Discussions with other parents of kids or babies with celiac disease. http://www.celiac.com/gluten-free/index.php Fri, 20 Nov 2009 19:09:24 -0800 60 http://www.celiac.com/gluten-free/index.php?showtopic=63971 I have a 2 year old. While researching leaky gut I found some information on a GAPS diet. Has anyone tried this? It seems rather involved (and disgusting) but if it helps to heal his gut it may be worth a try??? He is sensitive to so many things which make it hard to find food his likes. His allergy tests say he has no allergies but he reacts to dairy, soy, egg and fruit and of course gluten. Any ideas would be helpful. Thanks. Fri, 20 Nov 2009 19:06:30 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63971 http://www.celiac.com/gluten-free/index.php?showtopic=63965
Bonnie

Ps - My dd is 3 1/2 and is not gaining well. She is 27 lbs 13 ounces....]]> Fri, 20 Nov 2009 14:44:51 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63965 http://www.celiac.com/gluten-free/index.php?showtopic=63950
Here are her results:

Fecal Anti-gliadin IgA: 69 Units

Fecal Anti-tissue Transglutaminase IgA: 24 Units

Quantitative Microscopic Fecal Fat Score: Less than 300 Units

Fecal Anti-casein (cow's milk) IgA: 6 Units

HLA-DQB1 Molecular analysis, Allele 1: 0303

HLA-DQB1 Molecular analysis, Allele 2: 0501

Serologic equivalent: HLA-DQ 3,1 (Subtype 9,5)


Thank you so much for any insight you can give!]]> Fri, 20 Nov 2009 08:13:48 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63950 http://www.celiac.com/gluten-free/index.php?showtopic=63935
My 9 year old daughter doesn't have an obvious reaction right after she has been glutened. She will complain of a tummy ache for a couple of days and then the mood swings hit. We can deal with the physical complaints, but the emotional ones are driving me nuts.

She flies into a tantrum at the slightest provacation and it can take over an hour to calm her down. There is no reasoning with her at all. It is like all logic has left her brain.

I know this is a reaction she has to gluten so I try not to punish her too much, but how do I make sure that she understands it isn't ok to be so disrespectful? And how do we manage these episodes with out losing our own sanity.

Any and all suggestions are greatly appreciated.

Thanks!]]> Thu, 19 Nov 2009 14:47:49 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63935 http://www.celiac.com/gluten-free/index.php?showtopic=63930
I looked at our diet and we were eating pretty high fiber already. I thought they kenw what they were talking about so I gave him the little fiber wafers. Yes the ones like cookies (Wheat) He was not getting any better but he was going to the bathroom every day.

I had a freind suggest going gluten free. We tried it and he satreted feeling a little better. His pain went from an 8 on a level from 1 - 10 to about a 5. It took about 6 month but now he feels much better. I accidntally glutened him the other day and it was not pretty.

Since he has gone gluten-free I think I probably have issues with gluten as well. Except for bread and pasta we are totally gluten-free at our house. When I have bread or pasta I end up in the bathroom most of the following day.

Now with all the history out of the way. I have a 12yr old son and he has Psoriasis really bad on his head. I have a family history or psoriasis, one of my older sons has it and I have it but it is not bad on myself. Question is does anyone think the psoriasis might be helped with a gluten-free diet?

No one in my family has been tested for Celiac but I would not even think of putting my son back on wheat at this point.]]> Thu, 19 Nov 2009 12:00:32 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63930 http://www.celiac.com/gluten-free/index.php?showtopic=63926
I will not go as far as baking our own, so no recipes please! Single working Mom:)]]> Thu, 19 Nov 2009 10:02:56 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63926 http://www.celiac.com/gluten-free/index.php?showtopic=63912 He had an evaluation from what we call Early Intervention (a local federal agency for kids with issues such as speech delay). He scored extremely high on everything developmentally. The evaluator was very shocked that he wasn't talking because of how advanced he was. Even on his communication he scored extremely high on his receptive language and communication because he communicates in his own way. He is becoming more and more frustrated though because we don't understand him. He mumbles complete sentences with intonation, hand motions and amazing expressions, but all it is is mumbles! I have not been able to find more than one study from 2004 on this. Has anyone found any research on this? Anybody who has been in this boat?
Thanks for your help!
]]> Wed, 18 Nov 2009 18:04:48 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63912 http://www.celiac.com/gluten-free/index.php?showtopic=63886
The principal at my daughters grade 6-12 school is working rigorously to secure a new food service provider for her school's lunch program. He's also looking at making drastic changes to the eating environment to encourage high schoolers to stay on campus during the lunch break. My daughter is a 7th grader and brings her lunch to school every day and refuses to eat in the lunch room because it is so filthy with crumbs.

I will be participating on the parent committee for submitting the RFP to different food service providers as well as the eating improvement plan. This is really great because it's a ground-up effort to improve food service, and I am very passionate about making it possible for kids with food allergies and intolerances (probably the top 8, including gluten--not just wheat) to eat safely at school--whether that means menu choices or simply a safe environment--is yet to be seen.

So, I am asking YOU parents, what would make your child's school lunch program ideal as a food allergy/intolerance sufferer? Really just a laundry/wish list of what you think would actually work for your child in terms of school lunches would be ideal.

Thanks in advance for your help! I'll keep you updated as I know more.]]> Wed, 18 Nov 2009 07:43:37 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63886 http://www.celiac.com/gluten-free/index.php?showtopic=63862
On Halloween my cousin made him cupcakes (gluten-free), but some residual flour in her sugar made him sick. The next day he told me his stomach hurt and acted like he was getting a cold. He was lethargic and aggressive. He then started with big, muddy stools like he had before. The last couple of weeks his morning poops only are watery. This is the only symptom that has continued. I called the NMD she suggested charcoal- I did that. It didn't really help.

I have been trying to be extra CC aware (except his preschool let him play with playdough yesterday ). Is ongoing diarrhea like this normal? Or should I be worried there is something else going on?]]> Tue, 17 Nov 2009 10:52:38 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63862 http://www.celiac.com/gluten-free/index.php?showtopic=63839
We have had an and off issues with her GI and have recently decided to switch to a new doctor. Old doc sent recent lab results with a nasty note (in keeping with his MO) indicating that since her antigen levels were not 0, Celiac may be a misdiagnosis OR she is getting gluten in her diet.

Our whole house is gluten free and her school is VIGILENT so I'm pretty confident that she is gluten free.

So my question is, how long did it take for your kid's antigen numbers to come down? In June her numbers were HIGH, almost 300. 3 months on the diet and her numbers were around 130. Does this seem on target?

New doc will see us in a few weeks and I'm sure will answer questions (and probably order another blood test, sigh), but in the meantime, any thoughts out there?

Thanks so much!
Alexis]]> Mon, 16 Nov 2009 16:04:14 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63839 http://www.celiac.com/gluten-free/index.php?showtopic=63813
I have just read the recent thread about baking in school. Great advice and bravo to the little lady that stood up for herself and the mom who backed her!
This is the first time I have had a potential problem with a teacher. So far we have had great luck and amazing teachers. My sons preschool teacher wants to bake gingerbread cookies with the kids on Tuesday after reading a book. She made three suggestions 1. Have my ds stay on the opposite side of the room while everyone else does the activity (yes she seriously said that) 2. Me pick him up early/just stay home 3. Me bring in gluten free baking things and flour to make the cookies

I opted for number 3 but I have found out that the recipe calls for 6, yes 6 cups of flour! Can you say ouch to the pocket book!? Anyway, I have no problem with that but there is an afternoon class that comes in and does the same activities where there is no gluten issue. So basically they will bake with regular wheat flour in the room, which is also the problem with him just staying home and them using regular flour.

My question is has anyone had this happen in preschool and if your child wasn't there did they get sick from particulate fall out that wasn't cleaned up properly? How did you handle it? Did you trust the teachers when they said they would clean the room or did you go in and help them clean? I have also been made to become aware that people in the school are not taking this seriously. Granted my daughter is diagnose celiac, ds however has a positive gene test and positive dietary response but since he was 2 when we tested we didn't get a positive on the biopsy so no dx by the doctor. She said, he obviously has a problem and there is no reason to keep him on gluten if taking him off solves the problem and we know he carries the gene.

Also there are soy, egg, tree nut, peanut, strawberry, dairy and diabetes in the classroom besides my sons gluten intolerance. I am not sure why she is taking on the responsibility and liability of baking with all of this in the class anyway. She has made efforts to find a dairy nut and egg free recipe. Why is she willing to bring flour in the room, it's not even like it is some crumbs that can be cleaned off the table from snack, it's going to be flying in the air! Boy I am so frustrated and worried that I can't form a coherent thought, sorry this is so jumbled. As you can tell I could use some guidance! Any advice is welcome and thank you in advance.]]> Sun, 15 Nov 2009 17:31:31 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63813 http://www.celiac.com/gluten-free/index.php?showtopic=63812
TY In Advance...]]> Sun, 15 Nov 2009 17:01:15 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63812 http://www.celiac.com/gluten-free/index.php?showtopic=63730
Anyway, my question is this: If gluten is passed through breastmilk and DD hasn't reacted, should I try giving her gluten (oatmeal cereal or Cheerios) to see if she reacts? I think I read an article somewhere about babies being introduced to gluten at 6 months and not developing celiac and at 8 months old which led to celiac - or something like that. My pediatrician wants me to give DD gluten now, before 8 months, and I disagreed but now...I'm wondering if I should.

My original plan was to keep her gluten free until she could talk and tell me if she has tummy troubles or itchy skin (I don't want to try and figure out what's happening when she's unable to communicate right now!) but if I give her gluten now and find that she is reacting to it, then I would just be back to my original plan to keep her gluten-free anyway.

Sorry this is so long. I appreciate any input.]]> Thu, 12 Nov 2009 17:33:36 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63730 http://www.celiac.com/gluten-free/index.php?showtopic=63710
Last year his 7th grade year was full of tears and his teachers had already pegged him as a trouble maker and no matter what he did he couldn't bring some of his grades up beyond C's. He'd been having problems for years, but 7th grade was full of vomiting issues, too.

After the miracle, my son had a few accidental glutenings that didn't help with his attitude and brain fog. It's basically taken this whole year to finally have him back to normal. Not to say that WE didn't see an improvement immediately, but sometimes once certain teachers believe bad things about your child, their attitudes cannot be changed.

This year new teachers and no brain fog or ADHD or any of the other problems he had. All honors classes. Yippee!!!

We are very vigilante about what restaurants we visit and what he has, including limiting sulfites.

Yippee!!! Yippee!! Yippee!!

]]> Thu, 12 Nov 2009 10:07:38 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63710 http://www.celiac.com/gluten-free/index.php?showtopic=63642
My daughter (17) did not want to get the vaccination. She is a dancer, and she had stumbled across an internet report of a young woman who suffered from ataxia, 10 days after getting the swine flu inoculation. That scared the dickens out of her.

But this flu, at least in our state, does seem to be predominantly affecting the under 24 age bracket, and from what I've observed, the positives are largely from middle school and high school age. And we are seeing hospitalizations in these age groups...

I am not a big fan of drug treatment, and usually try to avoid them for myself and my family - if I can find a way to address the situation without them. Sometimes you just can't, and I feel the benefits of this vaccination outweigh the risks, at least for my daughters age group.

But, I let her make her own decision. Her high school has been holding clinics this week, offering both the Swine (H1N1) vaccination along with the seasonal flu (separate vaccination). I told her that based on the strains that are being identified, she should at least consider getting the swine flu vaccine.

Well yesterday, she did get the Swine vaccine - what was being administered was the nasal prep (live attenuated virus) not the injection. She got that first, then was offered an injection for the seasonal flu. She declined that. (I was fine with that)

They kept the students for 20 minutes afterwards, to observe for adverse reactions. She didn't confess any to the shool nurse, but leaves the building, and driving on the way home, calls me from her cell phone to say she had felt a little dizzy afterwards. Fortunately we live less than 10 minutes away from the school... but she generally felt crappy. In the evening she complained of a scratchy throat, and today some feelings like she was going to have diarhea, even though she hadn't eaten anything out of her norm. All of what she experienced is within the realm of the "normal" side effects of this vaccination. Despite this, she had a good day today and is dancing as I type.

I am glad she got the swine vaccination. I hope your kids have had the opportunity, tho I know the whole issue of vaccination is sensitve/scary because of potential adverse reactions. What is everyone else thinking, deciding on this issue for their kids?]]> Tue, 10 Nov 2009 16:10:47 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63642