- Celiac Disease & Kids by Danna Korn
Celiac Disease & Kids by Danna Korn
Welcome to CeliacKids.com by Danna Korn, founder of R.O.C.K. - Raising Our Celiac Kids, a support group for kids and their parents, and author of "Kids with Celiac Disease: A Family Guide to Raising Happy, Healthy Gluten-Free Children."
This is the premiere Web site for families and friends of gluten-free kids. The gluten-free lifestyle can be a challenge for anyone, and the information in other areas of Celiac.com will prove to be invaluable. Raising kids on a gluten-free diet presents unique challenges, and this site is filled with valuable information or resources to help you deal with some of those challenges and situations, including:
- Finding "fun" gluten-free treats for kids
- Menu ideas for school lunches, quick dinners, and sports snacks
- Helping the kids to take responsibility for reading labels, cooking and planning/preparing food
- How to prepare for unexpected birthday parties and food-oriented activities at school, church, and elsewhere
- Halloween, Easter, and other special days - how do we include our kids safely?
- Educating day-care providers and teachers - without burdening them
- Dealing with grandparents, babysitters, and "helpful" friends who offer gluten-containing foods to our kids
- But I don't want my kid to feel different!
- Ensuring our kids won't cheat, and what to do WHEN they do
- Sending kids away to camp, friends' houses, and other times when we're not around to help
- The psychological impact of growing up with celiac disease (peer pressure, teenage years, and more)
- Safe and forbidden ingredients and additives
- Latest news and important updates
- A must-read survival guide for parents, friends, teachers, and caretakers: Kids with Celiac Disease: A Family Guide to Raising Happy, Healthy Gluten-Free Children
Everything You Need to Know to Raise Happy, Healthy Gluten-free Kids.
The information and philosophies that you will find in the kids' section of this site are based on more than a decade of research and experience. The kids' site is written and managed by Danna Korn, founder of R.O.C.K. (Raising Our Celiac Kids), a free support group started in 1991 for families of kids on the gluten-free diet. Throughout the 10 years of offering support to R.O.C.K. parents while raising her own celiac child, Danna has heard every question in the book: How do we send them to school? How can we keep them from feeling different? How do we handle birthday parties and other special occasions? How can we talk to family and friends about this? Should the entire house be gluten-free?
After answering the same questions over and over, discussing and brainstorming ideas with other parents, and in the meantime experiencing her own unique situations with a celiac child, Danna realized there was a need for a survival guide to help deal with these challenges. The result is a comprehensive guide that covers everything you need to know about raising happy, healthy gluten-free kids: "Kids with Celiac Disease: A Family Guide to Raising Happy, Healthy Gluten-Free Children."
More than 10 years since its inception, there are now 65 R.O.C.K. chapters throughout the country, and the number of chapter groups continues to grow as awareness of the benefits of a gluten-free diet spreads.
Fortunately, awareness is spreading. Diagnosis of celiac disease (also known as celiac sprue, gluten intolerance, or non-tropical sprue), is on the rise, and for these children, strict adherence to a gluten-free diet is not an option - but a requirement. Kids with allergies to wheat, rye, barley and/or oats may not need to eliminate all gluten-containing foods, but the information contained in these pages will be helpful in dealing with whichever grains must be eliminated.
We also welcome friends and family of kids who are on the gluten-free/casein-free diet as part of a dietary intervention protocol for autism, Asperger's Syndrome, ADD and ADHD. Other websites that you might find useful are: www.glutenfreedom.net (my site where I offer consulting services), www.autismndi.com and www.gfcfdiet.com.
CeliacKids.com Table of Contents:
No matter what your reason for your dietary restriction, one of the hardest things about this diet is talking to people about why you must be gluten-free, and trying to explain the diet itself. Responses range from complete understanding (sorry, this is extremely rare), to people who think they understand but don’t (“Oh, this is just like when I gave up liver for Lent!”), to those who don’t care an iota about your diet, to the other 95 percent of the population who really want to understand, but just don’t get it.
When Tyler was diagnosed with celiac disease at the age of 18 months, I wanted desperately to talk to a kid––one who could talk––about what it’s like to have celiac disease. Do you feel jipped? Does it make you sad? Do you feel “different” from the other kids?!? I was heartbroken––grief-stricken––I had a long way to go before I would evolve into the cheerleader I hope I’ve become in helping people live––and love––the gluten-free lifestyle.
-Yes, there’s more to life than rice and corn!
Variety, it’s been said, is the spice of life. So what’s a person to do when they’re told to eliminate wheat and/or gluten from their diet? Most turn to rice, corn, and potatoes—an adequate set of starches, but ones that are sorely lacking in nutrients, flavor, and imagination.
You’ve all heard the joke proclaiming that “denial is not a river in Egypt.” No, it’s not. What it is, though, is a very real issue for many, if not most people who have been diagnosed with celiac disease or gluten sensitivity. There are a couple of types of denial—the first type affects us—while the other type affects those around us.
This article originally appeared in the Summer 2003 edition of Celiac.com's Journal of Gluten-Sensitivity.
-When “our product isn’t gluten-free” doesn’t necessarily mean “our product isn’t gluten-free”
You’ve found a food you’d really like to eat. You’ve read the label, and it looks as though the product might be gluten-free. You’re drooling! You can dig in, right? Wrong. It’s a good idea to call the manufacturer to confirm that there aren’t hidden sources of gluten.
At first, a diagnosis of celiac disease can be daunting, to say the least, and for some people, even devastating. It means giving up some of your favorite foods—pastas, breads, pizzas, cakes, cookies, and pretzels—at least as you used to know them. So why should you consider yourself lucky if you’ve been diagnosed with celiac disease? Because you’ve been given the key to better health.
The gluten-free lifestyle is a big part of who we are. So when friends, relatives, and loved ones don’t get it—I should clarify—when they seem to choose not to get it—we sometimes get a little cranky.
In the 13 years I’ve been involved in the wonderful world of “gluten freedom,” one of the questions I’ve been asked most frequently is whether or not the entire family should be gluten-free. For parents who have kids on the gluten-free diet, this seems to be a natural instinct––if Johnny can’t eat gluten, none of us will. But I’m not sure that having the entire family go gluten-free is the best thing––unless, of course, it’s for health reasons (I, for example, choose a gluten-free diet because I believe it’s healthier). This is one of those questions that has no correct or incorrect answer, so I’ll share with you, for what it’s worth, my personal perspective on the issue.