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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,173 topics in this forum

  1. AlyO
    trents
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    CelestialScribe
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  5. RachelParker
    Scott Adams
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    DebJ14
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  7. GlutenbusterMama
    Scott Adams
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  8. tannilisa
    Beverage
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  9. Steve P
    Wheatwacked
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  12. Rogol72
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  13. mamaduck
    Guest
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  14. Rhyanna C
    Wheatwacked
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  15. Stulos
    shadycharacter
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  16. GGSE
    ForwardMotion
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  17. GGSE
    Scott Adams
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  18. jwhitty
    Russ H
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  19. Julia clark
    eKatherine
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  20. scowt1
    Scott Adams
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  21. partnerofaceliacperson
    Scott Adams
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  22. Tracy N
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  23. KateB.
    Wheatwacked
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  24. Sarah8527
    knitty kitty
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  25. Kels2022
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  26. Sevans10
    Scott Adams
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  27. Shealyn Hyde
    RMJ
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  • Recent Activity

    1. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      6

      Peripheral Neuropathy

    2. - cristiana replied to djmu's topic in Related Issues & Disorders
      6

      Peripheral Neuropathy

    3. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      6

      Peripheral Neuropathy

    4. - trents replied to djmu's topic in Related Issues & Disorders
      6

      Peripheral Neuropathy

    5. - shadycharacter replied to Linedancegal's topic in Introduce Yourself / Share Stuff
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      25 year biopsy confirmed/ate pizza with no ill effects?


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  • Posts

    • Tlbaked13
      Thank you guys for your input I am loving this forum more and more and it hasn't been a hour!
    • cristiana
      Hi Tibaked If you are diagnosed with coeliac disease, you may find that all sorts of symptoms will be alleviated by a gluten free diet.  GERD and lactose intolerance can be greatly reduced if not eliminated once the gluten-free diet is adopted.  However, if you want to be tested and officially diagnosed you will need to have been consuming gluten until your blood test/endoscopy.   Although I don't have the same sensations you describe before my diagnosis, I frequently woke up with numb arms and numb fingers.  I could feel pins and needles in my extremities.  Weirdest of all, the sensation that drops of cold water, like rain, were falling on me, even though the sun was shining or I was indoors. It took time but things got much better after after following a gluten free diet for a while. Of course,  some neuropathy is caused by malnutrition, common in coeliacs when first diagnosed,  so make sure the doctor checks your vitamin (particularly B12) and iron levels. Cristiana
    • Tlbaked13
      Not officially diagnosed yet I goto the doctor a week from today but I'm 110% that will be the diagnosis I honestly can't believe my doctors/health care team hasn't put it together before I mean I'm basically the live and walking definition straight from the book haha I don't think I've ever been so sure on anything before I'm just reqly concerned for this diet I will be living on or diets I guess due to type 1 diabetes, gastroparesis, gerd, celiac disease, and lactose intolerance...what is left? A sand salad with a side of rain water?!? I definitely see a tough future
    • trents
      Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes. 
    • shadycharacter
      Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. 
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