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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information at Celiac.com - Comments for blog: Is there a link between Parkinson's Disease and Gluten Intolerance/Celiac Disease?]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Sun, 26 May 2013 01:42:34 PDT</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3613</link><description><![CDATA[Hi Wendy,

Two years ago my Dad recovered from prostate cancer.  Then he was diagnosed with Parkinson's Disease because he has a debilitating 'shake' in his one of his wrists.  After he was diagnosed with celiac disease, his doctor re-diagnosed the Parkinson's Disease, realizing that he really had a secondary myoclonus ('shake') related to the celiac disease.  There is a lot of peer-reviewed medical literature on secondary myoclonus.  We live in NH.  I have met a woman in NH that similarly to my Dad, was 1st diagnosed with Parkinson's, come to find out it was really the secondary myoclonus related to Celiac Disease that she was diagnosed later as having.

On another note, a neighbor of mine was diagnosed recently with celiac disease.  This is a tie-in to your Michael J. Fox's Asian experience. My neighbor had gout.  He travels a lot.  In Asia, his gout doesn't bother him as much.  He realized that he didn't eat wheat in Asian, and drank rice beers.  So, he was tested for Celiac Disease and he has it.  His gout is less of a problem now that he's on a gluten free diet.<br/><br/>
(Comment posted by R. Jean at 4:12 pm, Thu 2nd Apr 2009)]]></description><author>no@spam.com (R. Jean)</author><pubDate><![CDATA[Thu, 02 Apr 2009 16:12:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3613</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3616</link><description><![CDATA[Hello,
    I have suffered Parkinson's for 18 years, and as a retired scientist, I have studied the disease. I have come across other pointers to gluten playing a part, and will try a low gluten diet and let you know.<br/><br/>
(Comment posted by Ron Hutton at 12:22 am, Fri 3rd Apr 2009)]]></description><author>no@spam.com (Ron Hutton)</author><pubDate><![CDATA[Fri, 03 Apr 2009 00:22:58 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3616</guid></item><item><title><![CDATA[Comment #3 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4881</link><description><![CDATA[Did it work, Ron?<br/><br/>
(Comment posted by kelly fordon at 6:33 am, Tue 10th Nov 2009)]]></description><author>no@spam.com (kelly fordon)</author><pubDate><![CDATA[Tue, 10 Nov 2009 06:33:31 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4881</guid></item><item><title><![CDATA[Comment #4 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment7817</link><description><![CDATA[A low gluten diet will still damage the intestinal wall, causing leakage into the blood and in turn the blood brain barrier to the nervous system, thus causing damage leading to the Parkinson-like symptoms.<br/><br/>
(Comment posted by Betsy at 8:24 pm, Fri 17th Dec 2010)]]></description><author>no@spam.com (Betsy)</author><pubDate><![CDATA[Fri, 17 Dec 2010 20:24:21 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment7817</guid></item><item><title><![CDATA[Comment #5 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14828</link><description><![CDATA[I have Parkinson's disease and also celiac disease. I have been on a gluten-free diet for 15 years and I don't think it helps my Parkinson's any. I was diagnosed 6 years ago with the Parkinson's.<br/><br/>
(Comment posted by David Bell at 8:38 am, Tue 12th Feb 2013)]]></description><author>no@spam.com (David Bell)</author><pubDate><![CDATA[Tue, 12 Feb 2013 08:38:26 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14828</guid></item><item><title><![CDATA[Comment #5 (Reply to Comment #4)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment15953</link><description><![CDATA[David, have you you replenished your body from all the malabsorption and malnourishment you suffered from years of eating gluten?  A gluten-free diet is never enough if a person doesn't start nourishing and replacing what they have lost.  Have you sought help from anyone to heal your small intestine or to check your stomach acid level?  Most likely you are very low in stomach acid and are still having absorption issues of your fats, minerals and proteins.  How much good fat do you eat?  Do you use coconut oil?  Fat is a key factor in healing from neurological diseases and coconut is quite a miracle food in that arena. 
Blessings to you.
<br/><br/>
(Comment posted by Laurie at 11:38 am, Thu 2nd May 2013)]]></description><author>no@spam.com (Laurie)</author><pubDate><![CDATA[Thu, 02 May 2013 11:38:45 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment15953</guid></item><item><title><![CDATA[Comment #7 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment15889</link><description><![CDATA[Hello Ron, I read your post above and have recently removed wheat (and sugar in general) from my diet.  The reason?  I just want to feel better.  Two weeks in, I feel wonferful - so much energy.  

I would be interested in learning if you have found that the removal of gluten from your diet has had any impact on the Parkinson's Disease that you have suffered from for so long.  Thanks in advance, Joy Edwards<br/><br/>
(Comment posted by Joy Edwards at 8:40 am, Tue 23rd Apr 2013)]]></description><author>no@spam.com (Joy Edwards)</author><pubDate><![CDATA[Tue, 23 Apr 2013 08:40:45 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment15889</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3617</link><description><![CDATA[Almost all of symptoms eventually were neurological and I was wrongly treated with antidepressants, stimulants, mood stabilizers, etc. I had many symptoms but now I take no medications and just eat gluten free. I was a mentally ill person and now I am not. It is like having two lives, I have a hard time reckoning with my past and where I have been as a result of not knowing but I try to have compassion with myself. Nothing would surprise me because I know how sick I was, mentally. Colleen<br/><br/>
(Comment posted by Colleen Curran at 3:47 am, Fri 3rd Apr 2009)]]></description><author>no@spam.com (Colleen Curran)</author><pubDate><![CDATA[Fri, 03 Apr 2009 03:47:12 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3617</guid></item><item><title><![CDATA[Comment #9 (Reply to Comment #8)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10404</link><description><![CDATA[I know this is dated, but it is worth noting the mental health link with gluten. Most doctors don't make this connection. I am now over 60 so some wisdom comes with age - but I have to say my mood swings and odd feelings of recent years have gone with the gluten.Colleen hope you continue to enjoy good health both mental and physical.<br/><br/>
(Comment posted by John at 3:05 pm, Mon 23rd Jan 2012)]]></description><author>no@spam.com (John)</author><pubDate><![CDATA[Mon, 23 Jan 2012 15:05:05 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10404</guid></item><item><title><![CDATA[Comment #10]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3635</link><description><![CDATA[I have had Narcolepsy and non-epileptic seizures for over 10 years.  For a few months I was completely disabled until I was put on traditional Narcolepsy medications.  I have 2 family members diagnosed with Celiac (through biopsy) but my blood test 10 years ago came back negative so I never went gluten free.  I should have!

In 2002 I went on an Atkins-like diet and found my symptoms mysteriously disappeared and I could live a normal life without medication.  I eventually went back to wheat and got sicker and sicker.  Late last year I found most of my symptoms were due specifically to gluten, which I began to avoid 100% with great results.  The rest of my symptom triggers are due to food allergies related to pollen allergy.  I've heard that Celiac can cause allergies, too.  

I recently received a copy of my DQB1 and DRB1 genes and found out I have a Celiac haplotype plus another gene on the same locus that is both a Celiac and a Narcolepsy gene.  This explains why avoiding gluten controls the Narcolepsy and seizures.  I seem to have some permanent Narcolepsy damage that happens even on the strictest diet, but it is mild and completely manageable.  The seizures never happen unless I eat gluten.  

It is my belief that Celiac Disease caused my Narcolepsy, but there isn't a doctor in the world that would have ever heard of that.  Funny thing is, I'm not the only one!

My only gripe is that I had to figure this all out on my own because doctors just thought it was all psychological, despite a total loss of reflexes during paralysis.  And I only figured it out because I kept working at it and never gave up.  When will they wake up and start helping people?<br/><br/>
(Comment posted by zia at 9:04 pm, Tue 7th Apr 2009)]]></description><author>no@spam.com (zia)</author><pubDate><![CDATA[Tue, 07 Apr 2009 21:04:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3635</guid></item><item><title><![CDATA[Comment #11]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3636</link><description><![CDATA[Those who speculate on who has and doesn't have celiac know that short stature has always been a symptom of celiac.  Today, it would definitely raise a red flag for celiac screening in a child. It's also part of what makes Michael J. Fox unique in Hollywood and been a contributing factor in his very successful career...<br/><br/>
(Comment posted by Bev at 2:48 am, Wed 8th Apr 2009)]]></description><author>no@spam.com (Bev)</author><pubDate><![CDATA[Wed, 08 Apr 2009 02:48:55 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3636</guid></item><item><title><![CDATA[Comment #12]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3687</link><description><![CDATA[Is there a link between Celiac Disease and tremors (shakes) of hands and fingers.  Would this necessarily be Parkinson's Disease?<br/><br/>
(Comment posted by Majella Holton at 11:07 pm, Mon 27th Apr 2009)]]></description><author>no@spam.com (Majella Holton)</author><pubDate><![CDATA[Mon, 27 Apr 2009 23:07:05 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3687</guid></item><item><title><![CDATA[Comment #13 (Reply to Comment #12)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment7035</link><description><![CDATA[I have been reading a lot about gluten free and Parkinson's disease which I have and primarily a tremor in my right hand.  Hoping this helps...makes sense.<br/><br/>
(Comment posted by Bev at 2:55 pm, Mon 30th Aug 2010)]]></description><author>no@spam.com (Bev)</author><pubDate><![CDATA[Mon, 30 Aug 2010 14:55:55 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment7035</guid></item><item><title><![CDATA[Comment #14]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3698</link><description><![CDATA[My father's shakes are in his wrists predominantly, but this also effects his fingers/hands, so I'm not really sure where they are originating.  Question:  I also have Celiac Disease, and in the last 4 years (mostly prior to my diagnosis) I have had some strange symptoms of my own and am wondering if anyone else has experienced these, as I understand that some of these may be neurologically based? These include occipital neuritis; visual-spatial deficits (so much so, that I have been recently coded as having a 'non-verbal learning disorder'); and a couple of times, my whole body has become 'paralyzed' for a couple of seconds, although I can still 'see' around me - just can't move.  This paralysis hasn't occurred since I've been on the gluten free diet.  I still have problems with vertigo.  Also, I had problems with 'burning' feelings in my body, not anymore really now that I am on a gluten diet.  These occurred predominantly in bending areas; also in fingers/toes.   Sometimes there was a rash along with the burning but it was diagnosed as not being Dermatitis Herpetiformis. Oddly enough, sometimes the one on my face resembled the lupus rash - although that in and of itself was diagnosed as not being lupus, based on many test results, including a negative ANA.  I am not deficient in any vitamins and minerals; I have been tested and  have (fortunately) been supplementing i.e. with extra with Bs & Ds & probiotics for years. I also forgot to mention that I still have trouble with gastro-pareisis, which I understand others with Celiac might have?   For those who don't know what gastro-pareisis is, I can only describe it really, how it is for me personally.  It's like someone unplugs your entire digestive tract from a power source.  There are no sounds, no movement.  It's actually very scary.  When it happens, I have to wait it out.  If I eat, I throw up.  It doesn't hurt per se.  It's just there's no where for the food to go that's how it feels anyway.  For the oddest reason, if I don't eat any grains whatsoever (i.e. quinoa, rice, sorghum, corn, et cetera) the gastropareisis all but disappears.  When I get 'glutened,' I don't get the traditional gastro-intestinal symptoms.  I get headaches/migraines, and the burning in bending areas.  My IgAs were above the testing range when I was 1st diagnosed; however, there was very little villi damage; I do recall the doctors being very surprised!   Just wondering if anyone else has had any of these experiences or perhaps all.<br/><br/>
(Comment posted by R. Jean at 10:53 am, Sat 2nd May 2009)]]></description><author>no@spam.com (R. Jean)</author><pubDate><![CDATA[Sat, 02 May 2009 10:53:44 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3698</guid></item><item><title><![CDATA[Comment #15]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3719</link><description><![CDATA[1. I know from personal experience, that gluten intolerance can cause depression and mental illness.  I suffered from two bouts with clinical depression and tons of other problems prior to going gluten-free.  

2. I decided to try being gluten free last year to determine whether gluten was the cause of my health challenges.   I went without it for four days, then had two pieces of homemade wheat bread.  Within 45 minutes, my feet were like ice cubes, my left arm was tingly as though it was falling asleep, I had to lie down from exhaustion and I was shivering uncontrollably.  (I don't necessarily recommend this method of determining gluten sensitivity.)  I could literally feel all the blood in my body rushing to my abdomen.  

3. My mother and I have both determined that we have gluten intolerance.  My maternal grandmother passed away from Parkinson's a few years ago.  She had been diagnosed as having diverticulitis, IBS, and Osteoporosis - all of which are related to gluten intolerance.

So yes, in my unprofessional opinion (we know how uneducated MOST of the professionals are about this), there is a definite connection between celiac and Parkinson's.<br/><br/>
(Comment posted by Rebecca at 9:35 am, Tue 5th May 2009)]]></description><author>no@spam.com (Rebecca)</author><pubDate><![CDATA[Tue, 05 May 2009 09:35:24 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3719</guid></item><item><title><![CDATA[Comment #16]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3725</link><description><![CDATA[I was diagnosed with Celiac 6 months ago and have been gluten-free since.  I've had a tingling in my hand and forearm, on and off throughout the day for a couple weeks.  Has anyone experienced this?<br/><br/>
(Comment posted by Robo at 9:02 pm, Tue 5th May 2009)]]></description><author>no@spam.com (Robo)</author><pubDate><![CDATA[Tue, 05 May 2009 21:02:07 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3725</guid></item><item><title><![CDATA[Comment #17]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3739</link><description><![CDATA[I am very interested in this topic.  My husband was diagnosed with Parkinson's Disease about one year ago.. although he has been experiencing the symptoms for about 2 years now.  I was talking with a friend of mine who is gluten intolerant.  She asked me about the possibility of gluten affecting patients with Parkinson's Disease. She explained to me what gluten does to ones intestine and the affect it has on absorption of nutrients.  I thought about all the research I've done on Parkinson's Disease and that studies have shown patients to be lacking in Vitamin D, E and most B vitamins. If there is a link then it makes sense why there is such a deficiency in Vitamins.  So I decided to get rid of all the gluten in our home.  My husband has reluctantly agreed to go along with it.  The most amazing thing is my oldest son, who has just turned 3, is doing so much better.  He's still in diapers and they have been horrible  and nasty.  I have always known something is bothering him.  Well after two days of gluten free eating his diapers have been almost normal.  So I am even more convinced that my husband has an intolerance to gluten.  Especially since his mother and sister are gluten intolerant.  Please write more about this subject if you have anything to add about Parkinson's Disease and celiac disease.<br/><br/>
(Comment posted by Kristina at 2:30 pm, Fri 8th May 2009)]]></description><author>no@spam.com (Kristina)</author><pubDate><![CDATA[Fri, 08 May 2009 14:30:12 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3739</guid></item><item><title><![CDATA[Comment #18]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3815</link><description><![CDATA[(10) Hi Robo!
Yes, I have experienced the symptoms you mentioned. Although I'm gluten-free since have the tinglings and numbness in feet, knees, hands and elbows - although in a very low level. I try very hard to understand if there is anything more I have besides celiac disease but I can't find. I have visited many doctors (reumatologits, endoc., neurol. etc. and nobody can find a thing while my tests are negative. 
Please, if somebody knows more for this subject, I would appreciate to let me know.<br/><br/>
(Comment posted by Lila at 3:18 am, Wed 20th May 2009)]]></description><author>no@spam.com (Lila)</author><pubDate><![CDATA[Wed, 20 May 2009 03:18:46 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3815</guid></item><item><title><![CDATA[Comment #19]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3889</link><description><![CDATA[Lila and Robo,  I too have the tingling...I described it as buzzy hands.  I thought at first it was carpal tunnel, but the surgery didn't help.  Going gluten-free made a huge difference, but I'd still wake up in the morning with buzzy hands.  Then I did research on B-12 and discovered that gluten intolerance and malabsorption of B-12 is related, and B-12 deficiency had all the symptoms I was experiencing.<br/><br/>
(Comment posted by Cindy at 6:48 pm, Mon 8th Jun 2009)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Mon, 08 Jun 2009 18:48:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment3889</guid></item><item><title><![CDATA[Comment #20]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4108</link><description><![CDATA[I have not been confirmed coeliac but any gluten/wheat however small sets off dreadful abdominal pains bloating etc so I eat a gluten free diet. I have recently been diagnosed with Parkinson's disease and am interested if there is any link<br/><br/>
(Comment posted by annie at 11:40 am, Thu 23rd Jul 2009)]]></description><author>no@spam.com (annie)</author><pubDate><![CDATA[Thu, 23 Jul 2009 11:40:58 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4108</guid></item><item><title><![CDATA[Comment #21]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4140</link><description><![CDATA[I have been gluten free for two years. I started because I was diagnosed with Chron's  I'm 76 years old gluten has had time to do a great deal of damage. Besides the Chron's I also had high blood pressure, congestive heart failure, arthritis (60) years. After bypass surgery I had to quit my  arthritis medication. Then the Chron's kicked up. Two years of that with no medications that worked made me desperate. I read on line that gluten could damage the small intestine so I tried the gluten free diet . Results after two years, blood pressure normal or lower, nearly no arthritis pain. my heart is now back to normal. I'm only taking 20mg Lasix every once in a while no other heart medications. Any one who has stomach problems should try it. Twenty years of indigestion went away after two weeks and never returned<br/><br/>
(Comment posted by art clark at 9:56 am, Wed 29th Jul 2009)]]></description><author>no@spam.com (art clark)</author><pubDate><![CDATA[Wed, 29 Jul 2009 09:56:24 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4140</guid></item><item><title><![CDATA[Comment #22]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4294</link><description><![CDATA[Have any of you with diagnosed celiac disease been told that the antibody count in your blood is higher than normal?<br/><br/>
(Comment posted by Mimi at 10:25 pm, Mon 24th Aug 2009)]]></description><author>no@spam.com (Mimi)</author><pubDate><![CDATA[Mon, 24 Aug 2009 22:25:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4294</guid></item><item><title><![CDATA[Comment #23 (Reply to Comment #22)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4691</link><description><![CDATA[I was diagnosed as Celiac in January after antibody count was over 60. However that is the only test which was done so I do not know how the Dr. could have been so sure I was Celiac. Now I think that I may be just gluten intolerant. My count is down to 23, still a little high, so I soldier on with a gluten free diet. This is one really great site for information isn't it?<br/><br/>
(Comment posted by Eileen at 2:03 pm, Thu 15th Oct 2009)]]></description><author>no@spam.com (Eileen)</author><pubDate><![CDATA[Thu, 15 Oct 2009 14:03:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment4691</guid></item><item><title><![CDATA[Comment #24]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment5422</link><description><![CDATA[I have narcolepsy and my father has Parkinson's.  
I have a long and involved hypothesis on how both of them are related to gluten.  I believe it is the IgG antibodies rather than the IgA antibodies which cause celiac disease. <br/><br/>
(Comment posted by Heidi Lindborg at 1:12 pm, Mon 4th Jan 2010)]]></description><author>no@spam.com (Heidi Lindborg)</author><pubDate><![CDATA[Mon, 04 Jan 2010 13:12:07 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment5422</guid></item><item><title><![CDATA[Comment #25 (Reply to Comment #24)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10143</link><description><![CDATA[I am seeking information on gluten intolerance and Parkinson's.<br/><br/>
(Comment posted by joyce at 12:42 am, Tue 20th Dec 2011)]]></description><author>no@spam.com (joyce)</author><pubDate><![CDATA[Tue, 20 Dec 2011 00:42:15 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10143</guid></item><item><title><![CDATA[Comment #26]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment6294</link><description><![CDATA[I was diagnosed with Celiac disease about a year ago due to extremely low iron counts during pregnancy and after the birth of my third child.  My mother was diagnosed with Parkinson's disease around the same time.  She has recently been suffering from debilitating, but temporary paralysis of her body.  She is coherent during this time, but unable to move her arms or legs.  Her doctor has prescribed medication for epilepsy.  But we are very reluctant to go that route.  I definitely believe that celiac is the cause, however, she took a blood test a few months ago which came back negative.  <br/><br/>
(Comment posted by Kristin Brown at 2:14 pm, Fri 30th Apr 2010)]]></description><author>no@spam.com (Kristin Brown)</author><pubDate><![CDATA[Fri, 30 Apr 2010 14:14:17 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment6294</guid></item><item><title><![CDATA[Comment #27 (Reply to Comment #26)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment6319</link><description><![CDATA[Don't give up Kristine. I was tested  and they found nothing. Then I was tested with a much more sensitive test with the help of a nutritionist. My antibodies were around 20. After giving up the gluten, my irritable bowel went away, acne cleared up, am clearer thinking and so much calmer! Find a good nutritionist or naturopath in your area and ask them to do the testing. Grass fed meats provide Vitamins. A, E and D and omega 3's not present in the common grain-fed meats. While the gluten is not coating her bowel, she can now absorb her nutrients! Give lots of organic fruits and veggies (kale) and daily tablespoons cod liver oil (also high in A and D). Give her a good probiotic. She may have a dairy sensitivity as well, if so don't give soy milk. There are many other alternatives. <br/><br/>
(Comment posted by Mary at 3:42 pm, Thu 6th May 2010)]]></description><author>no@spam.com (Mary)</author><pubDate><![CDATA[Thu, 06 May 2010 15:42:37 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment6319</guid></item><item><title><![CDATA[Comment #28]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment7347</link><description><![CDATA[I have been on a gluten free diet for ~ 20 years, and have NEVER intentionally gone off it, as I feel the negative impact almost immediately. To say I feel better for being off gluten and dairy is an understatement-- I feel sure I would have been dead long ago had I not eliminated gluten. 

I drink nothing but filtered water, 1 1/2 cups of coffee and 2 cups of green tea/ day. I eat approx 1/3 the meat most Americans do. To say I eat a very healthy diet is an understatement.

Starting in 2001, I began and continue a very intense daily program of physical training,  including 35-45 minute sessions with free weights, alternated with manual treadmill and now a recumbent exercise bicycle. I did this to prepare for and maintain my fitness for backpacking the Grand Canyon, which my wife and I did in 2001 & 2002, at the age of 52.

5 years ago, I started having a tremor in my right hand, and approx 2 1/2 years ago was DX'd with idiopathic Parkinson's.

I can only imagine how much worse I would be with the PD, had I not started exercising aggressively 9 years ago. As I have already said, if I hadn't gone gluten free 20 years ago, I am convinced I would have died years ago-- I was severely malnourished when the doctor suggested I eliminate gluten from my life.

Is there a connection between gluten and PD? I don't doubt it at all, especially since gluten intolerance depletes the B vitamins in particular (good for nervous system health), and PD has been linked to a near-continuous fight or flight reaction by the body.<br/><br/>
(Comment posted by George at 10:52 am, Fri 15th Oct 2010)]]></description><author>no@spam.com (George)</author><pubDate><![CDATA[Fri, 15 Oct 2010 10:52:31 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment7347</guid></item><item><title><![CDATA[Comment #29 (Reply to Comment #28)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10432</link><description><![CDATA[George,

I have Early Onset PD and am struck by your last statement linking PD to "a near continuous fight or flight reaction by the body."  Where did you learn this ? I am fascinated because anxiety was the very first non-motor symptom for me and I now have disabling panic attacks. Talk about feeling like you would die. As for celiac and gluten links, I have been considering giving it up as I have several markers for it according to a site I read.

Thanks!<br/><br/>
(Comment posted by Laura at 5:04 am, Wed 25th Jan 2012)]]></description><author>no@spam.com (Laura)</author><pubDate><![CDATA[Wed, 25 Jan 2012 05:04:17 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10432</guid></item><item><title><![CDATA[Comment #30 (Reply to Comment #28)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14221</link><description><![CDATA[So just to clarify, you had been off the gluten for 15 years when the PD symptoms developed?  I've always wondered about the continuous "fight or flight" response being connected to PD.  You say you've read research about this??  Where?  It took 18 years of suffering to finally find out that gluten was the problem for me.  My entire life has been on the "fight or flight" response.  Shortly after I got off the gluten, I started with the tremors.  I've been 98% gluten-free for about 8 years now and feel like a new person.  Still have fatigue at times but the PD symptoms have remained only the tremors.  The tremors unfortunately have gotten much worse.  My question at this time is... can the PD symptoms go away once the damage has been done?  Does the fact that I still get a little bit of gluten impact my symptoms?<br/><br/>
(Comment posted by Linda Arian at 2:23 pm, Tue 22nd Jan 2013)]]></description><author>no@spam.com (Linda Arian)</author><pubDate><![CDATA[Tue, 22 Jan 2013 14:23:11 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14221</guid></item><item><title><![CDATA[Comment #31]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8428</link><description><![CDATA[I have been gluten free for 5 months after researching a particularly bad episode of stomach pain and bloating. I have found that my mental and physical well being has improved dramatically. I started by drinking kefir milk and eating non gluten carbs then stumbled across a diet plan by Zoe Harcombe specifically for people with food intolerances. I used to be very depressed and lacked energy, mood swings and angry outbursts were commonplace and I had a long standing weight problem which was causing me a great deal of physical pain I was beginning to consider if life was worth living. However I have now lost three stones in weight and feel positive healthy and optimistic. In fact I feel better than I have for twenty years.<br/><br/>
(Comment posted by paul at 8:33 am, Thu 31st Mar 2011)]]></description><author>no@spam.com (paul)</author><pubDate><![CDATA[Thu, 31 Mar 2011 08:33:25 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8428</guid></item><item><title><![CDATA[Comment #32]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8656</link><description><![CDATA[I was diagnosed with PD about 3 years ago and so far have eschewed medication. Just recently had a sophisticated gluten antibody blood analysis that tests for antibodies to 24 separate wheat/gluten proteomes (peptides). To my surprise results came back showing sensitivity to 16/24 of these  markers. Naturally, I am very interested in the possible connection between PD and GI. Am going on a gluten-free diet (to the extent sensibly possible), and am giving up my drinking of wine. So far, I can report I have had a huge improvement in the quality of my sleep, though no noticeable improvement in my tremors and slowness. I much appreciate the info on this board.........<br/><br/>
(Comment posted by Richard at 4:28 pm, Mon 2nd May 2011)]]></description><author>no@spam.com (Richard)</author><pubDate><![CDATA[Mon, 02 May 2011 16:28:34 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8656</guid></item><item><title><![CDATA[Comment #33]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8684</link><description><![CDATA[I have just been diagnosed as 'gluten intolerant' and have been gluten-free since Feb. 9, 2011.  I am interested in learning more about a possible gluten intolerance - Parkinson's Disease link.  My mom was finally, finally 'diagnosed' with Parkinson's Disease which was quite possibly gluten intolerance; I think they just told her that diagnosis after the many, many tests could not find a definitive reason for her sporadic loss of balance and hesitant gait.  Her doctor specifically called it "Lower Level Parkinson's Disease; she never had any tremor at all in her hands or head.  Her speech was somewhat affected.  She kept telling the doctors it was 'all in her head, not in her muscles'.   However, at 80 years of age, her insights were disregarded, and when the medicines for treating Parkinson's were ineffective in alleviating her balance problems, she was pretty much sentenced to just living out the rest of her life un-helped, wheel-chair bound.  She passed away at age 85, after suffering many years with the balance problem, and I just wish -so very much!- that I could have found out about gluten-intolerance early enough so that she could have been helped.  Maybe this information will help others.<br/><br/>
(Comment posted by Emily at 9:38 am, Sat 7th May 2011)]]></description><author>no@spam.com (Emily)</author><pubDate><![CDATA[Sat, 07 May 2011 09:38:05 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8684</guid></item><item><title><![CDATA[Comment #34]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8905</link><description><![CDATA[Just been diagnosed with celiac disease. After one month gluten free my symptoms-psoriasis,weakness,exhaustion, bowel problems, gout-like pain, joint pain,recurrent hives,indigestion, high blood pressure are all going away.My father died from Parkinson's at 77. I now believe, since he had all these same symptoms that he was misdiagnosed for PD and he actually had celiac. The side affects of the PD drugs were truly horrific in his case and I wish now that doctors would consider gluten intolerance as a standard test before diagnosing Parkinsons. You will never convince me now that there is no connection. I hope this will help others to tell there doctors to test for celiac disease.<br/><br/>
(Comment posted by Barry at 5:20 pm, Wed 22nd Jun 2011)]]></description><author>no@spam.com (Barry)</author><pubDate><![CDATA[Wed, 22 Jun 2011 17:20:27 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment8905</guid></item><item><title><![CDATA[Comment #35]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment9603</link><description><![CDATA[You really need to do a proper study with a control group. if you invite people to contact you who have both CD and Parkinson's disease then of course you will find such people, and only such people. This does not tell us if the incidence of PD is greater in people with CD than in the normal population.

I went on a GF diet 4 years ago , on advice of friends. Not on;y did this clear up severe digestive problems, but also my increasing pain and stiffnes in joints, muscle weakness and 
Blood tests for CD were negative, presumably because I could not go back on a normal diet , as my symptoms were too severe. Have had a hard time getting consultants to take me seriously, on this account, but have now been diangnosed with NCGI, together with a plethora of food intolerances which subsequently delevoped (I now cannot tolerate any grains and seeds at all, nor legumes (in the main) nor fats and oils. The only protein food I can now tolerate (that I can find ) is soya milk. Consultant gave the impression he thought i was probably making it all up, and said there's nothing he can do for intolerances, just keep avoiding problem foods, goodbye.

I get quite sever neurological symptoms along with all my food reactions, approx 5-6 hoours after eating. I had suspected gluten ataxia, but now other foods priduce same symptoms, would be interested to know if this is still a possibility? 

Have been dyspraxic all my life and this has been worsening in recent years. Am now developing Parkinson-like symptoms. Have had various tests including MRI scan, and all negative. Have ben too depressed to go back to the doctor , since her partner told me that he believes all my symptoms to be psychosomatic. This was soon after seeing the dismissive consultant.  I had rung the surgery in concern because i was reperatedly  loosing control of my leg muscles and falling to the ground in the street.  I wanted to know if this could be diet-related and naively thought that, maybe , if I alerrted my doctor DURING an episode, then appropriarte tests could be done immediately, and might, at last,  reveal something.

Have just found out that Parkinson's Disease does not show up on tests, so this is still a possibility , isn't it?<br/><br/>
(Comment posted by julie at 2:10 am, Mon 10th Oct 2011)]]></description><author>no@spam.com (julie)</author><pubDate><![CDATA[Mon, 10 Oct 2011 02:10:50 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment9603</guid></item><item><title><![CDATA[Comment #36]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10022</link><description><![CDATA[Food reactions can be linked to PD, my partner gets worse with certain foods.<br/><br/>
(Comment posted by Bill Ray at 8:39 pm, Sat 3rd Dec 2011)]]></description><author>no@spam.com (Bill Ray)</author><pubDate><![CDATA[Sat, 03 Dec 2011 20:39:30 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment10022</guid></item><item><title><![CDATA[Comment #37]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment11334</link><description><![CDATA[I am a 43 year old woman who was diagnosed 7  years ago with early on-set idiopathic pd. Two weeks ago I was diagnosed as having celiacs disease. In my mind there has to be a definite link. I'm hoping that my PD and overall health will improve with this gluten free diet. I would LOVE to have the PD symptoms someday disappear and to have a normal life back.<br/><br/>
(Comment posted by Christa at 7:53 pm, Tue 8th May 2012)]]></description><author>no@spam.com (Christa)</author><pubDate><![CDATA[Tue, 08 May 2012 19:53:17 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment11334</guid></item><item><title><![CDATA[Comment #38 (Reply to Comment #37)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14470</link><description><![CDATA[Please keep us updated. Did you try the gluten-free diet? If so, how long have you been on it? What, if any changes have you seen so far? Even if you have not seen any changes, I'd love to know. Thank you for taking time to help inform!<br/><br/>
(Comment posted by Patriicia at 10:42 am, Wed 30th Jan 2013)]]></description><author>no@spam.com (Patriicia)</author><pubDate><![CDATA[Wed, 30 Jan 2013 10:42:46 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14470</guid></item><item><title><![CDATA[Comment #39]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment11563</link><description><![CDATA[I don't have Parkinson's disease, but I was diagnosed with Asperger's syndrome, obsesive compulsive disorder, clinical depression, generalized anxiety disorder and bipolar.  The vast majority of my symptoms vanished with a gluten-free diet.  Self-diagnosed that one and lost 70 pounds in the process.  I no longer trust doctors.<br/><br/>
(Comment posted by Shandra at 3:21 am, Mon 28th May 2012)]]></description><author>no@spam.com (Shandra)</author><pubDate><![CDATA[Mon, 28 May 2012 03:21:14 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment11563</guid></item><item><title><![CDATA[Comment #40]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment12055</link><description><![CDATA[Eating a gluten-free diet does not improve Parkinson's symptoms. I have been coeliac and eating gluten-free for 12 years and have developed early onset Parkinson's in my 40s and diagnosed 4 years ago. My diet is strict, so going gluten-free is not the answer, sorry to dampen enthusiasm here. I have been told by several doctors that some of my neurological problems, e.g. numbness and tingling etc. may be due to the coeliac disease and not the Parkinson's.<br/><br/>
(Comment posted by Jill at 9:02 am, Sun 15th Jul 2012)]]></description><author>no@spam.com (Jill)</author><pubDate><![CDATA[Sun, 15 Jul 2012 09:02:44 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment12055</guid></item><item><title><![CDATA[Comment #41 (Reply to Comment #40)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14471</link><description><![CDATA[Thank you for sharing your experience. It's great to hear what going gluten-free can do, but it's equally important to hear when it doesn't work. I'm an acupuncturist and have treated patients with PD. For the one patient who has continued treatment, (while still on meds,) his tremors have decreased from an 8/10 to 0-2 out of 10. His internal tremor has stopped. Just recently, he is able to walk backward without hesitation. He won't change his diet of white flour, meat, and very little vegetable. He does supplements. It's a difficult disease for sure. One nice thing about going gluten-free is it usually means a healthier diet and that's a good thing to continue to explore.<br/><br/>
(Comment posted by Patriicia at 10:53 am, Wed 30th Jan 2013)]]></description><author>no@spam.com (Patriicia)</author><pubDate><![CDATA[Wed, 30 Jan 2013 10:53:58 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14471</guid></item><item><title><![CDATA[Comment #42]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment12129</link><description><![CDATA[I recently discovered that I and two of my children are gluten intolerant. My father and my husband's father both have Parkinson's disease and I was also wondering about a connection. One of my children in particular has a severe neurological reaction to gluten. You could be on to something here.<br/><br/>
(Comment posted by Laura at 11:42 am, Sun 22nd Jul 2012)]]></description><author>no@spam.com (Laura)</author><pubDate><![CDATA[Sun, 22 Jul 2012 11:42:52 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment12129</guid></item><item><title><![CDATA[Comment #43 (Reply to Comment #42)]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14472</link><description><![CDATA[Please update us if your father and father-in-law try a gluten-free diet. I'm interesting in following this connection with Parkinson's disease. How long does it take to start seeing a change in tremors (external or internal), if decreased sense of smell, any change there,  bradykinesia, etc.? Even if you do not see any changes, that would be helpful as well. Thank you.<br/><br/>
(Comment posted by Patriicia at 10:59 am, Wed 30th Jan 2013)]]></description><author>no@spam.com (Patriicia)</author><pubDate><![CDATA[Wed, 30 Jan 2013 10:59:37 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment14472</guid></item><item><title><![CDATA[Comment #44]]></title><link>http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment12913</link><description><![CDATA[there may be other issues to PD:
    see lef.org for other vitamin issues for PD like the need for DHA fish oil 4x day and 5000 IU vitamin D3 as examples.

excerpt
==
Life Extension Recommendations

Parkinson's disease is a multi-factorial pathology and must be treated as such for symptomatic relief. An ideal management regimen should include the lowest possible effective dose of dopamine replacement therapy, daily use of a neuroprotective agent (such as 1mg of rasagiline), nutrients to support mitochondrial function (such as CoQ10 and B-complex vitamins) and if possible, cardiovascular aerobic exercise with a target heart rate of 75% for a minimum of 20 minutes at least three times per week (to stimulate the release of neuronal growth factors in the brain). Muscle stretching and practicing either yoga or tai chi are supportive as well.

The following nutrients target various aspects of Parkinson's disease pathology:

    CoQ10: 1,200 – 2,400 mg as ubiquinone, or 200 – 300 mg as ubiquinol
    Creatine: 1,000 – 2,000 mg daily
    Omega-3 Fatty Acids (from fish oil): 2,000 – 4,000 mg daily
    Mucuna pruriens; standardized extract: 300 – 1,200 mg daily
    Vitamin D: 5,000 – 8,000 IU daily (depending on blood test results)
    B-Complex vitamins: Per label instructions
    Acetyl-L-Carnitine: 1,000 – 2,000 mg daily
    Green Tea; standardized extract: 725 – 1,450 mg daily
    Green Coffee; standardized extract: 400 – 1,200 mg daily
    Trans-Resveratrol: 250 – 500 mg daily
    Probiotics: Per label instructions
    Curcumin: 400 – 1,200 mg daily
    Melatonin: 1 mg – 5 mg daily
    N-acetyl Cysteine: 600 – 1,800 mg daily
    Lipoic Acid (as R-Lipoic acid): 300 – 900 mg daily<br/><br/>
(Comment posted by roynj at 10:42 am, Sun 23rd Sep 2012)]]></description><author>no@spam.com (roynj)</author><pubDate><![CDATA[Sun, 23 Sep 2012 10:42:12 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/128/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease.html#Comment12913</guid></item><item><title><![CDATA[Comment #45]]></title><link>http://www.celiac.com/articles/0/1/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease/Page1.html#Comment13872</link><description><![CDATA[My daughter was diagnosed at age 5. This has given me great information. <br/><br/>
(Comment posted by d ahrend at 2:30 am, Sat 22nd Dec 2012)]]></description><author>no@spam.com (d ahrend)</author><pubDate><![CDATA[Sat, 22 Dec 2012 02:30:46 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Is-there-a-link-between-Parkinsons-Disease-and-Gluten-IntoleranceCeliac-Disease/Page1.html#Comment13872</guid></item></channel></rss>