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Celiac for Life

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KristaleeJane
So I finally had the biopsy about 2 days ago, so I am now gluten free YA! I am so excited about that, Finally. The biopsy went pretty good, it takes like 5 mins to do, and you go home like an hour later, so that was good. The doctor said it looked "Normal" but that they usually do look normal until a pathologist looks at them under a microscope, but I was free of ulcers anyway. He said the results can take up to 3 weeks, so I won't really know anything until then, but he said start the diet anyway and then the doctor will more than likely refer you to a dietician.
Even if the results of the biopsy come up OK or normal, my blood work didn't so are they going to say I don't have celiac, or what? How can someone have a high count of IgA anitibodies and then get a negative biopsy and the doctors say "oh your fine, your biopsy was negative?" I am sure that happens all the time. I know it has only been a couple of days but I see changes already. Like my Bloating is gone, more energy, and just a lot of small things that I can tell are getting better. It is very exciting to finally know what is wrong and be able to control it with what you eat. I am still having a hard time reading the labels on things, there are so many things that aren't clear. But I guess there is a lot to learn so Hopefully it will get easier.
I am still having a lot of cramps and pains in my legs and hips, sometimes they last all day and night. I must have some sort of definciacy, I am going to get my doc to do a full blood work and all that.
KristaleeJane
So I now have one more week before my biopsy, the waiting really sucks, regarless of the results I am going gluten free. I read on here how inconclusive the results can be for the biopsy, and that really blows my mind as the doctors say that the biopsy is the only way to get a 100% true diagnosis. Then what are the results from the blood work worth. I mean if someone has High blood work and the biopsy is negative then what are you supposed to do.
This really sucks not knowing, Well I mean I know myself but the doctors think that the biopsy is the only thing to confirm it.
KristaleeJane
So I seen the specialist yesterday and discussed the endoscopy/biopsy and believe it or not I only have to wait another week and a half to have it done and then I can go gluten free. He really told me to try and keep eating gluten so the results will be more accurate. If he had of said anything over a month I probably wouldn't of waited. I mean my blood work results were so high that I probably don't even need to get this done but he said you really sure to be 100% sure considering you will have to go gluten free for the rest of your life. So I am super excited to get started and then hopefully the next step will be pregnancy, if I can get pregnant.
KristaleeJane
Two more days till my consultation with the gastronlogist, hopefully after that my appointment for the scope will be relatively short becuase I don't know how much longer I can keep eating gluten, it really feels like its killing me. I also have another appointment with my family doctor to request complete vitamin and mineral blood work test, since she never did it last time I was in. I also go for my lactose intolerant test on Tuesday, but I really don't think there will be a problem there, but ya never know, even though my blood work came back positive for celiac. The waiting game is hard, especially eating everything I know is gona make me me feel sick and literally exhausted.
Well Will post my results soon hopefully and then I can go gluten free, I am so excited to start the diet, I hope that I can stick to it, I am sure I will once I see how much better I feel
KristaleeJane
Well today I thought Might be a good day and so far it has been not too bad, My muscles are aching really bad in my shoulders and neck. My stomach was bothering me earlier so I took some of my Pariet, which usually makes those terrible aches and pains go away. For the muscle aches I usually pop a few IB profen or advil. Wish I still had some of those really strong pain killers those would definatly make the pain go away.
Only a few more days till I go see the doctor that will be doing my biopsy for a consultation, Hopefully he will tell me to come back shortly, I can't go on like this much longer. I am also having a new test done for lactose intolerant on the same day. I made an appointment with my regular family doctor to have some blood work done and possibly even a bone density scan, which sounds scarey, but we'll see.
For anyone out there who has had the biopsy done, is it really painfull? Do you get put to sleep, or give medication? How does it work? I really hope I don't end up being lactose too, on top of celiac, that would eliminate a lot ot foods.
Glad the weekend is here to relax, I am so tired all the time, constantly just have no energy, hopefully things get better soon!
KristaleeJane
Well I am happy in a way that I finally found out what is going on with me, and why I have felt this way for years now. The only crappy thing is that I know have to wait to get the biopsy done before I can start the gluten free diet. I have a consultation with the surgeon on tuesday april 1st, and then who knows when the actual biopsy will be. I actually went shopping yesterday and bought some gluten free food, because I was so sick the past few days, I do feel a bit better but still very tired all the time and a lot of headaches.
The thing that made me the most mad about this whole experience was my doctor, who told me that I should continue to try and concieve, she knew that I would not be on the gluten free diet until after my biopsy and she didn't even bother to check my vitamin levels to see if I was deficiant in anything. Obviously she didn't know anything about how this can effect babies ie miscarriages, pre-mature babies and many other things. Doctors really scare me now, after I got online and starting reading everything about waiting until your gluten free to get pregnant and waiting until your insides heal so you can absorb nutirients better, I was shocked!! So we've decided to wait, and I am glad we did, unless there is some chance that I cannot have kids, which looks like that is what happens with a lot of celiac women, pretty scary, actually.