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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information at Celiac.com - Comments for article: Possible Celiac Disease Drug Treatment ALV003 Fast Tracked by FDA ]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Wed, 22 May 2013 21:28:55 PDT</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13121</link><description><![CDATA[I won't be a lab rat for this fast tracked drug. I will stay on my gluten free diet without taking it. Obviously, people who do take the drug will still have to eat gluten free, so why take a risk on having adverse reactions to it. Recombinent sounds like it might be genetically engineered, too. I really do hope the new drug is safe and effective. I will wait a few years, and see how other people who take the drug fare with it. Then decide if I want to try it myself.<br/><br/>
(Comment posted by Donnie at 11:21 am, Mon 15th Oct 2012)]]></description><author>no@spam.com (Donnie)</author><pubDate><![CDATA[Mon, 15 Oct 2012 11:21:16 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13121</guid></item><item><title><![CDATA[Comment #2 (Reply to Comment #1)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13275</link><description><![CDATA[Same approach I've chosen to take with the gluten-free oats. I would still prefer to maintain a gluten-free diet, than contend with 'side effects' of a drug. That's the elegance of treating a disease by removing something, rather than adding complications by taking drugs.<br/><br/>
(Comment posted by Lori at 7:30 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Lori)</author><pubDate><![CDATA[Mon, 22 Oct 2012 19:30:34 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13275</guid></item><item><title><![CDATA[Comment #3]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13132</link><description><![CDATA[Sounds like it may help at least with those of us who are highly sensitive, and react to slight cross-contamination.  It's almost impossible to eliminate gluten completely, even by eating only foods labelled gluten-free.<br/><br/>
(Comment posted by David at 6:25 pm, Mon 15th Oct 2012)]]></description><author>no@spam.com (David)</author><pubDate><![CDATA[Mon, 15 Oct 2012 18:25:41 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13132</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13150</link><description><![CDATA[Totally agree!<br/><br/>
(Comment posted by Edgar Dq at 7:59 am, Tue 16th Oct 2012)]]></description><author>no@spam.com (Edgar Dq)</author><pubDate><![CDATA[Tue, 16 Oct 2012 07:59:10 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13150</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13238</link><description><![CDATA[Very interesting that this drug is on the fast track.  I feel as though people will be under the impression that they'll be able to eat gluten while taking it, but, what does the drug do for the long term effects of celiac disease?  Does it work on all forms of gluten intolerance?  If not, the testing, screening, and diagnosing of different forms of gluten intolerance must be refined.  I have been on a 100% gluten-free diet for 4 years now and I am in the best health that I have ever been in.  After much research and reading I have come to my own opinions about gluten and feel as though my body was not designed to ingest it.  That said, if a drug ever did exist that would allow me to eat gluten with no consequences whatever, I would probably not take it.  I think the FDA is ahead of themselves: there are other aspects of gluten intolerance that must be refined before we start to manufacture drugs.<br/><br/>
(Comment posted by Christina at 7:15 am, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Christina)</author><pubDate><![CDATA[Mon, 22 Oct 2012 07:15:29 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13238</guid></item><item><title><![CDATA[Comment #6 (Reply to Comment #5)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13264</link><description><![CDATA[Why must we refine other aspects of gluten intolerance? This is a potential treatment for celiac disease. The article plainly says "in conjunction with a gluten-free diet". Seeing as you wouldn't utilize a medication that would enable you to live a normal life even if there were no consequences whatsoever, why discourage others who want to?<br/><br/>
(Comment posted by lvm at 6:03 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (lvm)</author><pubDate><![CDATA[Mon, 22 Oct 2012 18:03:50 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13264</guid></item><item><title><![CDATA[Comment #7 (Reply to Comment #5)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13279</link><description><![CDATA[My thoughts exactly. The good side of this new 'drug'... there will be a huge increase in the diagnosing of this terribly under-diagnosed disorder. New tests to identify potential 'customers' !!<br/><br/>
(Comment posted by Lori at 7:44 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Lori)</author><pubDate><![CDATA[Mon, 22 Oct 2012 19:44:05 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13279</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13240</link><description><![CDATA[I too question taking medication when staying on a gluten-free diet.  The recalls of medications after the damage is done happens too many times for me to risk my health on a basically unproven medication.  The gluten-free diet is a healthy one and medication free.<br/><br/>
(Comment posted by Johnnie Talley at 8:03 am, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Johnnie Talley)</author><pubDate><![CDATA[Mon, 22 Oct 2012 08:03:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13240</guid></item><item><title><![CDATA[Comment #9]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13251</link><description><![CDATA[As a Coeliac, I can say from the look of the comments already posted - you all seem quite smug that you manage to stay on 100% gluten-free diets at all times. I strive to stay 100% gluten-free as well - but do sometimes have to eat outside the safety of my own house and surrender food preparation to others that don't take gluten-free as seriously or just plain don't understand.

If someone can produce a drug that can help with an accidental contamination, especially when away from my 'safe place', then I for one will gladly take it.<br/><br/>
(Comment posted by Robert Geddes at 12:11 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Robert Geddes)</author><pubDate><![CDATA[Mon, 22 Oct 2012 12:11:10 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13251</guid></item><item><title><![CDATA[Comment #10 (Reply to Comment #9)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13256</link><description><![CDATA[I would love to have something to help me when I am out and away from home.  Yes, I totally agree.<br/><br/>
(Comment posted by Cindy at 3:59 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Mon, 22 Oct 2012 15:59:22 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13256</guid></item><item><title><![CDATA[Comment #11 (Reply to Comment #9)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13273</link><description><![CDATA[I agree with you. No need for people to act condescending about their choice. My son has celiac disease and myasthenia Ggravis. It's important for us to keep him 100% gluten-free but it is also just as important to let him be a kid! We have well meaning friends that make accommodations for him and at birthday parties, etc. they make gluten-free cupcakes, cookies, etc. just for him. I love it! However, I'm worried about cross contamination from utensils, non certified foods, etc. I have even seen my mother in law excitedly preparing my son some gluten-free garlic bread but I had to explain that we would have to redo it with a clean pan and spatula because she had used them right before for regular bread. In cases like this, when we can't be 100% positive that our food is gluten-free then it would be a godsend to have a medication as back up!<br/><br/>
(Comment posted by Frances at 7:17 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Frances)</author><pubDate><![CDATA[Mon, 22 Oct 2012 19:17:50 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13273</guid></item><item><title><![CDATA[Comment #12 (Reply to Comment #9)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13277</link><description><![CDATA[There are some over the counter enzymes you can take that target the gluten. You might want to look into taking those when you eat out. That's what we do, and we are all highly sensitive (3 of us).<br/><br/>
(Comment posted by Lori at 7:41 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Lori)</author><pubDate><![CDATA[Mon, 22 Oct 2012 19:41:23 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13277</guid></item><item><title><![CDATA[Comment #13 (Reply to Comment #9)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13284</link><description><![CDATA[I agree. It is very easy to accidentally consume gluten. More detail in the article about exactly how this is supposed to work would be good. Is it to be taken after accidental known or suspected exposure, or all the time?<br/><br/>
(Comment posted by Sharon at 8:39 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Sharon)</author><pubDate><![CDATA[Mon, 22 Oct 2012 20:39:47 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13284</guid></item><item><title><![CDATA[Comment #14 (Reply to Comment #9)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13405</link><description><![CDATA[Robert, I completely agree with everything you said.  I strive to stay on a 100% gluten-free diet but it is almost impossible because others just don't understand it.  It's not like your meal is being watched every single second from when it starts to when it gets to your table.  If there is a pill that will help with the effects of cross-contamination, I certainly welcome it.<br/><br/>
(Comment posted by Jeff Cutler at 6:05 pm, Tue 30th Oct 2012)]]></description><author>no@spam.com (Jeff Cutler)</author><pubDate><![CDATA[Tue, 30 Oct 2012 18:05:46 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13405</guid></item><item><title><![CDATA[Comment #15 (Reply to Comment #9)]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment15054</link><description><![CDATA[Totally agree with you there... In conjunction with a gluten-free diet, it would greatly help those of us who occasionally get glutened by household members who just don't understand cross contamination even though you tell them a billion times not to use your butter for their toast.  It would be a HUGE help when travelling or having to eat out in public when you can't be 100% sure that what you are getting is truly gluten-free.  <br/><br/>
(Comment posted by Jamie at 11:53 am, Thu 21st Feb 2013)]]></description><author>no@spam.com (Jamie)</author><pubDate><![CDATA[Thu, 21 Feb 2013 11:53:34 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment15054</guid></item><item><title><![CDATA[Comment #16]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13272</link><description><![CDATA[I was recently diagnosed with celiac disease. I am having a hard time trying to figure out what to eat. I ate at a lot of restaurants and now have trouble picking the right ones that are actually 100% gluten-free. So yes, I will take this pill only when I eat outside to protect myself and not on a daily basis.<br/><br/>
(Comment posted by Derya at 6:57 pm, Mon 22nd Oct 2012)]]></description><author>no@spam.com (Derya)</author><pubDate><![CDATA[Mon, 22 Oct 2012 18:57:13 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13272</guid></item><item><title><![CDATA[Comment #17]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13286</link><description><![CDATA[Isn't the whole point of taking a drug so that you can EAT gluten again? What's the point if I still need to keep the diet??<br/><br/>
(Comment posted by Efrat at 12:46 am, Tue 23rd Oct 2012)]]></description><author>no@spam.com (Efrat)</author><pubDate><![CDATA[Tue, 23 Oct 2012 00:46:20 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13286</guid></item><item><title><![CDATA[Comment #18]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13314</link><description><![CDATA[Think twice, act once. Let's watch first, this drug might be all it claims to be, then again...<br/><br/>
(Comment posted by Irv at 4:44 am, Wed 24th Oct 2012)]]></description><author>no@spam.com (Irv)</author><pubDate><![CDATA[Wed, 24 Oct 2012 04:44:47 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13314</guid></item><item><title><![CDATA[Comment #19]]></title><link>http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13319</link><description><![CDATA[I participated in a clinical trial 5 years ago for a drug Alba was developing on the "fast track." It's STILL in trials, so the fast track is really not that fast.<br/><br/>
(Comment posted by Cindy Purdy at 11:25 am, Wed 24th Oct 2012)]]></description><author>no@spam.com (Cindy Purdy)</author><pubDate><![CDATA[Wed, 24 Oct 2012 11:25:06 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/23068/1/Possible-Celiac-Disease-Drug-Treatment-ALV003-Fast-Tracked-by-FDA-/Page1.html#Comment13319</guid></item></channel></rss>