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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- cristiana replied to Aussienae's topic in Coping with Celiac Disease64Constant low back, abdominal and pelvic pain!
I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors. Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps. I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage...- abdominal pain
- celiac
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- cristiana replied to Kirbyqueen's topic in Dermatitis Herpetiformis12
Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.
HI @Kirbyqueen That's great news your insurance will be kicking in soon. Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana -
- Scott Adams replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Trying to read my lab results
I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? -
- Kirbyqueen replied to Kirbyqueen's topic in Dermatitis Herpetiformis12Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.
Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in...- 1
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- dixonpete commented on dixonpete's blog entry in Pete Dixon1I started another couple of jars today
Day 2, the day after incubation, I found 1 inactive larvae after sampling both jars. By sampling I mean inspecting about 15 mls of water extracted from each jar. Day 3, nothing. Day 4, I saw one larva in each jar. Day 5, I estimate there were 15–20 larvae in each jar. Enough to inoculate. So I guess that's the answer. 5 days. Waiting l...
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Posts
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I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors. Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps. I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen. I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was.
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HI @Kirbyqueen That's great news your insurance will be kicking in soon. Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
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By Scott Adams · Posted
I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? -
By Kirbyqueen · Posted
Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon. Big thanks to everyone for the suggestions and positive thoughts! -
You have three celiac disease specific antibody tests that are positive: Endomysial Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease. Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:
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