<![CDATA[Celiac Disease - Related Disorders & Research]]> Discussions concerning other health problems associated with celiac disease, and celiac disease research. http://www.celiac.com/gluten-free/index.php Fri, 20 Nov 2009 18:52:18 -0800 60 Promising Drug For Autoimmune Diseases http://www.celiac.com/gluten-free/index.php?showtopic=63929
lowdosenaltrexone.org]]> Thu, 19 Nov 2009 11:42:03 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63929 Vaginal Odor http://www.celiac.com/gluten-free/index.php?showtopic=63914 I'm gluten free but of course - occasionally i get "glutened" - when this happens i go through a list of symptoms that string out for about two weeks.. one of the more annoying of the symptoms is a vaginal odor that only happens after intercourse (unprotected) - it's a vinegar like smell and lasts for a day or two after sex. This is one of those "private" things that just doesn't come up in normal conversation.. ya know? This has become one of those things , that when it happens.. I KNOW i've been glutened.. does anyone have any answers for me? If it helps i also have DH -

Thanks!]]> Wed, 18 Nov 2009 19:42:30 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63914 Receding Gums? http://www.celiac.com/gluten-free/index.php?showtopic=63903 I got to thinking and wondering, would the same mechanism that causes villus blunting and atrophy also be responsible for the same response of the oral mucosa/epithelium? It seem that it would make sense since it is the gateway to the digestive system that there might possibly be a link to gingivitis/gum disease and celiac if this were the case. Does anyone know if there is inquiry in this direction. I keep thinking about all the dental issues that could have been earlier clues for effective celiac diagnosis had my dentist been aware of this as a possible issue in the first place.
CS]]> Wed, 18 Nov 2009 14:11:13 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63903 Gluten Ataxia Attack http://www.celiac.com/gluten-free/index.php?showtopic=63893 I read up on the "Yeast Die Off" info as well as the Antibiotic side effects. I also read that the yeast's outer cell shell gives off a protien similar to gluten and can cause a gluten reaction.
What do you think? Think it was to whole thing combined? My father and brother have gone off the deep end and think it's the water from my well now, but I really think it's this yeast mess.....]]> Wed, 18 Nov 2009 10:50:04 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63893 Child Food Allergies On The Rise In The Us http://www.celiac.com/gluten-free/index.php?showtopic=63887 By Jane Byrne , 17-Nov-2009

There has been an 18 percent increase in reported food allergy among US children between 1997 and 2007, according to new research.

And the article in the December issue of the journal Pediatrics reports that parents of almost four percent of US children reported a food or digestive allergy in their child.

The study's lead researcher Amy Branum, a health statistician for the US Centers for Disease Control and Prevention (CDC), suggests that greater awareness may partially explain the dramatic increase in rates of pediatric food allergies.

But she claims more research is needed to determine what factors exactly are contributing to this increase.

The study notes that peanut allergies accounted for nine percent and egg allergies seven percent and milk allergies accounted for 12 percent, claims the author.

“The data show there is a very high co-occurrence of conditions such as asthma, skin allergy or eczema, and respiratory allergies that co-exist with food allergy,” said Branum.

The most common allergies among children are cow’s milk, eggs, peanuts, tree nuts, soybeans and wheat, according to the American College of Allergy, Asthma and Immunology (ACAAI), while the most common among adults are peanuts, tree nuts, fish, crustaceans, mollusks, fruits and vegetables.

Cross-contamination

Allergen contamination is a big problem for manufacturers, who must make costly recalls if their products contain allergens that are not listed on the label.

Food processors must follow good manufacturing practices (GMPs) to reduce the risk of allergen contamination including regular reviews of product labels, equipment, cleaning practices, product handling, and final product and packaging inspection.

Disclosure

The prevalence of allergy and difficulties for allergy sufferers in choosing appropriate products led the Food and Drug Administration (FDA) to introduce the Food Allergen Labeling and Consumer Protection Act (FALCPA) in 2006.

The Act mandates the disclosure of eight food allergens in the ingredient statement: Milk, egg, wheat, soy, peanut, tree nuts, fish, and crustacean shellfish – but it does not regulate advisory labels.


Labeling ambiguity
Recently, researchers behind a major review of voluntary allergen advisory labels called for more regulation for allergen labeling to remove ambiguities and make life easier for allergy sufferers.

Their study, published in the August issue of the Journal of Allergy and Clinical Immunology, surveyed 20,241 manufactured food products and found that 17 percent included advisory labels, with chocolate confectionery, cookies, and baking mixes accounting for more than 40 percent or the warnings.

Across food categories, researchers found 25 different types of advisory term including ‘may contain’, ‘shared equipment’ and ‘within plant’. Additionally, they found that 65 percent of products listed non-specific terms, such as ‘natural flavors’ and spices’, and that 83 percent of those were not linked to any specific ingredients.

“Supermarket product labeling deficiencies and ambiguities are prevalent,” the researchers wrote. “Allergists must continue to educate their patients about these problems, which could be addressed by strict enforcement of labeling laws as well as additional regulation.”

Risk perception

They added that an earlier study had shown that consumers erroneously perceive different terms to indicate different levels of risk – for example, that ‘may contain’ indicates a higher risk than ‘shared facility’, although there is no such risk differentiation.

One specific issue outlined by the review was the labeling of soy products. Lecithin derived from soy must disclose soy on the ingredient label under the FALCPA legislation. More than half of the products labeled as containing soy only contained soy as soy lecithin which, the researchers argued, could be tolerated by some soy allergy sufferers since it contains only trace amounts of soy protein.
]]> Wed, 18 Nov 2009 07:59:02 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63887 Pernicious Anemia http://www.celiac.com/gluten-free/index.php?showtopic=63874

So my iron and B12 are low and I have neuropathy. I started sublingual B12 1000mcg about 2 months ago. I started prescription Ferrex about 2 weeks ago. When I started the Ferrex, I started taking 2000mcg B12, and got my first injection last week.

This somehow told my body to make the neuropathy worse sad.gif I have to make an appt with my doctor to see her to get a shot (that means a 2 1/2 hour wait every time). I am wondering how often you all get shots, and if it's less now than in the beginning? I just need to know if I need to start planning on spending half of my work week sitting in my doctor's office sad.gif sad.gif

Thanks!]]> Tue, 17 Nov 2009 17:06:44 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63874 Only Three Days Into Gulten Free And My Urination Habbits Are Different http://www.celiac.com/gluten-free/index.php?showtopic=63818
I suffer from IBS so I have decided to try going Gulten Free because a friend told me that a wheat allergy or Celiac can be misdiagnosed as IBS. So I am on a Gulten Free diet to see if it improves my IBS, but I have ran into another problem, my urination habits have changed. Now I am only on my forth day, but I seem to be peeing tons more often beginning half way through the second day. I have been tested for diabetes and thyroid and that is not the case. So is the peeing alot a symptom of the detoxing?]]> Sun, 15 Nov 2009 22:29:19 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63818 H1n1 Vaccine http://www.celiac.com/gluten-free/index.php?showtopic=63789 I was diagnosed w/ celiac disease in August and my first followup w/ doctor is coming up soon. However, I was wondering about the degree of importance in getting the H1N1 flu vaccine since this condition affects the immune system. Anyone have thoughts about this? Sun, 15 Nov 2009 05:59:28 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63789 Type 1 Diabetes And Vit. D Deficiency http://www.celiac.com/gluten-free/index.php?showtopic=63778
At our first appt. a few weeks ago, (with this dr.) he said that he had negative tests for Celiac from previous dr. but they arent always accurate, so he tested for Vitamin D, which came up very low. I went ahead and put him on gluten-free diet in the meantime and within a few days he went from being gray, in bed, nauseous, sore, to his normal self again.

When he called with results, he said the Celiac test that was previously done was 95% accurate and Celiac can probably be ruled out. He put him on Vit. D supplements (50,000) and said that he'd like to test for "sprue". I thought that was the same thing. He also said his hemoglobin was a little high. Anyone have thoughts? I will for sure keep him on the gluten-free diet.]]> Sat, 14 Nov 2009 13:24:43 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63778 Autism http://www.celiac.com/gluten-free/index.php?showtopic=63676
Makes the idea of having kids a whoooole lot scarier.]]> Wed, 11 Nov 2009 12:53:42 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63676 Sore Hand And Wrists http://www.celiac.com/gluten-free/index.php?showtopic=63670 ]]> Wed, 11 Nov 2009 09:52:22 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63670 Scoliosis http://www.celiac.com/gluten-free/index.php?showtopic=63664
My question is: Is there a correlation between scoliosis and celiac? I have been able to connect literally every other health problem I have to celiac. Does anyone else have it? Has any one been told or read that there is a connection?]]> Wed, 11 Nov 2009 05:47:07 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63664 (ldn) Low Dose Naltrexone Therapy? http://www.celiac.com/gluten-free/index.php?showtopic=63660
QUOTE
Beta-endorphins are important regulators of the immune system. Naltrexone, which is a pure antagonist to opiates, causes an artificial blockade of the endorphin/opioid receptors in the brain. However, unlike the normal (~50mg) dose of naltrexone used to treat drug addiction, which maintains this blockade continuously for 24 hours (preventing any derived pleasure from taking the forbidden drugs), low dose naltrexone (~3mg to 4.5mg) blocks the endorphin receptors for only a couple of hours. During that time, endorphins fail to attach to the receptors and the body compensates by creating more endorphins. (Note that Dr. Bihari prescribes LDN to be taken at bedtime to take advantage of the body's pre-dawn boost in endorphin production.) Once the low dose naltrexone dose has been metabolized, the body is left with a "normal" amount of endorphins as compared to healthy controls, which consequently "normalizes" the immune function. The link between endorphins and immune system regulation is a good candidate for more research.


I've spent the past few hours doing research as this is the first time I've even heard of it, and there are a LOT of success stories out there. Coincidentally, when going on LDN therapy one of the things they recommend is a gluten-free, casein-free diet. This drug, supposedly, has a demonstrable efficacy, with several doctors noticing very real improvements in several of their autoimmune crippled patients.

In people with Crohn's there have been documented cases where the intestinal lining has healed following LDN therapy: http://www.ncbi.nlm.nih.gov/pubmed/17222320
Now I would've thought there would at least be a couple threads about this on celiac.com but I've been unable to find any. Surely someone out there with celiac has tried this?

I'm pretty sure my Celiac has caused an ongoing autoimmune reaction that just won't disappear, i.e. damage to my endocrine glands and minor Sjogren's/Thyroid problems. I'm wondering if I'm a candidate for this stuff. Not only that but what effect would it have on my Celiac's to begin with? I haven't found many articles linking Celiac and LDN together which is a bad sad, especially since Celiac is impossible the mother of all the other autoimmune disorders.


Here's a good website for information regarding the drug:
http://www.lowdosenaltrexone.org/

A link to clinical trials:
http://www.lowdosenaltrexone.org/ldn_trials.htm]]> Wed, 11 Nov 2009 01:50:06 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63660 Celiac And Hypoglycemia http://www.celiac.com/gluten-free/index.php?showtopic=63597 I have been suffering from many different health conditions mainly with my digestive track. however, i have also had some depression and anxiety etc, but the most annoying ever is reactive hypoglycemia.

I have had 4 endoscopies and two colonoscopies all negative, only been diagnosed with gastritis.
so many doctors to see and blood work and other medical exams over seven years of suffering. Celiac has always been suspected but never proven until about two weeks ago through what a doctor in Germany calls advanced stool analysis. showing candida as well.

I have read so many threads on the other disscussion boards relating hypoglycemia to celiac disease according to people's experience and diagnostics.

I really want to know if anyone had reactive hypoglycemia along with their celiac that has been treated as a result of being on a gluten free diet. I've been on the diet for two weeks only and Doctor said it takes time to heal, so let's at least wait for six weeks, but he doesn't entirely believe that my hypoglycemia is totally related to celiac or gluten troubles. He said let's just wait.

Anyone please, if you had been hypo as well, did it go away at all, or isn't it related. If so how long on the diet till you see improvement??
I would love to go 4-5+ hours without being so light headed and weak and scared with 10 mood per minutes.

Thanks many smile.gif]]> Mon, 09 Nov 2009 11:37:49 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63597 Sulfite Intolerance With Celiac http://www.celiac.com/gluten-free/index.php?showtopic=63570 I am curious as to how many other people may have a sulfite intolerance/allergy along with Celiac. I was under the impression that Chardonnay wine was safe to drink. I have found that not to be the case with me. I have itching quite rapidly and then the dreaded intestional problems either almost immediately or within 12 hours. I also have to be extremely careful drinking this wine or I will find myself quite incapable of functioning. Sun, 08 Nov 2009 06:29:07 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63570