General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.
Just adding to what others have said. It does take some time but it's likely you will start to feel better. It took me about a year but now I feel great. A good probiotic might help. I use one from Synergy that my naturopathic doctor sells at her office. I have gotten in the habit of emailing restaurants before I try them and have had very good luck. One owner of a very popular restaurant in my area took the time to reply and said she had Celiac disease (she sent great detailed info about their food). Many of the people responding will even tell you who to ask for when you come in. Good luck and hoping you feel better soon.
Thanks heaps. I will def be going private if the wait is too long. I have done a little research but i thought a gluten intolerance and coeliac was the same lol. My iron levels are just below average apparently but she said not bad enough for me to be this tired.
DH is celiac disease that appears on the skin (gluten triggered). It does not appear when you are consuming dairy, which sounds like a separate issue for you. A DH biopsy requires active lesions (new/fresh) from consuming gluten. So, if you want to be tested via a skin biopsy you must go back on gluten. Finding a dermatologist who knows exactly how to biopsy for DH is often difficult. Be sure your Derm is knowledable and has biopsied for DH before.
Why no endoscopy for now? I bet your GI knows that your insurance will deny the endoscopy. After all, you tested negative to the blood panel. Your GI should not even ordered the blood panel knowing that you had been gluten free for months. You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.
Did you ever test positive? Why did your primary diagnose you? Having the gene just means you can develop celiac disease. Some 30% of the population carries the genes. The gene test should only be used to help rule out celiac disease.
Hello cycling lady, have you noticed my picture is showing up as you? Have no idea why but it's rather disconcerting to see my picture and your words 😉 Do you know how to fix it? You seem to have far more experience with this board than I do
Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
Here is the link if you have never watched it.