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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information Since 1995 at Celiac.com - Comments for blog: Interstitial Cystitis and Gluten Intolerance]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Sat, 21 Nov 2009 02:31:17 PST</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/articles/0/1/Interstitial-Cystitis-and-Gluten-Intolerance/Page1.html#Comment1201</link><description><![CDATA[I have celiac and diabetes and am interested in any recipes.
Thank you Carol<br/><br/>
(Comment posted by Carol Cannon at 3:56 am, Thu 17th Jan 2008)]]></description><author>no@spam.com (Carol Cannon)</author><pubDate><![CDATA[Thu, 17 Jan 2008 03:56:09 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/Interstitial-Cystitis-and-Gluten-Intolerance/Page1.html#Comment1201</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2858</link><description><![CDATA[I have had interstitial cystitis for 27 years.  I just found out about 6 weeks ago that I have celiac disease.  It would seem logical that they would be related.  I would love to hear more on this topic.  Thanks.<br/><br/>
(Comment posted by patty d at 8:28 am, Thu 18th Sep 2008)]]></description><author>no@spam.com (patty d)</author><pubDate><![CDATA[Thu, 18 Sep 2008 08:28:56 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2858</guid></item><item><title><![CDATA[Comment #3]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2862</link><description><![CDATA[I was diagnosed w/ interstitial cystitis in May of 2008 & then celiac disease in June 2008.  I don't know which one is worse but I know that they both suck!  So I to would love to here more on this topic.  Thank You!<br/><br/>
(Comment posted by Cindy at 7:28 am, Fri 19th Sep 2008)]]></description><author>no@spam.com (Cindy)</author><pubDate><![CDATA[Fri, 19 Sep 2008 07:28:22 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2862</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2872</link><description><![CDATA[Hi Wendy...my wife Lisa suffered for years with severe incapacitating IC...in 2003 she was diagnosed with celiac...since beginning a gluten free diet, her IC has pretty much disappeared.  I looked through the literature and found little over the years, but as a clinician, this anecdotal experience has been impressive...why not the bladder mucosa?  Celiac seems to stimulate autoimmune attacks just about everywhere else!<br/><br/>
(Comment posted by mark lockett md at 9:20 am, Mon 22nd Sep 2008)]]></description><author>no@spam.com (mark lockett md)</author><pubDate><![CDATA[Mon, 22 Sep 2008 09:20:46 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2872</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2941</link><description><![CDATA[My Mother had interstitial cystitis.   My sister and I both have Celiac.  I bet Mother had it too.  She also had Sjrogen's and diabetes.  Too bad we never knew about the effects of gluten.<br/><br/>
(Comment posted by Mary Ann at 6:26 pm, Tue 7th Oct 2008)]]></description><author>no@spam.com (Mary Ann)</author><pubDate><![CDATA[Tue, 07 Oct 2008 18:26:14 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2941</guid></item><item><title><![CDATA[Comment #6]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2949</link><description><![CDATA[I wish my IC had gone away when I stopped gluten. It didn't work for me!<br/><br/>
(Comment posted by Laura Sheffler at 3:11 am, Thu 9th Oct 2008)]]></description><author>no@spam.com (Laura Sheffler)</author><pubDate><![CDATA[Thu, 09 Oct 2008 03:11:15 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment2949</guid></item><item><title><![CDATA[Comment #7]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3040</link><description><![CDATA[Laura you may try dairy free also. I have just started gluten and dairy free for interstitial cystitis and joint pain. I'll see how it goes.<br/><br/>
(Comment posted by jacki at 1:02 pm, Thu 30th Oct 2008)]]></description><author>no@spam.com (jacki)</author><pubDate><![CDATA[Thu, 30 Oct 2008 13:02:44 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3040</guid></item><item><title><![CDATA[Comment #8]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3092</link><description><![CDATA[I have suffered with Interstitial Cystitis for about eight years with many different treatments and little relief.  I accidentally stumbled onto a gluten and dairy free diet and after the first two days my knees stopped aching and burning.  I sleep better and have more energy. I think it will take more time before it significantly helps the Interstitial Cystitis, but I feel confident it will.  I just got my blood results back today.  I was tested after being on a gluten free diet for a week and the celiac test was negative, but I have the gene.  My doctor says she considers me to have the disease because of my symptoms. <br/><br/>
(Comment posted by Laurie at 2:26 pm, Tue 11th Nov 2008)]]></description><author>no@spam.com (Laurie)</author><pubDate><![CDATA[Tue, 11 Nov 2008 14:26:54 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3092</guid></item><item><title><![CDATA[Comment #9]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3125</link><description><![CDATA[I have suffered with IC for many years. I was diagnosed with Celiac three years ago. When I told my urologist I had celiac, he immediately said the celiac could very well be causing the IC. The gluten free diet has definitely helped my IC.<br/><br/>
(Comment posted by Loretta at 5:38 am, Thu 20th Nov 2008)]]></description><author>no@spam.com (Loretta)</author><pubDate><![CDATA[Thu, 20 Nov 2008 05:38:54 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3125</guid></item><item><title><![CDATA[Comment #10]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3238</link><description><![CDATA[Wow, I just so happened to find this site because I just found out that I too have celiac disease. I was diagnosed with IC in Nov of last year. They found it while doing my hysterectomy because of endometrosis. I found out also 2 weeks ago that I am allergic to milk, eggs, soy, wheat, peanuts, and corn. I am starving to death. I am new to all this. I am 30 years old and feel like I'm falling apart.<br/><br/>
(Comment posted by stacie at 5:28 pm, Wed 17th Dec 2008)]]></description><author>no@spam.com (stacie)</author><pubDate><![CDATA[Wed, 17 Dec 2008 17:28:54 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3238</guid></item><item><title><![CDATA[Comment #11]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3475</link><description><![CDATA[Hallelujah! After ten years of debilitating symptoms- stomach pain, chronic constipation, cystitis that keeps me up all night and kidney inflammation and pain- this is the first explanation that makes sense. I have been to dozens of doctors, conventional and otherwise, have been on Biltricide, six months of Diflucan and other disgusting natural anti-parasite medications but every time I stop the anti- candida diet that I've been on and off for the last five years I'm back in square one. Surely this is enough time to have starved a fungus! I have acupuncture once a week to help the pain in my legs and lower back (also retain a lot of water in my legs) and the painful meridians are always bladder, kidneys and stomach. I have worked out that its sugars and gluten that I'm reacting to, which is why I Googled it and found your info. Thank you for making sense of this ongoing hell. I already feel less physically agitated and hope to be able to finally get some sleep! By the way, if I react so strongly to gluten, does it mean I have Celiac?<br/><br/>
(Comment posted by Suzy at 10:30 pm, Wed 25th Feb 2009)]]></description><author>no@spam.com (Suzy)</author><pubDate><![CDATA[Wed, 25 Feb 2009 22:30:03 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3475</guid></item><item><title><![CDATA[Comment #12]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3629</link><description><![CDATA[I too just stumbled onto you site.  I was diagnosed with IC about 3.5 years ago and even with all the medications it is getting progressively worse.  I met another doctor and she said I should have my stool sampled for gluten allergies. Bingo, I have gluten allergies.  Makes sense my maternal aunt has  celiac, my mom lupus and my sister has the skin irritation (I just told her to get tested for gluten as she is taking risky expensive shots).  I have been gluten free for about 10 days now and have not noticed any substantial changes but I expect this will take some time.  Did not know your intestines are about 70 percent of the body's immune system.

After doing research on the GAG layer I am taking a lot of glucosamine/chronditan, elmirin, an antihistamine and of course gluten free.  will see what happens.<br/><br/>
(Comment posted by Pam at 10:18 am, Sun 5th Apr 2009)]]></description><author>no@spam.com (Pam)</author><pubDate><![CDATA[Sun, 05 Apr 2009 10:18:15 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3629</guid></item><item><title><![CDATA[Comment #13]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3870</link><description><![CDATA[After a long time, I was diagnosed with interstitial cystitis about 10 years ago. Then I had a bladder distention and was on Elmiron for a couple of years. It seemed to affect my gall bladder, which went out after a while, so I stopped taking the Elmiron after a couple of years.  Then, about three years ago, I felt like I was getting a lot of UTIs, but nothing was showing in my urine. I was pregnant at the time, so it was not followed-up on by my doctors very much--it's all about the health of the fetus and all of your vitals looking good. My son was born about 22 months ago and I have had chronic constipation since then, fo no good reason.  I am the eat fiber/drink water/be active/eat healthfully queen.  The symptoms really came to a head about a month ago again, but I did not consider IC at first.  About 3 weeks ago, I noticed that my nausea got really bad when I ate wheat products, so I went basically gluten-free.  Voila.  Very little nausea!  But I still have intractable constipation and now I am having UTI symptoms.  I have to wait many days for a consultation, and who know how long after that to have another distention + Elmiron, etc.  I will drink tons of water, take a bit of Ativan to help me sleep, eat very little & nothing with gluten in it and try to get by.  So painful, so over-taking.

I can hardly believe I found this site, where so many others have had the gluten-IC thing both happen.  Probable link, I am convinced.  Wish researchers really knew about this so I could have avoided all of this discomfort and even fear.  Sounds like a good grant proposal opportunity to me.  Any physician/researchers out there inclined to study this?<br/><br/>
(Comment posted by Sue at 5:22 pm, Thu 4th Jun 2009)]]></description><author>no@spam.com (Sue)</author><pubDate><![CDATA[Thu, 04 Jun 2009 17:22:58 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment3870</guid></item><item><title><![CDATA[Comment #14]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment4132</link><description><![CDATA[I have had Interstitial Cystitis for two years now (possibly 20 in a milder version). I have had a bladder distention. I have been taking Elmiron and Hydroxyzine for a year now. I recently finished 6 months of bladder instillations. After a colonoscopy the doctors suspect Crohn's or colitis but can't make up their minds. I have been to a naturopath and started a no sugar/gluten/dairy/caffeine diet. It has been a brutal two weeks. I just can't handle the symptoms any more. It is so hard to tell if is my bladder or my bowels that are in pain. Maybe the gluten is the problem. I guess I will wait and see.<br/><br/>
(Comment posted by Kris at 5:39 pm, Mon 27th Jul 2009)]]></description><author>no@spam.com (Kris)</author><pubDate><![CDATA[Mon, 27 Jul 2009 17:39:34 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment4132</guid></item><item><title><![CDATA[Comment #15]]></title><link>http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment4858</link><description><![CDATA[I have recently been diagnosed with IC and gluten sensitivity.  I have been sick for 27 years, diagnosed with chronic yeast infections, migraines and then fibromyalgia.  I have just begun the gluten-free diet.  This is hard but if it is the answer to years of suffering I would like to know so that the next 27 will be better.  We need physicians that can connect the dots!<br/><br/>
(Comment posted by Janice at 2:50 pm, Thu 5th Nov 2009)]]></description><author>no@spam.com (Janice)</author><pubDate><![CDATA[Thu, 05 Nov 2009 14:50:26 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/91/Interstitial-Cystitis-and-Gluten-Intolerance.html#Comment4858</guid></item></channel></rss>