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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information at Celiac.com - Comments for article: Summary of the Digestive Diseases Intragency Coordinating Committee (Part of the National Institute of Diabetes and Digestive and Kidney Diseases- NIDDK) March 10, 1998 Meeting]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Fri, 24 May 2013 01:52:23 PDT</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/articles/80/1/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting/Page1.html#Comment372</link><description><![CDATA[Four physicians can't seem to figure out what my problem is, two emergency room visits later and I am still experiencing severe problems with constipation .  Now finally perhaps I have found some answers, thank you<br/><br/>
(Comment posted by Sue at 6:49 pm, Sun 11th Nov 2007)]]></description><author>no@spam.com (Sue)</author><pubDate><![CDATA[Sun, 11 Nov 2007 18:49:20 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/80/1/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting/Page1.html#Comment372</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2508</link><description><![CDATA[Erica I was so interested in all you had to say and like you I have not been tested for Celiac disease but I have found out I am gluten intolerance. I am a lot older than you I wish I would have known about this disease a long time ago. I have been through so much discomfort and finally the chronic fatigue is what was killing me. I had found out I was allergic to beer and then I investigated some more and found out food was making me so sick. Thank you for your testimony and I do hope I can adjust as well as you for I don't really know if I have done any damage to my intestine. Yes like you said 'It Sucks' I am 63 years old and have spent a miserable life with this diasease.
Yolanda<br/><br/>
(Comment posted by Yolanda Bermudez at 1:31 pm, Tue 15th Jul 2008)]]></description><author>no@spam.com (Yolanda Bermudez)</author><pubDate><![CDATA[Tue, 15 Jul 2008 13:31:43 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2508</guid></item><item><title><![CDATA[Comment #3]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2513</link><description><![CDATA[Hi Erica, I know exactly what you are going through. I am a 15 year old with a gluten intolerance except it's even harder for me dining out because I live in a small town and there are no restaurants with gluten free menus within my proximity. Whenever I go to my friends house I have to bring my own supper and breakfast. Good luck with your coping with the intolerance.<br/><br/>
(Comment posted by Erika at 9:46 am, Thu 17th Jul 2008)]]></description><author>no@spam.com (Erika)</author><pubDate><![CDATA[Thu, 17 Jul 2008 09:46:51 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2513</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2517</link><description><![CDATA[Hi, I am 55 and I also had an uncomfortable life due to this sickness. But now I am relieved, it seems worth while to fight for this...at my regular places I try to teach people about gluten-free rice cakes, so that when they invite me among others, they should buy it for me instead of bread. Or I take it with me.<br/><br/>
(Comment posted by GeoKozmos at 12:35 am, Fri 18th Jul 2008)]]></description><author>no@spam.com (GeoKozmos)</author><pubDate><![CDATA[Fri, 18 Jul 2008 00:35:36 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2517</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2534</link><description><![CDATA[Hi Erica,
Thanks for sharing this.  I have a mother (60 years old) and a son (2 years old) who are gluten intolerant.  Eating out is always a chore.

Just FYI, McDonald's French fries have wheat in them.  I just checked their website.  Not sure if you have In N' Out by you, but theirs are just potatoes (gluten-free).

Kristy<br/><br/>
(Comment posted by Kristy at 1:28 pm, Tue 22nd Jul 2008)]]></description><author>no@spam.com (Kristy)</author><pubDate><![CDATA[Tue, 22 Jul 2008 13:28:56 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2534</guid></item><item><title><![CDATA[Comment #6]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2566</link><description><![CDATA[Hi Erica, 79 and feeling fine, after more that a year gluten-free. All of the miseries went away.  General Mills 'Rice Cheks' are now gluten-free. They may not be in your HyVee yet. Doing a lot of salads when I go out. Have you tried Nutella on your chocolate  rice cakes? It is found near the peanut butter.  I make quite an assortment of open-face rice cake sandwiches by using a toaster oven.  I'm sure I may be getting cross-contamination when I breakfast at Village Inn, Perkins, IHOP, and Country Kitchen, but I can usually get them to make substitutions for me. I know you celiac teens really have a difficult time. I wish you well, and good health.<br/><br/>
(Comment posted by Henrietta at 8:04 pm, Sun 27th Jul 2008)]]></description><author>no@spam.com (Henrietta)</author><pubDate><![CDATA[Sun, 27 Jul 2008 20:04:09 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2566</guid></item><item><title><![CDATA[Comment #7]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2650</link><description><![CDATA[Hi Erica! I'm a celiac and I was diagnosed three years ago at 17. I am about to start my junior year in college and I live in the dorms. I find this to be the most difficult part about college because I am forced to eat the cafeteria food. The company catering at my university is truly terrible. Not only is the majority of the food unhealthy for anyone, but there are very few options for celiacs. Many times I end up eating a chicken breast and veggies. This sounds good at first but after the second week straight of chicken breasts it starts to be a little hard to handle and after a month you wonder how you can possibly eat another crappy chicken breast. When I am at school I believe that my health suffers because I sometimes consume hidden gluten without knowing it. Several times they took away my food just as I was about to eat it and informed me that it contained gluten. And other times I knew I had consumed gluten because I experienced all the symptoms typical of my gluten consumption. I have tried to speak with the head chef numerous times as well as the woman in charge of the food program there, but nothing has really helped. It's important to note that I attend a small private school and so state universities may actually be a better option. I agree...it truly is a social challenge to be gluten free and I've had many of the same experiences when trying to find restaurants that work for me and are also appealing to my friends. It does get easier with time though and I find that there are more options now than ever before. However, fast food is an especially tricky topic. I used to eat the fries at Mcdonald's and recently found out (june 2008) that they have wheat in the form of beef flavoring...now tell me..why do fries need to be beef flavored?! Is it too much to ask for fries that are just...fries. I eat at Noodles occasionally and they offer rice noodles with several of the dishes. Just be sure the rest of the ingredients are gluten free. P.F. Chang's has a small gluten free menu, Outback has a variety of gluten free options including the chocolate thunder from down under. It's a gluten free brownie and it is absolutely AMAZING! Worth the money for sure. Texas Roadhouse has several options. In Colorado, Beau Jo's Pizza offers gluten free pizza. :) The only Italian I've experienced gf was Maggiano's and it's a little pricey. They made a meal specifically for me using gluten free noodles. This was in Denver though and I have no idea about other Maggiano's or if they still offer this option.  Amy's definitely makes the best frozen meals! My favorite is the brown rice with veggies and tofu too! It's delicious! A few days ago I purchased some soyjoy bars. They are gluten free and pretty tasty. I definitely recommend the strawberry, apple, and berry flavors. Hope this helps and best wishes to you.<br/><br/>
(Comment posted by Kaitlyn at 10:16 am, Tue 5th Aug 2008)]]></description><author>no@spam.com (Kaitlyn)</author><pubDate><![CDATA[Tue, 05 Aug 2008 10:16:33 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2650</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2711</link><description><![CDATA[Hi, Erica! Thanks for writing this. I'm in my 30s and, I'll tell ya, I feel exactly the same way. It's changed my whole social life and really defined who my friends are to a certain extent. I hope you do OK at college; just know that eventually you stop minding that you can't eat out. I don't even crave fast food anymore, except for one week a month. Good luck and thanks again for writing!<br/><br/>
(Comment posted by Christine at 7:42 am, Thu 14th Aug 2008)]]></description><author>no@spam.com (Christine)</author><pubDate><![CDATA[Thu, 14 Aug 2008 07:42:57 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2711</guid></item><item><title><![CDATA[Comment #9]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2726</link><description><![CDATA[Hi Erica!
When I was about 18 months old, I was diagnosed with celiac disease. Now I am 12 and I'm perfectly fine. I read your article and I thought it was really interesting. I can't imagine how hard it must be for you to have to completely cut gluten out of your diet after you had been eating it so long. I don't know where you live or the restaurants that you have nearby, but Outback and the Longhorn are really great at catering to gluten intolerance, and I love their food. But in the article you wrote you said you can't eat at Panera. I do eat there, but I get the chicken Cesar salad with no croûtons and they have to use a clean bowl and clean gloves. Also, In north Conway there are 2 gluten free restaurants ( one is Raffertys pub but I don't know the other's name ) and I have heard they have delicious food. I also read that you like snack bars, and I have found that almost all of the Atkins bars are gluten free! I think they are really good. I hope I helped you a little bit!<br/><br/>
(Comment posted by Justine at 8:18 pm, Sat 16th Aug 2008)]]></description><author>no@spam.com (Justine)</author><pubDate><![CDATA[Sat, 16 Aug 2008 20:18:47 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2726</guid></item><item><title><![CDATA[Comment #10]]></title><link>http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2795</link><description><![CDATA[Wow Erica this does seem like a lot of things that I went through - but I use being a glutamaniac as a gift - it enables me to make friends with ALL the staff in restaurants and cafes and sometimes I meet very interesting people this way and get a good name for myself also ... I think lol
Good luck and use your problems as gifts.<br/><br/>
(Comment posted by chris at 5:50 am, Fri 5th Sep 2008)]]></description><author>no@spam.com (chris)</author><pubDate><![CDATA[Fri, 05 Sep 2008 05:50:18 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/0/Summary-of-the-Digestive-Diseases-Intragency-Coordinating-Committee-Part-of-the-National-Institute-of-Diabetes-and-Digestive-and-Kidney-Diseases--NIDDK-March-10-1998-Meeting.html#Comment2795</guid></item></channel></rss>