Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac Disease - Parents of Kids or Babies With Celiac Disease
83 83

Discussions with other parents of kids or babies with celiac disease.

6,433 topics in this forum

    • 4 replies
    • 1,141 views


  1. Ads by Google:
    • 25 replies
    • 7,219 views
    • 1 reply
    • 1,041 views
    • 15 replies
    • 1,312 views
    • 16 replies
    • 1,304 views




    • 11 replies
    • 2,980 views
    • 1 reply
    • 974 views
    • 5 replies
    • 912 views
    • 7 replies
    • 956 views
    • 6 replies
    • 1,706 views
    • 4 replies
    • 973 views
    • 5 replies
    • 1,025 views
    • 8 replies
    • 1,653 views
    • 4 replies
    • 1,219 views
    • 2 replies
    • 726 views
    • 11 replies
    • 879 views
    • 2 replies
    • 812 views
    • 3 replies
    • 1,056 views
    • 6 replies
    • 882 views
    • 14 replies
    • 1,439 views
    • 4 replies
    • 1,038 views
    • 6 replies
    • 1,036 views
    • 12 replies
    • 1,265 views
    • 10 replies
    • 1,092 views
    • 12 replies
    • 6,363 views
83 83
  • Forum Statistics

    • Total Topics
      104,648
    • Total Posts
      921,601
  • Posts

    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
    • Try to stick to a whole foods diet.  Things like unseasoned stew, soup, etc.  Things easy-to digest, preferably not processed by a anyone except you.  Too often new celiacs start using gluten-free foods (cookies, bread, crackers).  Your body is not used to these grains and they often contain lots of junk.  For example, I react to Xantham gum.  It does not bother my gluten-free hubby, but it gets me every single time!   Did you read our Newbie 101 thread under "Coping"?   It contains lots of valuable tips.  Make sure those meds are gluten free.  Supplements too.   I hope you feel better soon!    
    • Here are the actual tests.   http://www.cureceliacdisease.org/screening/ Insist on the complete panel.  Let them know (your doctor) that your father had celiac disease.   Document in writing!  If you have celiac disease, your life can be improved.  All the things I attributed to aging were actually related to celiac disease.  It is never too late to feel well!  I am in my 50's but my Aunt iis 81.  We celebrate a Gluten free Thanksgiving every year!   Oh, my kid does not have celiac disease, but she is tested every few years even though she is symptom free!  There are silent celiacs.  My symptom?  Anemia.  No tummy issues.   Please advocate for your health.  Keep all records.  Doctors can not ignore written facts and requests.    
  • Topics

  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined