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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- brittanyf posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0
Lots of celiac symptoms but negative blood test? Need advice!
Hi all! I’m new here, but am at my wits end…I’ve been struggling with what seems like classic celiac symptoms and just got results of my blood tests which came back negative. I don’t WANT to have celiac, but feel scared/frustrated with not knowing what’s happening with my body and am worried about what else it could be? For the past year I’ve had ... -
- Celiac16 commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine4
Thiamine Deficiency Disorders
Oh my gosh I am reading my exact story… I just responded to a bunch of problems posts saying the same things… I do pretty much atkins too (under 20g carbs) which has been lifesaving in addition to thiamine. Symptoms are gradually improving, POTS isn’t as bad, and haven’t had the vertigo or nausea I had every time I ate. I think blood sugar may have be... -
- Celiac16 replied to Vicrob's topic in Related Issues & Disorders36
Mild guillaine barre syndrome
I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I... -
- Celiac16 replied to Moodiefoodie's topic in Related Issues & Disorders3
Joint swelling when ill even on gluten-free diet
I wasn’t feeling great even after eating strict gluten and diary free for years. I eliminated grains which helped and then eventually adopted a low carb, high fat, medium protein diet that really helped. I think I was too focused on the celiac diagnosis, and kept going back to my go for colonoscopies and endoscopies that didn’t lead to anything (the drs did... -
- Celiac16 replied to Manaan2's topic in Related Issues & Disorders12
Vitamin Levels and constipation
@Manaan2 hi Manaan, this is going to sound very random but vitamin b1, thiamine, helped me with constipation. It can also cause anemia if low (so can other b vitamins so a b complex or multivitamin could help, probably a good safety net too). My pediatrician had me take a multivitamin when I was diagnosed as a kid too just to cover all the bases.
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