I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.
Thak you
ginag
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Epilepsy, Candida, Parasites Guidance needed
#2
Posted 14 March 2007 - 06:33 PM
ginag, on Mar 12 2007, 08:27 PM, said:
I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.
Thak you
ginag
Thak you
ginag
I was diagnosed with idiopathic epilepsy in 1994. Looking back, all my seizures were right after major allergic reactions that could not be explained. (Hives, etc) Since gluten-free, I have not had any seizures. It is amazing what a difference it has made.
#3
Posted 27 March 2007 - 07:52 PM
ginag, on Mar 12 2007, 10:27 PM, said:
I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.
Thak you
ginag
Thak you
ginag
Hello, my husband has gluten intolerance and we have been gluten free since last july. Eventhough his stomach/intestine problems got better in time, a lot of other things were still going on. during november-december, he started to have intense muscle spasms, jerks like seisures/epilepsy so we saw two different neurologist, they couldnt find anything..he lost 35 pounds.. he still has very low fever occasionally, therefore we suspect that he might have parasites, (although his doctor did a test last summer couldnt find anything) now he is seeing a nutritionist about that and this person thinks that the reason could be parasites and we are following his advices. it seems to help so far. I hope this helps.
#4
Posted 28 March 2007 - 04:21 AM
ginag, on Mar 12 2007, 06:27 PM, said:
I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.
Thak you
ginag
Thak you
ginag
I can answer about the seizures, I had temporal lobe seizures for years, the only time I get them now is when glutened. The candida I know is fairly common amongst celiacs. As for the parasites, your doctor is the one to go to for this. He will give you some stool sample tubes with chemicals that you bring back to the lab that will clearly show any parasites that are present.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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