finally the 6th. I just started back to work after 6 years of being home. My husband is a Bat. Chief at Columbia Fire Dept in SC. He will retire in two years at age 45 and is now in the RN nursing program. My eight year old son was diagnosed with anxiety disorder, oppositional defiance disorder, and now attention deficit disorder. My seven year old was diagnosed about 3 months ago with celiac disease. It has been a journey. I will not stop until I have the information I need to keep her healthy. I feel some days like I could just curl up in a ball and cry and stay there, but I refuse to let it get me. I know I can do all things through Christ. I will learn all I can to help my children, but I want to help other mothers too. I do not want anyone to go through what we did for over 2 years to find out what is wrong with our child. I knew in my heart there was more going on, not just because I am a nurse but I have the instinct. I have a the ability to find information and get things done. I have a wealth of knowledge from bringing up six children and the things I have been through . I want to share and help.
There are so many people that have never heard of celiac disease, or if they have heard of it, they do not understand how serious it is. I want to go and tell moms everywhere, please pay attention to these symptoms. I do not want another child to be sick for over two years and have to get really sick for the doctors to take it seriously, and then find out what is wrong. We need support and we need to make people aware. I want to help form a support group with the Family Connection in Columbia SC. I am in the process now. If you know anyone that is looking for a support group please help them get in touch with me by posting a comment below, or call Family Connections in SC they will help you get connected.
We had another successful cookout the next day even with some ungluten free food around. My daughter looked at the dessert table and saw those oh so beautiful pink icing sugar cookies. I said oh, honey you cannot eat anything over there. I brought your dessert. I expected to get a drama cry, but thankfully she said oh, ok, mommy and went off to play with her friends. I count that as a success story for us. She may be starting to get it . I know there will be setbacks but we are ready for them. My daughter has designed some really cute t-shirts. A little girl with a cape. logo says "Super Celiac Girl... fighting gluten everywhere", and then there is a boy says the same but Celiac boy. There other one is a toaster and it says keep your crumbs out of my toaster.
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