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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information at Celiac.com - Comments for article: Bermuda]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Wed, 19 Jun 2013 18:40:50 PDT</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment6698</link><description><![CDATA[I need scientific proof that touching a door handle can cause a reaction in your intestines. My doctor told me that gluten has to be ingested to cause the reaction to the peptides with gluten that cause your immune system to overreact and kill the cilia within your intestines. I believe spreading incorrect information on how gluten effects the body is a disservice to the millions of gluten allergy sufferers like myself, that struggle with, and repeatedly needing to explain gluten allergy to the population who doesn't understand it, and sometimes even doesn't believe us because it's not like a peanut allergy in which, its a literal exposure-reaction type allergy that is obvious.<br/><br/>
(Comment posted by notthefallthatkillsyou at 11:24 am, Thu 22nd Jul 2010)]]></description><author>no@spam.com (notthefallthatkillsyou)</author><pubDate><![CDATA[Thu, 22 Jul 2010 11:24:23 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment6698</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment6699</link><description><![CDATA[Hi,

Thank you for your interest in my blog. I am certainly not trying to spread inaccurate information and  I am sorry you misunderstood what I was intending. To clarify, touching a door handle will not get you sick, but touching a door handle and then biting your nails, touching your mouth, touching your food, are a few ways that touching a contaminated door handle can lead sensitive gluten sufferers to getting sick.  Additionally, there are varying levels of gluten sensitivity; including, celiac, gluten-intolerance and gluten allergies. These all create different reactions from gluten contamination, and everyone has a different level of sensitivity. And for some people, gluten allergies are very much like peanut allergies.

Take care,

Destiny<br/><br/>
(Comment posted by Destiny at 11:42 am, Thu 22nd Jul 2010)]]></description><author>no@spam.com (Destiny)</author><pubDate><![CDATA[Thu, 22 Jul 2010 11:42:28 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment6699</guid></item><item><title><![CDATA[Comment #3 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment6752</link><description><![CDATA[In response to Destiny's blog I can certainly understand her being extremely careful when it comes to any possible contact with gluten.I am 70 yrs old and have had gluten intolerance symptoms since I was preteen. My husband actually diagnosed me as having celiac disease approximately 2 mo ago.I have been to my primary care physician and have told him  and have an appointment with my gastro doctor in about 3 weeks. I have had 3 exploratory surgeries and about 20 inches of my large intestine removed and my last surgery was an emergency due to complete intestinal blockage in my small intestine. My intestine gets a "kink in it like a garden hose"--that is a direct quote from the first surgeon who operated on me in 1978.He said he latched my intestine down in 3 places so that it could not kink on itself. While I was still in the hospital following that surgery when I started eating food again my intestine started twisting on itself. The next surgery was to take out  20 inches of my large intestine  and when I started eating food again the pain started again.I told my surgeon but he did not want to hear it. Suddenly his pager went off, so he said, and he was needed at the nurses station. I have been to some "supposedly" very  reknown gastro physicians & have been sent by one of my GI docs to Houston,TX to a doctor who had been doing research for years & had recently started seeing patients in the Houston Women's Center. When we asked what we could eat for lunch one of the days while I was being tested the doctor told us a good Italian place & said to have the angel hair pasta. I hurt like crazy. I was diagnosed once by an alternative type doctor as having celiac disease but he did not tell me to leave off gluten he just sold me hundreds of dollars worth of vitamins and every time I went back we needed to add another supplement so it was another $500, which of course insurance would not pay for. Since the cause for celiac and what you needed to do was not explained to me I continued to eat gluten and on my next visit to a regular MD I told the MD of the diagnosis and he just looked at me and told me that I did not have celiac disease without doing any testing and I continue to get kinks in my intestine on an almost daily basis. I have lost count of the times that I have been hospitalized but I would say between 40 to 50 times for testing, colonoscopies, every test that you can imagine but no one ever did a biopsy of my small intestine. I have been off gluten for about 6 weeks now except for cross contamination at a buffet recently. We told the manager my problem and he personally grilled me chicken breast, corn on cob & I had a baked potato. I started hurting like crazy in about 45 min to 1 hour. We realized that the manager who was being as nice as he could be had contaminated my food by using the tongs & putting my chicken on the grill where chicken that had been marinated with something that I could not have had been cooked. No, I will not go back & eat gluten just so that I can have a biopsy to check my small intestine. I am the one who bears the pain. After years of being told that it was all in my head, had the doctor tell my husband that he thought that I just pulled this "attacks" to get attention,etc. my diagnosis is celiac disease.I was diagnosed with it by an alternative medicine type doctor and I am sticking to it. I was forced to resign my position at the University of Oklahoma in 1998 due to constant pain and I had 4 surgeries within 18 months. I had a lot of unusual symptoms that I now realize were the result of the gluten. Now that I no longer eat it a lot of my health problems are improving. I am sure after a year I will be feeling much better. But when I think of the thousands of dollars we have spent going on another goose chase because some doctor who knew less about my problem than I did had me running in circles.<br/><br/>
(Comment posted by Shirley Ledgerwood at 1:43 pm, Fri 30th Jul 2010)]]></description><author>no@spam.com (Shirley Ledgerwood)</author><pubDate><![CDATA[Fri, 30 Jul 2010 13:43:26 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment6752</guid></item><item><title><![CDATA[Comment #3 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment6781</link><description><![CDATA[Shirley,  your story just makes me heartsick that you have had to go through so much.  I pray that you will continue to heal and your life will have some relief and comfort.
Cindy<br/><br/>
(Comment posted by Cindy at 7:34 pm, Mon 2nd Aug 2010)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Mon, 02 Aug 2010 19:34:30 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment6781</guid></item><item><title><![CDATA[Comment #4 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment6830</link><description><![CDATA[Dear Shirley, I feel so bad for your lifetime of pain.  I have been having a lot of GI track problems myself for the past 3 years.  I have had many tests, even one for Gluten intolerance and told that's not it.  They believe its IBS but some how I don't think so. There is no relief from the pain and all the other nasty symptoms.  My last resort is to look into the Pillcam which I saw on Dr. Oz's show.  You swallow a small camera the size of a large vitamin pill.  It travels through your GI track for 8 hours before it naturally comes out.  During its travels it will take 60,000 pictures of your insides.  It checks for all diseases and disorders.  I have heard it costs about $1,000 to do this but it certainly sounds like something necessary.  I have to research more to find out where this can be done.  Let me know what you think.  Good Luck, Penny<br/><br/>
(Comment posted by Penny at 1:16 pm, Fri 6th Aug 2010)]]></description><author>no@spam.com (Penny)</author><pubDate><![CDATA[Fri, 06 Aug 2010 13:16:34 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment6830</guid></item><item><title><![CDATA[Comment #4 (Reply to Comment #3)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment6910</link><description><![CDATA[Penny, before you spend $1000, why not try some experimenting with diet?  I've learned from experience that my body pain is 100% related to my digestion.  Since grains are hard to digest, try eliminating them for a week.  Have you ever tried the Blood Type Diet?  It has been so helpful for my whole family.  It's easy and it won't cost anything.  It's worth all the inconvenience for the results.  Order a used copy of "Live Right 4 Your Type".<br/><br/>
(Comment posted by Cindy at 2:50 pm, Mon 16th Aug 2010)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Mon, 16 Aug 2010 14:50:11 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment6910</guid></item><item><title><![CDATA[Comment #7 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment7257</link><description><![CDATA[Hi Destiny,
Thank you for all the great ideas- I have my paper towels & am cleaning all my doorknobs! Elizabeth Hasselbeck from The View-she has celiac & that is only reason I knew I had it--my doctors did not diagnose me until Elizabeth Hasselbeck was on TV and she talked about her new book  & my BFF called me & said that's exactly you--you have celiac! Please where can I access newest  info on gluten induced brain fogs like villi intestine problems with celiac is appreciated.
xoxo
Hope<br/><br/>
(Comment posted by Hope at 12:38 pm, Wed 29th Sep 2010)]]></description><author>no@spam.com (Hope)</author><pubDate><![CDATA[Wed, 29 Sep 2010 12:38:10 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment7257</guid></item><item><title><![CDATA[Comment #8 (Reply to Comment #2)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment7275</link><description><![CDATA[Hi Destiny
I have all the same problems and many of the same strategies - it is hard to get people to realize they are spreading what is in effect a poison on every surface.  People get upset when you offer to bring your own food / not eat but there isn't really any other way to be safe in a normal house. Toiletries are a problem too, as lots of them have gluten in - including soap to clean your hands!! I had to look after my step-daughter and kids after her surgery, and the only way I survived was to walk around with my pockets stuffed full of paper towels and put squirty soap next to all the sinks just for me.  I get fever, migraine and chest infections as well as gut problems so would not have been any use if I hadn't done this.<br/><br/>
(Comment posted by Lois Parker at 2:01 am, Mon 4th Oct 2010)]]></description><author>no@spam.com (Lois Parker)</author><pubDate><![CDATA[Mon, 04 Oct 2010 02:01:55 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment7275</guid></item><item><title><![CDATA[Comment #9]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment6782</link><description><![CDATA[Destiny,
I really like your list!  Every little thing we can do to stay healthy is worth it, no matter how much we are misunderstood.  I have been super cautious about touching things that can be contaminated, like door knobs or my own steering wheel, and especially my children!  I want to add a couple of things to your list.  Everything that you put on the conveyor belt at the market is potentially contaminated.  Look at the grooves along the edge of the belt and you'll see white powdery crud.  Every bag of wheat flour that is set on the belt leaves a trace of white powder.  (Is there some way we could get them to package it better?)  Plus every item is touched by the clerk, so he/she touches all the gluten products and then each of your products.  So I wash everything when I get it home and throw away all the plastic produce bags and replace them with my own from a box.  Also, I am unable to go to the market in the morning when there is still flour in the air conditioning system from the night's baking in the market's bakery.  I keep my mouth closed and try not to talk or stay in there too long even later in the day.  Costco is a great place to get glutened!  I take a gluten ease after shopping which really works like a charm.  One more comment about paper towels.  The brand I use has the first sheet "glued" down to keep it from unrolling and the last sheet is also "glued" to the cardboard roll.  I don't know what the glue is made of, so I use those sheets to wipe up the floor...and then I wash my hands!!  Keep up the good work...I love your recipes.<br/><br/>
(Comment posted by Cindy at 7:56 pm, Mon 2nd Aug 2010)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Mon, 02 Aug 2010 19:56:17 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment6782</guid></item><item><title><![CDATA[Comment #10]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment7276</link><description><![CDATA[I live with someone with the same problem.  10 parts per million of gluten is too much, but how much is that?  Here is an analogy, the average novel has about 100,000 words.  10 parts per million is like having one  word in the whole book that should not be there.  Do you think you would spot it?  You might not, but if you are very gluten intolerant your gut might.<br/><br/>
(Comment posted by rod griffiths at 2:23 am, Mon 4th Oct 2010)]]></description><author>no@spam.com (rod griffiths)</author><pubDate><![CDATA[Mon, 04 Oct 2010 02:23:45 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment7276</guid></item><item><title><![CDATA[Comment #11]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment7836</link><description><![CDATA[Tip 11:  keep a set of Gluten-Free potholders in a Ziploc bag & mark it with a Scripto marker so no one else uses it. Potholders cross-contaminate so have your own!<br/><br/>
(Comment posted by catlover52 at 11:22 pm, Mon 20th Dec 2010)]]></description><author>no@spam.com (catlover52)</author><pubDate><![CDATA[Mon, 20 Dec 2010 23:22:50 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment7836</guid></item><item><title><![CDATA[Comment #12]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment7878</link><description><![CDATA[I think it's so crazy how we all blindly follow what our doctors say. If we've all learned nothing else through our own personal struggles for a diagnosis, it should be that doctors know VERY little about this disease!! I also believed that gluten needs to be ingested to cause damage to my body, however, shortly after diagnosis I had to scoop out 15 pies at work. I suppose I spent a good 4 hours scooping out mini samples of pies. At the end of the day my hands were red, swollen, itchy, burning and the skin was peeling off. We all have our own stories to share, and personally I love hearing about them. The more I can learn about celiac, the better for me and my daughter, who also has it.  In fact, before my daughter was diagnosed she used to have such bad itchy skin, I would have to tape her skin up to keep her from scratching through the blood. After waiting 4 months to see a pediatric dermatologist I explained my recent celiac disease diagnosis and asked if that could be my baby's problem. The DERMATOLOGIST told me that celiac disease does not affect your skin!  So you see, respondent number one, you need to research for yourself and listen to your own body. Many doctors know less about this disease than the people that are suffering from it.<br/><br/>
(Comment posted by Sweetglutenfreegirl at 4:45 pm, Mon 27th Dec 2010)]]></description><author>no@spam.com (Sweetglutenfreegirl)</author><pubDate><![CDATA[Mon, 27 Dec 2010 16:45:48 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment7878</guid></item><item><title><![CDATA[Comment #13 (Reply to Comment #12)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment9397</link><description><![CDATA[Doctors learn a lot in Medical school, but, face it, they are human beings - not a super computer so what they know is limited. It took me 25 years and, countless doctors and a fortune to find out I had celiac. The only reason I found out is I lucked upon a doctor who has gluten sensitivity herself. But - get this - she still seems to know very little about it! I am super frustrated over the scarcity of concise information out there. So the next time you feel like your doctor is stabbing in the dark; you are probably right.<br/><br/>
(Comment posted by Cindy at 5:46 pm, Mon 5th Sep 2011)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Mon, 05 Sep 2011 17:46:38 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment9397</guid></item><item><title><![CDATA[Comment #14]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment8168</link><description><![CDATA[Was looking for a few new recipes today when I came across this thread.  My daughter has celiac -  my mom diagnosed her when she was 2 - the Dr's not until she was 15.  Lots of painful years between.  My daughter has two small children that had to remain gluten free for their first two years of life - they can have gluten away from home but home is glute free.  There are times that her husband has something that has gluten in it but that is rare.  It is kind of like the old saying if mama ain't happy nobodies happy   -- if mama is not well than who takes care of the rest of them ?  
My daughter is very sensitive and practices great hand washing etc -  be prepared to be the baker etc when you have grand kids - it will help cut down on your cross contamination. 

good luck to you all -<br/><br/>
(Comment posted by SusanH at 1:25 pm, Tue 8th Feb 2011)]]></description><author>no@spam.com (SusanH)</author><pubDate><![CDATA[Tue, 08 Feb 2011 13:25:08 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment8168</guid></item><item><title><![CDATA[Comment #15]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment10447</link><description><![CDATA[Hi Destiny, 

Are there any special steps you follow for rinsing and soaking rice and beans? And do you prefer canned or dried beans? 

Also, I'm struggling to find lentils I can tolerate. If you've found a solution, or have some suggestions for how to soak/rinse, that would be great too!

Thanks for the helpful blog.<br/><br/>
(Comment posted by Jen at 9:19 am, Thu 26th Jan 2012)]]></description><author>no@spam.com (Jen)</author><pubDate><![CDATA[Thu, 26 Jan 2012 09:19:09 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment10447</guid></item><item><title><![CDATA[Comment #16]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment11892</link><description><![CDATA[Has anyone heard of paper sacks having gluten in them? My cousins told me about a quick, healthy way to make popcorn in the microwave: add popcorn and cooking spray to a paper sack and put in the microwave for about 2 minutes.  The popcorn is amazing! But ironically, I've suffered for 2 days with gluten symptoms, and using the paper bag is the only thing I've done differently.  Is this possible?<br/><br/>
(Comment posted by Terri at 12:26 pm, Thu 28th Jun 2012)]]></description><author>no@spam.com (Terri)</author><pubDate><![CDATA[Thu, 28 Jun 2012 12:26:43 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment11892</guid></item><item><title><![CDATA[Comment #17 (Reply to Comment #16)]]></title><link>http://www.celiac.com/blogs/0/Bermuda.html#Comment12133</link><description><![CDATA[Some popcorn has gluten in it. Did you check the label?<br/><br/>
(Comment posted by stacy at 3:27 pm, Sun 22nd Jul 2012)]]></description><author>no@spam.com (stacy)</author><pubDate><![CDATA[Sun, 22 Jul 2012 15:27:30 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Bermuda.html#Comment12133</guid></item></channel></rss>