Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


18,880 topics in this forum

  1. Hannah24
    • 7 replies
    • 524 views
  2. RILEYW
    marjoryrw1
    • 10 replies
    • 1.1k views
  3. Cramper
    Taradaktull
    • 23 replies
    • 6.5k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. Rhonda H
    Scott Adams
    • 5 replies
    • 1.1k views
  6. Kaylee G
    knitty kitty
    • 7 replies
    • 818 views
  7. awright24
    Scott Adams
    • 2 replies
    • 827 views
  8. Touche
    • 4 replies
    • 473 views
  9. mack4m
    CatherineWang
    • 14 replies
    • 1.3k views
  10. Rebeccaj
    Scott Adams
    • 1 reply
    • 714 views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. Mlsilva
    trents
    • 3 replies
    • 665 views
  13. Sunflowers06
    Scott Adams
    • 6 replies
    • 1.8k views
  14. Daisy23
    • 6 replies
    • 874 views
  15. Lrgthrcl
    knitty kitty
    • 8 replies
    • 1.5k views
  16. DMulder47
    knitty kitty
    • 14 replies
    • 2.2k views
  17. Katanya
    Scott Adams
    • 10 replies
    • 1.1k views
  18. emilyyy
    trents
    • 8 replies
    • 1.3k views
  19. beeboschmeebo82
    cristiana
    • 5 replies
    • 1.5k views
  20. NikkiRose96
    Scott Adams
    • 2 replies
    • 760 views
  21. Daisy23
    Scott Adams
    • 3 replies
    • 1k views
  22. Jessica K.
    Scott Adams
    • 16 replies
    • 2k views
  23. GJC
    knitty kitty
    • 2 replies
    • 710 views
  24. ffordbush
    • 13 replies
    • 1.3k views
  25. Ecann74
    Andrew Dankanich
    • 6 replies
    • 922 views
  26. KGB1819
    Daisy23
    • 27 replies
    • 3k views
  27. Gini1
    • 8 replies
    • 1.1k views
  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to djmu's topic in Related Issues & Disorders
      7

      Peripheral Neuropathy

    2. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      7

      Peripheral Neuropathy

    3. - cristiana replied to djmu's topic in Related Issues & Disorders
      7

      Peripheral Neuropathy

    4. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      7

      Peripheral Neuropathy

    5. - trents replied to djmu's topic in Related Issues & Disorders
      7

      Peripheral Neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,470
    • Most Online (within 30 mins)
      7,748

    Mimi of 4
    Newest Member
    Mimi of 4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Christiana makes a good point. Long term undiagnosed and untreated (by a gluten-free diet) celiac disease inevitibly results in vitamin and mineral deficiencies because of the damage done to the villous lining of the small bowel - the part of the intestines where essentially all nutrition is absorbed. Keep eating plenty of gluten until all testing for celiac disease is complete so as to render valid test results. Beginning a gluten-free diet ahead of time allows healing to take place and compromises testing. But if it turns out you are diagnosed as having celiac disease, you will want to begin high potency vitamin and mineral supplementation along with serious gluten free eating.
    • Tlbaked13
      Thank you guys for your input I am loving this forum more and more and it hasn't been a hour!
    • cristiana
      Hi Tibaked If you are diagnosed with coeliac disease, you may find that all sorts of symptoms will be alleviated by a gluten free diet.  GERD and lactose intolerance can be greatly reduced if not eliminated once the gluten-free diet is adopted.  However, if you want to be tested and officially diagnosed you will need to have been consuming gluten until your blood test/endoscopy.   Although I don't have the same sensations you describe before my diagnosis, I frequently woke up with numb arms and numb fingers.  I could feel pins and needles in my extremities.  Weirdest of all, the sensation that drops of cold water, like rain, were falling on me, even though the sun was shining or I was indoors. It took time but things got much better after after following a gluten free diet for a while. Of course,  some neuropathy is caused by malnutrition, common in coeliacs when first diagnosed,  so make sure the doctor checks your vitamin (particularly B12) and iron levels. Cristiana
    • Tlbaked13
      Not officially diagnosed yet I goto the doctor a week from today but I'm 110% that will be the diagnosis I honestly can't believe my doctors/health care team hasn't put it together before I mean I'm basically the live and walking definition straight from the book haha I don't think I've ever been so sure on anything before I'm just reqly concerned for this diet I will be living on or diets I guess due to type 1 diabetes, gastroparesis, gerd, celiac disease, and lactose intolerance...what is left? A sand salad with a side of rain water?!? I definitely see a tough future
    • trents
      Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes. 
×
×
  • Create New...