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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information at Celiac.com - Comments for article: Long-Term Mortality in People With Celiac Disease Diagnosed in Childhood Compared With Adulthood: A Population-Based Cohort Study]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Thu, 23 May 2013 00:54:01 PDT</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11048</link><description><![CDATA[This article really didn't tell us anything at all, and the statistics aren't explained well. The lousy content is more the fault of the authors of the study, not the article, however.<br/><br/>
(Comment posted by Dr Berylium at 1:39 am, Wed 4th Apr 2012)]]></description><author>no@spam.com (Dr Berylium)</author><pubDate><![CDATA[Wed, 04 Apr 2012 01:39:23 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11048</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11066</link><description><![CDATA[Mental and physical health are dramatically affected by gluten...however... I did not begin to heal until I went not only gluten free but also LOW FODMAP.

I think these docs are missing the boat here... I can't even get one to give me a fructose intolerance test..say they can't find the "codes" for billing to order it...   I gave up on confirmation of fructose intolerance... I went to lactose free milk...no longer eat onions, garlic, cabbage family veggies, cut out some types of beans...these things and other high fodmap fruits and veggies...like apples, pears, berries, watermelon, cantelope, oranges. Things I thought were good for me were making me feel suicidal and causing much insomnia, IBS, and pain... 

Now that I stick to my low fodmap plan..I feel healthy again for the first time in 15 years, but...now....when I screw up (and inadvertently, that happens a lot)... the pins and needles, arms and legs going numb, even my head goes numb at times, will start within minutes now of eating the offending foods, and depression thoughts will last for two days, with fatigue.

I was so sick prior to this, and I had these symptoms constantly, so I never associated the symptoms with foods.  I just thought I was dying, and being diagnosed with fibromyalgia, chronic fatigue, nueralgia, IBS... chronic LYME disease... I could go on here, but the point is... none of my 28 docs, surgeons, specialists EVER said A WORD about food being the cause....even when I would tell them... things like... " Every time I eat a bowl of raisin bran, on those days...my vision gets so blurry and double I cannot see for rest of the day"  .... or "When I drink orange juice, I start to heat up and sweat".... they brushed it off...as some SYNDROME SYMPTOM, or menopause...and wanted to give me more drugs...every time!<br/><br/>
(Comment posted by Lori Muir at 4:12 am, Fri 6th Apr 2012)]]></description><author>no@spam.com (Lori Muir)</author><pubDate><![CDATA[Fri, 06 Apr 2012 04:12:14 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11066</guid></item><item><title><![CDATA[Comment #3]]></title><link>http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11085</link><description><![CDATA[Not current and not enough information to substantiate facts given.<br/><br/>
(Comment posted by Marsha at 1:57 pm, Mon 9th Apr 2012)]]></description><author>no@spam.com (Marsha)</author><pubDate><![CDATA[Mon, 09 Apr 2012 13:57:30 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11085</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11087</link><description><![CDATA[The article states that they calculated ratios five years after diagnosis but they don't specify if the patients were on a strict gluten-free diet or if there levels were tested to suggest adherence to the diet.  The article leaves you confused and it could be that the study did not list the specifics....either way, wish we had more details.<br/><br/>
(Comment posted by Nina at 7:07 pm, Mon 9th Apr 2012)]]></description><author>no@spam.com (Nina)</author><pubDate><![CDATA[Mon, 09 Apr 2012 19:07:51 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment11087</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment13208</link><description><![CDATA[This study seems flawed to me. It is essentially comparing mortality rates of children vs. mortality rates of adults. Celiac is not the main variable. In order for this study to be meaningful the researchers would need many more years of data and to make an apples to apples comparison.<br/><br/>
(Comment posted by Megan at 6:40 am, Sat 20th Oct 2012)]]></description><author>no@spam.com (Megan)</author><pubDate><![CDATA[Sat, 20 Oct 2012 06:40:46 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/22857/1/Long-Term-Mortality-in-People-With-Celiac-Disease-Diagnosed-in-Childhood-Compared-With-Adulthood-A-Population-Based-Cohort-Study/Page1.html#Comment13208</guid></item></channel></rss>