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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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  • Posts

    • JustGemi
      Where would I locate the reference ranges?  I'll take a look at my results again....
    • JustGemi
      Scott,   Can you look at my post and tell me if my numbers are off the chart!?  I won't be able to see my Gastro for another 7 weeks and I am freaking out at the numbers. JustGemi
    • Scott Adams
      Welcome to the forum!  Could you also post the reference ranges for your test results, unfortunately each lab has a different range, so there is no way to interpret your results without that info.
    • Scott Adams
      The number of genes associated with celiac disease is more than two, but there are two main genes that are commonly tested for celiac disease susceptibility. These genes are HLA-DQ2 and HLA-DQ8. HLA-DQ2: The majority of individuals with celiac disease (about 90-95%) carry the HLA-DQ2 gene. HLA-DQ8: Around 5-10% of individuals with celiac disease have the HLA-DQ8 gene. Other Genes: While HLA-DQ2 and HLA-DQ8 are the primary genes associated with celiac disease, having these genes doesn't guarantee that someone will develop celiac disease. Additionally, a small percentage of individuals with celiac disease don't have either of these genes. This suggests that other genetic factors may also play a role, though they are less common. This article has more information about the genes associated with celiac disease:    
    • Scott Adams
      The whole point of the gluten-free diet is to send the disease into remission. For some this process means strong reactions when exposed to even trace amounts of gluten, while for others it seems they have little to no reactions when exposed to larger amounts of gluten. In either case, research has shown that repeated gluten exposure will trigger the autoimmune reaction that leads to inflammation and various damage, as well as to possible additional autoimmune diseases. 
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