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Emotions

Posted by , 08 September 2005 · 462 views

Today is a really bad day for the exhaustion, even with the liquid vitamins. And now I am in a very deep emotional slump. I have been raining tears continuely for a long time today. Today and too many other days this past year, I wonder why I was so happy that they diagnosed celiac disease. Another two weeks and I would have died. I wish that I had. I really don't mind the diet and it really is not that hard once you get the hang of it. But, my quality of life really sucks. When we moved here 4 years ago, we were so busy building a home and getting settled, that I only had time to make a couple of friends. And they did not turn out to be very good friends as my diet is so restrictive that they don't want to be bothered to invite us over for dinner, etc. We do meet one couple for dinner now and then, but since the diagnosis, we have not again been invited to eat at their home. We had a very few casual dinners in the last home, after the diagnosis (and a partial recovery), but because of the tiredness we are still not settled enough for entertaining in this home. When they finally get our patio fixed, I am hoping to have a barbecue. I always have hopes of going away for a few days, but I would not have the energy to pack a bag. This is so much worse then I imagined. I used to be so strong and a fighter over all my illnesses. I am just not me anymore. And I don't like who I have become. If this is all I have for the rest of my life, then I wish it was over. No, I won't do anything, because it would destroy my husband. But, going to the grocery store, Whole Foods, reading books and out to dinner three times a month is not a life. I am sorry to be so negative.

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I'm so sorry you're having a bad time. Would you consider taking anti-depressants to get you through this period...maybe just until your system can recover somewhat or the dr.'s find out what's causing your fatigue?

Where do you live? Maybe you could find a celiac support group. We have one in the Dallas area. I've only been to one meeting, but the people were super nice and they do things together like dinners and holiday parties, etc.
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I'm so sorry you're having a bad time.  Would you consider taking anti-depressants to get you through this period...maybe just until your system can recover somewhat or the dr.'s find out what's causing your fatigue?

Where do you live?  Maybe you could find a celiac support group.  We have one in the Dallas area.  I've only been to one meeting, but the people were super nice and they do things together like dinners and holiday parties, etc.


Thank you Mosaics for your nice email. I take two pills for essential tremors and one is an anti-depressant. Your suggestion has merit tho as the AD I take is a very small dosage. I know it is OK for me to take more then the one. So, tomorrow I will do that. I have not found a celiac disease support group in this area. I was the one that my doctor sent people to. I was to show them how to get started on the diet and how do the research that they need to do to get well. After that I never saw the people again. My doctor just ran the last of the tests for the fatique and that is probably why I am depressed. I take a pill for my thyroid and the levels were in the normal range at the test. I was tested for anemia, the vitamins and so many others that I can't remember. All were in the normal range. Which means this is where I am at in my recovery. 20 months and I feel my hopes for a decent retirement are smashed. This is not how I pictured our retirement. I thought we were going to be going places together. I WILL NOT ask my husband to be a captive in our home - just because I am. Tomorrow we will drive to Whole Foods and Cosco. Whole Foods is a 1 1/2 hour round trip and the items I need at Cosco make it too heavy for me to push the cart. So my husband will drive me. Do you know that before we retired, I had a gym in my basement. I had a whole weight system that I used 3 times a week and walked on a treadmill 5 to 7 days a week. I just can't imagine that kind of energy anymore. I will take the extra medicine tomorrow morning. I usually take the essential tremor RX's at bedtime, because I was concerned that they would make me more tired.
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