I was diagnosed w/ interstitial cystitis in May of 2008 & then celiac disease in June 2008. I don't know which one is worse but I know that they both suck! So I to would love to here more on this topic. Thank You!

My Mother had interstitial cystitis. My sister and I both have Celiac. I bet Mother had it too. She also had Sjrogen's and diabetes. Too bad we never knew about the effects of gluten.

Laura you may try dairy free also. I have just started gluten and dairy free for interstitial cystitis and joint pain. I'll see how it goes.

I have suffered with IC for many years. I was diagnosed with Celiac three years ago. When I told my urologist I had celiac, he immediately said the celiac could very well be causing the IC. The gluten free diet has definitely helped my IC.

Hallelujah! After ten years of debilitating symptoms- stomach pain, chronic constipation, cystitis that keeps me up all night and kidney inflammation and pain- this is the first explanation that makes sense. I have been to dozens of doctors, conventional and otherwise, have been on Biltricide, six months of Diflucan and other disgusting natural anti-parasite medications but every time I stop the anti- candida diet that I've been on and off for the last five years I'm back in square one. Surely this is enough time to have starved a fungus! I have acupuncture once a week to help the pain in my legs and lower back (also retain a lot of water in my legs) and the painful meridians are always bladder, kidneys and stomach. I have worked out that its sugars and gluten that I'm reacting to, which is why I Googled it and found your info. Thank you for making sense of this ongoing hell. I already feel less physically agitated and hope to be able to finally get some sleep! By the way, if I react so strongly to gluten, does it mean I have Celiac?

After a long time, I was diagnosed with interstitial cystitis about 10 years ago. Then I had a bladder distention and was on Elmiron for a couple of years. It seemed to affect my gall bladder, which went out after a while, so I stopped taking the Elmiron after a couple of years. Then, about three years ago, I felt like I was getting a lot of UTIs, but nothing was showing in my urine. I was pregnant at the time, so it was not followed-up on by my doctors very much--it's all about the health of the fetus and all of your vitals looking good. My son was born about 22 months ago and I have had chronic constipation since then, fo no good reason. I am the eat fiber/drink water/be active/eat healthfully queen. The symptoms really came to a head about a month ago again, but I did not consider IC at first. About 3 weeks ago, I noticed that my nausea got really bad when I ate wheat products, so I went basically gluten-free. Voila. Very little nausea! But I still have intractable constipation and now I am having UTI symptoms. I have to wait many days for a consultation, and who know how long after that to have another distention + Elmiron, etc. I will drink tons of water, take a bit of Ativan to help me sleep, eat very little & nothing with gluten in it and try to get by. So painful, so over-taking.


I can hardly believe I found this site, where so many others have had the gluten-IC thing both happen. Probable link, I am convinced. Wish researchers really knew about this so I could have avoided all of this discomfort and even fear. Sounds like a good grant proposal opportunity to me. Any physician/researchers out there inclined to study this?

I have recently been diagnosed with IC and gluten sensitivity. I have been sick for 27 years, diagnosed with chronic yeast infections, migraines and then fibromyalgia. I have just begun the gluten-free diet. This is hard but if it is the answer to years of suffering I would like to know so that the next 27 will be better. We need physicians that can connect the dots!