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  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

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    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

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    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

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    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

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    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

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    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

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    11. Other Food Intolerance and Leaky Gut Issues

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    12. Gluten-Free Ingredients & Food Labeling Issues

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    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

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    14. Celiac Disease - Publications & Publicity

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    15. Dermatitis Herpetiformis

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    16. Gluten-Free Travel

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    17. Gluten-Free Diet & Weight Issues

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    18. Celiac Disease - Doctors

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    19. Celiac Disease - Teenagers & Young Adults Only

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    20. Gluten-Free International Room (Outside USA)

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    21. Celiac Disease - Pregnancy

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    22. Celiac Disease - Friends and Loved Ones of Celiacs

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    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

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    24. Celiac Disease - Sleep

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    25. Gluten-Free Sports and Fitness

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    26. Celiac Disease - Support Groups

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    27. Gluten Intolerance and Behavior

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    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  • Posts

    • Get your thyroid checked out in a thorough manner. It can cause really wacky stuff. And lots of folks with thyroid issues are gluten-free.  My brother had negative celiac bloodwork and a positive biopsy. My thyroid ultrasound presents like Hashimoto's but my serum levels are fine and I have normal thyroid antibodies. My neck hurts like hell though. I have also read that there are ttg antibodies which are not routinely tested for in the US. Ttg 6 has CNS involvement.  You can also be gene tested to possibly rule out celiac. My brother's son is gene positive, has confirmed food allergies and throws up if exposed to gluten. 
    • Hi everyone! I'm feeling very frustrated. I have been dealing with GI upset, bloating, very painful gas(that is hard to release), alternating from constipation to diarrhea for a long time now:(... my symptoms seem to be getting worse. Sometimes I get painful spasms located on my upper right quadrant of my stomach and low grade fever. I recently went to a GI doctor and he put me on a lactose free diet. He said I might be lactose intolerant and may have IBS. He did not think I would have celiac. I did relatively well on the lactose free diet for 2weeks.This diet alleviated some of my gas discomfort. Also, he had me get blood work for celiac, ulcerative colitis and H pylori. My bloodwork was positive for celiac disease. The antibody TTG was high 36.6, which is specific for celiac. My C-reactive protein was high as well 13.4--Norm is 2-7(C-reactive protein checks for inflammation anywhere in the body). They called me and told me I had to get an upper endoscopy, which biopsy showed up normal. So should I just leave it like that, or go to a different doctor and get a different opinion? I'm just wondering why TTG antibody-A  was elevated. I'm so frustrated and I really don't want my symptoms to get worse... is there a lot of false negative biopsy? What should I do:(??? Should I just give up...
    • It's all very frustrating.  I had the skin prick tests done last year and they told me I had no allergies, but I have reactions all the time, such as itching, watery, runny, itchy eyes, digestive issues, stomach cramps, IBS-type symptoms,  mental fogginess, etc.   I had blood tests done by a naturopath a few years ago and my worst food intolerance was wheat/gluten by far.  The naturopath found several other reactive foods but said most of them were mild compared to my reaction to gluten.  I looked online at the ingredients for both products, but it's confusing, the main ingredients shared by these two products were brown rice flour and potato starch.  I've used brown rice in baking with no problems, it could be the potato starch, which I don't often use, but I don't have any reaction to eating real potatoes.  
    • It starts as a piercing itch and the skin turns reddish with a few tiny red bumps. Then tiny watery vesicles appear and itch like crazy. The whole process from start to finish is about 3 weeks and the lesions leave a purplish skin tone and scab. I get them on the back side of both knees near the bend.  Sometimes it's just a few scattered vesicles in the same area. I've had Drs say eczema or herpes. My next step is to find a dermatologist familiar with dh. Thanks for the input.
    • DH can look like that but other things can as well. It would help if you described the way it acts/presents. You can get a dh biopsy. Read threads in this section to find out how the biopsy is done correctly. 
    • my celiac was triggered by pregnancy.  had no clue.  symptoms creeped up (started with indigestion, deemed as 'colitis' or 'ibs') but eventually all the ones you mentioned above all joined the party.  sounds like you are headed in the right direction.  one of the points of diagnosis is the reaction to the gluten-free diet.  keep digging.  half the people on here don't have a firm diagnosis (science really needs to catch up with this disease)  and a false negative blood test is fairly common, for whatever reason - if you've not been eating gluten every day for like 8 weeks, it may not detect antibodies, which is what these tests are measuring.  sorry you're having this dilemma!  hope you find some answers.
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