Courtney Colley
I am a 27 year old single female. I have been diagnosed for a little over two years (May 2005).
Infertility and Celiac Disease
- By Courtney Colley
- Published 01/5/2008
I am looking for sources or studies that help connect the link with celiac disease and infertility. I am looking to overturn a decision my doctor told me. Who can help? Where can I go? It is really frustrating to be told that I will never have kids and that is all I have ever really wanted. I have tried to go back on birth control and after three months I am still not regulated. I am pretty frustrated and not sure what to do. Who can help?
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Comments
#1 ( Jodi Mills)
Hey, I don't know much about the links between celiac and infertility, I know that I am not as fertile as regular women, although I have not had the testing done, but my Dr. did tell me that I have a way less chance to conceive. My friends at work who are both infertile, found Clomed, I think that is how it is spelled, Anyhow you can buy it on the net, and it helps women who don't ovulate and who are infertile to conceive, I have not tried it myself since I am only 23 and not ready for a family, try looking at web md, there are alot of forums out there for women who are trying to conceive, and a lot of good advice, and methods to use...Sorry I couldn't be of more help. Good Luck.
#2 ( june-bug)
Try Vitamin D, D3, K2 and K. I too was on your path to over turn this infertility myth. I am now 25 weeks with twins. Good Luck!
#3 ( Scott Adams)
Be sure to see the Fertility, Pregnancy, Miscarriage and Celiac Disease section in the Celiac Disease Research: Associated Diseases and Disorders category.
#4 ( Teresa)
Make a visit to a fertility specialist to have testing performed for your progesterone, estrogen, etc hormonal levels. These indicators will give you a more valid sense of your ability to get pregnant. The point of fertility as it relates to celiac disease is really more indirect in that celiac disease results in malnourishment. That is, if celiac disease is not being treated or if celiac disease is undiagnosed. As we all know, the effects of celiac disease are reversible (with some exceptions, such as when celiac disease triggers secondary medical conditions) through maintaining a gluten-free diet. I wonder if the doctor who told you that you will not be able to get pregnant is a gastroenterologist? A fertility expert? A general intern? The type of specialty will certainly drive the perspective from which your Dr speaks, so you are right to look for more information. Are you malnourished? A regular physical exam with your general Dr can indicate if you are deficient in many vitamins and minerals. These can be considered as indirect indicators of nutritional deficiencies. To answer your specific question, I don't off hand know of specific medical references for the link between fertility and celiac disease, but you can certainly search Medline (www.pubmed.gov) and type in the key words "infertility" and "celiac" to perform your own search of the primary research journals. Best wishes to you.
#5 ( L Schreiber)
Check out a Homeopathic/Nutritional Supplement alternative. Nutritional Supplements help target the root cause of the infertility ...help ovulation etc.
#6 ( Holly)
Hi..I was told the same thing from a few doctor's including Mayo Clinic. But they pointed out that since I haven't tried to have kids yet nothing was certain. Since I have endometrosis also, I think I'm not going to have kids at all now. That's okay because I could always adopt! Good luck and hang in there! -Holly
#7 ( Rose MacKinnon)
I have celiac disease and was successful in bearing a child. I did conceive two times with the first dying one week to due date. It is not known if that is linked to the disease. My son is now 23 years old and his sister would have been 27. So to link celiac and infertility...I can say I support that connection. By the way, my son does not have celiac disease or any brain disorder. He is very intelligent and well rounded.
#8 ( April)
If you are missing iodine in your diet this could cause hormonal problems. Get your ob/gyn to test your hormone levels and stay gluten free.
#9 ( Georgina)
Hi Courtney!
Sure do appreciate your frustration, hope this will help. It's not only low iodine, but an underlying thyroid insufficiency which contributes to the difficulty getting pregnant and miscarrying that many women experience prior to their diagnosis.
Also if you're trying to get pregnant, I suggest look into starting folic acid supplements right now, since spina bifida and other neural tube defects are higher in women with gluten intolerance, whose folic acid absorption is greatly reduced for up to several years due to long term gut healing after going gluten free.
All the best with your quest for a baby!
Georgina
#10 ( Sheri)
I'm extremely sensitive to MSG and free glutamate and I've noticed that the list of foods to avoid is much the same as for celiac disease/gluten intolerance. A lot of the symptoms are the same, too. I'm not saying that you don't have celiac disease, just that glutamates can also cause many health problems, too, and most people aren't aware of the many ways glutamate is hidden in food. Good luck to you.
#11 ( Kathleen)
I understand pefectally - I was not diagnosed until 2001, age 62 - now my earlier years make sense - I had baby #1 - then I had a serious breakout of Dermatitis Herpetiformis - blisters the size of English peas - could not get pregnant - finally 5 years later my Dermatitis Herpetiformis subsided - amazing I got pregnant with baby #2 and 18 months later baby #3. So I would say from experience, it takes a while for our bodies to heal after serious outbreaks of Celiac Disease/Dermatitis Herpetiformis - give yourself time and I am sure you will have that beautiful baby you are praying for. Have faith - relax and it will happen - when all else fails, stand on your head - a friend told me that as a joke, but I even did that - I was desperate for that second baby - good luck and God bless you.
#12 ( Terri Duganne)
My sympathy. Three miscarriages, one still birth at 5 months and one live birth. Plus thyroid disease and a host of other issues. Not diagnosed until 14 years later when my one beautiful daughter was diagnosed. Find an ob-gyn familiar with the disease. As well as a pediatrician that knows about Celiac. My daughter suffered for years. I am furious for you that anyone would tell you it is a done deal that you will "never conceive."
#13 ( katherine)
I would be looking for a more up to date Doctor. I was married 5 years before my 1st baby, nothing wrong with her. My 2nd one had all sorts of odd ball problems, but I had a wise baby MD. All in all 11 babies, 5 living. I have a congenial heart defect. But that didn't stop the babies from coming. I am recently diagnosed with sprue but I think I have had it all of my life, possibly born with it.
