<?xml version="1.0" encoding="utf-8"?><rss version="2.0">
<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information at Celiac.com - Comments for blog: Gluten-Free Frustration!]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Sat, 25 May 2013 01:05:19 PDT</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment645</link><description><![CDATA[Having been recently diagnosed.  I was unaware about Iodine's role, which makes me believe that staying away from shell fish (for 20 years) has played some role in this illness.  Thank you<br/><br/>
(Comment posted by maria edh at 9:04 am, Thu 6th Dec 2007)]]></description><author>no@spam.com (maria edh)</author><pubDate><![CDATA[Thu, 06 Dec 2007 09:04:39 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment645</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1054</link><description><![CDATA[An eye opener, no one ever told me about this link.  I have used sea salt since diagnosis, found I have an intolerance to all seaweed products, and now I'm wondering if this is why I can't get my dermatitis to clear up.  Thanks for starting this thought process!!<br/><br/>
(Comment posted by Sue at 12:26 pm, Wed 9th Jan 2008)]]></description><author>no@spam.com (Sue)</author><pubDate><![CDATA[Wed, 09 Jan 2008 12:26:08 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1054</guid></item><item><title><![CDATA[Comment #3]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1089</link><description><![CDATA[I never heard about iodine before and now I will talk to my doctor about it. Thanks !!!<br/><br/>
(Comment posted by Rebecca Johnson at 11:23 am, Thu 10th Jan 2008)]]></description><author>no@spam.com (Rebecca Johnson)</author><pubDate><![CDATA[Thu, 10 Jan 2008 11:23:43 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1089</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1724</link><description><![CDATA[I made the connection between my Dermatitis Herpetiformis and iodine 16 years ago and was able to clear up the blisters by avoiding sources of iodine.  However, even after I found out I had celiac five years ago, I didn't connect the blister outbreaks to celiac until I read Dr. Green's book.  When he stated that iodine was the trigger, I almost jumped out of my chair.  Now everything was clear-- celiac was actually the cause, while iodine was merely the trigger.  Unfortunately, because I avoided iodine for 16 years, my thyroid essentially 'died' last year, and since all thyroid meds contain iodine, I break out in blisters at the slightest gluten contamination.  My back is also covered with an itchy rash, my throat is sore, and my thyroid is inflamed.  My doctors seem at a loss at treating this sensitivity to iodine.  So, I would like to reiterate Dr. Green's advice to not completely avoid iodine--your thyroid needs it to be healthy.<br/><br/>
(Comment posted by Laura H. at 12:11 pm, Sat 1st Mar 2008)]]></description><author>no@spam.com (Laura H.)</author><pubDate><![CDATA[Sat, 01 Mar 2008 12:11:20 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1724</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1826</link><description><![CDATA[Thank you for this insightful information.  I have always found that my eczema gets worse when I eat prawns and now I know why.  I will definitely be on the look-out for foods high in iodine in the future so as to avoid them.<br/><br/>
(Comment posted by Ursula at 7:37 am, Fri 14th Mar 2008)]]></description><author>no@spam.com (Ursula)</author><pubDate><![CDATA[Fri, 14 Mar 2008 07:37:56 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment1826</guid></item><item><title><![CDATA[Comment #6]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment2336</link><description><![CDATA[Really helpful. Since so many of us have thyroid problems too and must take supplements, this is a big issue. There is not much clear information out there and doctors don't seem so well informed.<br/><br/>
(Comment posted by Carol Z. at 8:23 am, Wed 11th Jun 2008)]]></description><author>no@spam.com (Carol Z.)</author><pubDate><![CDATA[Wed, 11 Jun 2008 08:23:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment2336</guid></item><item><title><![CDATA[Comment #7]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment2672</link><description><![CDATA[My son Andrew is 15 years old now, he was diagnosis with Dermatitis Herpetaformis at 8, has been rash-free for 5 years by being on a Gluten Free diet continuously and Iodine free diet for approximately 6 months  after his initial diagnosis). He has recently relapsed, I believe he has been eating more fast foods, going through puberty, and has been in the ocean 3-4 times a week for several months now possibly absorbing iodine through his skin. I am unsure if puberty and the absorption through the skin can trigger Dermatitis Herpetaformis. He is looking and feeling terrible, so frustrating for him and me as a mother.<br/><br/>
(Comment posted by Julie M. at 11:09 am, Sun 10th Aug 2008)]]></description><author>no@spam.com (Julie M.)</author><pubDate><![CDATA[Sun, 10 Aug 2008 11:09:52 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment2672</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment3364</link><description><![CDATA[At 33 years old I finally got diagnosed with celiac this year with a simple blood test (after 3 years of gut pain).  To make up for my lack of vitamins - I was taking a fantastic, all inclusive vitamin religiously in addition to a gluten free diet.  My gut was great, but I got wicked cases of 'poison ivy' 3 times in one summer - a record even for me.  THANK YOU for this article.  I switched off the vitamin, which was high in iodine and haven't had a major outbreak since.   I did get a prescription for Fluocinonide .05% a topical steroid that helped before I knew to cut back on iodine.  Now it seems that I can usually just cut back on shrimp intake (had a flare up on vacation when eating lots of shrimp) and that stops the rash from spreading and turning into the big bumps.<br/><br/>
(Comment posted by Michelle E at 1:02 pm, Mon 19th Jan 2009)]]></description><author>no@spam.com (Michelle E)</author><pubDate><![CDATA[Mon, 19 Jan 2009 13:02:35 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment3364</guid></item><item><title><![CDATA[Comment #9]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment3434</link><description><![CDATA[Usually going in the ocean soothes skin rashes.  Does anyone know if it's bad for a person with Dermatitis Herpetiformis to go into the ocean?<br/><br/>
(Comment posted by Kathy at 11:25 am, Thu 5th Feb 2009)]]></description><author>no@spam.com (Kathy)</author><pubDate><![CDATA[Thu, 05 Feb 2009 11:25:49 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment3434</guid></item><item><title><![CDATA[Comment #10 (Reply to Comment #9)]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment6329</link><description><![CDATA[Live in Hawaii and our ocean is like a medicine for lots of ailments.  BUT, nowadays, if you have an open cut, it's advised not to go into the ocean.  There are "new unknown" bacteria or particles in the ocean more than ever.  Your little cut can become infected so quickly.  In my days, it was good to go into the waters and have nature's ocean clean the cut and heal it.  
I'd say, with an inflamed case of dermatitis herpetiformis, don't go in the waters.  When my son's skin looks better I'll take him to the beach.  He'll even tell me when his skin feels better.  

My 7 year old son just got diagnosed with dermatitis herpetiformis.  With the help of  a new dermatologist, my son's mystery skin has a name.  Our doctor was so nice to explain to me about dermatitis herpetiformis and its nickname "suicidal itch".  

After 5 years of 3 dermatologists, 1 allergist, and pediatricians all saying that he just has an extreme eczema or dyshidrosis or some severe mystery skin.  Though I had pictures of his "angry skin", no one went outside the "box" of eczema.  I knew something was different.  Every one would tell me that they knew what we were going through,   Yet none of them could understand or relate to me and my son when I told them that there has been lots of staph infections and ER nights and just no sleeping.  
Even my son's school staff has been challenging.  

Sorry, just so happy with this new world of dermatitis herpetiformis and trying to go gluten-free 100% (or as much as possible) yet a little perturbed with professionals that are closed minded to "outside of the box" learning something new.<br/><br/>
(Comment posted by Jeannie at 2:59 am, Sun 9th May 2010)]]></description><author>no@spam.com (Jeannie)</author><pubDate><![CDATA[Sun, 09 May 2010 02:59:48 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment6329</guid></item><item><title><![CDATA[Comment #11]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment3609</link><description><![CDATA[Thank you! I recently started taking kelp, and the watery blisters I got from gluten intolerance multiplied and became worse. I had no idea about the relationship between the two until now.<br/><br/>
(Comment posted by Katey at 8:49 pm, Wed 1st Apr 2009)]]></description><author>no@spam.com (Katey)</author><pubDate><![CDATA[Wed, 01 Apr 2009 20:49:31 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment3609</guid></item><item><title><![CDATA[Comment #12]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5507</link><description><![CDATA[Hi, Renee--It really sounds like you just have ongoing issues from an unhealed gut from celiac, not necessarily IBS. Most cases of IBS are really undiagnosed celiac. BUT, if you followed a traditional gluten-free diet for a while that included a lot of processed foods labeled gluten free, you could stay unhealthy and even get worse IMO and other's. When I first went gluten free, I coudn't eat any greens at all because my gut was so compromised. The processed foods that are labeled gluten free often contain starches and gums, plus lots of empty calories and I didn't do well on those either. It takes time to heal, but you have to focus on naturally gf foods to do it or foods easily made gf. I lead a support group and have a website incorporating this approach. It makes life so much easier and you do heal.<br/><br/>
(Comment posted by Shirley Braden at 12:41 pm, Sun 17th Jan 2010)]]></description><author>no@spam.com (Shirley Braden)</author><pubDate><![CDATA[Sun, 17 Jan 2010 12:41:02 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5507</guid></item><item><title><![CDATA[Comment #13 (Reply to Comment #12)]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5549</link><description><![CDATA[You are completely and utterly correct! I don't have a healed gut at all. So when you say gluten free foods, what exactly is besides fruits and veggies?<br/><br/>
(Comment posted by renee hoak at 4:11 pm, Fri 22nd Jan 2010)]]></description><author>no@spam.com (renee hoak)</author><pubDate><![CDATA[Fri, 22 Jan 2010 16:11:51 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5549</guid></item><item><title><![CDATA[Comment #14 (Reply to Comment #12)]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6039</link><description><![CDATA[Hi Shirley--I am gluten intolerant, also casein, corn, soy, yeast, & egg intolerant as well.  Have been following a diet free from all those proteins and had been doing well...even had a 6-day stretch with normal BM's.  Then went to see my son who took me to a restaurant where I could get gluten-free food- WRONG. That started a chain of events that turned my insides up-side-down.  I have had a month now of nothing BUT diarrhea and can't seem to get it healed.  Fasting only stops the diarrhea temporarily, and eating ANYTHING brings it back--even the strict diet that I follow.  I make ALL my food so I know that I am not getting ANY of the things I need to avoid.  This stresses me out which doesn't help things.  I am interested in your website and support group.  Could you give me more info?  I need HELP!!!!<br/><br/>
(Comment posted by Linda Krone at 8:18 am, Tue 23rd Mar 2010)]]></description><author>no@spam.com (Linda Krone)</author><pubDate><![CDATA[Tue, 23 Mar 2010 08:18:25 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6039</guid></item><item><title><![CDATA[Comment #14 (Reply to Comment #13)]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6070</link><description><![CDATA[Oh boy, have I been in your boat.  I have lymphocytic colitis as well, and when it gets triggered the dermatitis herpetiformis is miserable (have you been tested for that?).  I had it for six weeks solid once.  But I realized that when your gut is inflamed even foods you could eat when you are healthy will make it worse.  Fasting helped only a bit.  I discovered this meal replacement formula that is gluten and casein free, designed to be used with an inflamed gut, and use rice cereal for babies until things calm down.  I also just came across this woman who helps people in your boat:  Barbara Nielsen at glutenfreecoach.net.  Maybe she can help get you back on track.<br/><br/>
(Comment posted by Julia at 12:30 pm, Mon 29th Mar 2010)]]></description><author>no@spam.com (Julia)</author><pubDate><![CDATA[Mon, 29 Mar 2010 12:30:30 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6070</guid></item><item><title><![CDATA[Comment #14 (Reply to Comment #13)]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6075</link><description><![CDATA[(regarding prior comment) The second line should read D  H  short for diarrhea, but I guess that was the wrong abbreviation!  This wasn't about the dermatitis, sorry!<br/><br/>
(Comment posted by Julia at 7:02 pm, Mon 29th Mar 2010)]]></description><author>no@spam.com (Julia)</author><pubDate><![CDATA[Mon, 29 Mar 2010 19:02:32 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6075</guid></item><item><title><![CDATA[Comment #17]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5512</link><description><![CDATA[IBS can be caused by gluten. My husband and I are both gluten sensitive. We go to fast-food restaurants and order food without a bun. Check the menus ahead of time; most have gluten-free options. People aren't insensitive; they just don't think--like the servers who bring crackers even though you said "no croutons; I can't eat wheat."<br/><br/>
(Comment posted by Linda S at 6:50 am, Mon 18th Jan 2010)]]></description><author>no@spam.com (Linda S)</author><pubDate><![CDATA[Mon, 18 Jan 2010 06:50:59 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5512</guid></item><item><title><![CDATA[Comment #18]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5515</link><description><![CDATA[Have you tried taking probiotics?  Have you looked into SIBO (small intestinal bacteria overgrowth)?<br/><br/>
(Comment posted by dotslady at 10:43 am, Mon 18th Jan 2010)]]></description><author>no@spam.com (dotslady)</author><pubDate><![CDATA[Mon, 18 Jan 2010 10:43:25 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5515</guid></item><item><title><![CDATA[Comment #19 (Reply to Comment #18)]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5550</link><description><![CDATA[I have never looked into SIBO but yes I've taken probiotics and have tried many. Though I've tried many I still haven't found one that works more then 1 week! I'm not sure what is wrong with my body, but it sure doesn't like much! I will look more into SIBO though! Thanks!<br/><br/>
(Comment posted by renee hoak at 4:14 pm, Fri 22nd Jan 2010)]]></description><author>no@spam.com (renee hoak)</author><pubDate><![CDATA[Fri, 22 Jan 2010 16:14:35 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5550</guid></item><item><title><![CDATA[Comment #20]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5570</link><description><![CDATA[I feel your pain.  My holidays go the same way.  My Mother and Father-in-law wanted to take me out for my birthday and I told them that I could not go to a restaurant that does not have a gluten free menu.  They kept suggesting the same gluten "unfriendly" restaurant to the point that my husband had to step in and point blank say "we are not going there!"  Sometimes I think people think that I am making it up or something.  I get really frustrated over the food issue too.  It is not easy to be gluten free out there!  Good luck!<br/><br/>
(Comment posted by Jessica at 4:53 pm, Sun 24th Jan 2010)]]></description><author>no@spam.com (Jessica)</author><pubDate><![CDATA[Sun, 24 Jan 2010 16:53:35 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5570</guid></item><item><title><![CDATA[Comment #21]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5610</link><description><![CDATA[I have been gluten free for 9 years now.  Trust me when I say it will get easier.  Before going to any restaurant, check their website first.  Even fast food joints like Taco Bell and McDonald's and Burger King have gluten free guides online.  You would be pleasantly surprised.  <br/><br/>
(Comment posted by jmdjr at 8:23 pm, Sun 31st Jan 2010)]]></description><author>no@spam.com (jmdjr)</author><pubDate><![CDATA[Sun, 31 Jan 2010 20:23:19 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5610</guid></item><item><title><![CDATA[Comment #22]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5705</link><description><![CDATA[Thank you all for the comments. They are actually like encouragement! Some days I feel like I'm all alone with this, until I come on here and see what you have to say to help me. Every little fact I can get helps! 
When I first wrote the blog, it had been 3 weeks since I had to do a little hospital visit because I made a few poor decisions and let my temptations take over! But as my doctor drilled it into my head that I can never eat gluten and be okay at the same time, I vowed to change my ways! I have been so much healthier and now I'm starting to get my energy back. <br/><br/>
(Comment posted by Renee at 9:16 pm, Tue 9th Feb 2010)]]></description><author>no@spam.com (Renee)</author><pubDate><![CDATA[Tue, 09 Feb 2010 21:16:15 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5705</guid></item><item><title><![CDATA[Comment #23]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5817</link><description><![CDATA[Renee, I am new to this site and celiac disease, new to knowing I have it; finally right doctor - naturopath...then I looked at old pathology report from endoscopy and it was stated 3-2002 that I had celiac after biopsy and no one told me!!!  So anyway, believe it or not I am a nutritionist and have no idea on what to eat. Everything I learned now is wrong. I read all the labels, been doing gluten, lactose, and soy free diet since 1-1-10 and I am still bloated and constipated and gained weight..HELLO weight gain..and I am afraid to eat since I have malabsorption so wouldn't you lose weight??  I am very frustrated as everyday I am tired, and same symptoms. Any helpful suggestions? I am now sad like mood swings are paired with this as well. Thanks..I truly appreciate anyone's comments.<br/><br/>
(Comment posted by Connie Pridgen at 2:06 pm, Fri 26th Feb 2010)]]></description><author>no@spam.com (Connie Pridgen)</author><pubDate><![CDATA[Fri, 26 Feb 2010 14:06:37 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5817</guid></item><item><title><![CDATA[Comment #24 (Reply to Comment #23)]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5863</link><description><![CDATA[Well first off, I'm glad you joined because everyone on here knows exactly what you are going through because we have all been there! A few months before I turned 17 I had my first endoscopy and colonoscopy, they were not fun but they had shown all the damage that I had. But for some reason they never told me exactly what that was from. I later found out I had celiac. Its not easy because you do this diet and you aren't feeling better, your gaining weight and that causes you to become depressed. I was 16 years old when I had those two procedures and I weighed 168l pounds. A year before that I was 120lbs! I know how it feels to not be yourself but after time, you will see the difference. 
Right now your body is still fighting because when not on the gluten free diet, your intestines are severely damaged and it becomes harder for you to digest food and actually take in all the nutrients from your food. Think of it as remission, your working to become healthy. Just stick it out, eat healthy, set a goal for yourself to work towards and exercise. You should feel proud of yourself for being healthy!<br/><br/>
(Comment posted by Renee at 8:11 pm, Tue 2nd Mar 2010)]]></description><author>no@spam.com (Renee)</author><pubDate><![CDATA[Tue, 02 Mar 2010 20:11:06 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5863</guid></item><item><title><![CDATA[Comment #25]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5879</link><description><![CDATA[My blood test was positive and my biopsy was negative.  I was told I was gluten sensitive. I, like Connie am bloated and constipated and gained weight.  I don't understand this.  I asked my doctor and she would just say I need to count my calories, etc.  I thought after a while it would get better but after two years on a gluten-free diet, I am still bloated and constipated and have the extra weight. Also, every year on my annual check up my iron levels are low and my doctor puts me on iron pills for three months. My  iron goes back up and I go off the pills, then 9 months later at my next check up my iron is down again. I'm very confused and don't understand what I'm doing wrong. If I do inadvertently ingest gluten I get muscle spams in my calves and I become very tearful at the slightest provocation. Is there something else going on? Any suggestions?  I've been thinking of trying peppermint oil capsules.<br/><br/>
(Comment posted by June at 10:45 am, Thu 4th Mar 2010)]]></description><author>no@spam.com (June)</author><pubDate><![CDATA[Thu, 04 Mar 2010 10:45:02 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5879</guid></item><item><title><![CDATA[Comment #26]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5940</link><description><![CDATA[Have you ever had your thyroid checked? I don't know if it would have anything to do with the extra weight, but my mom has had a lot of problems with her's lately and has the same symptoms as you. However, she is negative for celiac and I cook, so everything is gluten free. When she doesn't eat gluten free, she feels awful! I have heard peppermint capsules used for upset stomachs. My grandma used to give them to me when I was younger and it did feel good! It wouldn't hurt to try! Good Luck!<br/><br/>
(Comment posted by Renee at 6:36 pm, Mon 8th Mar 2010)]]></description><author>no@spam.com (Renee)</author><pubDate><![CDATA[Mon, 08 Mar 2010 18:36:47 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment5940</guid></item><item><title><![CDATA[Comment #27]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment5963</link><description><![CDATA[Very informative, thank you very much for this. Research keeps bringing us new information.<br/><br/>
(Comment posted by Anna Mae Schroeder at 9:18 pm, Tue 9th Mar 2010)]]></description><author>no@spam.com (Anna Mae Schroeder)</author><pubDate><![CDATA[Tue, 09 Mar 2010 21:18:55 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment5963</guid></item><item><title><![CDATA[Comment #28]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6120</link><description><![CDATA[Thanks for the site.  I am grateful for a site for people to share their problems and frustrations.  I have just found you and will be returning.
Again,  THANK YOU!!<br/><br/>
(Comment posted by russell at 1:14 am, Mon 5th Apr 2010)]]></description><author>no@spam.com (russell)</author><pubDate><![CDATA[Mon, 05 Apr 2010 01:14:05 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6120</guid></item><item><title><![CDATA[Comment #29]]></title><link>http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6154</link><description><![CDATA[Renee,
I would try to find a naturopath who will order a Stool (poop) test to see if you have underlying bacteria, yeast or parasites in your gut. My son could never gain weight until I did the metametrix gastric intestinal stool effects on him through his pediatrician.  Sure enough he had a bunch of stuff growing in his gut, parasite, bad bacteria, h pylori, etc. No good bacteria was left even though I was giving him a ton of probiotics and secretory igA (which is your first line of defense on your gut lining) was none existent. We did the 4 R program (google this) to eradicate all the bad stuff and gave him lactobacillus sporogenes to help increase his secretory iga digestive enzymes, lots of glutamine etc.  He has gained 20 pounds in 6 months which he desperately needed and is showing signs of puberty very welcome to a 15 yr old boy!
IMHO a poop test is the key to finding out why your gut won't heal. the undiagnosed celiac for years has made your gut vulnerable to a host of bad guys growing there. You need to get them out and heal your gut.   you can go to the metametrix website at  to find a practitioner near you that uses this test. There are other good labs like, Diagnose-Tech, Genova and Enterolab who also do this. Your typical lab that your general MD uses won't usually pick up everything.  Good luck!<br/><br/>
(Comment posted by Maureen at 8:42 pm, Sun 11th Apr 2010)]]></description><author>no@spam.com (Maureen)</author><pubDate><![CDATA[Sun, 11 Apr 2010 20:42:56 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/177/Gluten-Free-Frustration.html#Comment6154</guid></item><item><title><![CDATA[Comment #30]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment6702</link><description><![CDATA[Did I read that right?  If you have dermatitis herpetiformis you have celiac. I made the mistake of going off gluten prior to testing, and all my tests with the exception of the "visual" results from my endoscopy, were all negative.  I had this rash last year when I went to mayo clinic and they said they had no idea what it was and gave me hydro cream.  Well it came back again and is still there now.  Thank you for the information on  iodine.  I had been snacking on cashews with salt but have stopped thinking they may have been exposed to gluten.  My rash isn't as red now.  Eating gluten made it itch like the devil.  And when the blisters open up they sting like mad.  I have so many of these symptoms but nothing indicates it in my tests.  The doctor who did the endoscopy came in afterward and said it "looked" like celiac but the labs said otherwise.  Any ideas what I should do next.  Eating gluten causes cramps, bloating, and severe diarrhea and back pain within hours.<br/><br/>
(Comment posted by Darren at 9:19 am, Fri 23rd Jul 2010)]]></description><author>no@spam.com (Darren)</author><pubDate><![CDATA[Fri, 23 Jul 2010 09:19:40 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment6702</guid></item><item><title><![CDATA[Comment #31]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment7378</link><description><![CDATA[I have celiac (no tummy issues) and DH and started the gluten free diet 18 months. I have made no progress in clearing up the rash / itch. Have been on iodine free salt and vitamins at home with no help. Six months ago I started levothyroxine for newly diagnosed Hashimotos and noticed itch slowly got worse. Stopped for a while, seemed to get better, then took Armour and it flared up. I stopped Armour and started a very low iodine diet - bought only no salt or low sodium packaged items from grocery (canned, boxed, frozen). It made a big difference so far. Culprit seems to be all the iodized salt in the processed foods we all buy. Never the less I have an appointment to see Dr. John Zone (expert) at Salt Lake City University Hospital next month to understand / get help on the "iodine connection. It will be a long trip from New Orleans, but worth it to get real answers.<br/><br/>
(Comment posted by Joe Eustis at 8:31 am, Tue 19th Oct 2010)]]></description><author>no@spam.com (Joe Eustis)</author><pubDate><![CDATA[Tue, 19 Oct 2010 08:31:01 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment7378</guid></item><item><title><![CDATA[Comment #32]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment7443</link><description><![CDATA[Follow up - upon reviewing the foods I recently eliminated in going on a low iodine diet (which makes a big difference) I think the dairy products, i.e., milk, cheese, and in particular Weight Watchers fudge bars and Wendy's Frosties which have carregeenen - an iodine rich food thickener could be the smoking gun.<br/><br/>
(Comment posted by Joe Eustis at 6:21 pm, Mon 25th Oct 2010)]]></description><author>no@spam.com (Joe Eustis)</author><pubDate><![CDATA[Mon, 25 Oct 2010 18:21:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment7443</guid></item><item><title><![CDATA[Comment #33]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment7528</link><description><![CDATA[I am hypothyroid. I do take kelp too. I got my thyroid levels correct first and then I did a few iodine patch tests to see if it picked up a deficiency. It showed I was deficient, so I started the kelp. Many people do fine with a little bit of iodine, then there are others that don't. I started out by taking powdered kelp, but the problem with powdered kelp is that there are no dosages. Plus, iodine deficiency is a symptom, not a cause. There are other, more pressing headaches associated with hypothyroidism. Metabolism, for starters, which can play hell with your immune system, and also your mental health. If you look at a nurses' guide, you'll see that thyroid issues can lead to some chemical difficulties in brain/body day-to-day functioning.<br/><br/>
(Comment posted by Kara Larocco at 5:34 pm, Wed 3rd Nov 2010)]]></description><author>no@spam.com (Kara Larocco)</author><pubDate><![CDATA[Wed, 03 Nov 2010 17:34:49 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment7528</guid></item><item><title><![CDATA[Comment #34]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment8399</link><description><![CDATA[Thank you for this article, it has pretty much changed my life.  I have been dealing with intermittent flare-ups of this type of dermatitis for the past year having no idea what was causing it or how to address it.  Having been diagnosed with extreme gluten intolerance within the past two weeks with IgA readings off the charts (and incidentally, plenty of iodine in my diet), it all makes sense now.  I found this article after eating some kelp and having the worst flare-up ever immediately after.  Now that I've finally identified the correlation, I believe I will finally be able to beat this by avoiding iodine rich foods and switching to a strict gluten-free diet.  Thanks again!<br/><br/>
(Comment posted by Julie at 4:46 pm, Sun 27th Mar 2011)]]></description><author>no@spam.com (Julie)</author><pubDate><![CDATA[Sun, 27 Mar 2011 16:46:51 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment8399</guid></item><item><title><![CDATA[Comment #35]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment9109</link><description><![CDATA[Thank you so much for this information.  My inability to clear up the DH rash for over 3 years on a gluten free diet has been so frustrating.  One question I have never seen answered is whether there is a treatment or topical product which will calm the intense inching?  Any information on palliative treatment would certainly be very welcome.<br/><br/>
(Comment posted by Cara at 9:19 pm, Thu 28th Jul 2011)]]></description><author>no@spam.com (Cara)</author><pubDate><![CDATA[Thu, 28 Jul 2011 21:19:40 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment9109</guid></item><item><title><![CDATA[Comment #36 (Reply to Comment #35)]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment9819</link><description><![CDATA[I have had success with cold pressed/processed castor oil soaked bandages along with applied heat at bedtime.  This usually clears up the DH within a week.  This is an old Edgar Cayce remedy for many ailments including internal<br/><br/>
(Comment posted by Linda Cabaniss at 9:37 am, Sun 6th Nov 2011)]]></description><author>no@spam.com (Linda Cabaniss)</author><pubDate><![CDATA[Sun, 06 Nov 2011 09:37:22 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment9819</guid></item><item><title><![CDATA[Comment #37]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment12248</link><description><![CDATA[Thank you for this information.<br/><br/>
(Comment posted by pete at 4:59 am, Sun 29th Jul 2012)]]></description><author>no@spam.com (pete)</author><pubDate><![CDATA[Sun, 29 Jul 2012 04:59:31 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment12248</guid></item><item><title><![CDATA[Comment #38]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment12873</link><description><![CDATA[I was wondering why my skin gets those hives when I eat salty food and this link explains it. Thank you for sharing this.<br/><br/>
(Comment posted by Rupa at 10:10 pm, Tue 18th Sep 2012)]]></description><author>no@spam.com (Rupa)</author><pubDate><![CDATA[Tue, 18 Sep 2012 22:10:33 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment12873</guid></item><item><title><![CDATA[Comment #39]]></title><link>http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment16033</link><description><![CDATA[I am just now self-diagnosing (no health insurance) my 30 year intestinal problem and associating gluten to it all... But I have a suspicion that MSG in most the foods I eat in Asia (every 4 months of the year) are the trigger to the miserable DH skin rash that occurs while in warm tropical areas, eating Asian food plus added nervous system problems (ie: stress).  I rarely have DH in the states. If anyone has similar thoughts, please share. Thank you all for your comments!<br/><br/>
(Comment posted by Brenda at 5:24 pm, Wed 15th May 2013)]]></description><author>no@spam.com (Brenda)</author><pubDate><![CDATA[Wed, 15 May 2013 17:24:00 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Gluten-Free-Frustration/Page1.html#Comment16033</guid></item></channel></rss>