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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Celiac Blood Work Negative. Should I Have Endoscopy Done?

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I was diagnosed with IBS when I was 12 years old. I am 37 now. I have what I call "IBS episodes" of diarrhea, SEVERE pain, sweating, chills when I eat certain foods. I can't pinpoint it to wheat alone. It doesn't happen all the time, but I suffer from these "episodes" at least 4-5 times a week.

My 4-year-old was just diagnosed with Celiac. She was asymptomatic. She has a genetic disorder that we were about to start HGI in her. One of the tests they run before starting HGI is a celiac panel. Her numbers came back as a "weak positive." Had the endoscopy done. Showed early stages of celiac. Her gene test also came back as the highest, 31x, and he said she had the gene also. She has been gluten-free since January now.

I got tested when we got her diagnosis. Mine tests were negative. I know he tested the Iga (I think that is what it was) to make sure I was producing enough for the test to be valid, something like that. I don't have the values. Now he wants to do a colonoscopy to check for other things, and says he wants to do an endoscopy also since I will be under anyway.

Question is could I possibly have celiac if blood work was negative?

Thank you for all your help and advice.

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Some people test negative to the blood tests but have a positive endoscopy.  I would suggest you look at the Newbie thread incase you may be missing gluten which causes your symptoms.  You should be healed after so long on the diet which means that your endoscopy may be negative if you are not getting enough gluten.

 

You might try moving this to the coping or Diagnosing section of the forum which may get you more responses than the blog section will.

 

I hope you will get a definative diagnosis, and will be over those awful symptoms soon.

 

D

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Some people test negative to the blood tests but have a positive endoscopy.  I would suggest you look at the Newbie thread incase you may be missing gluten which causes your symptoms.  You should be healed after so long on the diet which means that your endoscopy may be negative if you are not getting enough gluten.

 

You might try moving this to the coping or Diagnosing section of the forum which may get you more responses than the blog section will.

 

I hope you will get a definative diagnosis, and will be over those awful symptoms soon.

 

D

Thank you for your response. I am new to the site, so just learning my way around. I just re-posted in the "testing, pre-diagnosis" forum. I appreciate your advice and help :)

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