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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information at Celiac.com - Comments for article: Is Diagnosis for Refractory Celiac Disease on the Rise?]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Sun, 26 May 2013 01:42:16 PDT</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment7983</link><description><![CDATA[Since the onset of celiac is gradual, could it be that people have to become progressively more diligent about avoiding gluten?  I did not initially have to avoid wheat beer, but now I do.  Would this be considered refractory, or is it just a progressively increasing intolerance?<br/><br/>
(Comment posted by Don Kennedy at 10:37 pm, Fri 14th Jan 2011)]]></description><author>no@spam.com (Don Kennedy)</author><pubDate><![CDATA[Fri, 14 Jan 2011 22:37:15 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment7983</guid></item><item><title><![CDATA[Comment #2 (Reply to Comment #1)]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8914</link><description><![CDATA[if you have gluten problems, you should not drink beer at all as it contains malt and barley, both which contain gluten.<br/><br/>
(Comment posted by boyd at 11:17 pm, Thu 23rd Jun 2011)]]></description><author>no@spam.com (boyd)</author><pubDate><![CDATA[Thu, 23 Jun 2011 23:17:51 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8914</guid></item><item><title><![CDATA[Comment #2 (Reply to Comment #1)]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8928</link><description><![CDATA[Boyd, please keep in mind that many companies now make gluten-free beer using safe grains/ingredients.<br/><br/>
(Comment posted by admin at 12:57 am, Mon 27th Jun 2011)]]></description><author>no@spam.com (admin)</author><pubDate><![CDATA[Mon, 27 Jun 2011 00:57:58 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8928</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment7999</link><description><![CDATA[Good article.  It would be great if some of the medical terms are defined or written in terms the non-medical person could understand.<br/><br/>
(Comment posted by Gary Reetz at 10:03 am, Mon 17th Jan 2011)]]></description><author>no@spam.com (Gary Reetz)</author><pubDate><![CDATA[Mon, 17 Jan 2011 10:03:54 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment7999</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8001</link><description><![CDATA[Thank you so much for all your wonderful articles.  Never stop learning something from this site.<br/><br/>
(Comment posted by mary jane at 10:36 am, Mon 17th Jan 2011)]]></description><author>no@spam.com (mary jane)</author><pubDate><![CDATA[Mon, 17 Jan 2011 10:36:15 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8001</guid></item><item><title><![CDATA[Comment #6]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8004</link><description><![CDATA[There are a group of doctors looking at some patients labeled as celiac when that may not be all they have.  The villi can be damaged by several amino acid level elements that leave the villi damage looking just like celiac.

Right now there is only a small group of women that has been discovered  to have this problem with gluten no matter what the genetic testing stated.

I am one that is under review in a government study because of these issues. I have to eat gluten free but am not celiac.  Yet my villi are damaged very bad because of my other genetic diseases.  The damage is just "collateral damage" in a larger picture.<br/><br/>
(Comment posted by Phoebe at 12:04 pm, Mon 17th Jan 2011)]]></description><author>no@spam.com (Phoebe)</author><pubDate><![CDATA[Mon, 17 Jan 2011 12:04:53 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8004</guid></item><item><title><![CDATA[Comment #7]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8011</link><description><![CDATA[My sister died at age 34, 1990, with small intestine lymphoma as a result of undiagnosed celiac disease. Her initial fight began in 1972. Medical ignorance her case eventually killed her. the only reason she survived as long as she did was shear will power and all of the drugs that were experimental back then that was used on her. So here I am today (2011) at age 57, diagnosed with celiac disease (2004), doing every thing in my power to avoid the Gluten hazards and I still have a feeling in my gut (sorry, bad pun) that eventually I too will succumb to small intestinal Lymphoma. And this with the medical community SOOO aware(?) of what Celiac Disease is. THAT IS A HELL OF A TIME BOMB TO CARRY AROUND EVERY STINKING DAY!!!!!!!<br/><br/>
(Comment posted by Sue Dereemer at 12:41 am, Tue 18th Jan 2011)]]></description><author>no@spam.com (Sue Dereemer)</author><pubDate><![CDATA[Tue, 18 Jan 2011 00:41:05 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8011</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8012</link><description><![CDATA[I wonder if refractory CD is really on the rise or is it that so many foods that used to be on the unsafe list have moved to the safe list combined with the amount of gluten that is allowed to be contained in a product and still be labeled gluten free.  As a person who is extremely sensitive to gluten, only 1ppm makes me very ill, not to mention flour dust making the dermatitis appear and make-up, soap, shampoo, lotions etc. also making me ill.<br/><br/>
(Comment posted by Susie at 4:34 am, Tue 18th Jan 2011)]]></description><author>no@spam.com (Susie)</author><pubDate><![CDATA[Tue, 18 Jan 2011 04:34:41 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8012</guid></item><item><title><![CDATA[Comment #9 (Reply to Comment #8)]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8045</link><description><![CDATA[Susie - I would be interested in hearing about your history with gluten intolerance.  I started out with a dramatic recovery after going gluten free.  This lasted about 2 years and then I started having problems again.  I have worried from time to time about refractive celiac.  I have seemed to improve after taking further precautions against cross-contamination and eating fewer processed foods labeled GF and not.  I still could be doing better though.  Did you experience a progression in your sensitivity or have you always reacted to such small amounts?<br/><br/>
(Comment posted by David at 9:14 am, Sat 22nd Jan 2011)]]></description><author>no@spam.com (David)</author><pubDate><![CDATA[Sat, 22 Jan 2011 09:14:08 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8045</guid></item><item><title><![CDATA[Comment #10]]></title><link>http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8106</link><description><![CDATA[With age, the amount of gluten which makes me sick has shifted from ppm to molecular levels. My living and work area is devoid of gluten and over the past four years my diet has consisted of fresh produce, wild game and fresh spring water–no packaged products and only a few known GF personal care products. Whenever I am in the vicinity of gluten (i.e. people who consume it, grocery stores, public events, add nausea) I react to gluten with Classic Celiac symptoms. How so? Could it be gluten breaks away from many sources in a powder/flour/dust form to travel either by finger oils into the mouth (similar to germs) or by air breathed through the mouth or nostrils and reach the intestines? Research to validate the phenomenon I (and others I have seen experience the same) necessitates isolating those with Refractory Sprue into guaranteed GF environments while eating pure foods (including animal products which have not been fed grains), then exposing to gluten-dusted environments and documenting physiologic reactions. I suspect the original finding that those with Refractory Sprue are continuing to experience gluten remains true–and that this occurs from not only food contaminated with gluten, but environments which have become contaminated with gluten as well. If so, Thiopurines may provide temporary relief, with the individual remaining on a downhill slide.

I hope researchers reading this comment verify or disprove this hypothesis and would like others to comment here to specific Celiac reactions they experience to airborne gluten.<br/><br/>
(Comment posted by Gloria Brown at 7:00 pm, Mon 31st Jan 2011)]]></description><author>no@spam.com (Gloria Brown)</author><pubDate><![CDATA[Mon, 31 Jan 2011 19:00:29 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22402/1/Is-Diagnosis-for-Refractory-Celiac-Disease-on-the-Rise/Page1.html#Comment8106</guid></item></channel></rss>