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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
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Thanks, Doc

Entry posted by %s - 14,777 views

So I went to my follow up appointment with my doctor today, 2 weeks since going gluten free. After HE said to go gluten free and it will help a great deal. So I go in, all excited, that in 2 weeks time my health has improved drastically (I was also put on Savella for fibromyalgia, and taken off my other fibromyalgia medication.)

Anyway, I love my doctor, he's the only one who has ever listening to me - really listened - and he's overall good with a great bedside manner. Anyways, so I'm excited and he walks in and asks how it's going, I said since going off gluten things have improved a great deal, and he said "I don't necessarily like to call it a gluten free diet, rather a stay away from breads and pastas diet". Ummmmmm WTF?!?! :blink: :wacko: :huh: :o ^_^

This threw me off... First off, I had a positive bloodwork antibody test (inconclusive biopsy), and at our last appointment he was telling me that Celiac is one of the most underdiagnosed diseases out there, even with biopsy. Then he says what he said today?!?!

Ah well, just kinda made me angry at the time being. Still kinda bothering me. I think because he totally minimized the [b]a-[/b] seriousness and [b]b-[/b]progress i've made in such a short time and [b]c -[/b] this huge lifestyle change.

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I can relate to your story- sounds like you have good reason to be frustrated. Don't let you frustration ruin all the progress you've made. You are feeling better so don't let anyone else tell you otherwise. :)

I tested positive for the blood test that screens for celiac disease and I also tested positive in a different test for lactose intolerance. My biopsy came back normal but no one wants to confirm or deny a diagnosis of any sort. Now they want to do a colonic manometry at the end of August. Why? I have no idea. I've had so many weird tests for over a year and have seen so many doctors. 

I'm taking my health into my own hands and beginning the gluten free dairy free diet tomorrow. Next step for me is to call Monday morning requesting genetic testing for Celiac disease, but in the mean time I'm not going to wait around to be labeled "official" by the world. I want to feel healthy- I'm so ready to go grocery shopping :)


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