Discussions concerning celiac disease support groups and support group meetings. http://www.celiac.com/gluten-free/index.php Fri, 20 Nov 2009 19:29:51 -0800 60 http://www.celiac.com/gluten-free/index.php?showtopic=63948 I anyone here a member of a support group in Auburn or Syracuse? Fri, 20 Nov 2009 07:48:17 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63948 http://www.celiac.com/gluten-free/index.php?showtopic=63824 Looking for the biggest gluten free convention for sampling different products. Mon, 16 Nov 2009 09:13:48 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63824 http://www.celiac.com/gluten-free/index.php?showtopic=63127 I came back because my condition only seems to get worse day by day.

I suspected myself of being gluten intolerant about half a year ago and cut down the gluten consumption when my health dramatically improved. I suddenly felt energetic, positive about life and my skin condition improved noticeably. Before that, I knew I was lactose intolerant and had eliminated cow's milk and so on. Although after all this, knowing I am somewhat sensitive to artificial stuff, chemicals and preservatives, I avoided them but still there were stuff like nuts that almost made me dial for emergency.

I took an allergy test in June. (Not a blood test. It does not involve consuming allergens beforehand) Turned out all the suspected allergens were my actual allergies and intolerances. Gluten, lactose and many more are on my elimination list but since I had found out about them long after unknowingly consuming them, my digestive health was destroyed into a state other suppose to be me friendly food was rejected.

Ofcourse I was low in many nutritions like calcium and vitamins.

Though I am at a worse state right now as despite having been on many supplements since June, since allergies have not been eliminated.. I am more or less broken.

Gluten is the worst.

When consumed, it is the most painful but also the one I have hard time keep away from.

I do not live in a supportive family so I have to be super strong but often during my allergy free days, I feel so dizzy and miserable that I end up looking for gluten. Once a certain amount has been consumed, the dizziness, blurred vision and moodiness is lifted. But only for a while. Soon after symptoms occur and would last until the next day. The pain is so bad that pain killers are useless. Best is to sleep it off.

I prefer to remain annonymous but would like some advice or help.
How can I defeat what I recognise as withdrawl symptoms? Is it possible?

Few months ago, I had this unstoppable motivation but since few months ago, I feel weak and wonder what the point is. Because I have so many allergies, my food and activity list is very limited so everyday is a battle. I can not even go out for meals with friend or to have a drink at the bar. I seem to have lost aim in life.]]> Sat, 24 Oct 2009 06:42:30 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=63127 http://www.celiac.com/gluten-free/index.php?showtopic=63041
I can't find a group in my area, (Chico, Ca). If anyone knows of one or would like to start one, I would really like to find some one who can meat up and learn together. My husband is having a hard time being supportive because He has never encountered Celiac until I was diagnosed. I would love to send him to a group for spouses. haha
I feel that this big change in my life would be much easier with a friend or 10. ]]> Wed, 21 Oct 2009 14:30:32 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=63041 http://www.celiac.com/gluten-free/index.php?showtopic=63034 Wed, 21 Oct 2009 10:40:06 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=63034 http://www.celiac.com/gluten-free/index.php?showtopic=62984 Also, wondering if support groups accept those with Gluten sensitivity only or who have not been
formally diagnosed by the "Gold Standard" route.
Thanks]]> Tue, 20 Oct 2009 04:06:59 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=62984 http://www.celiac.com/gluten-free/index.php?showtopic=62528
A little about myself before I get started. I'm Brooklyn. I'm 24, a mother of two, and a homemaker. I was diagnosed celiac disease in January, and with some up and downs, have been gluten free since spring. I was recently diagnosed with Autoimmune Hepatitis also which just reinforces my need for strict adherence to gluten free. My children are both in my eyes on the road to being diagnosed. They both carry the genes and have positive IgG antibodies. Soon I will be making a whole house change to gluten free. My hometown is a small one. It's very old fashioned and country. I only know of a handful of Celiacs and most of them were recently diagnosed by the town GI, my grandfather. So, my goal now is to start spreading the word of Celiac Disease in my community. I see so many people day to day that suffer with the same things that I did before going gluten free.

My questions are these:

Has anyone tried doing this recently in a similar sounding enviroment with any success?

Where can I get information to use for meetings and handouts?

Would it be wise to ask the hospital for a room to have meetings in?

Going on the news with information on a first meeting, would this be a good idea or would the news be willing?

If I come up with more question, I'm sure I will, they will be posted. I am really just in the beginning stages. I am hoping to have things together to get started around the holidays. Thanks in advance for any help. ]]> Sun, 04 Oct 2009 10:49:05 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=62528 http://www.celiac.com/gluten-free/index.php?showtopic=62424 The nurse called me and told me that because my blood work did not show positive results and the biopsy only shows early stages of celiac disease that it was not nessary to start glutin free diet and they will see me again in 4 years. What about the pain I went to see him for in the first place? If I keep eating glutin won't it get worse and at what stage of the disease do you start a glutin free diet?]]> Wed, 30 Sep 2009 13:11:35 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=62424 http://www.celiac.com/gluten-free/index.php?showtopic=62318 Is there anyone from Vancouver Island here?

Riv]]> Sat, 26 Sep 2009 19:59:39 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=62318 http://www.celiac.com/gluten-free/index.php?showtopic=62119 Saturday, September 19th from 2 - 4
15 Woodside Avenue, West Lawn, PA 19609
( WEST LAWN UNITED METHODIST CHURCH )

We Welcome anyone Young and “older”
Fun for all ages
Gluten free food to sample
UTZ, Mary’s Gone Crackers, Inc., Grandmas Gone Gluten Free
Large information table , Coupons, library of books/DVD/celiac disease

Games/prizes
Movie-Unlocking the mystery of wheat and gluten Intolerance
During and after our event you will be able to purchase
Meat, milk, cheese and produce “naturally gluten free”

http://www.mbfarviewfarm.com

Grandmas Gone Gluten Free will be at our event
”grandma” will talk about her products
“Free samples”
The opportunity to purchase products
cinnamon buns, sticky buns, pizza crusts, focaccia’s, and more

We hope to help a broad range of people with one common connection GLUTEN!
We WELCOME ANYONE!!!

EVENTS ARE FREE

There are no membership dues

The meetings/activities are held every month and are geared for both children and Adults.

Sometimes it helps to talk about it, and it always helps to have some guidance when initially diving into the gluten-free diet. ]]> Fri, 18 Sep 2009 16:46:56 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=62119 http://www.celiac.com/gluten-free/index.php?showtopic=62003
If interested in attending please email me: emorgan816 at comcast.net or respond to this thread.

If you email me directly please put Celiac Meeting in the subject line so I don't think your email is SPAM.

Thanks!
Elizabeth Secora
Gluten Free Since March 2007]]> Mon, 14 Sep 2009 20:33:26 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=62003 http://www.celiac.com/gluten-free/index.php?showtopic=61914 Is there any meetings in Kentucky for Celiac people ? Sat, 12 Sep 2009 14:59:10 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=61914 http://www.celiac.com/gluten-free/index.php?showtopic=61887
http://www.teamglutenfree.org/

How Does the Team Gluten-Free™ Program Work?

Select an event in your town (5K/10K/half marathon/full marathon) and participate
as a Team Gluten-Free™ member.
You can choose any event, even if it benefits another charity (i.e., Race for
the Cure). When you register for your event, the money will go to that charity.
This is the money you pay the event organizers so you may participate in their
event. When you fundraise, those dollars will go to Team Gluten-Free™’s
charities (Celiac Disease research and awareness programs and summer
camp scholarships for children with Celiac Disease).
Mail or fax your completed Team Gluten-Free™ registration forms to:
Team Gluten-Free™
550 W. Plumb Lane, Suite 168B
Reno, NV 89509
F: 775-747-4631
Once you register with Team Gluten-Free™, you will receive fundraising materials,
suggested training schedules, tips for completing your event and injury
prevention.
You will also wear a Team Gluten-Free™ shirt the day of the race.
It’s that easy! Download your information packet here.
]]> Fri, 11 Sep 2009 18:21:08 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=61887 http://www.celiac.com/gluten-free/index.php?showtopic=61754

Tampa, FL area or any area around. If the convention is big enough I would be willing to fly.]]> Mon, 07 Sep 2009 06:51:59 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=61754 http://www.celiac.com/gluten-free/index.php?showtopic=61493 Was wondering about support groups in or around Lawton Ok. Sun, 30 Aug 2009 17:35:55 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=61493