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<channel><title><![CDATA[Celiac Disease & Gluten-free Diet Information Since 1995 at Celiac.com - Comments for blog: M.Y.O.B. vs the Desire to Help:  Does Concern Ever Win Over Respecting Privacy?]]></title><link>http://www.celiac.com</link><description /><language>en-us</language><copyright><![CDATA[http://www.celiac.com]]></copyright><generator>N/A</generator><webMaster>scott@celiac.com</webMaster><lastBuildDate>Sat, 21 Nov 2009 06:01:48 PST</lastBuildDate><ttl>20</ttl><item><title><![CDATA[Comment #1]]></title><link>http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment2879</link><description><![CDATA[Hi Wendy!  I admire your intuitive and medical abilities, as I am sure that they have helped many.  I suppose the overall answer is: it depends on the person.  
Your above description (puffy with butterfly cheeks) largely describes a very close relative.  My own genetic testing (which found two copies of the genes for gluten sensitivity) is proof enough (for me anyway) that he should consider trying out a gluten free diet. But it is ultimately his choice, and I have been pretty much forbidden from continuing my urging for him to do so.  
It is a tough call, I love this family member so I suppose I will never give up trying to get him to at least try it for a week and see if there is improvement.  But (as much as I hate it) I must also respect his own choices.<br/><br/>
(Comment posted by Kristen at 10:42 am, Wed 24th Sep 2008)]]></description><author>no@spam.com (Kristen)</author><pubDate><![CDATA[Wed, 24 Sep 2008 10:42:49 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment2879</guid></item><item><title><![CDATA[Comment #2]]></title><link>http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment2976</link><description><![CDATA[I think some people don't like to hear that you might know more about them than they know of themselves.  My husband's relatives all show signs of having celiac but when I've suggested getting tested they are willing to rely on a misdiagnosis rather than accept that I might have pegged it right.  Now they are avoiding all lactose yet are still having serious issues.  I find that if you are vocal sometimes it blows up in your face.  I agree, it's a tough call - especially in your case being a medical professional.<br/><br/>
(Comment posted by lunah at 1:16 pm, Sun 12th Oct 2008)]]></description><author>no@spam.com (lunah)</author><pubDate><![CDATA[Sun, 12 Oct 2008 13:16:20 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment2976</guid></item><item><title><![CDATA[Comment #3]]></title><link>http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment3018</link><description><![CDATA[I knew a person whose daughter has Chron's.  I'd see this precious little girl eating cheese, noodles, breads, cakes - a diet of mostly gluten and dairy.  I'd be thinking this is the wrong diet for a girl whose so sick.  I did finally say something about the research I've read but her response was the doctors haven't mentioned that and it's too hard to get her to eat other food.  Ultimately, the person is going to do what they want.  I think it's sad, but I feel that if I know something, I need to share it and they can do what they want with the info.  You never know when you might influence a person to try better things for their health.<br/><br/>
(Comment posted by Heidi at 11:41 am, Wed 22nd Oct 2008)]]></description><author>no@spam.com (Heidi)</author><pubDate><![CDATA[Wed, 22 Oct 2008 11:41:22 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment3018</guid></item><item><title><![CDATA[Comment #4]]></title><link>http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment3086</link><description><![CDATA[I have no reservations about speaking to complete strangers about Celiac Disease. In fact it's an ongoing joke in my family that any symptom is diagnosed by me as Celiac Disease.  A Lot of the people I have spoken with don't take it seriously, but a few do. I know that I have personally helped 2 people get diagnosed, 1 little girl was 6 and a woman that was having a hard time getting pregnant. All of the people that don't take my words seriously I forget about, but I will never forget about the people that I've helped. The reason I think this is so important is because I knew someone who had Celiac disease and spoke to me about years ago, however she didn't tell me how common it was, or that my symptoms sounded like Celiac Disease. Had she bluntly told me I could have avoided my daughters seizures a lot sooner!<br/><br/>
(Comment posted by Cheyenne at 6:06 pm, Sun 9th Nov 2008)]]></description><author>no@spam.com (Cheyenne)</author><pubDate><![CDATA[Sun, 09 Nov 2008 18:06:35 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment3086</guid></item><item><title><![CDATA[Comment #5]]></title><link>http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment3339</link><description><![CDATA[As a registered dietitian and specializing in adverse food and chemical reactions (including IBS, celiac, etc) - I often find people complaining of symptoms that I'm pretty sure I could help with. However, I also don't want to be 'the food police' as that's a turn-off socially to most people.

I have learned to ask, 'Do you mind if I offer you some unsolicited advice?'  If a person says yes, I gently speak my piece. If they say no, then I leave it at that. 

Interestingly, most people say yes, but since I asked 'permission' they aren't offended or put off. 

You might want to consider those few words of permission to break the ice, and maybe save them a lot of misery.<br/><br/>
(Comment posted by Jan Patenaude, RD at 3:29 pm, Mon 12th Jan 2009)]]></description><author>no@spam.com (Jan Patenaude, RD)</author><pubDate><![CDATA[Mon, 12 Jan 2009 15:29:58 PST]]></pubDate><guid isPermaLink="true">http://www.celiac.com/blogs/97/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy.html#Comment3339</guid></item><item><title><![CDATA[Comment #6]]></title><link>http://www.celiac.com/articles/0/1/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy/Page1.html#Comment3843</link><description><![CDATA[I wish the article would have given more information on kidney disease and celiac disease. I feel it's an important topic.<br/><br/>
(Comment posted by Patty at 6:07 pm, Sun 31st May 2009)]]></description><author>no@spam.com (Patty)</author><pubDate><![CDATA[Sun, 31 May 2009 18:07:52 PDT]]></pubDate><guid isPermaLink="true">http://www.celiac.com/articles/0/1/MYOB-vs-the-Desire-to-Help--Does-Concern-Ever-Win-Over-Respecting-Privacy/Page1.html#Comment3843</guid></item></channel></rss>