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Celiac Disease - Doctors
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Discuss experiences with doctors, how to find a doctor, etc.

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    • I am allergic to sulfa also so guess I cant take it either .. what are you doing instead
    • Thanks we did run the antibody test.  Upon retesting the thyroid had made improvement it came out okay.  I did make a mistake and had soy, which evidently triggers my celiac.  I took it about 200 days!
    • Vitamin B12 injections seemed to help with my ferritin levels.  The finally popped up to 58!  I worked with a physician to get the shots.  I believe I had been suffering from mal-absorbption and the shots helped me over the HUMP!
    • Thank you both.  With the help of my nurse, I recently I tried Vitamin B injections which seemed to help me.  Finally my ferritin level doubled + and I got this prickly sensation in my legs and arms.  I think that was cells taking in nutrients.  I used herbs recommended by my physician and supplemented with selenium and vitamin E.  Upon retesting (after about a month of treatment) my thyroid appeared to be "Okay".   I looked back where I had order the supplements and they had accidently marked them soy free; while the list of ingredients clearly had soy.  I did point this out to them, so hopefully others won't fall into the same trap.  My experience was a painful reminder to read every label for yourself every time.
    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
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