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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information Since 1995 at Celiac.com - Comments for article: Gluten Sensitivity: A Gastroenterologist's Personal Journey Down the Gluten Rabbit Hole by Dr. Scot Lewey]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Sat, 21 Nov 2009 04:10:26 PST</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment721</link><description><![CDATA[My test for celiac was negative but I have all the symptoms so this article was very helpful.<br/><br/>
(Comment posted by Eva Thomas at 11:07 am, Wed 12th Dec 2007)]]></description><author>no@spam.com (Eva Thomas)</author><pubDate><![CDATA[Wed, 12 Dec 2007 11:07:31 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment721</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment737</link><description><![CDATA[ In 1991 I was very ill and after many rounds with doctors and no help I found one who suggested a diagnostic diet. Within a week I was so much better, but it took ages to rehabilitate my whole digestive system. The one thing I have avoided since was gluten and my life has returned to being healthy. I formed the opinion that I was celiac, but as no doctor considered this I was not tested and therefore not diagnosed. Later I have been told to eat gluten so I can have the tests. I say I haven't got that time to waste being sick. I know I get sick when eating it.

Then, I had a daughter and totally breast fed her for 6 months. Then, she had very light gluten load, but when she began preschool this increased with lunches etc., as I was going on the advice not to exclude it as it was vital for a healthy diet. But she developed all the symptoms of Celiac. The blood tests were negative. I wrote to a pediatric gastroenterologist in a major teaching hospital and outlined the symptoms. He did not even need a consultation just booked her in for the biopsy. The results were negative. No evidence of celiac disease. That left me in such a difficult place as all of her symptoms resolved by staying off gluten, but I had no other diagnosis. Her father (separated) and family thinks I am making it all up and sometimes fed her gluten, but she is clever (now 8 year old) and from the beginning understood the diet and enforces it. So she is a healthy child not eating gluten, with no diagnosis. But all of this has led me to think along the lines that this article suggests. I knew 17 years ago that the medical fraternity had it very underestimated.<br/><br/>
(Comment posted by Lisa Cunial at 2:27 am, Thu 13th Dec 2007)]]></description><author>no@spam.com (Lisa Cunial)</author><pubDate><![CDATA[Thu, 13 Dec 2007 02:27:53 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment737</guid></item><item><title><![CDATA[Comment #3 (Reply to Comment #2)]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4150</link><description><![CDATA[Lisa,

Good for you on following your mom instincts! A mother truly knows her child best.

I too am a Non-Celiac, Gluten Sensitive individual. My nutritionist confirmed it with a genetic test that involved using a cheek swab sample. Very easy to do. I had 2 copies of the HLA-DQ gene, perhaps this test could help more people who are perplexed by the traditional, negative celiac tests.<br/><br/>
(Comment posted by Kristi at 10:28 am, Fri 31st Jul 2009)]]></description><author>no@spam.com (Kristi)</author><pubDate><![CDATA[Fri, 31 Jul 2009 10:28:51 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4150</guid></item><item><title><![CDATA[Comment #4 (Reply to Comment #2)]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4682</link><description><![CDATA[I'm the same way. Celiac tests are negative, but I have almost all  the symptoms. The only thing that gets me well again is avoiding gluten. So I live as if the test results were positive, and feel like a healthy person for it.
Wish you and your little one well.<br/><br/>
(Comment posted by Kari at 1:28 pm, Wed 14th Oct 2009)]]></description><author>no@spam.com (Kari)</author><pubDate><![CDATA[Wed, 14 Oct 2009 13:28:54 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4682</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment1082</link><description><![CDATA[Excellent article, well-written and thought-provoking.  I have long believed there is non-celiac gluten sensitivity but am unable to convince many (any?) physicians whose patients I counsel.  I'm copying this article to use as a convincing reference tool!<br/><br/>
(Comment posted by Ruth Arcuri-Kovacs MS, RD at 8:34 am, Thu 10th Jan 2008)]]></description><author>no@spam.com (Ruth Arcuri-Kovacs MS, RD)</author><pubDate><![CDATA[Thu, 10 Jan 2008 08:34:08 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment1082</guid></item><item><title><![CDATA[Comment #6]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment1359</link><description><![CDATA[Excellent article.  I was gluten free for two months before having the blood tests for the antibodies.  They were present but not high enough to be called celiac disease.  I had the fecal tests and gene test done through Dr. Fine's Enterolab.  I have both the DQ2 and DQ8 genes plus the antibody level was high and this was 4 months after going gluten free.  Also found out that i was casein intolerant,  What a lifestyle change.
I started looking at all this because there were 9 children in our family and so many diseases and cancers.  Now that I am getting on the right train and the right track I am having difficult convincing my siblings and family to be tested.
I have pulmonary hypertension secondary to scleroderma, osteopenia, Vit D defenciency, iron deficiency, my hair was falling out (that has improved since going gluten free), constipation, reflux, aches and pines all over the place--muscles and joints.  It took 57 years to get this way and I know it will take time to undo some of the problems.  
Maybe this will help my family understand what we are up against.
Cindy, 
Lewisville, NC
PS I had this bumpy itchy rash as a kid and off an on as an adult.  It was diagnosed from contact dermatitis, to ringworm to neuro dermatitis.  I now know what it was.  We have to be our own medical advocates.  If what you are told does not make sense do not just accept the answer.  Get another opinion.<br/><br/>
(Comment posted by Cindy Pickles at 12:00 pm, Fri 1st Feb 2008)]]></description><author>no@spam.com (Cindy Pickles)</author><pubDate><![CDATA[Fri, 01 Feb 2008 12:00:50 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment1359</guid></item><item><title><![CDATA[Comment #7]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment1848</link><description><![CDATA[My mother could not tolerate gluten and had lupus.<br/><br/>
(Comment posted by Lola at 5:39 pm, Mon 17th Mar 2008)]]></description><author>no@spam.com (Lola)</author><pubDate><![CDATA[Mon, 17 Mar 2008 17:39:16 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment1848</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2809</link><description><![CDATA[I also have been diagnosed with  Lupus as Lola's mother and have all the symptoms that Cindy has. This article was very interesting to me and I plan to learn how to eat gluten free.  Thank you<br/><br/>
(Comment posted by Jo Ann at 2:30 pm, Mon 8th Sep 2008)]]></description><author>no@spam.com (Jo Ann)</author><pubDate><![CDATA[Mon, 08 Sep 2008 14:30:25 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2809</guid></item><item><title><![CDATA[Comment #9]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2840</link><description><![CDATA[Thank you, thank you.  I have told people that I must be a celiac in remission.  Celiacs look at me and give me the uh uh, she is in denial look.  I was raised by a diagnosed celiac (blood test and biopsy after about 15 years of symptoms) and had symptoms myself for about 2 years prior to my first pregnancy when my symptoms as well as my milk intolerance vanished.  GO FIGURE.  I have an underground undiagnosed celiac child who had a celiac blood panel done by the family doctor.  He was not sure if she has it  or not.  This celiac panel caused us to not be able to purchase health insurance while we were self employed.  
We are now doing our very best to bury this in her history and pray that this panel never raises it's head again to haunt us  (We saw this doctor only a few times and then he moved his practice). I ponder my time of symptoms and scratch my head.  I count myself blessed by Heaven.  How could I have done the work in my home with my 7 children and battled symptoms myself too.  I would have done it, but it would have been hard.  
NCGS what a thought...  
Or is it remission?  I guess it does not really matter right now, but I hope for better quality of life for Celiacs and less pain and anguish from insurance companies.  
I know insurance companies are trying to stay in business, but refusing insurance to people with such a common disease?  
Awareness is the key.<br/><br/>
(Comment posted by Gluten Free Mom to many at 10:54 pm, Fri 12th Sep 2008)]]></description><author>no@spam.com (Gluten Free Mom to many)</author><pubDate><![CDATA[Fri, 12 Sep 2008 22:54:54 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2840</guid></item><item><title><![CDATA[Comment #10]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2853</link><description><![CDATA[Certainly enjoyed learning about Celiac disease<br/><br/>
(Comment posted by Teresa Gardner at 11:19 am, Wed 17th Sep 2008)]]></description><author>no@spam.com (Teresa Gardner)</author><pubDate><![CDATA[Wed, 17 Sep 2008 11:19:46 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2853</guid></item><item><title><![CDATA[Comment #11]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2893</link><description><![CDATA[I have been suffering from IBS after my diagnosis of acute transverse myelitis. I have been to gastro specialists who did not give me any solution for this symptom.  I feel like a Goodyear blimp with a block of cement in my stomach. I will pass this article to my primary doctor.  I need relief on top of my 24/7 neurological pains.  Thanks.<br/><br/>
(Comment posted by toni shen at 8:02 pm, Mon 29th Sep 2008)]]></description><author>no@spam.com (toni shen)</author><pubDate><![CDATA[Mon, 29 Sep 2008 20:02:11 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment2893</guid></item><item><title><![CDATA[Comment #12]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3267</link><description><![CDATA[I loved this article! It has been so hard to get help for our family! A year ago my (then) 3 year old daughter was diagnosed with wheat intolerance as well as some other food intolerances.  She always ate tons of food but you could count her ribs front and back. Our GP said that she was 'just the tall & skinny type'. But, she also NEVER had a firm stool.  After our family went wheat-free, then gluten-free and she gained 4 lbs in 2 months! The funny thing is that my husband who has had a diagnosis of IBS and reflux for years had his symptoms disappear! We are not going to try the battery of tests for celiac and related issues.<br/><br/>
(Comment posted by Stephanie at 11:17 am, Wed 31st Dec 2008)]]></description><author>no@spam.com (Stephanie)</author><pubDate><![CDATA[Wed, 31 Dec 2008 11:17:09 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3267</guid></item><item><title><![CDATA[Comment #13]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3368</link><description><![CDATA[I've been gluten free for only 2 weeks and have seen amazing results that I didn't think were possible from any diet, drug, surgery, or treatment. I started the diet immediately after the blood-draw and have since had the results come back negative for Celiac Disease. The tests seem a mere formality---the results of a gluten-free diet speak quite loudly. My most bothersome symptoms included fatigue, flu-like pain, and myoclonic jerks. These symptoms are now greatly reduced, despite hearing that neurological symptoms like myoclonus (involuntary, uncontrollable large muscle jerks) are not likely to reverse with a gluten-free diet. No MRI, EMG, bloodwork, doctor or specialist (including my excellent neurologist and rheumatologist) could pinpoint the cause of the myoclonus. Who would have guessed it was in response to toxic gluten? I no longer feel as if I'm dying from a long drawn-out terminal illness, and I actually feel energized after eating---something I've never experienced in all my 38 years. A note to the wise: Even if you test negative for celiac disease, try a strict gluten-free diet for a couple months. There was seriously a time when I thought a wheelchair might be in my future because of fatigue and weakness from what was diagnosed as Fibromyalgia. I now have my life back. I cannot stress enough how amazing this change has been. Don't hold out for a positive celiac test. NCGS should be considered.<br/><br/>
(Comment posted by Kim at 9:08 am, Wed 21st Jan 2009)]]></description><author>no@spam.com (Kim)</author><pubDate><![CDATA[Wed, 21 Jan 2009 09:08:22 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3368</guid></item><item><title><![CDATA[Comment #14 (Reply to Comment #13)]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4287</link><description><![CDATA[You are not alone!! I was diagnosed at age 25 with Fibromyalgia. I couldn't believe that I would feel "that" way for the rest of my life. I went from a college athlete to canceling dates with my husband because of how ill I felt. I went gluten free (no tests, just something I chose to do) about 2 months after the diagnosis and I have been Gluten Free for 9-10 months and have NO fibro symptoms to date. I hope that you continue to have success on your Gluten-Free journey!<br/><br/>
(Comment posted by Aimee at 7:37 pm, Sun 23rd Aug 2009)]]></description><author>no@spam.com (Aimee)</author><pubDate><![CDATA[Sun, 23 Aug 2009 19:37:27 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4287</guid></item><item><title><![CDATA[Comment #15]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3557</link><description><![CDATA[This article is very well written and was so helpful to my family. My son is two and half and has had a gritty very smelly diarrhea, slow growth and constant hunger for two years. I  kept a food journal on him for months at a time and it seems to be related to gluten intake. We have him on about a 90% gluten free diet despite the fact that all of his tests for celiac disease came out negative. The gluten free diet has helped so much. Since he hasn't been diagnosed with celiac and the gastroenterologist won't recommend a gluten free diet we can't get the extra medical (dietitian / nutritionist) support to help us figure the whole diet out though.<br/><br/>
(Comment posted by Heather Sroufe-Powers at 5:36 am, Tue 17th Mar 2009)]]></description><author>no@spam.com (Heather Sroufe-Powers)</author><pubDate><![CDATA[Tue, 17 Mar 2009 05:36:10 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3557</guid></item><item><title><![CDATA[Comment #16]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3841</link><description><![CDATA[What interests me is that I know of so many people now (including myself) who have gluten allergies but never had them 10, 20, 30 years ago! 
There seems to be an explosion of NCGS. My friend's little boy was diagnosed as celiac twenty years ago and there were two or three products available. Now there are hundreds. Even a junk food restaurant had a product 'gluten free'. <br/><br/>
(Comment posted by Freda Smith at 1:29 am, Sun 31st May 2009)]]></description><author>no@spam.com (Freda Smith)</author><pubDate><![CDATA[Sun, 31 May 2009 01:29:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3841</guid></item><item><title><![CDATA[Comment #17]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3965</link><description><![CDATA[Very informative<br/><br/>
(Comment posted by Nancy Thompson at 4:05 pm, Sat 20th Jun 2009)]]></description><author>no@spam.com (Nancy Thompson)</author><pubDate><![CDATA[Sat, 20 Jun 2009 16:05:34 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment3965</guid></item><item><title><![CDATA[Comment #18]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4286</link><description><![CDATA[Wow, I am right with Kim. I was diagnosed with Fibromyalgia about a year ago and thought it was the PERFECT fit. However, at 25, I couldn't begin to think that this is how the rest of my life would be. SO, I began searching...I have been on the gluten free diet for about 9-10 months and can't believe the transformation. I now believe that others in my family could very well respond to a GF diet, but I have to convince them, just like this doctor is having to convince other doctors. There is such a thing as non-celiac gluten sensitivity. I have been battling for this "diagnosis" for over 15 years. 3 surgeries and a near lupus diagnosis at 12, makes me relieved to read articles like this. I am not alone and I am not making this stuff up.

I hope everyone has as much success as I have had!<br/><br/>
(Comment posted by Aimee at 7:33 pm, Sun 23rd Aug 2009)]]></description><author>no@spam.com (Aimee)</author><pubDate><![CDATA[Sun, 23 Aug 2009 19:33:41 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4286</guid></item><item><title><![CDATA[Comment #19]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4507</link><description><![CDATA[I stumbled upon gluten-free diet after being baffled by a combination of odd symptoms...irregular digestion, pain, bloating, muscle joint pain, hair falling out, fatigue, weight fluctuations and a weird tingling feeling in my fingertips.  I am completely normal now after being gluten free for over a year.  I am a scientist-type so It was easy for me to scrutinize everything I ate..be patient and stick with it even if it feels complicated..and don't give up if your test results are "inconclusive".  If you eliminate something from your diet but don't change anything else and you feel better and stay better..that's good enough proof for now.  just be aware that it is an ELIMINATION diet...and you have to be patient and stick with it.<br/><br/>
(Comment posted by Marianna at 8:49 am, Fri 2nd Oct 2009)]]></description><author>no@spam.com (Marianna)</author><pubDate><![CDATA[Fri, 02 Oct 2009 08:49:44 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4507</guid></item><item><title><![CDATA[Comment #20]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4639</link><description><![CDATA[Wow, the first time I heard of Celiac disease was when my autistic and diabetic nephew's endocrinologist recommended it for my nephew, and when he tested positive, I had my autistic son tested, and BAM!!! At 6 ft. 1, he never weighed more than 120 lbs, and looked like he suffered from starvation.  I always knew he couldn't absorb nutrients from food, although he ate more than twice the normal amounts.  No wonder!! Since going Gluten Free, his entire health has turned around. He's gained weight, and his gum disease has curtailed.  When I first started buying him baked goodies, he'd reject everything, as you know they taste like cardboard.  So, I developed a better way, and I now have a Gluten free, Flour free bakery of brownies so delicious, and so naturally made, that they taste exactly like the old flour ones. <br/><br/>
(Comment posted by Rise Myers at 11:50 am, Wed 7th Oct 2009)]]></description><author>no@spam.com (Rise Myers)</author><pubDate><![CDATA[Wed, 07 Oct 2009 11:50:40 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4639</guid></item><item><title><![CDATA[Comment #21]]></title><link>http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4683</link><description><![CDATA[I too came up negative on the Celiac Sprue blood panel, but I have most of the Celiac symptoms. I started suspecting Celiac disease when I went on a very restrictive low card diet to try & help my skin (I also have cystic acne). I noticed how much better I felt all around after a couple of weeks. Then I slowly started adding things back into my diet. When I got to wheat & gluten all my previous symptoms came back. Over time they even got worse, so, on my own,  I went on a strictly gluten free diet and as long as I avoid it I feel "normal". Long story short, avoiding gluten has saved me from more misery and embarrassment. I'm life long gluten free from this point forward.<br/><br/>
(Comment posted by Kari at 1:37 pm, Wed 14th Oct 2009)]]></description><author>no@spam.com (Kari)</author><pubDate><![CDATA[Wed, 14 Oct 2009 13:37:26 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html#Comment4683</guid></item></channel></rss>