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Update: The Big Day- First Trip To The Gastroenterologist

Posted by quakenbake, 21 December 2010 · 316 views

Doctor testing diagnosis
The doctor's visit went really well, I think. I am so thankful to have the GP that I do and that I am in Houston right now with some really amazing medical care. My GP sent me to an absolutely wonderful specialist who's been in the field for 40 years, I believe, and seemed incredibly knowledgeable, friendly, and helpful. He didn't want to say I had Celiac/Coeliac just yet, which I can certainly understand and respect since I haven't had any tests yet (although part of me was kind of hoping for an instant diagnosis). He did, however, acknowledge that something was indeed very wrong. He wants to see all of my scans, tests, etc. that I've had over the past year or so. He's hoping that maybe one of the many CT scans I've had will show something- he said a CT scan is like a computer, a good one can do a lot and really tell you all kinds of things. I have to make calls to Canada, Florida, and to hospitals here in Houston (I should really not travel so much) to get the information I need, but it will be worth it. On top of that, he has ordered a full blood screening, including genetic testing, for both Celiac/Coeliac and for IBD.

I'm still really hoping for the Celiac/Coeliac- it seems so much easier to cope with than something like Crohn's. I'm not sure if my symptoms really fit any of the inflammatory bowel diseases anyways, but better safe than sorry. He also looked at my hypoglycemia (which I had been treating as a disease itself due to the large amounts of diabetes on both sides of my family) and the fatigue that I had associated with it (apparently that wasn't right) as symptoms of something bigger. He said that people naturally had hypoglycemic tendencies, but the fact that mine was so severe was most certainly because something else was causing it. Same with the fatigue- low blood sugar should only cause the shakes and general woozy feeling, not make you this tired. He certainly seemed interested in the fact that my stomach cramping and such stopped with the gluten-free diet during the 4-5 days, so hopefully that's a good sign. I can't believe I'm saying that Celiac/Coeliac is a good thing, but I would be so relieved if that's what it was (it could explain everything as far as I can tell).

The other tests! I almost forgot about all of that. I was originally scheduled to go in to see the doctor for my consultation January 3rd, but due to a cancellation, I was able to get in today. Due to some other miracle cancellation, I am able to get in for my endoscopic biopsy NEXT WEEK. Talk about lucky or some sort of Christmas miracle. It does seem silly to be praying for something like Celiac/Coeliac, but words cannot express how much I wish that's what it turns out to be. I've already scoped out gluten-free restaurants and bakeries in all of the cities I tend to haunt. I'll be going back to eating gluten-free right after my biopsy since I did start to feel so much better last week. I will probably eat gluten-free regardless of what the tests say, to be honest. Let's just hope that since everything is happening so quickly and smoothly right now that it's a sign of good news and good health to come.

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