Discuss experiences with doctors, how to find a doctor, etc. http://www.celiac.com/gluten-free/index.php Fri, 20 Nov 2009 19:09:24 -0800 60 http://www.celiac.com/gluten-free/index.php?showtopic=63918
I have been gluten-free for about seven months. Have not had a blood test or biopsy, but had the Enterolab test about 4 months into the gluten-free diet, and even then the results were pretty dramatic, and I have two sets of the genes. It appears that I probably have celiac disease. Most of my symptoms have subsided except for bloating and still have the loose stool. I am convinced and don't feel a need to have the biopsy to convince me, but it's time for my annual checkup with an MD and my old family doc has left the practice and i have to see a new doc. Since my last MD was clueless about celiac I am afraid I'm expecting the same from the new one. I will of course report what's been going on and I'm expecting that he will want to refer me to a GI doc.

The naturopath has helped me tremendously, but I wonder if it's safe to just assume it's celiac and continue my gluten-free diet and do the naturopath-supplements route and assume it'll heal, or if there's a good reason to get checked out by a GI doc. i am not going to be willing to reintroduce gluten and make myself sick to get a biopsy at this point...I don't think....but could they still do a blood test and have the results be meaningful, after 7 months gluten-free?

I know there's a lot of knowledge here and experience with various kinds of medical pros, so I'd appreciate any thoughts...

thanks.]]> Thu, 19 Nov 2009 00:05:05 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63918 http://www.celiac.com/gluten-free/index.php?showtopic=63791 It is all in the title. I need a doctor in Toronto, Canada. Sun, 15 Nov 2009 08:40:09 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63791 http://www.celiac.com/gluten-free/index.php?showtopic=63779 Anyone know of a dr. near Boise, ID? Sat, 14 Nov 2009 13:54:25 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63779 http://www.celiac.com/gluten-free/index.php?showtopic=63777 Sat, 14 Nov 2009 12:54:12 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63777 http://www.celiac.com/gluten-free/index.php?showtopic=63713
In the paperwork it sent to me, it said to expect my visit to take several hours! Is that true? what exactly will they do? lol.

I have copies of my records, and am also bringing copies of the slides from my endoscopy..will they go over them right there and then?

I am just curious what to expect and of anyone else's experience with them.

Thanks!!!]]> Thu, 12 Nov 2009 10:55:23 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63713 http://www.celiac.com/gluten-free/index.php?showtopic=63694
Thanks for any help!]]> Wed, 11 Nov 2009 19:56:25 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63694 http://www.celiac.com/gluten-free/index.php?showtopic=63690

GW]]> Wed, 11 Nov 2009 15:59:50 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63690 http://www.celiac.com/gluten-free/index.php?showtopic=63547 Sat, 07 Nov 2009 09:13:16 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63547 http://www.celiac.com/gluten-free/index.php?showtopic=63477
Does anyone within the Pittsburgh area know of a good nutritionist?

Thanks!]]> Wed, 04 Nov 2009 16:59:45 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63477 http://www.celiac.com/gluten-free/index.php?showtopic=63464 Does anyone know of a goood Peds GI in Atlanta that is good with Celiac patients? Wed, 04 Nov 2009 13:19:21 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63464 http://www.celiac.com/gluten-free/index.php?showtopic=63402 Mon, 02 Nov 2009 21:46:22 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63402 http://www.celiac.com/gluten-free/index.php?showtopic=63397
I wanted to pass on the doctor I just went to recently, he was really kind and understanding, actually listening to my symptoms. He believed that Irritable Bowel Syndrome is just symptoms for the many disorders mankind hasn't discovered yet. With enough symptoms, and even with a negative blood test he had a biopsy scheduled for me.

Pittsburgh Gastroenterology Associates
Dr. Anthony Colatrella
412-232-8104
http://www.pghgastro.com/

Hope this helps in everyone's quest!
Best to you!
~Brittany]]> Mon, 02 Nov 2009 19:04:24 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63397 http://www.celiac.com/gluten-free/index.php?showtopic=63388 Hi, self diagnosed, although do have gene. Looking for doctor and nutritionist in the Stamford, CT, area? Anyone have any recommendations? Thanks much. Mon, 02 Nov 2009 14:30:47 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63388 http://www.celiac.com/gluten-free/index.php?showtopic=63374 I've been hearing a lot lately about how "cutting waste" from the health care system in the US is the way they are planning on paying for health care reform. Now, I'm all for reform, as I *have* insurance and still have racked up thousands of dollars in debt over the last couple of years trying to get the proper diagnosis. However, a lot of the chatter lately (news, pundits, etc) has been about how doctors run soooo many unnecessary tests. Well, if I had not pressured my doctors into "unnecessary" tests, I would still be very sick. The attitude that the doctor knows all and is in 100% control of your testing is dangerous, because they are not all as educated as we would hope. What about all the drugs that I was prescribed, paid for, and took unnecessarily because the proper tests were not done to begin with?
It is really unsettling to me that we could potentially be facing a system where we can't get the care we need simply because someone else thinks that the proper care is "wasteful." I still don't have an actual diagnosis even though I have been gluten free for 10 months and this makes me worry a little bit- if I were ever to be hospitalized, I hear getting gluten free food is very difficult, and I imagine it would be even harder without a "real" diagnosis.

Anyone else have opinions on this?]]> Mon, 02 Nov 2009 11:01:43 -0800 http://www.celiac.com/gluten-free/index.php?showtopic=63374 http://www.celiac.com/gluten-free/index.php?showtopic=63321 This is my first time to post and I hope this works.
I'm looking for some emotional support regarding my daughter's endoscopy and colonoscopy in the next few days.
My daughter is 8 years old. She has dental enamal defects on her permanent front teeth (discoloration and mottling) and her 6 year molars are also defective and are chipping away. She was not ill in the first year of her life, I never took any medications during pregnancy, and I have never taken Tetracycline. She has had intestinal problems off and on for years (cramping, gas, loose stools). Her celiac panel was negatine except that her total IgA was 31 (normal 33-236) and her IgG was 80 (normal 0-15). Her iron/plasma was 45 (normal 50-120) with MCV and MCH also lower than normal. Her absolute eosinophil count was .24 (normal .01-.19) She had a barium study which did not indicate any IBS. She has sleep problems and very obvious mood swings with irritablity. She seems to have a lactose intollerance.
Any feedback before the endoscopy/colonoscopy? I am fearful that her Peds GI will not see any Villi damage and therefore discount all of the other indications/problems that we are having. Any suggestions?]]> Sat, 31 Oct 2009 10:24:17 -0700 http://www.celiac.com/gluten-free/index.php?showtopic=63321