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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
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Patience, Patience.........

Entry posted by %s - 275 views

Mine is wearing thin. I still don't have test results from the stool samples, and don't expect biopsy results until early next week sometime. It's been really hard to sit around and NOT dwell on the possibilities.
And if those come back negative, what next?
I still need to address having the rest of the Celiac Panel done (they only tested for tTG IgA), but other than that, and asking about some of the 'high' reports on my CBC, I'm not sure what the next steps are.

I just know I'm not feeling any better.
Gas, cramping/abdominal pain, and bloating have been present every day since the scope, in varying degrees.
Night sweats have been prevalant this week - actually had to get up and change my night clothes twice this week.

I tell ya, I'm ready to call it quits on the testing and just go gluten-free again. And I haven't even been through that much compared to some here. I don't feel like I can give up on the testing just yet though. I'd like to have vitamin deficiency and/or allergy testing done if I can get the doc to do it. I guess I'm just tired of waiting, and not knowing.
I don't feel like I've gotten anywhere with this stuff.

Sorry for the pity party.........I'm just tired and frustrated.


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