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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information Since 1995 at Celiac.com - Comments for blog: Is there a link between Parkinson's Disease and Gluten Intolerance/Celiac Disease?]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Sat, 21 Nov 2009 07:02:45 PST</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3613</link><description><![CDATA[Hi Wendy,

Two years ago my Dad recovered from prostate cancer.  Then he was diagnosed with Parkinson's Disease because he has a debilitating 'shake' in his one of his wrists.  After he was diagnosed with celiac disease, his doctor re-diagnosed the Parkinson's Disease, realizing that he really had a secondary myoclonus ('shake') related to the celiac disease.  There is a lot of peer-reviewed medical literature on secondary myoclonus.  We live in NH.  I have met a woman in NH that similarly to my Dad, was 1st diagnosed with Parkinson's, come to find out it was really the secondary myoclonus related to Celiac Disease that she was diagnosed later as having.

On another note, a neighbor of mine was diagnosed recently with celiac disease.  This is a tie-in to your Michael J. Fox's Asian experience. My neighbor had gout.  He travels a lot.  In Asia, his gout doesn't bother him as much.  He realized that he didn't eat wheat in Asian, and drank rice beers.  So, he was tested for Celiac Disease and he has it.  His gout is less of a problem now that he's on a gluten free diet.<br/><br/>
(Comment posted by R. Jean at 4:12 pm, Thu 2nd Apr 2009)]]></description><author>no@spam.com (R. Jean)</author><pubDate><![CDATA[Thu, 02 Apr 2009 16:12:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3613</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3616</link><description><![CDATA[Hello,
    I have suffered Parkinson's for 18 years, and as a retired scientist, I have studied the disease. I have come across other pointers to gluten playing a part, and will try a low gluten diet and let you know.<br/><br/>
(Comment posted by Ron Hutton at 12:22 am, Fri 3rd Apr 2009)]]></description><author>no@spam.com (Ron Hutton)</author><pubDate><![CDATA[Fri, 03 Apr 2009 00:22:58 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3616</guid></item><item><title><![CDATA[Comment #3 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4881</link><description><![CDATA[Did it work, Ron?<br/><br/>
(Comment posted by kelly fordon at 6:33 am, Tue 10th Nov 2009)]]></description><author>no@spam.com (kelly fordon)</author><pubDate><![CDATA[Tue, 10 Nov 2009 06:33:31 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4881</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3617</link><description><![CDATA[Almost all of symptoms eventually were neurological and I was wrongly treated with antidepressants, stimulants, mood stabilizers, etc. I had many symptoms but now I take no medications and just eat gluten free. I was a mentally ill person and now I am not. It is like having two lives, I have a hard time reckoning with my past and where I have been as a result of not knowing but I try to have compassion with myself. Nothing would surprise me because I know how sick I was, mentally. Colleen<br/><br/>
(Comment posted by Colleen Curran at 3:47 am, Fri 3rd Apr 2009)]]></description><author>no@spam.com (Colleen Curran)</author><pubDate><![CDATA[Fri, 03 Apr 2009 03:47:12 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3617</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3635</link><description><![CDATA[I have had Narcolepsy and non-epileptic seizures for over 10 years.  For a few months I was completely disabled until I was put on traditional Narcolepsy medications.  I have 2 family members diagnosed with Celiac (through biopsy) but my blood test 10 years ago came back negative so I never went gluten free.  I should have!

In 2002 I went on an Atkins-like diet and found my symptoms mysteriously disappeared and I could live a normal life without medication.  I eventually went back to wheat and got sicker and sicker.  Late last year I found most of my symptoms were due specifically to gluten, which I began to avoid 100% with great results.  The rest of my symptom triggers are due to food allergies related to pollen allergy.  I've heard that Celiac can cause allergies, too.  

I recently received a copy of my DQB1 and DRB1 genes and found out I have a Celiac haplotype plus another gene on the same locus that is both a Celiac and a Narcolepsy gene.  This explains why avoiding gluten controls the Narcolepsy and seizures.  I seem to have some permanent Narcolepsy damage that happens even on the strictest diet, but it is mild and completely manageable.  The seizures never happen unless I eat gluten.  

It is my belief that Celiac Disease caused my Narcolepsy, but there isn't a doctor in the world that would have ever heard of that.  Funny thing is, I'm not the only one!

My only gripe is that I had to figure this all out on my own because doctors just thought it was all psychological, despite a total loss of reflexes during paralysis.  And I only figured it out because I kept working at it and never gave up.  When will they wake up and start helping people?<br/><br/>
(Comment posted by zia at 9:04 pm, Tue 7th Apr 2009)]]></description><author>no@spam.com (zia)</author><pubDate><![CDATA[Tue, 07 Apr 2009 21:04:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3635</guid></item><item><title><![CDATA[Comment #6]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3636</link><description><![CDATA[Those who speculate on who has and doesn't have celiac know that short stature has always been a symptom of celiac.  Today, it would definitely raise a red flag for celiac screening in a child. It's also part of what makes Michael J. Fox unique in Hollywood and been a contributing factor in his very successful career...<br/><br/>
(Comment posted by Bev at 2:48 am, Wed 8th Apr 2009)]]></description><author>no@spam.com (Bev)</author><pubDate><![CDATA[Wed, 08 Apr 2009 02:48:55 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3636</guid></item><item><title><![CDATA[Comment #7]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3687</link><description><![CDATA[Is there a link between Celiac Disease and tremors (shakes) of hands and fingers.  Would this necessarily be Parkinson's Disease?<br/><br/>
(Comment posted by Majella Holton at 11:07 pm, Mon 27th Apr 2009)]]></description><author>no@spam.com (Majella Holton)</author><pubDate><![CDATA[Mon, 27 Apr 2009 23:07:05 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3687</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3698</link><description><![CDATA[My father's shakes are in his wrists predominantly, but this also effects his fingers/hands, so I'm not really sure where they are originating.  Question:  I also have Celiac Disease, and in the last 4 years (mostly prior to my diagnosis) I have had some strange symptoms of my own and am wondering if anyone else has experienced these, as I understand that some of these may be neurologically based? These include occipital neuritis; visual-spatial deficits (so much so, that I have been recently coded as having a 'non-verbal learning disorder'); and a couple of times, my whole body has become 'paralyzed' for a couple of seconds, although I can still 'see' around me - just can't move.  This paralysis hasn't occurred since I've been on the gluten free diet.  I still have problems with vertigo.  Also, I had problems with 'burning' feelings in my body, not anymore really now that I am on a gluten diet.  These occurred predominantly in bending areas; also in fingers/toes.   Sometimes there was a rash along with the burning but it was diagnosed as not being Dermatitis Herpetiformis. Oddly enough, sometimes the one on my face resembled the lupus rash - although that in and of itself was diagnosed as not being lupus, based on many test results, including a negative ANA.  I am not deficient in any vitamins and minerals; I have been tested and  have (fortunately) been supplementing i.e. with extra with Bs & Ds & probiotics for years. I also forgot to mention that I still have trouble with gastro-pareisis, which I understand others with Celiac might have?   For those who don't know what gastro-pareisis is, I can only describe it really, how it is for me personally.  It's like someone unplugs your entire digestive tract from a power source.  There are no sounds, no movement.  It's actually very scary.  When it happens, I have to wait it out.  If I eat, I throw up.  It doesn't hurt per se.  It's just there's no where for the food to go that's how it feels anyway.  For the oddest reason, if I don't eat any grains whatsoever (i.e. quinoa, rice, sorghum, corn, et cetera) the gastropareisis all but disappears.  When I get 'glutened,' I don't get the traditional gastro-intestinal symptoms.  I get headaches/migraines, and the burning in bending areas.  My IgAs were above the testing range when I was 1st diagnosed; however, there was very little villi damage; I do recall the doctors being very surprised!   Just wondering if anyone else has had any of these experiences or perhaps all.<br/><br/>
(Comment posted by R. Jean at 10:53 am, Sat 2nd May 2009)]]></description><author>no@spam.com (R. Jean)</author><pubDate><![CDATA[Sat, 02 May 2009 10:53:44 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3698</guid></item><item><title><![CDATA[Comment #9]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3719</link><description><![CDATA[1. I know from personal experience, that gluten intolerance can cause depression and mental illness.  I suffered from two bouts with clinical depression and tons of other problems prior to going gluten-free.  

2. I decided to try being gluten free last year to determine whether gluten was the cause of my health challenges.   I went without it for four days, then had two pieces of homemade wheat bread.  Within 45 minutes, my feet were like ice cubes, my left arm was tingly as though it was falling asleep, I had to lie down from exhaustion and I was shivering uncontrollably.  (I don't necessarily recommend this method of determining gluten sensitivity.)  I could literally feel all the blood in my body rushing to my abdomen.  

3. My mother and I have both determined that we have gluten intolerance.  My maternal grandmother passed away from Parkinson's a few years ago.  She had been diagnosed as having diverticulitis, IBS, and Osteoporosis - all of which are related to gluten intolerance.

So yes, in my unprofessional opinion (we know how uneducated MOST of the professionals are about this), there is a definite connection between celiac and Parkinson's.<br/><br/>
(Comment posted by Rebecca at 9:35 am, Tue 5th May 2009)]]></description><author>no@spam.com (Rebecca)</author><pubDate><![CDATA[Tue, 05 May 2009 09:35:24 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3719</guid></item><item><title><![CDATA[Comment #10]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3725</link><description><![CDATA[I was diagnosed with Celiac 6 months ago and have been gluten-free since.  I've had a tingling in my hand and forearm, on and off throughout the day for a couple weeks.  Has anyone experienced this?<br/><br/>
(Comment posted by Robo at 9:02 pm, Tue 5th May 2009)]]></description><author>no@spam.com (Robo)</author><pubDate><![CDATA[Tue, 05 May 2009 21:02:07 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3725</guid></item><item><title><![CDATA[Comment #11]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3739</link><description><![CDATA[I am very interested in this topic.  My husband was diagnosed with Parkinson's Disease about one year ago.. although he has been experiencing the symptoms for about 2 years now.  I was talking with a friend of mine who is gluten intolerant.  She asked me about the possibility of gluten affecting patients with Parkinson's Disease. She explained to me what gluten does to ones intestine and the affect it has on absorption of nutrients.  I thought about all the research I've done on Parkinson's Disease and that studies have shown patients to be lacking in Vitamin D, E and most B vitamins. If there is a link then it makes sense why there is such a deficiency in Vitamins.  So I decided to get rid of all the gluten in our home.  My husband has reluctantly agreed to go along with it.  The most amazing thing is my oldest son, who has just turned 3, is doing so much better.  He's still in diapers and they have been horrible  and nasty.  I have always known something is bothering him.  Well after two days of gluten free eating his diapers have been almost normal.  So I am even more convinced that my husband has an intolerance to gluten.  Especially since his mother and sister are gluten intolerant.  Please write more about this subject if you have anything to add about Parkinson's Disease and celiac disease.<br/><br/>
(Comment posted by Kristina at 2:30 pm, Fri 8th May 2009)]]></description><author>no@spam.com (Kristina)</author><pubDate><![CDATA[Fri, 08 May 2009 14:30:12 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3739</guid></item><item><title><![CDATA[Comment #12]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3815</link><description><![CDATA[(10) Hi Robo!
Yes, I have experienced the symptoms you mentioned. Although I'm gluten-free since have the tinglings and numbness in feet, knees, hands and elbows - although in a very low level. I try very hard to understand if there is anything more I have besides celiac disease but I can't find. I have visited many doctors (reumatologits, endoc., neurol. etc. and nobody can find a thing while my tests are negative. 
Please, if somebody knows more for this subject, I would appreciate to let me know.<br/><br/>
(Comment posted by Lila at 3:18 am, Wed 20th May 2009)]]></description><author>no@spam.com (Lila)</author><pubDate><![CDATA[Wed, 20 May 2009 03:18:46 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3815</guid></item><item><title><![CDATA[Comment #13]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3889</link><description><![CDATA[Lila and Robo,  I too have the tingling...I described it as buzzy hands.  I thought at first it was carpal tunnel, but the surgery didn't help.  Going gluten-free made a huge difference, but I'd still wake up in the morning with buzzy hands.  Then I did research on B-12 and discovered that gluten intolerance and malabsorption of B-12 is related, and B-12 deficiency had all the symptoms I was experiencing.<br/><br/>
(Comment posted by Cindy at 6:48 pm, Mon 8th Jun 2009)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Mon, 08 Jun 2009 18:48:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3889</guid></item><item><title><![CDATA[Comment #14]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4108</link><description><![CDATA[I have not been confirmed coeliac but any gluten/wheat however small sets off dreadful abdominal pains bloating etc so I eat a gluten free diet. I have recently been diagnosed with Parkinson's disease and am interested if there is any link<br/><br/>
(Comment posted by annie at 11:40 am, Thu 23rd Jul 2009)]]></description><author>no@spam.com (annie)</author><pubDate><![CDATA[Thu, 23 Jul 2009 11:40:58 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4108</guid></item><item><title><![CDATA[Comment #15]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4140</link><description><![CDATA[I have been gluten free for two years. I started because I was diagnosed with Chron's  I'm 76 years old gluten has had time to do a great deal of damage. Besides the Chron's I also had high blood pressure, congestive heart failure, arthritis (60) years. After bypass surgery I had to quit my  arthritis medication. Then the Chron's kicked up. Two years of that with no medications that worked made me desperate. I read on line that gluten could damage the small intestine so I tried the gluten free diet . Results after two years, blood pressure normal or lower, nearly no arthritis pain. my heart is now back to normal. I'm only taking 20mg Lasix every once in a while no other heart medications. Any one who has stomach problems should try it. Twenty years of indigestion went away after two weeks and never returned<br/><br/>
(Comment posted by art clark at 9:56 am, Wed 29th Jul 2009)]]></description><author>no@spam.com (art clark)</author><pubDate><![CDATA[Wed, 29 Jul 2009 09:56:24 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4140</guid></item><item><title><![CDATA[Comment #16]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4294</link><description><![CDATA[Have any of you with diagnosed celiac disease been told that the antibody count in your blood is higher than normal?<br/><br/>
(Comment posted by Mimi at 10:25 pm, Mon 24th Aug 2009)]]></description><author>no@spam.com (Mimi)</author><pubDate><![CDATA[Mon, 24 Aug 2009 22:25:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4294</guid></item><item><title><![CDATA[Comment #17 (Reply to Comment #16)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4691</link><description><![CDATA[I was diagnosed as Celiac in January after antibody count was over 60. However that is the only test which was done so I do not know how the Dr. could have been so sure I was Celiac. Now I think that I may be just gluten intolerant. My count is down to 23, still a little high, so I soldier on with a gluten free diet. This is one really great site for information isn't it?<br/><br/>
(Comment posted by Eileen at 2:03 pm, Thu 15th Oct 2009)]]></description><author>no@spam.com (Eileen)</author><pubDate><![CDATA[Thu, 15 Oct 2009 14:03:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4691</guid></item></channel></rss>