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#1 User is offline   MACE Icon

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Posted 03 March 2006 - 04:49 PM

My PC doctor is wanting me to have some allergy test since I am having alot of allergy problems.
Went for the first appointment at allergy clinic and I was telling them about the gluten thing. They told me that since my blood test was not positive for celiac they do not think I have a true gluten problem but most likely an allergy to yeast. They said that going gluten free would also have gotten rid of alot of the yeast in my diet but not all of it. So I was wondering if any of you have had allergy test run to what all you are having and allergy to. I was also told by them that if I was truly having a celiac problem I would have been skinny before going gluten free instead of losing weight after going gluten free. From what I have read on here there are a good many of you that were like me, overweight and lost weight after going gluten free. So I am not real sure the allergy clinic knows as much as they seem to think they do.
Will be waiting to see what some of you think of all of this yeast thing.
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#2 User is offline   jerseyangel Icon

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Posted 03 March 2006 - 05:05 PM

Hi Mary--It sounds like your allergist dosen't really know anything about Celiac. The notion that you have to be underweight is an old one that a lot of doctors still believe. Celiac is not an allergy, but an autoimmune disorder. That does not mean that a Celiac can not have other allergies. A true allergy to yeast would be proven by an allergy scratch or blood test. An intolerance to it would not show up on the allergy test. There are independant labs that do test for food intolerances. Most allergists and conventional doctors do not believe in this kind of testing. I actually had my first appt. with an allergist today. I had a slew of skin scratch testing for allergies--both food and airborne. I will go back in a month and be tested for more, including a patch test for environmental allergies. This doctor does not test for food intolerances via blood--he feels that the best way to figure out the intolerances is the rotation method. I will be working with him on that. He has an aunt who is a Celiac, and has some food intolerances himself--so I feel comfortable working with him. I would suggest, if you can, to make some calls and possibly find a different allergist who is more familiar with Celiac and food issues. :)
Patti

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Microscopic Colitis
HLA DQ2


"Life is what happens while you're busy making other plans"
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#3 User is offline   MACE Icon

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Posted 03 March 2006 - 09:49 PM

View Postjerseyangel, on Mar 3 2006, 08:05 PM, said:

Hi Mary--It sounds like your allergist dosen't really know anything about Celiac. The notion that you have to be underweight is an old one that a lot of doctors still believe. Celiac is not an allergy, but an autoimmune disorder. That does not mean that a Celiac can not have other allergies. A true allergy to yeast would be proven by an allergy scratch or blood test. An intolerance to it would not show up on the allergy test. There are independant labs that do test for food intolerances. Most allergists and conventional doctors do not believe in this kind of testing. I actually had my first appt. with an allergist today. I had a slew of skin scratch testing for allergies--both food and airborne. I will go back in a month and be tested for more, including a patch test for environmental allergies. This doctor does not test for food intolerances via blood--he feels that the best way to figure out the intolerances is the rotation method. I will be working with him on that. He has an aunt who is a Celiac, and has some food intolerances himself--so I feel comfortable working with him. I would suggest, if you can, to make some calls and possibly find a different allergist who is more familiar with Celiac and food issues. :)



I will be having the scratch test on the 21st, both for food and air born. I am interested to see what shows up. Good luck and let me know how you do with your testing.
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Posted 04 March 2006 - 05:12 AM

View PostMACE, on Mar 3 2006, 04:49 PM, said:

My PC doctor is wanting me to have some allergy test since I am having alot of allergy problems.
Went for the first appointment at allergy clinic and I was telling them about the gluten thing. They told me that since my blood test was not positive for celiac they do not think I have a true gluten problem but most likely an allergy to yeast. They said that going gluten free would also have gotten rid of alot of the yeast in my diet but not all of it. So I was wondering if any of you have had allergy test run to what all you are having and allergy to. I was also told by them that if I was truly having a celiac problem I would have been skinny before going gluten free instead of losing weight after going gluten free. From what I have read on here there are a good many of you that were like me, overweight and lost weight after going gluten free. So I am not real sure the allergy clinic knows as much as they seem to think they do.
Will be waiting to see what some of you think of all of this yeast thing.



I think they don't know much about celiac. I went through skin testing before my allergist set me up with an elimination diet. I showed up positive to everything except beech trees! However after becoming gluten-free those allergies 'went away'. The only thing I am still 'allergic to is my kitty's spit (my eyes will water when she sucks on my arm, strange kitty that she is). I really don't think some doctors want a diagnosis of celiac, cynic that I am, it costs them money when they don't see us.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#5 User is offline   plantime Icon

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Post icon  Posted 04 March 2006 - 06:48 AM

View Postravenwoodglass, on Mar 4 2006, 05:12 AM, said:

I really don't think some doctors want a diagnosis of celiac, cynic that I am, it costs them money when they don't see us.



I believe this is true for pharmaceutical companies, too. They haven't figured out how to make us pay them for what we eat!
Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
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#6 User is offline   Carriefaith Icon

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Posted 04 March 2006 - 08:25 AM

I have had allergy testing done. I've had skin prick tests and blood tests and I found out that I am allergic to wheat, milk, and yeast. I also have celiac disease in addition to these allergies.

If your tests come back negative for wheat, barely, rye, oats, and yeast, then I would suggest that you may be intolerant or sensitive to gluten. You could also ask for a celiac gene test to see if you have a celiac gene.
Carrie Faith

Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
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