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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

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  1. Today
  2. I had a hard time going gluten free until after indulging in something I had horrible stomach upset and diarrhea. And my diarrhea had blood in it. It was then I realized what was really going on inside that I couldn't see but was feeling. Since then I haven't had any temptations. Even cookies! Which I love. It was my light bulb moment. I think everyone needs that light bulb moment. Maybe this pizza could be yours. 
  3. I was tested in 2012 and my tests came back positive. But I never got my results. A few weeks ago I got the test results and the family doctor said I have celiac disease. I went gluten free and know when I have had gluten now. I feel so much better. But because I had such a long time before I got my results I got another test. That blood test came back normal even though I had not been gluten free much. I did one day without and then one day with. Back and forth. So at the time of testing I had done 2 days gluten free with 10 days of on and off gluten free before that. Is that enough to make my results go down to normal? Here they don't transfer you to a GI doctor for biopsy to diagnose.  The plus side is that my 2 year old was diagnosed and is doing much better. 
  4. Hi Everyone, This is my first post and I'm hoping someone can give me advice. I had a colonoscopy and egd done for multiple gastrointestinal symptoms I was  having and it came back indicating mild or beginning stages of celiac. I do not have a copy of the biopsy results but it said results indicated mild or beginning stages of celiac or other processes?? (something like that but I can't remember exactly what the nurse said). Anyway, they requested I get bloodwork done and the results are below:       Celiac Panel   Gliadin IgA 5 unit Gliadin IgG 4 unit Reticulin IgA Negative Reticulin IgA Add'l not indicated. Reticulin IgG Negative Reticulin IgG Add'l Not Indicated TTG IgA 1     These results are obviously negative but higher than my 2009 results when I was tested. Here are my 2009 results: Gliadin IgA <3 u/ml Gliadin IgG <3 u/ml Reticulin IgA <1:10 Reticulin IgG <1:10 TTG IgA <3 u/ml   What do you make of this? Should I be pursuing another diagnosis or asking for any more specific blood work to get a celiac dx? The biopsy indicated celiac but the bloodwork says otherwise. Thanks!      
  5. Yesterday
  6. Hi i'm new to this, my girlfriend has been diagnosed for 2 years now with celiac disease and with me being a  non celiac. I try my hardest to still keep eating gluten but also try to not get her sick.I'd rather have her happy and healthy than eat gluten though.  It's hard because i hate seeing her sick and miserable. Any suggestions would be great.  Along with the celiac disease my girlfriend is also allergic to yeast (cross reactive or it acts the same as gluten) and is also allergic to dairy,soy,peanuts,eggs.
  7. Food products like hot dogs, cookies and bread all have multiple ingredients which can play hell on a gut that is still struggling to heal.  Stick with fresh, whole, clean foods for at least 6 months and then slowly introduce one of your favorite goodies, like a hot dog, and see how you do.   If a food product has ingredients, then it is not a whole clean food.  Bake a piece of chicken with some spices, roast or steam some veggies, bake a sweet potato & pour a little coconut oil on it.  Yummy, good for you and ingredient free!  Help for your healing gut!
  8. I was going to say the same as bartfull... Clean, whole and fresh foods.  Nothing processed.
  9. This happened to me last week.  Last time I was glutened was 2 years ago and I was so sick I wanted to curl up & die.  Last week we ate out at out usual restaurant, I had my usual pasta dish and down at the bottom of the bowl was a wheat noodle.  I looked at that & felt the cold chills of fear!   Of course the manager was beside himself over how it could have happened, but long story short....I did not get sick.  I was a little extra tired and blah feeling the next day, but nothing I could point my finger at and say glutened!!    My only thought here is that maybe (I hope, I hope) my guts are finally healing.  Not that I would ever knowingly cheat, just, hooray that I am healing. 
  10. I used Vanilla Chex for the crust. Just butter and the chex. no sugar the chex is really sweet.Baked it at 350  for 8 min(used the basic recipe in the forum already just no sugar).   then i made the blueberry filling  here's the link for that then i made up some more of the chex and butter and put little pieces of it over the top kinda like a crisp or cobbler vibe. use the food processor for crust and topping .. then after i put in the filling and put on the topping put it in oven for about 20 minutes at 400.
  11. I have purchased Domino's Gluten Free  three times and had no problems.  Maybe cross contamination, just a guess.     
  12. I found this link for egg noodles.  
  13. Hi, I found this post when searching about the thirst that I get (mostly at night) and this is the first thread thread that describes a similar symptom: extreme pseudo-thirst in the back of my mouth, top of my throat and my tongue, while my salivary glands are working just fine, and no amount of water seems to make an impact. I've been dairy- and gluten-free for 6 months to see if it makes a difference but it hasn't. Have you found anything else out about your symptoms? Could there be another food that is causing it?
  14. I haven't been diagnosed with celiac because I haven't had the testing done. But I was diagnosed with a gluten "sensitivity" via saliva. I've been seeing a functional dr because of issues that came out of nowhere 4.5 months ago (anxiety attacks, insomnia, off balance feeling, fatigue, weakness and sudden weight loss). He ran a bunch of blood work and a 24 HR saliva test (which also checked cortisol levels). Turned out I also have a vit D deficiency (17.4), problems digesting protein and high am cortisol. So I'm on 5,000 I/U a day of vit d3 w/vit K, digestive enzymes and Adrenacalm cream.    I've now been gluten-free free for 6 days but not worrying about cross contamination because I didn't know about it until reading this board. My dr mentioned nothing about it. I can honestly say I feel no better and in fact my off balance feelings and energy levels are worse! Last week I was starting to feel a lot better but between the diet changes and supplements I'm worse (I've lost weight again despite trying to keep up my calories).   I have read withdrawal can mimic these things I'm feeling but can it make already existing issues worse?  Thanks everyone! Looking forward to "meeting" you all!!! 
  15. This Peruvian-style soup incorporates rice, corn, peas, and other vegetables, along with a bit of serrano chili for a nice snap. View the full article
  16. Greetings from St Petersburg Florida!

    Actually, St. Pete is where I was when I became so sick from Celiac that I lost my ability to work!  Yep.  Lost my job, my profession.  I tried everything to get a diagnosis.  I heard lots of "That's very interesting; but I don't know what it means."  Gosh, I hope I never hear that again!  Took me another 10 years and moving to another state to get properly diagnosed.  Still unable to work. I tell you this not to freak you out; but to impress upon you that Celiac and being gluten free are very, very serious things.  Given your age, I'm certain your outcome will be much brighter.  Much, much brighter.
  17. Greetings from St Petersburg Florida!

    MissL101, Welcome!  Hopefully, you'll be like the vast majority of people on the site who started feeling better pretty quickly and advanced to feeling even better soon--as in weeks to months!  I'm assuming you'll be "one of them" since you're only 22.  Consider yourself very lucky to be taking steps at such a young age to help your body heal. I realize there's a lot of stuff to miss.  But, I'd give most anything to be back in St. Pete!  We lived there 13 years and loved every single minute.  Perfect weather, nice & relaxed people.  (We left to be close to the best medical help for my husband's situation.) Oh my God, how I miss the bakery at Publix!!!  I was a frequent flyer.  A very frequent flyer.  Never used to make me sick--as far as I knew!  Alas, now I can't tolerate sugar, dairy, nightshades, soy, or ANY grains.  Rats!  Still, I maintain hope that I will get well--or at least much better. So go out into the sunshine and the gentle breezes; and take a walk on the beach for me.  I can smell the air now.  Mmmmmmmm.  Love it!  Sorry, I digress.  Hopefully, you can enjoy your Against the Grain pizza and your beer.  It makes me feel good just imagining you enjoying these things.  So, ENJOY!!!!!!
  18. How Can I Find A Good Doctor In Colorado?

    I'm curious if anyone has a good GI doctor in or around the Denver Metro area? If so, I am in need of one. I've been gluten free for 3 years (never tested for celiac just knew my hand rash went away with not eating gluten).  After two rounds of antibiotics last Feb I developed a white appearance towards the back of my tongue that did not clear with Diflucan or Nystatin, so was ruled to be "hairy tongue." A few months after I started to have extreme bloating and diarrhea after very small amounts of dairy. I've seen a GI doctor, but after 1 visit and no tests was told I have IBS and should take fiber.  I stopped dairy last week and symptoms are gone. Not sure why I suddenly can't tolerate dairy and part of me thinks, great what will be next. I would love to have a provider that could help me make sense of all this. 
  19. Greetings from St Petersburg Florida!

    Hello MissL from a fellow Floridian. I'm in north central FL. Yes, you can enjoy pizza again! Your local Publix carries Against The Grain gluten-free pizza & it's delicious! Sometimes you have to look hard for it. In my Publix it is on the top shelf in the freezer & instead of standing up, the boxes are laying down which makes them easily missed if you don't know exactly where to look and how. Here's a link so you know what it is: Scroll down to the pizzas. Being in St. Pete, your stores may have/probably have a greater selection of Against The Grain products. One tip on the pizza --- get yourself a perforated pizza pan, you can pick them up for around $8. it will make all the difference in the crust. And the only gluten-free beer my Publix only carries is New Grist. it's decent but I was never a fan of beer --- gee, I wonder why? Please be sure to read the Newbie 101 in the coping section. Welcome to the club. As stated by Darrin, you will adjust and be fine. In fact, you'll be better than fine because you will be WELL. Cheers!
  20. Greetings from St Petersburg Florida!

    Yup it sucks. I found the worst thing was the loss of convenience to go out and eat without having to screen everyone and everywhere you you go to determine if it's safe. Pizza is basically ruled out completely since they have flour in the air. Beer....*sniff*... I miss it although there's a couple decent gluten-free ones. Omission lager is the best I've found and you can get it at publix.. Just remember your health comes first, learn as much as you can about getting gluten-free ( I did research for a week before I made the change so I could do it completely in one shot). You will adjust and you will be fine. Chin up!
  21. Tried this restaurant twice. Tummy ache both times. Will not go back.
  22. Steak And Shake?

    I got fries and a salad last spring. Very sick afterwards. Will not go back.
  23. How do you know they are returnable on Amizon?  
  24. Welcome to the site, Christi.  The gluten takes a bit to get out of your system so there's no option of "sneaking" a little gluten treat and going back to nursing.  Oh, how I wish it was a simple pump and dump situation!!   If you truly think your boy is having an issue with gluten you might want to "gluten light" him for the time and then consider blood testing him in the future.
  25. Update:  I've been taking these probiotics for the past few days, and am so happy with them.  I feel so much better and have had no negative effect from them at all.  I am so sensitive to soy and gluten and these really agree with me.  
  26. I was recently diagnosed with gluten intolerance and soy intolerance.  I feel,so much better since cutting those foods out.  But every so  often, something else causes more reactions, and lately, I've identified it as Xanthan gum.  It must be derived from either gluten or soy.  I'm glad to know what it is but disappointed that it makes finding foods I can eat that much more difficult.  Am I the only one?
  27. Hello! I'm 22 living in St Pete and I just found out I can never enjoy pizza without pain :'(     
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