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2 Weeks In.......

Posted by jerseygirl221, 14 September 2011 · 238 views

Ok, so I received the phone call from my Dr. on 8/31/11 telling me that I have Celiac Disease, and I need to start a gluten-free diet immediately......so I did that. I had no idea where to begin, but luckily my hubby was supportive, and did alot of research. So,fast forward to today-2 weeks in. I have been experiencing symptoms that I would think are like detox or withdrawl symptoms.....I thought this was supposed to make me feel better. I left work early yesterday because I was so nauseous and didn't think I would make it through the day. I went home and slept for 3 hours. Today, I was awakened at 5:30am with the yucky tummy feeling. And achey....like I have experienced on and off for the past year. So, I called out of work....I'm sure the boss loved that :( So, haven't eaten anything yet today, as my stomach just doesn't feel hungry.

I have 2 kids-my older son is 11 and my younger son is 9. I see my GI doctor on 9/20, so I am going to ask him how to go about getting my boys tested. My mom is getting tested, as is my younger brother. My mom and brother both have stomach issues similar to what I had. My younger son does not have stomach issues, but has attention issues. If this can be resolved by way of a diet, I will be relieved. I do not want to medicate him. Then there is my hubby-very supportive guy, as I mentioned before. He has been through alot with me this past year. I started in October of 2010 feeling fatigued and achey-not able to get out of bed for 3 days. I went to my family dr who said that I probably had some kind of viral thing going on, and did a thyroid panel just to make sure. The TSH test came back in range, so he referred me to an Endocrinologist. He did an ultrasound and a more in depth Thryoid panel-both with normal results. He suggested I see a Rheumatologist. So, off to the Rheumatologist I went, who tested me for everything known to man......EXCEPT Celiac.......They tested me for MS, Lupus, Lyme, and many other things-total of 12 vials of blood-yuck & ouch! Everything came back ok, except for the Vitamin D which was low-he said nothing to be concerned with! Meanwhile, I missed alot of work for these extreme flare ups that I was experiencing. Finally in July, I went to see my GI doctor, and asked him if he would test me for Celiac.
I felt relief when I received my diagnosis-after the initial reaction.....crying of course! But here I am 2 weeks later. I know I have a long road of recovery ahead of me....which is why I chose to start my blog-I think it will be good for me to document my journey and share it with other people who understand where I am coming from......

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Bittersweet, isn't it? Not fun getting a dx that has no cure, but satisfying to finally have cracked the case. So, I'm sorry AND congratulations to you.
Well, you're still sick. The probability that someone new to the diet is executing it perfectly, is very low. I read it takes 3 years to get a good handle on the diet. Unless you're eating nuts and berries, and even then, there could be gluten getting into your system, either hidden in food (did you know soy sauce, dried fruit, chocolate, ice cream, root beer, yogurt, etc. can have gluten?) or via cross-contamination (did you know you have to have a separate toaster and separate jars of peanut butter, jelly, toothpaste, etc. because the amount of gluten that harms us is microscopic?).
If you kiss your husband, and he has eaten gluten, you can get sick. Even if you accidentally drink from his glass. Did you know that you have to change out the shampoo and makeup that has hydrolized wheat protein, because when you shower it gets on your face, and likely the lips and mouth? Did you know that people newly diagnosed often have trouble digesting gluten free baked goods and dairy? When the gut is damaged, I've heard doctors say it takes at least six months to notice healing. Click here for information I got from attending a speaking event featuring Dr. Rudert.
Many people find success (and peace-of-mind) with a gluten free house where no gluten is allowed, and non-celiac members only eat gluten "out".
Have you gotten any care packages introducing you to the gluten free lifestyle? Here is a link to one from the UIC Celiac Center. And the Gluten Intolerance Group and others like it also offer free kits or care packages to help gluten free newbies adjust.
Have you found a gluten free dining group or support group in your area? Check on meet up dot com or do a search for these wonderful resources to meet others with your health issues.
We move frequently and have found groups like these in every city.
Finally, I'd recommend that you attend a celiac/gluten free conference and food fair. It's a day filled with doctors and dieticians speaking on the facts, vendors giving out samples galore, and others like you gathering and sharing. It's like Disneyworld for celiacs. I've been to two cdf ones.
Here is a link to more newbie advice I've given.
Best wishes to you!
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I feel so lucky to have found the doctor that I have. Her title is D.C.,Dipl.AC
She did a battery of tests on me to find out all that I have sensitivities too. She put me on a detox plan that was awesome to get all the toxins out of my body. She treated my H Pylori and I have not felt this good in 3 yrs!!
Kay
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I am 27 and feel your pain. The short version: IBS since I was little, arthritis at 20, migraines at 22, mild depression, gallbladder removal at 24, and chronic fatigue, then in 2009 the massive bilateral pitting edema started and the heavy testing began. The "IBS" has caused several severe intestinal infections nearly hospitalizing me every time. I have spent so much time and money and not too mention tears trying to loose weight. Nothing has ever been notably wrong except for the emergency gallbladder removal. After some sudden weight gain the was unexplained and more crazy swelling I went to an Endocrinologist. Nada!!!! I am soo exhausted at this point. I see my blood work and consistently my Vit D levels are low the nurse says nothing until I ask about it. After all the money, pain and mostly the emotional pain. I FIGURED IT OUT!!!! GLUTEN!!!! Spoke to my GP about the mirage of symptoms and the Vit D.! Bingo!!!

Now the hard part I moved to the Carribean for medical school with no Gluten free guarantees, no oven, and no one who understands!!!! I keep getting into the gluten some how, mostly because I am reluctant to give up everything. Brendygirl your post really helped. I don't feel so inadequate it really is hard. My roommate eats gluten and we share dishes occasionally or drink after one another. I didn't even consider the shampoo and toothpaste. Thank you! I am having worse and worse reactions every time I get into it. Now instead of slugging through the day I feel like I have the worst flu. So I have been attempting Gluten free since the end of July...here is hoping I figure it out soon. Any support would be greatly appreciated, it so hard being in a small distant country away from family and all that is familiar, but no challenge is to big to get through right. I CAN DO THIS! i think?
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