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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Super Sensitive Celiacs & Gluten Sensitive
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Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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  • Posts

    • Newbie Mom - How is my son feeling?
      I know there has been a lot of suggestions to go and talk to you doctor already - so I am on repeat - to get the best / accurate results - gluten should be eaten prior to the scope being done.    I hope that you can get/ or already have been able to get the appointment bumped up  - keep calling the doctors office and keep pressing them to move your appointment closer - I have appointments move up many times! 
    • What do I even do now?
      Hi, Lacey.    Sounds like you have tried  a lot.   I just read the post that you have tried some of Dr. Axe's suggestions - that is great to see that they are helping!   Have you done any specific work before with any of the other practitioners to specifically heal the gut?    Keep us posted on the Dr. Axe protocol and don't hesitate to reach out if you have any Q's! 
    • Silent Celiac or Non-digestive symptoms
      O I feel your Migraine pain!  That was my one and only symptoms for YEARS and YEARS..... until one day finally it all turned into tummy problems and joint issues, (the list goes on and on...)   Often you will notice your "main" symptom/s appear pretty soon after eating gluten (some its minutes, others its a day or so..).  Following the proper diet strictly you should be able to drastically reduce those pains in head.  Vitamin deficiency isn't likely to happen after one episode of being glutened - it is usually accumulative of your body not being able to absorb the nutrients (because of the damage done by gluten over time).  Have you had your vitamin levels currently checked?  (Bringing certain vitamins / minerals back into balance can help alleviate the migraines faster!)     
    • Newbie: mother to coeliac kids
      How scary to watch your child go through what you have seen.  I wish you huge luck with both biopsies.      In urge before you and your daughter go gluten free - celiac can also be "silent" - and it is very common and normal to run in direct relatives- I would HIGHLY RECOMMEND you and your other children (even your spouse) seeking appropriate testing BEFORE going on a gluten free diet in support!   I was 17 when I was diagnosed - and although your son is feeling the way he is, and it will be an adjustment period, he will figure out how to eat with and do normal things with his friends.  Let us know how the biopsies go!     
    • Weird Reaction
      Flowerqueen, I usually tolerate coffee pretty well and my DNA profile said I was a fast metaboliser of coffee but I have to do a fasted blood test on Tuesday morning so I won't be able to have coffee til much later than normal. I'll see if it makes a difference. The shaking isn't actually physically shaking so nobody would be able to tell but it's a shakey type feeling if you know what I mean. And usually when I'm nauseas I look pale but I don't with this type of nausea. I had a few buckwheat pancakes earlier with some maple syrup, gluten-free ice-cream and LSA and felt a bit better straight after that but the nausea returned not long after that with fast heartbeat and anxiety and burping. This thing is terrible. I have no appetite at all. I feel a bit tired and even speaking feels a bit funny.....weird!! All this is still normal though, right??    
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    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
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    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
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