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  1. Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

        (179,494 visits to this link)

    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  • Posts

    • There is a low starch diet that is paleo with reduced or eliminated starch for people with ankylosing spondylitis, or any of the spondyloarthropathies. It was developed by Dr. Ebringer in London so it was at first known as the London Low Starch Diet. You can find out more information about it at a support group called Kickas dot org. I have axial spondyloarthritis and I do much better not simply gluten free, but low starch (grain free, legume free, and reduced starchy veggies and fruit). Best wishes!
    • Hello, I have a new possible Celiac diagnosis and was hoping y'all could help me! I am 25, and after going to see many different doctors with no real answers as to why I felt generally sick all the time (headaches, GI symptoms including stabbing stomach pains, weight fluctuation with no explanation, fatigue, brain fog, etc.). I went to a more homeopathic doctor a couple of months ago (still an MD) who was more receptive and ran a ton of tests. She diagnosed me with Celiac based on a blood test. I went off gluten (that was about 7 weeks ago) and while I did start to feel better (certainly less stomach pain & brain fog) I have also just felt like my body was completely knocked out of whack since then--weird issues with blood sugar where I've felt like I was going to faint sometimes, my period came two weeks early (rare for me), stomach not hurting but just acting bizarre, etc.  I went last week to a Celiac specialist. I know going off gluten before doing more testing was going to skew the results, but I couldn't get this appointment for 6 weeks after the initial diagnosis and I didn't want to wait. Plus, my sister has Celiac (diagnosed 6 years ago through blood tests--though we don't think she had the genetic test--& had an "inconclusive" biopsy--she has been generally symptom-free since going off gluten). So I went to talk the specialist and she agreed to do the blood tests again even though I'd been off gluten (personally I wanted to know if they had gone down, plus with 6 weeks of gluten I knew there was a chance they'd still be high). This doctor now says she wants me to try a gluten challenge and agree to do the tests again and the biopsy--but I am not super interested in that. It seems that she would still recommend never eating gluten again if additional tests were inconclusive, so I just don't know what the point would be. Every doctor I've been to said the endoscopy could be negative for damage and they'd still recommend not eating gluten.  I also have had some nutrient deficiencies in the past year. I became a vegetarian a year ago and three months ago a different doctor realized I had iron & B12 deficiencies (which she attributed to not eating meat though I was watching my diet very closely to make sure I was eating right... so that supported the next doctor's Celiac theory). So my iron & B12 went back up with supplements. I asked the Celiac specialist to do some other nutritional panels just to see, though, and my zinc was low (only one she did where I am not supplementing). I thought that was odd. Also, my CRP has decreased since going gluten-free which I found very encouraging (I have also been supplementing since August with turmeric, however).  Here are the relevant test results (as they appear on lab reports): Aug. 19, 2016 TTG igG - 10.2 U/ML (positive >9) High Sensitivity CRP - 5.0 MG/L (high >3.0) Oct. 18, 2016 (after about 7 weeks gluten-free) Deam Gliadin IgA Ab - 7 U (standard <20 U) Tissue Transglutaminase IgA Ab - 7 U (standard <20 U) Tissue Transglutaminase IgG Ab - 7 U (standard <20 U) C-Reactive Protein - 3 mg/L  (standard <5 mg/L) Zinc - 0.59 ug/mL (standard 0.66 - 1.10 ug/mL) Though I don't totally understand the new test results (and the doctor isn't going to discuss with me until our next follow up) my interpretation is my antibody levels are now normal, which would be consistent with going off gluten... I guess I am just generally frustrated. I would really like to "buy in" completely to the Celiac diagnosis and not have nagging doubts that there's still something else I need to be doing and I'm never going to feel better. I know going gluten-free can take more than 7 weeks to relieve symptoms, but it's hard when I still don't feel great. Also, for the record, I've had a sister with Celiac for 6 years, so I am very confident that I have actually been gluten-free for the past 7 weeks (it wasn't something totally new to me). The Celiac diagnosis FEELS more right to me than anything doctors have told me in the past, but it still feels like there's some piece missing, I guess. But maybe it just hasn't been long enough.  The Celiac specialist also started me on Xifaxin (antibiotic) for symptom management whether or not I have Celiac. Only been on it for a couple of days, though. I have also been trying digestive enzymes and have experienced some relief in the past week or so--one question I've been grappling with is whether I should eat meat for awhile--the veggie/bean heavy diet can't be easy while my stomach is supposedly healing--but I of course would rather not.  Any advice?
    • Hi, I went to a GI doctor in August 2014 because I was on NSAID medications and developed some anemia which led to a question of stomach bleeding, so he wanted to do an endoscopy on me to check my esophagus and to check for stomach bleeding.  I had NO SYMPTOMS of celiac or gluten intolerance at the time. During the endoscopy, he biopsied my small intestine because he noticed inflammation.  I already knew I had inflammation because I was being treated for RA with NSAID's which is what led me here to begin with.  After this biopsy, he called and said I should stop eating gluten right away.  He asked me to come in for blood work to confirm celiac disease and I did and he said it was confirmed.  I don't know how the blood test works or what they look for, but hearing this news was a shock since I had no symptoms. Never the less, I stopped eating gluten COMPLETELY and officially in October of 2014 (2  years ago).  It has been very difficult.  I'm extremely careful when I'm going to go out to dinner or when I buy groceries and I always either read the ingredients or, if we're going to dinner, I talk to the manager about their policy on gluten-free. My inflammation never got better after this.  At least not in my connective tissue and joints.  Since I wasn't having symptoms of celiac to begin with, nothing about my digestion changed either.  In fact, I noticed more problems after cutting wheat out. I'm thinking about slowly reintroducing wheat to check for a reaction.  Mind you it's been TWO YEARS since I ate anything with wheat, barley or rye.  I did eat something with malted barley by accident about 4 months ago and nothing happened. I'm just wondering if anyone here who was diagnosed with celiac has tried to reintroduce wheat into their diet and been successful.  Thanks for reading!
    • 12 year old diagnosed celiac daughter has "fallen off" the weight curve.  She eats but very small quantities. (Please don't suggest high calorie shakes..foods etc ... already doing all of that).  So far we've had negative results on gastric emptying, endoscopy, colonoscopy, etc.  Going to do Small Bacterial Overgrowth test, impedance test, redo gastric emptying (doc feels previous hospital did it incorrectly).  Gastro is very worried about her growth.  She has not gained any weight this year. Extremely slow weight gain previous years. Celiac is controlled. Tried EVERYTHING with diet.  Really wants to do an naso gastric feeding tube to give highly caloric/nutritious liquid feeding directly to her stomach.  Has anyone had experience with this?  Good? Bad?  Please respond only if you or someone you know has actually done this.  Thank you!  
    • People with food allergies, specifically Celiac disease or gluten intolerances, will have a safe place to sample food at the fifth annual Indianapolis ... View the full article
    • We're all aware of how ##gluten free foods are the new cool. ... Where it is a great news for people who suffer from celiac disease or gluten intolerance ... View the full article
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