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  2. The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys. As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits. My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
  3. Today
  4. If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
  5. It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
  6. Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
  7. DaVinci's Pizza has several gluten-free items great gluten-free pizza (well done suggested) and they don't have anything with gluten that goes in the fryer, so wing and fries are great all salad dressing made in house and gluten-free. Owners mom has Celiac so they're very empathetic. Cheers. And enjoy. I eat there all the time and have NEVER had an issue. And if someone just touches bread then prepares my food its all over for me 6-8 hrs of reaction for me. Also Jimmy Johns @ 17th and Peachtree Street also great just tellm'to change glove and ask for the paper to be placed on the sandwich board before they make it. Also never had an issue but I have only had the Italian style lettuce wrap.
  8. Another link: http://naldc.nal.usda.gov/download/7351/PDF
  9. Thanks for posting. I know it is difficult to talk about these sorts of things even on a webforum. It is good thing for people to be aware though about celiac disease and that it can cause mental problems. Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts. My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away. It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety. I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten. Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful. I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor. I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot. This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies. Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills) very well, and do better on an activated form of vitamin b. I take: 1 activated vitamin b12 daily 1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin 1 magnesium pill every day. St Johns Wort daily. 1 zinc vitamin daily I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. I think each of these helps lower my anxiety level. I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy. I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided. I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped. I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain. My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover. Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
  10. Thank you. This is really helpful. I will call around next week. I just want to heal!
  11. Yesterday
  12. My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative... Im trying to figure out why i have decreased folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to me.. would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
  13. Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
  14. Thanks for replying. I have been a vegetarian for 31 years, I guess my diet now means I am a vegan but not by choice. Blood tests have picked up a lack of protein and I have seen a dietician who said she couldn't help me and referred me to a specialist who deals with IBS, which I don't understand as I don't have that. I don't know my blood glucose levels but I think I will find out. I know Hashimoto's and type 1 diabetes is common in Celiac's, I asked my doctor for a thyroid antibodies test but he refused but I'll ask for the type 1 diabetes antibodies test. Thanks again.
  15. Hi thanks for this. The kidney function test I a few weeks ago came back normal but there was a question mark over ketones, they said it was all okay, then last week the doctor rang me as there was ketones in a urine sample and I have to repeat the test next week. I'm a bit confused if they weren't worried about the blood test. I feel for your brother, that sounds awful what he's been through. I have started to get some pain in the leg that is permanently numb, I really hope I find some answers soon. Thanks again.
  16. I haven't seen my gastroenterologist for a few years. I was diagnosed celiac and have been gluten free for more than 5 years. I've been having trouble again for the past 6 months or so. I've done a full elimination diet and have come up with the culprit - eggs! I did a search of the forum here and have found it's not uncommon for people with celiac to develop a sensitivity to eggs. I can forego eating eating eggs but It's getting to be flu season. I was planning on getting my flu shot today, as usual, at work. The pre-shot questionnaire asks if I have an allergy to eggs. As, I have never been tested, I don't know if this is really an "allergy". I asked the nurse about it. She said that if I do have an allergy to eggs, it could be dangerous to get the vaccine. So, I didn't ended up not getting the vaccine. Anyone else in this boat. Has anyone actually been tested for egg allergy? Any advice as it pertains to the flu vaccine?
  17. Thanks for replying. You've been very helpful and given me some ideas of trying a few foods in small amounts. I wish I had rotated food months ago then it might not have got so bad. Thanks again and I wish you well.
  18. Until my recent blood test results I've been having cinnamon and mint tea in the mornings, which seemed to have a positive effect calming the digestive system (and tastes good too!) After the first step of diagnosis with high Iga TTg I took at look at the cinnamon sticks I make the tea with and it says "packed in a factory that may contain wheat, corn etc. etc." so that I guess would sound alarm bells for many I reckon. That said I'd imagine the way most of these herbs and spices are harvested isn't exactly gluten-free friendly yet I've seen quite a few recipes using it. How are people getting around this as I can't see any specific gluten-free certified cinnamon products out there? Really could do with my tea back P.S. I also have chamomile tea using the raw flowers which may have a similar background but seem to be less of a risk somehow?
  19. If I do have to go back on gluten for a bit it'll at least be a temporary relief from the withdrawal symptoms (or at least what I hope are just withdrawal symptoms). Today's returning malady is acid reflux, something I'd thought I'd seen the back of recently. Really need that to calm down as PPIs the doctor gave before were evil medication and caused 10x more problems, possibly the worst I've ever felt whilst on those so won't be going back there! Although the scales seem to have stabilised in terms of weight loss in myself I feel like I'm wasting away at present, what with the random pulling sensations in muscles and tender head area I'm just scared for what other illnesses may be laying in wait related to the celiac genes Think I'll head back for the ESR and CRP blood tests next week as the shoulder and temple pains are really worrying me right now, could just be the gluten intolerance but the other options are terrifying if not caught early. So much uncertainty, apart from the fact that none of this ever gets fully better (if at all)...
  20. You're welcome! Good luck! And if you get nowhere there, remember, the higher you go, the nicer they get. Skip straight up to the top brass.
  21. I'm sorry you've been having such a rough time. I'm thinking you may have accidentally ingested something containing gluten, and that's what caused your reaction. A lot of people will react quite severely to even a tiny bit of gluten. That's why there is so much on here about avoiding cross contamination. Even though you've been diagnosed with NCGS, you still need to live as though you have actual celiac disease, and be very careful not to cheat. Your body will punish you for it. :/ In the meanwhile, nurture yourself kindly and gently, just as you would after a severe bout of food poisoning or intestinal infection. Comfort foods, like broths and soups and smoothies. You might want to avoid lactose for a few months too. Sometimes we lose our ability to digest lactose when our intestines are damaged and vulnerable like yours is right now. And remember healing takes time. So does learning the gluten free lifestyle. Expect some setbacks occasionally. You WILL get better!
  22. This week in celebrity gluten-free news, Kourtney Kardashian has put her family on a gluten-free, dairy-free diet. View the full article
  23. Are you vegan or vegetarian? I am concerned about your lack of protein and fats in your diet. These diets can work when you are also gluten free, but as a celiac you can be malnourished. It is hard to heal when you are slowly starving yourself. No offense, but some newly diagnosed celiacs end up with food disorders. Perhaps working with a dietician can help. What actually are your blood glucose levels? Did you know that just as Hashimoto's is common with celiacs, so is type 1 diabetes? Ask your doctor for antibodies testing for Type 1 diabetes (TD1), if your blood glucose levels are not in the normal range. You can develop TD1 (LADA) at anytime. For adults there is a "honeymoon" period which can last for up to five years. Be on the watch for other AI issues (besides TD1) too. It is so important to monitor your health after a celiac disease diagnosis!
  24. He was not IGA deficient. I'm still hoping we can convince the base GI to approve his referral. Thanks for that thread about TTG Igg. That's exactly what I was wondering.
  25. Star Anise Foods rice paper and spring rolls are gluten free they have brown and white rice versions. I have not had issues with these in the past when I used to use them. Should be able to find them on amazon.
  26. Hi strawberrymoon, If you are having a blood sugar problem, that can cause nerve damage and tingling. Nerve damage is often associated with diabetes. You can ask your doctor to check your A1C level to get an idea how it has been doing. It would probably help your glucose levels to stick with a paleo style diet, avoiding most carbs. Carbs and meats have a different affect on blood glucose. Carbs tend to spike blood glucose while meats even it out. There are a lot of negative changes that can happen with high blood glucose. It is wise to try and get it under control ASAP. My brother has lost most of his vision in one eye now from high blood glucose. And he has the tingling symptoms you described. The tingling can progress to pain in time. My brother chose to ignore his diabetes and is paying the price for it. He is doing better at it now but the damage is done. Yes, B-12 deficiency can cause those kind of nerve symptoms. But if you have high blood sugar that is the more common cause. Diabetes is not a rare condition.
  27. I have been living in Ho Chi Minh City, Vietnam, for two years, and finding gluten-free food is proving more difficult than I thought, even if I am cooking my own food. Wheat flour, called "bot mi" in Vietnamese, seems to creep into a lot of stuff nowadays. What's more, manufacturers do not feel it is important to list bot mi in the ingredients on a food's packaging unless it is a principle ingredient in the food. In other words, soy sauces or wraps with just a tiny bit of wheat flour added to add a touch of thickness or pliability are not guaranteed to list the ingredient. For some genetic reason, Vietnamese people are not nearly as susceptible to food allergies as Westerners - it probably has something to do with exposure to less hygenic foodstuffs having built up an immunity over hundreds of years - so it is not really considered important to split hairs in that department over here. Anyway, I love rice paper but have often gotten glutened by it when I have it. Can any celiac who could tell if a product had gluten by more than just the ingredient list on the back let me know a definitively gluten-free rice paper brand? I know that very few rice paper brands actually list wheat flour in the ingredients, but I don't 100% trust the ingredients list for products made by Vietnamese companies. Call me paranoid. By the way, I have a neurological condition that irreversably breaks down my immune system when I ingest gluten, so I don't want to experiment with trial by fire here.
  28. Yes like a protein powder. I visit a local store there is so many brands and on every brand have write gluten free.that's way I confused which one is best any suggestions !
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